Browse Items (127 total)
- Tags: Treatment Outcome
Benefits of an add-on treatment with the synthetic cannabinomimetic nabilone on patients with chronic pain--a randomized controlled trial
Tags: 2006, Adjuvant, Anti-Anxiety Agents, Backlog, Cannabinoids/administration & dosage, Chemotherapy, Chronic Disease, Cross-Over Studies, Double-Blind Method, Female, Hiermann E, Humans, Journal Article, Male, Middle Aged, Pain Measurement/drug effects, Pain/drug Therapy, Pinsger M, Placebo Effect, Polz W, Quality Of Life, Riederer F, Schimetta W, Tetrahydrocannabinol/administration & dosage/analogs & derivatives, Treatment Outcome, Volc D, Wiener Klinische Wochenschrift
Assessing preferences about the DNR order: does it depend on how you ask?
Tags: 1995, Attitude To Health, Backlog, Choice Behavior, Effect Modifiers (Epidemiology), Female, Humans, Journal Article, Llewellyn-Thomas HA, Male, Medical Decision Making, Non-U.S. Gov't, Nursing/psychology, Percy ME, Probability, Quality-Adjusted Life Years, Questionnaires/standards, Reproducibility of Results, Research Design, Research Support, Resuscitation Orders, Resuscitation/adverse effects, Students, Treatment Outcome
Complementary and alternative therapy use in pediatric oncology patients with failure of frontline chemotherapy
Tags: 2011, Adolescent, Adult, Antineoplastic Agents/therapeutic use, Backlog, Child, Complementary Therapies, Female, Humans, Infant, Insogna IG, Journal Article, Kang T, Male, Neoplasms/therapy, Newborn, Paisley MA, Pediatric Blood & Cancer, Preschool, Questionnaires, Religion, Rheingold SR, Salvage Therapy, Survival Rate, Treatment Failure, Treatment Outcome, Young Adult
Initial experiences with medicinal extracts of cannabis for chronic pain: results from 34 'N of 1' studies
Tags: 2004, Administration, Adult, Aged, Anaesthesia, Analgesics, Backlog, Cannabidiol/adverse effects/therapeutic use, Chronic Disease, Cross-Over Studies, Depressive Disorder/drug therapy, Double-Blind Method, Drug Combinations, Female, Humans, Journal Article, Male, Middle Aged, Miller R, Multiple Sclerosis/drug therapy, Newport S, Non-Narcotic/adverse effects/therapeutic use, Notcutt W, Pain Measurement/methods, Pain/drug Therapy, Patient Selection, Phillips C, Price M, Sansom C, Simmons S, Sleep/drug effects, Sublingual, Tetrahydrocannabinol/adverse effects/therapeutic use, Treatment Outcome
Survey of specialized tertiary care facilities for adults with congenital heart disease
Tags: 2004, Adolescent, Adolescent Transitions, Adult, Backlog, Cardiac Care Facilities/organization & administration/utilization, Congenital/diagnosis/mortality/surgery, Europe/epidemiology, Female, Gatzoulis MA, Health Care Surveys, Heart Defects, Hospitalization/statistics & numerical data, Humans, International Journal Of Cardiology, Journal Article, Liberthson R, Male, Middle Aged, Murphy D, Niwa K, North America/epidemiology, Patient Admission/statistics & numerical data, Patient Care Team, Perloff JK, Program Evaluation, Quality Of Health Care, Questionnaires, Reoperation/utilization, Resource Allocation, Survival Analysis, Treatment Outcome, Warnes CA, Webb GD
Measured enthusiasm: does the method of reporting trial results alter perceptions of therapeutic effectiveness?
Tags: 1992, Adult, Annals Of Internal Medicine, Attitude Of Health Personnel, Backlog, Chen E, Clinical Trials, Data Interpretation, Gemfibrozil/therapeutic use, Hospitals, Humans, Hyperlipidemia/complications/drug therapy/mortality, Journal Article, Male, Middle Aged, Myocardial Infarction/etiology/mortality/prevention & control, Naylor CD, Non-U.S. Gov't, Ontario, Outcome Assessment (health Care), Questionnaires, Research Support, Risk, statistical, Strauss B, Teaching, Treatment Outcome
Implementation of transition programs can prevent another lost generation of patients with congenital heart disease
Tags: 2008, Adolescent, Adolescent Transitions, Adult, Aftercare/organization & administration, Backlog, Child, Congenital/complications/epidemiology/prevention & control, Continuity Of Patient Care/organization & Administration, European Journal Of Cardiovascular Nursing, Health Services Needs And Demand, Heart Defects, Hilderson D, Humans, Journal Article, Longevity, Moons P, Morbidity, Patient Education as Topic/organization & administration, Program Development, Treatment Outcome, Van Deyk K
Efficacy and tolerability of levetiracetam versus phenytoin after supratentorial neurosurgery
Tags: 2008, 80 And Over, Adult, Aged, Anticonvulsants/administration & dosage/adverse effects, Backlog, Brain Injuries/complications/surgery, Brain/drug effects/physiopathology/surgery, Bromfield EB, Drug Tolerance/physiology, Drug Toxicity, Epilepsy/drug therapy/etiology/prevention & control, Female, Follow-up Studies, Humans, Hurwitz S, Journal Article, Male, Middle Aged, Milligan TA, Neurology, Neurosurgical Procedures/adverse effects, Phenytoin/administration & dosage/adverse effects, Piracetam/administration & dosage/adverse effects/analogs & derivatives, Postoperative Complications/drug therapy/prevention & control, Retrospective Studies, Supratentorial Neoplasms/complications/surgery, Treatment Outcome
Anticonvulsant drugs for management of pain: a systematic review
Tags: 1995, Anticonvulsants/ae [Adverse Effects], Anticonvulsants/tu [Therapeutic Use], Backlog, British Medical Journal, Carbamazepine/ae [Adverse Effects], Carbamazepine/tu [Therapeutic Use], Carroll D, Clonazepam/ae [Adverse Effects], Clonazepam/tu [Therapeutic Use], Diabetic Neuropathies/dt [Drug Therapy], Human, Jadad AR, Journal Article, McQuay H, Moore A, Non-U.S. Gov't, Pain/dt [drug Therapy], Phenytoin/ae [Adverse Effects], Phenytoin/tu [Therapeutic Use], Support, Treatment Outcome, Trigeminal Neuralgia/dt [Drug Therapy], Valproic Acid/ae [Adverse Effects], Valproic Acid/tu [Therapeutic Use], Wiffen P
Risperidone in children with autism and serious behavioral problems
Tags: 2002, Adolescent, Aman MG, Antipsychotic Agents/administration & dosage/adverse effects/therapeutic use, Arnold LE, Autistic Disorder/drug therapy/psychology, Backlog, Carroll D, Child, Child Behavior/drug effects, Comparative Study, Cronin P, Davies M, Double-Blind Method, Female, Ghuman J, Gonzalez NM, Grados M, Hollway J, Hong D, Humans, Journal Article, Koenig K, Kohn A, Lancor A, Lindsay R, Male, Martin A, McCracken JT, McDougle CJ, McGough J, McMahon D, Nash P, Non-U.S. Gov't, P.H.S., Posey D, Preschool, Research Support, Research Units on Pediatric Psychopharmacology (RUPP) Autism Network, Risperidone/administration & dosage/adverse effects/therapeutic use, Ritz L, Robinson J, Scahill L, Shah B, Swiezy N, The New England Journal Of Medicine, Tierney E, Treatment Outcome, U.S. Gov't, Vitiello B, Volkmar F
Sedation for children with metachromatic leukodystrophy undergoing MRI
Tags: 2007, Albertin A, Anesthesia/adverse effects/methods, Artifacts, Backlog, Baldoli C, Beretta L, Brain/anatomy & histology/pathology, Child, Dose-Response Relationship, Drug, Female, Gemma M, Humans, Hypnotics and Sedatives/adverse effects/therapeutic use, Journal Article, Leukodystrophy, Magnetic Resonance Imaging/methods, Male, Mattioli C, Metachromatic/complications/diagnosis, Paediatric Anaesthesia, Preschool, Propofol/adverse effects/therapeutic use, Prospective Studies, Reference Values, Seizures/complications/diagnosis, Sessa M, Thiopental/adverse effects/therapeutic use, Treatment Outcome
A clinical rating scale for Batten disease Reliable and relevant for clinical trials
Tags: 2005, Adams H, Adolescent, Adult, Backlog, Child, Children W/SNI, Clinical Trials/standards, de Blieck EA, DeYoung J, Disease Progression, Dure L, Female, Humans, Journal Article, Levy Erika, Longitudinal Studies, Male, Marshall FJ, McDonough T, Messing S, Mink JW, Neurologic Examination/methods/standards, Neurology, Neuronal Ceroid-Lipofuscinoses/diagnosis/physiopathology/psychology, Neuropsychological Tests/standards, others, Personality Tests/standards, Predictive Value of Tests, Preschool, Prognosis, Rothberg PG, Severity Of Illness Index, Treatment Outcome
Long-stay patients in the pediatric intensive care unit
Tags: 2001, Age Distribution, algorithms, Analysis of Variance, Backlog, Child, Comorbidity, Cost Savings, Critical Care Medicine, Decision Trees, Discriminant Analysis, Emergencies, Female, Health Services Research, Hospital Mortality, Humans, ICU Decision Making, Infant, Intensive Care Units, Intensive Care/economics/standards, Journal Article, Length Of Stay/statistics & Numerical Data, Logistic Models, Male, Marcin JP, Patient Admission/statistics & numerical data, Pediatric/utilization, Pollack MM, Predictive Value of Tests, Preschool, Quality Of Health Care, Risk Factors, Ruttimann UE, Sensitivity and Specificity, Severity Of Illness Index, Slonim AD, Treatment Outcome, United States/epidemiology
Improving functional skills and physical fitness in children with Rett syndrome
Tags: 2004, Activities of Daily Living/psychology, Child, daily conductive educational program, Education of Intellectually Disabled, Exercise/psychology, Feasibility Studies, Female, Humans, Isakov E, Journal Of Intellectual Disability Research, Lotan M, Merrick J, Motor Skills, Physical Fitness, psychological intervention, Rett syndrome, Rett Syndrome/psychology/rehabilitation, Social Behavior, Statistics as Topic, tone and motor problems, Treatment Outcome
Subthalamic Nuclei Stimulation in Patients With Pantothenate Kinase-Associated Neurodegeneration (PKAN)
Tags: 2017, Adolescent, Adult, Article, Brain Depth Stimulation, Burke Fahn Marsden Dystonia Rating Scale movement rating scale, Case Report, deep brain stimulation, Dou W, Dystonia, Female, fluency disorder, Follow Up, globus pallidus internus, Guo J, Guo Y, Human, IND, Liu Y, Liu Z, Ma W, Male, Middle Aged, neurodegeneration with brain iron accumulation/th [Therapy], neurologic disease assessment, Neurologic Examination, Neuromodulation, pantothenate kinase-associated neurodegeneration, scoring system, subthalamic nuclei, subthalamic nuclei stimulation, Subthalamic Nucleus, surgical intervention, tone and motor problems, Treatment Outcome, Wan X, Wang L, Wang R, Wang Y, Yang Y
When a Child Dies in the PICU Despite Ongoing Life Support
Tags: 2018, Butt WW, Child, Clark JD, Death, Dryden-Palmer K, Family, Human, Human Relation, Lewis-Newby M, Long Term Care, March List 2024, Only Child, Palliative Therapy, Parshuram CS, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, Psychology, Resuscitation, Terminal Care, Treatment Outcome, Treatment Withdrawal, Truog RD, Uncertainty
Symptom pathways from referral to death: measuring palliative care outcomes.
Examining key sociodemographic characteristics of adolescents and young adults with cancer: A post hoc analysis of the Promoting Resilience in Stress Management randomized clinical trial
Tags: 2020, Adolescent, Article, Bona K, Bradford M C, cancer center, cancer specific quality of life, Child, Connor-Davidson Resilience Scale, Controlled Study, Coping Behavior, environmental resilience, Female, Hope Scale, Human, Lau N, Major Clinical Study, Male, McCauley E, Oncology 2020 List, outcome assessment, Palliative Medicine, Palliative Therapy, patient-reported outcome, Pediatric Quality of Life Inventory, Post Hoc Analysis, Psychological Distress Scale, psychosocial development, Quality Of Life, Randomized Controlled Trial, Rosenberg A R, School Child, Scott S, Socioeconomics, Steineck A, stress management, Total Quality Management, Treatment Outcome, Yi-Frazier J P, Young Adult
Outcomes in children after intestinal transplant
Late-onset neurologic disease in glutaryl-CoA dehydrogenase deficiency
Tags: 2005, Age of Onset, Aged, Atrophy/enzymology/genetics/physiopathology, Backlog, Bodamer OA, Brain Diseases, Carnitine/therapeutic use, Cerebral Cortex/enzymology/pathology/physiopathology, Cognition Disorders/enzymology/genetics/physiopathology, Disease Progression, DNA Mutational Analysis, Food, Formulated, Glutaryl-CoA Dehydrogenase/deficiency, Gruber S, Harting I, Hoffmann GF, Humans, Inborn/enzymology/genetics/physiopathology, Journal Article, Kolker S, Kulkens S, Lateral Ventricles/pathology, Magnetic Resonance Imaging, Male, Metabolic, Movement Disorders/enzymology/genetics/physiopathology, Mutation/genetics, Myelinated/pathology, Nerve Fibers, Neurology, Q3 Scoping Review Results, Sauer S, Treatment Outcome, Zschocke J
Family focused grief therapy: a randomized, controlled trial in palliative care and bereavement
Tags: 2006, Adult, Backlog, Bereavement, Bloch S, Caregivers/psychology, Depressive Disorder/therapy, Family Health, Family Relations, Family Therapy/methods, Family/psychology, Female, Follow-up Studies, Grief, Humans, Journal Article, Kissane DW, Longitudinal Studies, Male, McKenzie DP, McKenzie M, Middle Aged, Moskowitz C, O'Neill I, Palliative Care, Personality Inventory, Psychological/therapy, Social Adjustment, SSHRC CURA, Stress, Terminal Care, The American Journal Of Psychiatry, Treatment Outcome
Functional electrical stimulation therapy for recovery of reaching and grasping in severe chronic pediatric stroke patients
Tags: 2014, Articular, Backlog, Bernstein J, Child, Chronic, Chronic Disease, Disability Evaluation, Electric Stimulation Therapy, Female, functional electrical stimulation therapy, grasping, Hand Strength, Humans, Journal Article, Journal of Child Neurology, Kapadia Naaz M, Male, Nagai MK, Pediatrics, Popovic MR, Psychomotor Performance, Range of Motion, Recovery of Function, Rumney P, severe, Severity Of Illness Index, Stroke, Treatment Outcome, Upper Extremity, Woodhouse J, Zivanovic V
Opioids in chronic non-cancer pain: systematic review of efficacy and safety
Tags: 2004, Analgesics, Backlog, Chronic Disease, Comparative Study, Double-Blind Method, Drug Evaluation, Drug Utilization Review, Edwards JE, Humans, Journal Article, Kalso E, McQuay HJ, Methadone, Moore RA, Non-U.S. Gov't, Opioid/adverse effects/therapeutic use, Pain, Pain Measurement, Pain/drug Therapy, Randomized Controlled Trials/methods, Research Support, Time Factors, Treatment Outcome
Epidural analgesia for postoperative pain control in children
Tags: 1998, Adjuvants, Adolescent, Analgesia, Anesthesia/administration & dosage, Anesthetics, Aronsson DD, Backlog, Bupivacaine/administration & dosage, Child, Combination, Comparative Study, Dose-Response Relationship, Drug, Drug Therapy, Epidural/methods, Female, Fentanyl/administration & dosage, Harkins JM, Haugh LD, Humans, Infant, Jones MD, Journal Article, Journal Of Pediatric Orthopedics, Length Of Stay, Local/administration & dosage, Male, Pain, Pain Measurement, Postoperative/drug therapy, Preschool, Prognosis, Smail DF, Treatment Outcome
Causes and palliation of transfusion-associated vaginal bleeding in patients with metastatic cancer
Evaluation of the effect of a comprehensive multidisciplinary care pathway for hip fractures: design of a controlled study.
Tags: 2013, Academic Medical Centers, Activities of Daily Living, Backlog, Bmc Musculoskeletal Disorders, Critical Pathways, Hip Fractures/di [Diagnosis], Hip Fractures/pp [Physiopathology], Hip Fractures/th [Therapy], Humans, Interdisciplinary Communication, Izaks GJ, Journal Article, Middle Aged, Netherlands, Patient Care Team, Program Evaluation, Propensity Score, Recovery of Function, Reininga Inge HF, Research Design, Stevens M, Time Factors, Treatment Outcome, Wendt KW
Communicating the benefits of chronic preventive therapy: does the format of efficacy data determine patients' acceptance of treatment?
Tags: 1995, Adult, Aged, Antilipemic Agents/therapeutic use, Backlog, Data Interpretation, Decision Making, Female, Humans, Hux JE, Hyperlipidemia/complications/drug therapy/psychology, Informed Consent, Journal Article, Male, Medical Decision Making, Middle Aged, Naylor CD, Non-U.S. Gov't, Patient Acceptance of Health Care, Patient Education, Primary Prevention, Questionnaires, Research Support, statistical, Treatment Outcome
Transdermal fentanyl for pain relief in a paediatric palliative care population
Tags: 2001, Administration, Adolescent, Analgesics, Backlog, Child, Cutaneous, Devine T, Female, Fentanyl/administration & dosage, Goldman A, Human, Hunt A, Journal Article, Male, Non-U.S. Gov't, Opioid/administration & dosage, Pain Measurement, Pain/drug Therapy, Palliative Care, Palliative Medicine, Parents, Patient Satisfaction, Phillips M, Preschool, Support, Terminally Ill, Treatment Outcome
What is the evidence that palliative care teams improve outcomes for cancer patients and their families?.
Inpatient-based intensive interdisciplinary pain treatment for highly impaired children with severe chronic pain: randomized controlled trial of efficacy and economic effects
Tags: 2014, Adolescent, anxiety, Backlog, Catastrophization, Child, Chronic Pain, Depression, Disability Evaluation, Dobe M, Female, Follow-up Studies, Hechler T, Hirsch J, Humans, Inpatients, Journal Article, Krummenauer F, Male, Pain, Pain Management, Pain Measurement, Ruhe A-K, Schmidt P, Treatment Outcome, Wager J, Zernikow B
Effect of melatonin dosage on sleep disorder in tuberous sclerosis complex
Tags: 2005, Administration Oral, Adult, Antioxidants/pharmacology/therapeutic use, Child, Child Preschool, Cross-Over Studies, Dose-Response Relationship Drug, Double-Blind Method, Female, Hancock E, Humans, Infant, Journal of Child Neurology, Male, melatonin, Melatonin/pharmacology/therapeutic use, O'Callaghan F, Osborne J P, pharmacologic intervention, sleep disturbance/disorders, Sleep Wake Disorders/drug therapy/etiology, Treatment Outcome, Tuberous Sclerosis, Tuberous Sclerosis/complications
Sleep and neuromuscular disease: bilevel positive airway pressure by nasal mask as a treatment for sleep disordered breathing in patients with neuromuscular disease
Tags: 1998, Adolescent, Adult, Backlog, Child, Female, Follow-up Studies, Guilleminault C, Humans, Intermittent Positive-Pressure Ventilation, Journal Article, Journal Of Neurology, Neurosurgery, And Psychiatry, Lung Volume Measurements, Male, Masks, Middle Aged, Muscular Dystrophies/physiopathology/therapy, Neuromuscular Diseases/physiopathology/therapy, Philip P, Polysomnography, Positive-Pressure Respiration, Pulmonary Ventilation/physiology, Q3 Scoping Review Results, Robinson A, Sleep Apnea Syndromes/physiopathology/therapy, Treatment Outcome
The role of the courts in disagreements over the care of seriously ill babies
Focus on paroxetine
Tags: 2003, Animals, Antidepressive Agents, Anxiety Disorders/drug therapy, Backlog, Current Medical Research And Opinion, Depression/drug therapy, Drug Interactions, Green B, Humans, Journal Article, Paroxetine/administration & dosage/adverse effects/pharmacokinetics/therapeutic use, Post-Traumatic/drug therapy, Second-Generation/administration & dosage/adverse effects/pharmacokinetics/therapeutic use, Serotonin Uptake Inhibitors/administration & dosage/adverse effects/pharmacokinetics/therapeutic use, Stress Disorders, Substance Withdrawal Syndrome, Treatment Outcome
Real World Presentation and Treatment Outcomes with a Predominant Induction Chemotherapy Based Approach in Nasopharyngeal Carcinoma: A Sixteen Year Report from a Teaching Hospital in India
Tags: 2023, 2023 SE5 - Low Resource Setting, adjuvant therapy, Adolescent, Adult, Aged, albumin/ec [Endogenous Compound], Anemia, antiemetic agent, Article, Bahadur S, Bhasker S, Biswas A, bone metastasis, Cancer Investigation, Cancer Recurrence, Cancer Staging, capecitabine/dt [Drug Therapy], carboplatin/cb [Drug Combination], carboplatin/dt [Drug Therapy], cervical lymph node, chemoradiotherapy, Child, cisplatin/ae [Adverse Drug Reaction], cisplatin/cb [Drug Combination], cisplatin/dt [Drug Therapy], cisplatin/to [Drug Toxicity], cobalt therapy, Cohort Analysis, cranial nerve paralysis, cyclophosphamide/cb [Drug Combination], cyclophosphamide/dt [Drug Therapy], date of death, Diarrhea, diplopia, distant metastasis, docetaxel/cb [Drug Combination], docetaxel/dt [Drug Therapy], dysphasia, epirubicin/cb [Drug Combination], epirubicin/dt [Drug Therapy], exophthalmos, febrile neutropenia, Female, fluorouracil/cb [Drug Combination], fluorouracil/dt [Drug Therapy], Follow Up, gemcitabine/dt [Drug Therapy], Gogi R, Headache, hearing impairment, Histopathology, Hospitalization, Human, hypothyroidism, India, induction chemotherapy, Intensity Modulated Radiation Therapy, Kumar R, liver metastasis, lung metastasis, Major Clinical Study, Male, Mohanti BK, mucosa inflammation, multiple cycle treatment, nasopharynx carcinoma/dt [Drug Therapy], nasopharynx carcinoma/rt [Radiotherapy], nasopharynx carcinoma/su [Surgery], neck dissection, neck swelling, Neutropenia, nose obstruction, overall response rate, Overall Survival, paclitaxel/cb [Drug Combination], paclitaxel/dt [Drug Therapy], palliative chemotherapy, peripheral neuropathy, Pramanik R, primary tumor/rt [Radiotherapy], progression free survival, Radiotherapy Dosage, Retrospective Study, Salvage Therapy, Sharma A, Sikka K, Singh AC, Smoking, Spinal cord, survival prediction, teaching hospital, Thakar A, thrombocytopenia, Thulkar S, toxicity/si [Side Effect], treatment interruption, Treatment Outcome, trismus, Vomiting, xerostomia
Does palliative care improve quality? A survey of bereaved family members
Tags: 2008, 80 And Over, Adolescent, Adult, Aged, Backlog, Bereavement, Data Collection, Family, Female, Gelfman LP, Health Care, Humans, Journal Article, Journal of Pain and Symptom Management, Male, Meier DE, Middle Aged, Morrison RS, New York, Pain/epidemiology/nursing, Palliative Care/statistics & Numerical Data, Patient Satisfaction/statistics & Numerical Data, Quality Assurance, Terminal Care, Treatment Outcome
Analgesic effects of topical methadone: a report of four cases
Tags: 2005, 80 And Over, Administration, Aged, Analgesics, Arndt DR, Backlog, Bandages, Female, Gallagher RE, Humans, Hunt KL, Journal Article, Male, Methadone/administration & Dosage, Middle Aged, Opioid/administration & dosage, Pain/drug therapy/etiology, Palliative Care/methods, Penetrating/complications, The Clinical Journal Of Pain, Topical, Treatment Outcome, Wounds
Status quo of palliative care in pediatric oncology-a nationwide survey in Germany
Tags: 2005, Adolescent, Backlog, Brun S, Child, Data Collection, Female, Friedrichsdorf SJ, Germany/epidemiology, Home Care Services/statistics & numerical data/trends, Humans, Infant, Journal Article, Journal of Pain and Symptom Management, Location Of Death, Male, Medical Oncology/methods/trends, Menke A, Neoplasms/mortality/therapy, Newborn, Non-U.S. Gov't, Palliative Care/methods/statistics & numerical data/trends, Pediatrics/methods/trends, Physician's Practice Patterns/statistics & numerical data, Preschool, Research Support, Treatment Outcome, Wamsler C, Zernikow B
Sleep disturbance in Sanfilippo syndrome: a parental questionnaire study
Tags: 2005, Adolescent, Adult, Age of Onset, Archives of Disease in Childhood, Backlog, Behavior Therapy, Child, Delatycki MB, Fraser J, Gason AA, Humans, Incidence, Infant, Journal Article, Melatonin/therapeutic use, Mucopolysaccharidosis III/psychology, Newborn, Preschool, Q3 Scoping Review Results, Questionnaires, Sleep Disorders/epidemiology/etiology/therapy, Treatment Outcome, Wraith JE