Browse Items (195 total)
- Tags: Longitudinal Studies
Barriers to palliative care for children: Perceptions of pediatric health care providers
Long-term outcome and clinical spectrum of 73 pediatric patients with mitochondrial diseases
Tags: 2007, AIM, Backlog, Cause Of Death, Chevalier I, Child, Cohort Studies, Debray FG, Decarie JC, DNA, DNA Fragmentation, Female, Follow-up Studies, HEREDITARY, Humans, IM, Infant, Journal Article, Lambert M, Leber/di [Diagnosis], Leber/ge [Genetics], Leber/mo [Mortality], Longitudinal Studies, Male, MELAS Syndrome/di [Diagnosis], MELAS Syndrome/mo [Mortality], MELAS Syndrome/th [Therapy], Mitchell GA, Mitochondrial Diseases/di [Diagnosis], Mitochondrial Diseases/ge [Genetics], Mitochondrial Diseases/mo [Mortality], Mitochondrial Encephalomyopathies/di [Diagnosis], Mitochondrial Encephalomyopathies/mo [Mortality], Mitochondrial Encephalomyopathies/th [therapy], Mitochondrial Myopathies/di [Diagnosis], Mitochondrial Myopathies/ge [Genetics], Mitochondrial Myopathies/mo [Mortality], Mitochondrial/ge [Genetics], Newborn, Optic Atrophy, Pediatrics, Preschool, Probability, Proportional Hazards Models, Q3 Scoping Review Results, Retrospective Studies, Robinson BH, Robitaille Y, Severity Of Illness Index, Shoubridge EA, Survival Analysis, Time Factors
Wilson's disease: a longitudinal study of psychiatric symptoms
Tags: 1990, Adolescent, Adult, Amnestic, Backlog, Berrios GE, Biological Psychiatry, Cognitive Disorders/di [Diagnosis], Cognitive Disorders/px [Psychology], Cohort Studies, Delirium, Dementia, Dening TR, Female, Follow-up Studies, Hepatolenticular Degeneration/di [Diagnosis], Hepatolenticular Degeneration/px [Psychology], Humans, IM, Journal Article, Liver Function Tests, Longitudinal Studies, Male, Neurologic Examination, Neuropsychological Tests, Retrospective Studies
The natural history of medium-chain acyl CoA dehydrogenase deficiency in the Netherlands: clinical presentation and outcome
Tags: 2006, Acyl-CoA Dehydrogenase/deficiency/genetics, Adolescent, Adult, Backlog, Child, Cohort Studies, Derks TG, Disease Progression, Gerver WJ, Humans, Inborn Errors/complications/diagnosis/genetics, Infant, Journal Article, Longitudinal Studies, Metabolism, Middle Aged, Mutation/genetics, Netherlands, Newborn, Preschool, Prognosis, Reijngoud DJ, Retrospective Studies, Sauer PJ, Severity Of Illness Index, Smit GP, The Journal Of Pediatrics, van den Berg MP, Waterham HR
Focus group interview with parents of children with medically complex needs: an intimate look at their perceptions and feelings.
Tags: 1991, Backlog, Children's Health Care, Counseling, Diehl SF, Family Health, Female, Florida, Health Services Needs And Demand, Home Nursing/psychology, Humans, Interviews, Journal Article, Longitudinal Studies, Male, Moffitt KA, Parents/psychology, Patient Care Planning/standards, Respite Care, Self-Help Groups, Wade SM
Functional ability, social support, and depression in rheumatoid arthritis
Tags: 2004, Activities of Daily Living, Adult, Aged, Arthritis, Backlog, Depressive Disorder, Doeglas DM, Humans, Journal Article, Krol B, Longitudinal Studies, Middle Aged, Netherlands, Quality Of Life, Quality of Life Research, Regression Analysis, Rheumatoid, Sanderman R, Sickness Impact Profile, Social Support, Social Support and Chronic Pain, Suurmeijer Th PBM, van den Heuvel WJA, van Leeuwen MA, van Rijswijk MH
The symptoms of dying children.
Tags: 2003, Adolescent, Affective Symptoms/epidemiology/psychology, Backlog, Child, Collins JJ, Drake R, Female, Frost J, Hospitalized/psychology/statistics & numerical data, Humans, Infant, Intensive Care/psychology/statistics & numerical data, Journal Article, Journal of Pain and Symptom Management, Longitudinal Studies, Male, Neoplasms/epidemiology/psychology, Pain/epidemiology/psychology, Palliative Care/psychology/statistics & numerical data, Preschool, Prevalence, Respiratory Insufficiency/epidemiology/psychology, Retrospective Studies
Feasibility of Conducting a Palliative Care Randomized Controlled Trial in Children With Advanced Cancer: Assessment of the PediQUEST Study
Tags: 2015, Adolescent, Chen K, Child, Dussel V, Feasibility Studies, Female, Feudtner C, Geyer JR, Humans, Journal Of Pain & Symptom Management, Kang TI, Longitudinal Studies, Male, Neoplasms/th [therapy], Oncology 2017 List, Orellana L, Palliative Care, Palliative Care/mt [methods], Patient Dropouts, Patient Selection, Pilot Projects, Preschool, Soto N, Terminal Care, Ullrich C, Wolfe J
Bereaved parents' experience of research participation.
Tags: 2004, Accidents/psychology, Adolescent, Adult, Attitude, Backlog, Bereavement, Biomedical and Behavioral Research, Child, Dyregrov K, Empirical Approach, Ethics, Female, Follow-up Studies, Humans, Infant, Interview, Journal Article, Longitudinal Studies, Male, Medical/methods, Middle Aged, Multi-site Ethics, Newborn, Norway, Parents/psychology, Preschool, Psychological, Registries, Regression Analysis, Research, Research Subjects/psychology, Social science & medicine, Sociology, Sudden Infant Death, Suicide/psychology
Combat experience and emotional health: impairment and resilience in later life
Tags: 1989, Adaptation, Adolescent, Adult, Assertiveness, Backlog, Clipp EC, Ego, Elder GH, Human Development, Humans, Journal Article, Journal Of Personality, Longitudinal Studies, Male, Memory, Non-P.H.S., P.H.S., Post-Traumatic/psychology, Psychological, Research Support, Risk Factors, Stress Disorders, U.S. Gov't, Veterans/psychology, War
Structural equation modeling with longitudinal data: strategies for examining group differences and reciprocal relationships
Tags: 1994, Adolescent, Alcohol Drinking/epidemiology/psychology, Alcoholism/epidemiology/psychology, Anger, Backlog, Cohort Studies, Farrell AD, Female, Follow-up Studies, Gender Identity, Humans, Journal Article, Journal Of Consulting And Clinical Psychology, Longitudinal Studies, Male, Models, Peer Group, Personality Inventory/statistics & numerical data, statistical
Clinical and biochemical spectrum of D-bifunctional protein deficiency
Tags: 2006, 3-Hydroxyacyl CoA Dehydrogenases/deficiency, Annals Of Neurology, Backlog, Barth PG, Blood Chemical Analysis, Boltshauser E, Bone and Bones/anatomy & histology/pathology, Brain/anatomy & histology/pathology, Child, Cohort Studies, Dekker C, Denis S, Duran M, Enoyl-CoA Hydratase/deficiency, Ferdinandusse S, Fibroblasts/cytology/metabolism, Gartner J, Humans, Inborn Errors, Infant, Isomerases/deficiency, Journal Article, Kidney/anatomy & histology/pathology, Life Expectancy, Lipid Metabolism, Liver/anatomy & histology/pathology, Longitudinal Studies, Macaya A, Magnetic Resonance Imaging, Majoie CB, Mooyer PA, Multienzyme Complexes/deficiency, Peroxisomal Disorders/classification/pathology/physiopathology, Poll-The BT, Preschool, Questionnaires, Soorani-Lunsing RJ, Wanders RJ
Longitudinal Understanding of Prognosis among Adolescents with Cancer
Tags: 2021, 2021 Special Edition - Oncology, Adolescent, Child, Communication, Compas BE, Desjardins L, Female, Fisher RS, Follow-up Studies, Fults MZ, Gerhardt CA, Humans, Kenney AE, Longitudinal Studies, Male, Manring S, Neoplasms/pathology/psychology/therapy, Oncologists/psychology, Oncology, Palliative Care, Parents/psychology, Pediatric Blood & Cancer, Prognosis, Psycho-Oncology, psychosocial, Ranalli MA, Rausch JR, Rodriguez EM, Surveys And Questionnaires, Vannatta K, Young-Saleme T
Change in gross motor abilities of girls and women with rett syndrome over a 3- to 4-year period
Tags: 2011, Adolescent, Adult, Age Factors, Arginine/genetics, Australia, Bebbington A, characteristics, Disease Progression, Downs J, Female, Foley K R, Girdler S, Humans, Jacoby P, Journal of Child Neurology, Kaufmann W E, Leonard H, Linear Models, Longitudinal Studies, Methyl-CpG-Binding Protein 2/genetics, Motor Skills/physiology, Movement Disorders/etiology/genetics, Mutation/genetics, Retrospective Studies, Rett syndrome, Rett Syndrome/complications/genetics, tone and motor problems, Trajectory, Young Adult
Hildegard Peplau meets family systems nursing: Innovation in theory-based practice.
Posttraumatic stress and general distress among parents of children surviving a brain tumor.
Tay-Sachs disease: Progression of changes on neuroimaging in four cases.
Tags: 1992, Atrophy, Backlog, Brain Diseases, Brain/pathology, Child, Demyelinating Diseases/diagnosis/pathology, Emission-Computed, Follow-up Studies, Fukumizu M, Humans, Infant, Journal Article, Kurokawa T, Longitudinal Studies, Magnetic Resonance Imaging, Male, Metabolic/diagnosis/pathology, Neuroradiology, Preschool, Sakuragawa N, Takashima S, Tay-Sachs Disease/diagnosis/pathology, Tomography, X-Ray Computed, Yoshikawa H
Long-term follow-up of neonatal mitochondrial cytopathies: a study of 57 patients
Tags: 2005, Backlog, Child, De Lonlay P, Disease Progression, Diseases/blood/diagnosis/mortality, Female, Follow-up Studies, Garcia-Cazorla A, Humans, Infant, Journal Article, Lactic Acid/blood, Longitudinal Studies, Male, Mitochondrial Myopathies/blood/complications/diagnosis/mortality, Nassogne MC, Newborn, Pediatrics, Preschool, Prognosis, Rustin P, Saudubray JM, Touati G
Measuring parental grief after childhood cancer: potential use of the SCL-90R
Tags: 1997, Adolescent, Adult, Backlog, Bereavement, Child, Death studies, Evaluation Studies, Female, Gilliss CL, Humans, Infant, Journal Article, Longitudinal Studies, Male, Martinson IM, Middle Aged, Moore IM, Neoplasms, Newborn, Parent caregivers, Parents/psychology, Preschool, Psychological Tests, Questionnaires
A systematic review of physicians' survival predictions in terminally ill cancer patients.
Tags: 2003, Analysis of Variance, Backlog, Bmj (clinical Research Ed.), Christakis NA, Clinical Competence/standards, Death and Euthanasia, Decision Making, Empirical Approach, Eychmuller S, Glare P, Hudson M, Humans, Jones M, Journal Article, Longitudinal Studies, Neoplasms/mortality, Physicians/standards, Regression Analysis, Reproducibility of Results, Simes J, Survival Analysis, Terminally Ill, Virik K
Trisomy 18 in neonates: prenatal diagnosis, clinical features, therapeutic dilemmas and outcome
Tags: 2006, Abnormalities, Backlog, Bober K, Central Nervous System/abnormalities, Chromosomes, Congenital/diagnosis/genetics/therapy, Female, Goc B, Heart Defects, Human, Humans, Infant, Journal Article, Journal Of Applied Genetics, Krzystolik-Ladzinska J, Longitudinal Studies, Multiple/diagnosis/genetics/mortality/therapy, Newborn, Pair 18, Poland/epidemiology, Pregnancy, Prenatal Diagnosis, Prognosis, Retrospective Studies, Swietlinski J, Trisomy, Walencka Z, Wiecek-Wlodarska D, Wloch A, Wojciechowska E
Symptoms in children/young people with progressive malignant disease: United Kingdom Children's Cancer Study Group/Paediatric Oncology Nurses Forum survey.
Tags: 2006, Adolescent, Adult, Backlog, Child, Childs M, Collins GS, Disease Progression, Female, Goldman A, Hain R, Hewitt M, Humans, Infant, Journal Article, Longitudinal Studies, Male, Neoplasms/complications/diagnosis, Pediatrics, Preschool, Prospective Studies, Questionnaires, United Kingdom Children's Cancer Study Group/Paediatric Oncology Nurses' Forum Palliative Care Working Group
Bereavement outcomes for parents who lose a child to cancer: are place of death and sex of parent associated with differences in psychological functioning?
Tags: 2004, Adaptation, Adult, Anxiety/diagnosis/epidemiology/psychology, Attitude To Death, Backlog, Bereavement, Child, Depression/diagnosis/epidemiology/psychology, Drew D, Female, Goodenough B, Higgins S, Humans, Journal Article, Location Of Death, Longitudinal Studies, Male, Outcome Assessment (health Care), Parents/psychology, Psycho-Oncology, Psychological, Psychology, Questionnaires, Sex Factors, Trethewie S
Reliability and predictive validity of the Standardized Infant NeuroDevelopmental Assessment neurological scale
Tags: 2019, Developmental Medicine and Child Neurology, Diagnostic Techniques, Female, Hadders-Algra M, Humans, Infant, Longitudinal Studies, Male, Neurodevelopmental Disorders/diagnosis, Neurological/standards, November 2019 List, Philippi H, Pietz J, Reproducibility of Results, Rupp A, Severity Of Illness Index, Tacke U
Perceived stress in HIV-infected individuals: Physiological and psychological correlates.
Tags: 2006, Adaptation, Adolescent, Adult, Aged, AIDS care, Anxiety Disorders - psychology, Backlog, Depressive Disorder/psychology, Dudgeon WD, Female, Hand GA, HIV Infections/psychology, Humans, Journal Article, Longitudinal Studies, Male, Middle Aged, Perception, Phillips KD, Psychiatric Status Rating Scales, Psychological, Psychological/psychology, South Carolina, Stress
Families' Priorities In Life-limiting Illness: Improving Quality With Online Empowerment
Improving quality of life (QOL) is the central focus of palliative care support for children with life-limiting illness (LLI), but achieving this can be challenging.
INTERVENTION:
MyQuality is an online tool that enables families to choose…
Tags: 2016, Adolescent, Archives of Disease in Childhood, Beringer A, Child, Child Preschool, Disabled Children/psychology, Family, Female, Fletcher M, Harris N, Hospice, Humans, Infant, Internet, July 2016 List, Longitudinal Studies, Male, Outcome, Palliative Care, Parents, Parents/psychology, Power (psychology), Quality Of Life, Quality Of Life/psychology, Social Support, Surveys And Questionnaires, United Kingdom, Young Adult
Parental stress and burden following traumatic brain injury amongst children and adolescents.
Tags: 2003, Adaptation, Adolescent, Adult, Analysis of Variance, Backlog, Brain Injuries/economics/psychology, Brain Injury, Child, Comparative Study, Cost Of Illness, England, Family Characteristics, Family Health, Female, Follow-up Studies, Hawley CA, Health Education, Health Status, Humans, Journal Article, Long J, Longitudinal Studies, Magnay AR, Male, Mental Health, Non-U.S. Gov't, Parents/psychology, Poverty, Preschool, Psychological, Psychological/etiology, Questionnaires, Research Support, Stress, Ward AB
Retaining young people in a longitudinal sexual health survey: a trial of strategies to maintain participation
Influence of pain treatment by epidural fentanyl and bupivacaine on homing of opioid-containing leukocytes to surgical wounds
Tags: 2007, Adjuvants, Aged, Analgesia, Analgesics, Anesthesia, Anesthesia/immunology/pharmacology, Anesthetics, Backlog, beta-Endorphin/drug effects/immunology/metabolism, Biomarkers of Pain, Brain, Behavior, And Immunity, Bupivacaine/immunology/therapeutic use, Cell Movement/drug effects/immunology, Enkephalin, Epidural, Female, Fentanyl/immunology/therapeutic use, Heurich M, Humans, Journal Article, Kopf A, Lenzner M, Leukocytes/drug effects/immunology/metabolism, Local/immunology/therapeutic use, Longitudinal Studies, Male, Methionine/drug effects/immunology/metabolism, Middle Aged, Morciniec P, Mousa SA, Nociceptors/drug effects/immunology, Opioid/immunology/therapeutic use, Pain, Patient-Controlled, Pirinitramide/therapeutic use, Postganglionic/drug effects/immunology, Postoperative/immunology/prevention & control, Stein C, Subcutaneous Tissue/immunology, Sympathetic Fibers, Welte M, Wound Healing/drug effects/immunology
Opioid use in palliative care of children and young people with cancer
Tags: 2008, Administration, Adolescent, Adult, Analgesics, Backlog, Child, Childs M, Collins GS, Drug/statistics & numerical data, Female, Fentanyl/therapeutic use, Goldman A, Great Britain, Hain R, Heroin/therapeutic use, Hewitt M, Humans, Infant, Infusions, Injections, Intravenous, Journal Article, Longitudinal Studies, Male, Morphine/therapeutic Use, Neoplasms/complications, Opioid/administration & dosage/therapeutic use, Oral, Pain/drug therapy/etiology, Palliative Care/methods, Preschool, Prescriptions, Prospective Studies, Questionnaires, Rectal, Research Design, Subcutaneous, The Journal Of Pediatrics, Therapeutic Equivalency
Parental Concordance Regarding Problems and Hopes for Seriously Ill Children: A Two-Year Cohort Study
Tags: 2017, Adolescent, Adult, April 2018 List, Attitude To Death, Attitude To Health, Carroll KW, Child, Child Health/statistics & numerical data, Cohort Studies, Critical Illness/epidemiology/ psychology, Decision-making, Female, Fenderson RM, Feudtner C, Health Surveys, Hill DL, Hope, hopes, Humans, Infant, Journal of Pain and Symptom Management, Longitudinal Studies, Male, Middle Aged, Nathanson PG, Only Child, Parent-child Relations, parental concordance, Parents/ Psychology, Pediatrics, Philadelphia/epidemiology, Preschool, Prevalence, problems, Quality of Life/ psychology, Serious Illness, Terminal Care/ psychology, Young Adult
Conducting End-of-Life Studies in Pediatric Oncology
Tags: 2007, Backlog, Burghen E, Clinical Nursing Research, dying children and adolescents, end-of-life research, Hinds PS, Humans, Journal Article, Longitudinal Studies, Oncologic Nursing/ethics, Oncology at EOL, Pediatric Nursing, Pediatric Oncology, Pediatrics, Pritchard M, Reproducibility of Results, Terminal Care, Western Journal of Nursing Research
Not knowing-the problem of pain in children with severe neurological impairment.
Pediatric palliative care: the time has come.
Tags: 2002, Archives Of Pediatrics & Adolescent Medicine, Attitude To Health, Backlog, Child, Child Psychology, Chronic Disease, Communication, Family/psychology, Humans, Hutton N, Journal Article, Longitudinal Studies, Needs Assessment, Palliative Care/methods/psychology/trends, Pediatrics/methods/trends, Professional-family Relations, Quality Of Life, Terminal Care/methods/psychology/trends
Research with bereaved parents: A question of how not why.
Tags: 2006, Adult, Aroni R, Attitude, Backlog, Bauld C, Bereavement, Child, Ethics, Female, Humans, Hynson JL, Interview, Journal Article, Longitudinal Studies, Male, Palliative Care, Palliative Medicine, Parents/psychology, Preschool, Psychological, Research, Research Subjects/psychology, Sawyer SM