Browse Items (247 total)
- Tags: Infant, Newborn
Patterns of paediatric end-of-life care: A chart review across different care settings in Switzerland
Tags: 103-90-2 (paracetamol), 2018, Adolescent, Aebi C, Ansari M, Article, Baer R, Bergstraesser E, Bernet V, Bmc Pediatrics, Brazzola P, Bucher HU, Buder R, Cagnazzo S, Cardiology, Cause Of Death, Child, Child Care, Child Death, Cignacco E, Cohort Analysis, community care, Dinten B, Dorsaz A, Drug Use, Elmer F, Engberg S, Enriquez R, Eskola K, Fahrni-Nater P, Female, Finkbeiner G, Frey B, Frey U, Greiner J, Hassink RI, Health Care Utilization, Home Care, Hospital Admission, Human, Infant, Intensive Care Unit, invasive procedure, Keller S, Kretschmar O, Kroell J, Laubscher B, Leibundgut K, Length Of Stay, Life Sustaining Treatment, Major Clinical Study, Malaer R, Male, Medical Record Review, Meyer A, narcotic analgesic agent, Nelle M, Neonatology, Neuhaus T, Neurology, Newborn, Niggli F, October 2018 List, Oncology, Paracetamol, Perrenoud G, Pfammatter JP, Plecko B, Popovic MB, Ramelet AS, Resuscitation, Retrospective Study, Rupf D, Sennhauser F, September 2018 List, Stade C, Steinlin M, Stoffel L, Stuessi C, Switzerland, Terminal Care, Thomas K, Treatment Withdrawal, Von der Weid N, von Vigier R, Vonarburg C, Wagner B, Wernz B, Wieland J, Zimmermann K
Childhood idiopathic thrombocytopenic purpura in the Nordic countries: epidemiology and predictors of chronic disease
Tags: 2005, Acta Paediatrica, Acute Disease/epidemiology, Adolescent, Backlog, Child, Chronic Disease/epidemiology, Female, Finland/epidemiology, Hedlund-Treutiger I, Hemorrhage/epidemiology/etiology, Henter JI, Humans, Iceland/epidemiology, Idiopathic/complications/diagnosis/epidemiology, Incidence, Infant, Jonsson OG, Journal Article, Male, Newborn, Nonparametric, NOPHO ITP, Preschool, Prognosis, Prospective Studies, Purpura, Rajantie J, Risk Factors, Scandinavia/epidemiology, Statistics, Tedgard U, Thrombocytopenic, Wesenberg F, Zeller B
Evaluation of heart murmurs in children: cost-effectiveness and practical implications
Tags: 2002, Adolescent, Backlog, Cardiology/economics, Child, Child welfare, Comparative Study, Cost-Benefit Analysis/economics, Decision Support Techniques, Echocardiography/economics, Electrocardiography/economics, Heart Murmurs/diagnosis/economics/epidemiology, Humans, Infant, Infant Welfare, Journal Article, Kimball TR, Kotagal UR, Mrus JM, Newborn, Non-U.S. Gov't, Pediatrics/economics, Preschool, Prevalence, Radiography, Referral and Consultation/economics, Research Support, Sensitivity and Specificity, The Journal Of Pediatrics, Thoracic/economics, Tsevat J, Yi MS
Natural history of trisomy 13
Tags: 1994, Adult, Archives of Disease in Childhood, Backlog, Burn J, Chromosomes, Congenital/diagnosis/genetics/mortality, England/epidemiology, Female, Fetal Diseases/diagnosis, Heart Defects, Human, Humans, Hunter S, Incidence, Infant, Journal Article, Longitudinal Studies, Male, Neural Tube Defects/diagnosis/genetics/mortality, Newborn, Pair 13, Pregnancy, Prenatal Diagnosis, Syndrome, Trisomy, Wright MJ, Wyllie JP
Death in the neonatal intensive care unit: changing patterns of end of life care over two decades
Tags: 2006, Archives of Disease in Childhood. Fetal and Neonatal Edition, Backlog, Campbell NT, Cause of Death/trends, Chromosome Aberrations, Dargaville PA, Diseases/mortality, Fitzsimons JJ, Hospital Mortality/trends, Humans, Infant, Infant Mortality/trends, Intensive Care, Intensive Care Units, Journal Article, Loughnan PM, McDougall PN, Medical Audit, Mills JF, Neonatal/trends, Neural Tube Defects/mortality, Newborn, Premature, Prognosis, Terminal Care/trends, Victoria/epidemiology, Wilkinson DJ, Withholding Treatment/trends
Morbidity and mortality in medium chain acyl coenzyme A dehydrogenase deficiency
Tags: 1994, Acyl-CoA Dehydrogenase, Adolescent, Archives of Disease in Childhood, Backlog, Child, Deficiency Diseases/epidemiology, Fatty Acid Desaturases/deficiency, Hammond J, Hemiplegia/complications, Humans, Inborn Errors/epidemiology/mortality, Incidence, Infant, Journal Article, Lipid Metabolism, Morbidity, New South Wales/epidemiology, Newborn, Preschool, Prognosis, Q3 Scoping Review Results, Silink M, Wilcken B
Cultural and religious considerations in pediatric palliative care
Task force 1: the changing profile of congenital heart disease in adult life
Tags: 2001, Adolescent, Adolescent Transitions, Adult, Aged, Backlog, Child, Congenital/mortality/rehabilitation, Cross-sectional Studies, Danielson GK, Dore A, Female, Great Britain/epidemiology, Harris L, Heart Defects, Hoffman JI, Humans, Incidence, Infant, Journal Article, Journal of the American College of Cardiology, Liberthson R, Male, Middle Aged, Newborn, Patient Care Team, Preschool, Prognosis, Somerville J, Survival Rate, United States/epidemiology, Warnes CA, Webb GD, Williams RG
Childhood and adolescent cancer statistics, 2014
Tags: 2014, Adolescent, American Cancer Society, Backlog, Ca: A Cancer Journal For Clinicians, Centers for Disease Control and Prevention (U.S.), Child, DeSantis C, Female, Humans, Incidence, Infant, Jemal A, Journal Article, Kohler B, Male, National Cancer Institute (U.S.), Neoplasms, Newborn, Preschool, Registries, Risk Factors, Robbins A, SEER Program, Survival Analysis, United States, Ward E, Young Adult
Death in the intensive care nursery: physician practice of withdrawing and withholding life support
Tags: 1997, Backlog, Death and Euthanasia, Decision Making, Empirical Approach, Euthanasia, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Life Support Care, Life Support Systems, Medical Futility, Newborn, Partridge JC, Passive, Pediatric, Pediatrics, Quality Of Life, San Francisco, University of California, Very Low Birth Weight, Wall SN
Congenital malformations of the central nervous system in a 1-year birth cohort followed to the age of 14 years
Tags: 1986, Abnormalities, Adolescent, Backlog, Central Nervous System/abnormalities, Child, Child's Nervous System, Disabled Persons, Follow-up Studies, Humans, Hydrocephalus/congenital, Infant, Journal Article, Meningomyelocele/diagnosis, Multiple/diagnosis, Newborn, Preschool, Q3 Scoping Review Results, Rantakallio P, von Wendt L
The Groningen protocol--euthanasia in severely ill newborns
Tags: 2005, Backlog, Death and Euthanasia, Euthanasia/ethics/legislation & jurisprudence, Humans, Infant, Intensive Care/ethics/legislation & jurisprudence, Journal Article, Netherlands, Newborn, Practice Guidelines, Prognosis, Sauer PJ, The New England Journal Of Medicine, Third-Party Consent/legislation & jurisprudence, Verhagen E
Categorizing neonatal deaths: a cross-cultural study in the United States, Canada, and The Netherlands.
Tags: 2010, Andrews B, Artificial, Backlog, Bos AF, Canada, Cross-cultural Comparison, Decision Making, Diseases/mortality, Female, Gestational Age, Humans, Infant, Intensive Care Units, Janvier A, Journal Article, Lagatta J, Leuthner SR, Male, Meadow W, Neonatal, Netherlands, Newborn, Physician Assisted Dying PAD, Respiration, Terminal Care, The Journal Of Pediatrics, United States, Verhagen AAE, Withholding Treatment/statistics & Numerical Data
Why Do Neonatologists in Scandinavian Countries and the Netherlands Make Life-and-death Decisions So Different?
Tags: 2018, Attitude Of Health Personnel, Clinical Decision-Making/mt [Methods], Humans, Infant, Infant Care/mt [Methods], Infant Care/px [Psychology], Infant Care/st [Standards], July 2019 List, Neonatologists/px [psychology], Neonatologists/st [Standards], Netherlands/ep [Epidemiology], Newborn, Pediatrics, Scandinavian and Nordic Countries/ep [Epidemiology], Survival Rate/td [Trends], Verhagen A A E, Withholding Treatment/st [Standards]
Long-chain 3-hydroxyacyl-coenzyme A dehydrogenase deficiency with the G1528C mutation: clinical presentation of thirteen patients
Tags: 1997, 3-Hydroxyacyl CoA Dehydrogenases/deficiency, Backlog, Cardiomyopathies/etiology, Fatal Outcome, Female, Humans, Hypoglycemia/etiology, Inborn Errors/complications/diet therapy/genetics, Infant, Jackson S, Journal Article, Lipid Metabolism, Liver Diseases/etiology, Male, Muscle Hypotonia/etiology, Mutation, Newborn, Palotie A, Pihko H, Q3 Scoping Review Results, Retinal Diseases/etiology, Salo MK, The Journal Of Pediatrics, Tyni T, Valanne L, Venizelos N, Viinikka L, von Dobeln U, Wanders R
Pediatric cardiopulmonary resuscitation: advances in science, techniques, and outcomes
Tags: 2008, Animals, Backlog, Berg RA, Blood Pressure, Cardiopulmonary Resuscitation, Child, Extracorporeal Membrane Oxygenation, Heart Arrest/epidemiology/mortality/physiopathology/therapy, Humans, Infant, Journal Article, Life Support Care, Magnetic Resonance Imaging, Nadkarni VM, Nerve Growth Factors/blood, Newborn, No-Reflow Phenomenon/physiopathology, Pediatrics, Premature, Prognosis, Quality Of Life, Regional Blood Flow, S100 Proteins/blood, Topjian AA, Vascular Resistance, Ventricular Fibrillation/epidemiology/physiopathology
Chinese Neonatal Nurses' Lived Experiences of Providing End-of-Life Care in the NICU: A Descriptive Phenomenological Study
Pediatricians' attitudes affecting decision-making in defective newborns
Tags: 1977, Abnormalities/therapy, Adult, Age Factors, Attitude Of Health Personnel, Backlog, Decision Making, Empirical Approach, Ethics, Female, Howell MC, Humans, ICU Decision Making, Infant, Journal Article, Krane D, Male, Medical, Middle Aged, Newborn, Parental Consent, Pediatrics, Pediatrics/standards, Questionnaires, Religion, Sex Factors, Shannon DC, Todres ID, Withholding Treatment
Methadone as treatment for iatrogenic narcotic dependency in pediatric intensive care unit patients
Tags: 1990, Analgesics, Backlog, Cardiac Surgical Procedures, Critical Care Medicine, Female, Haun SE, Humans, Infant, Journal Article, Male, Methadone/therapeutic use, Newborn, Opioid/adverse effects/therapeutic use, Pain, Postoperative/drug therapy, Schleien CL, Substance Withdrawal Syndrome/drug therapy, Substance-Related Disorders/drug therapy, Tobias JD
Sleep disturbances in children, adolescents, and young adults with severe psychomotor impairment: impact on parental quality of life and sleep
Tags: 2014, Adolescent, Adult, Backlog, Blankenburg M, Caregivers, Child, Developmental Medicine and Child Neurology, Female, Health Status, Humans, Infant, Journal Article, Male, Michel E, Newborn, Parents, Preschool, Psychomotor Disorders, Quality Of Life, Questionnaires, Retrospective Studies, Sleep Disorders, Tietze AL, Young Adult, Zernikow B
Memory making in neonatal end-of-life care
Being a Parent: Findings from a Grounded Theory of Memory-Making in Neonatal End-Of-Life Care
Memory-Making in Neonatal End-of-Life Care
Creating evidence: Findings from a grounded theory of memory-making in neonatal bereavement care in Australia
Ethics Roundtable: How Much is Too Much?
Tags: 2023, American Journal of Hospice and Palliative Medicine, Carmi syndrome, Carter B, DiBartolomeo M, end-of-life, epidermolysis bullosa, Ethics, February List 2023, Gastric Outlet Obstruction, Hays J, Humans, Infant, Life-limiting Condition, Newborn, Palliative Care, Premature Ectodermal Dysplasia Pylorus/abnormalities, Theodoro MF
Unusual clinical presentations in four cases of Leigh disease, cytochrome C oxidase deficiency, and SURF1 gene mutations
Tags: 2005, Akman HO, Backlog, Bonilla E, Cytochrome-c Oxidase Deficiency/complications/genetics/pathology, De Vivo DC, DiMauro S, DNA Mutational Analysis, Female, Frameshift Mutation, Humans, Infant, Journal Article, Journal of Child Neurology, Kidney Diseases/etiology, Leigh Disease/complications/genetics/pathology, Male, Membrane Proteins, Mitochondrial Proteins, Morales A, Morales JF, Muscle, Newborn, Phenotype, Proteins/genetics, Q3 Scoping Review Results, Sacconi S, Shanske S, Skeletal/pathology, Tay SK
Care goals and decisions for children referred to a pediatric palliative care program
Tags: 2011, Adolescent, Backlog, care goals, Ceneviva GD, Child, Decision Making, Felker P, Female, Goals, Hahnlen NC, Health Status, Humans, Infant, Journal Article, Journal of Palliative Medicine, Life-limiting Conditions, Male, Newborn, Palliative Care, Pediatrics, Preschool, Quality Of Life, Referral And Consultation, Shaffer ML, Tamburro R F, Therapeutic Processes, treatment decision making, Young Adult
Beta-endorphin concentration after administration of sucrose in preterm infants
Tags: 2003, Administration, Archives Of Pediatrics & Adolescent Medicine, Backlog, beta-Endorphin/blood, Biomarkers of Pain, Female, Humans, Infant, Intensive Care, Journal Article, Katz J, Male, Newborn, Oral, Pain Measurement, Pain/drug therapy/etiology, Premature, Prospective Studies, Shah P, Shah V, Sucrose/administration & dosage, Taddio A
Aromatic L-amino acid decarboxylase deficiency: overview of clinical features and outcomes
Tags: 2003, Age of Onset, Annals Of Neurology, Aromatic-L-Amino-Acid Decarboxylases/cerebrospinal fluid/deficiency/genetics, Autonomic Nervous System Diseases/genetics/physiopathology, Backlog, Child, Consanguinity, Female, Hemodynamics/physiology, Humans, Hyland K, Infant, Journal Article, Longitudinal Studies, Magnetic Resonance Imaging, Male, McKenna CE, Movement Disorders/genetics/physiopathology, Nervous System Diseases/cerebrospinal fluid/genetics/physiopathology, Newborn, Nitroprusside/diagnostic use, Pedigree, Preschool, Q3 Scoping Review Results, Saul JP, Speller NB, Swoboda KJ, Treatment Outcome, Vasodilator Agents/diagnostic use
Gastrostomy tube feeding in children with cerebral palsy: a prospective, longitudinal study
Tags: 2005, Adolescent, Alder N, Anthropometry/methods, Bachlet AM, Backlog, Body Height/physiology, Cerebral Palsy/classification/nursing/surgery, Child, Child Development/physiology, Demography, Developmental Medicine and Child Neurology, Eltumi M, Enteral Nutrition/methods, Female, Gastrostomy/methods, Grant HW, Head/growth & development, Humans, Infant, Journal Article, Juszczak E, Lambert B, Longitudinal Studies, Male, McLean L, Newborn, Nutritional Status/physiology, Preschool, Retrospective Studies, Sullivan P, Thomas AG, Time Factors, Treatment Outcome, Vernon-Roberts A, Weight Gain/physiology
Nature of conflict in the care of pediatric intensive care patients with prolonged stay
Tags: 2003, Backlog, Brennan T, Burns JP, Case-Control Studies, Communication Barriers, Dissent And Disputes, Family/psychology, Female, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Length of Stay/trends, Male, Mello MM, Newborn, Patient Care Planning/trends, Patient Satisfaction/statistics & Numerical Data, Pediatric Nursing/trends, Pediatric/trends, Pediatrics, Physician-patient Relations, Predictive Value of Tests, Prospective Studies, Puopolo AL, Studdert DM, Truog RD, Withholding Treatment/trends
Prognosis for survival and improvement in function in children with severe developmental disabilities
Tags: 1997, Age Distribution, Ashwal S, Backlog, California/epidemiology, Child, Cohort Studies, Developmental Disabilities/mortality, Eyman RK, Follow-up Studies, Human, Infant, Journal Article, Journal of Pediatrics, Newborn, P.H.S., Preschool, Prognosis, Severity Of Illness Index, Shavelle R, Strauss D, Support, Survival Rate, U.S. Gov't
Follow-up in children with Joubert syndrome
Tags: 1997, Adolescent, Adult, Ataxia/diagnosis/genetics/physiopathology, Backlog, Boltshauser E, Cerebellum/abnormalities, Child, Cross-sectional Studies, Developmental Disabilities/diagnosis/genetics/physiopathology, Disease Progression, Disease Specific, Facies, Female, Follow-up Studies, Humans, Infant, Journal Article, Kidney Diseases/complications, Landau K, Male, Mental Retardation/complications, Mesencephalon/abnormalities, Muscle Hypotonia/diagnosis/genetics/physiopathology, Neuropediatrics, Newborn, Ocular Motility Disorders/complications, Preschool, Respiration Disorders/complications, Retrospective Studies, Schmid M, Steinlin M, Survivors/classification, Syndrome
Research in children: ethical and scientific aspects
Tags: 1999, Backlog, Child, Clinical Trials/st [Standards], Developing Countries, Ethics, Ethics Committees, Human, Infant, Informed Consent, Journal Article, Lancet, Medical, Newborn, Nontherapeutic Human Experimentation, Parental Consent, Pediatrics, Research, Research/st [Standards], Risk, Risk Assessment, Smyth RL, Weindling AM
The clinical spectrum of mitochondrial disease in 75 pediatric patients
Tags: 2003, Adolescent, Age of Onset, Backlog, Bernert G, Child, Clinical Pediatrics, Female, Humans, Infant, Journal Article, Konstantopoulou V, Male, Mitochondrial Diseases/diagnosis/epidemiology, Newborn, Plecko-Startinig B, Preschool, Q3 Scoping Review Results, Retrospective Studies, Skladal D, Sperl W, Stockler-Ipsiroglu S, Sudmeier C, Zeman J
Basic neonatal resuscitation skills of midwives and nurses in Eastern Ethiopia are not well retained: An observational study
Tags: 2020, Adolescent, Adult, Asphyxia Neonatorum/*therapy, Checklist, Clinical Competence, Cross-sectional Studies, Desalew A, Developing World 2020 List, Education, Ethiopia, Female, Geda B, Humans, Infant, Male, Mezmur H, Middle Aged, Midwifery/*education, Mulatu T, Neonatal Nursing/*education, Newborn, Nursing/statistics & numerical data, PLoS One, Pregnancy, Resuscitation/*methods, Shiferaw K, Sintayehu Y, Tiruye G, Young Adult
Pediatric extubation: "pulling the tube"
Tags: 2001, Backlog, Decision Making, Euthanasia, Gracy D, Hospice Care, Humans, Infant, Intensive Care Units, Intratracheal, Intubation, Journal Article, Journal of Palliative Medicine, Neonatal, Newborn, Passive, Patient Care Planning, Patient Transfer, Pediatrics/standards, Sine D, Sumner L, von Gunten CF
Informed dissent: the views of some mothers of severely mentally handicapped young adults
Tags: 1986, Abortion, Adult, Backlog, Congenital Abnormalities/therapy, Death and Euthanasia, Disabled Persons, Empirical Approach, Euthanasia, Female, Genetics and Reproduction, Humans, Induced, Infant, Informed Consent, Journal Article, Journal of Medical Ethics, Mental Health Therapies, Middle Aged, Mothers/psychology, Newborn, Passive, Patient Compliance, Simms M, Value of Life