Browse Items (59 total)
- Tags: Cohort Analysis
How Do Children With Medical Complexity Die? A Scoping Review
Tags: 2024, April List 2024, biological marker, Bourassa MH, Chan Ng GM, Child, Child Death, Chronic Disease, Chronic Patient, Clinical Practice, Cohort Analysis, Health Care Utilization, Human, Journal of Palliative Medicine, knowledge gap, North America, Only Child, Patel H, Personal Experience, Place Of Death, Qualitative Research, Quality Of Life, Review, Systematic Review
Home values and experiences navigation track (HomeVENT): Supporting decisions about pediatric home ventilation
Tags: 2023, Adolescent, Article, Artificial Ventilation, August List 2025, Boss RD, Child, Cohort Analysis, Content Analysis, Counseling, Decision Making, Ding Y, Female, Henderson CM, home ventilation, Human, Intensive Care Unit, Jabre NA, Lanier CL, Length Of Stay, Male, McDermott A, Mercer A, Palliative Therapy, PEC Innovation, pediatric patient, Pilot Study, Quality Of Life, Question Prompt List, respiratory failure, Semi Structured Interview, Shepard J, Tracheostomy, Ventilators, Mechanical, Vo HH, Wilfond BS
High-intensity end-of-life care among children, adolescents, and young adults with cancer who die in the hospital: A population-based study from the French national hospital database
Tags: 2019, Adolescent, Adolescents, Adult, Andre N, Article, Auquier P, Baumstarck K, Bernard C, Boyer L, Cancer, Cancer Chemotherapy, Cancer Diagnosis, Cancer Patient, Child, Children, Cohort Analysis, Controlled Study, Emergency Care, Emergency Ward, End Of Life, Female, Fond G, France, Gentet J C, Hematologic Malignancy, Hospitalization, Human, Intensive Care Unit, Major Clinical Study, Male, Michel G, Multicenter Study, Oncology 2019 List, Orleans V, outcome assessment, Palliative Care, Palliative Therapy, Pauly V, Retrospective Study, Revon-Riviere G, Seyler C, Terminal Care, time of death, Young Adult, Young Adults
GPs' role in caring for children and young people with life-limiting conditions: a retrospective cohort study
Tags: 2020, accident, Adult, April 2020 List, Article, Attention, care behavior, Child, Clinical Article, Clinical Practice, Cohort Analysis, Consultation, England, Female, Fraser L K, general practice, Health Care Utilization, Hewitt C, Hospital Patient, Human, Icd-10, Jarvis S, Male, Mitchell S, Parslow R C, Patient Care, Primary Health Care, Read code, Retrospective Study, secondary health care, The British journal of general practice : the journal of the Royal College of General Practitioners.
Goals of Care Among Parents of Children Receiving Palliative Care
Tags: 2023, Article, August List 2032, Beight LJ, Bogetz JF, Boyden JY, Child, Chronic Disease, Cohort Analysis, Comfort, Controlled Study, Demographics, Feudtner C, Friebert SE, Hall M, Hill DL, Hinds PS, Human, JAMA Pediatrics, Johnston EE, Kang TI, life extension, Major Clinical Study, Male, Nye RT, Palliative Care, Palliative Therapy, Patient Care Planning, Quality Of Life, Wolfe J
Finnish children who needed long-term home respiratory support had severe sleep-disordered breathing and complex medical backgrounds
Tags: 2024, Acta Paediatrica, acute respiratory failure, adenoid hypertrophy, adenotonsillectomy, Adolescent, angiotensin receptor antagonist/pv [Special Situation for Pharmacovigilance], anxiety, apnea hypopnea index, April List 2024, Article, aspiration pneumonia/co [Complication], Asthma, automatic positive airway pressure, beta 2 adrenergic receptor stimulating agent/ih [Inhalational Drug Administration], beta 2 adrenergic receptor stimulating agent/pv [Special Situation for Pharmacovigilance], beta adrenergic receptor blocking agent/pv [Special Situation for Pharmacovigilance], brain hypoxia, Brain Tumor, cardiovascular agent/pv [Special Situation for Pharmacovigilance], central nervous system disease, central sleep apnea syndrome/th [Therapy], Child, childhood obesity, choana atresia/su [Surgery], Clinical Feature, Clinical Outcome, Cohort Analysis, Comorbidity, Continuous Positive Airway Pressure, Controlled Study, corticosteroid/ih [Inhalational Drug Administration], corticosteroid/pv [Special Situation for Pharmacovigilance], craniofacial malformation, craniofacial surgery, cranioplasty, Data Analysis Software, Demographics, Developmental delay, developmental disorder, diaphragm hernia, dipeptidyl carboxypeptidase inhibitor/pv [Special Situation for Pharmacovigilance], Disease Severity, Down Syndrome, Eskola V, Female, Finn (citizen), Follow Up, Home Care, Human, hypoventilation/th [Therapy], Icd-10, Infant, invasive ventilation, Jarvela M, Katila M, laryngomalacia, Lauhkonen E, Le Fort III osteotomy, Long Term Care, lung hypoplasia, Major Clinical Study, Makinen R, Male, Mandelin P, mask/am [Adverse Device Effect], maxilla hypoplasia/co [Complication], medical device complication/co [Complication], montelukast/pv [Special Situation for Pharmacovigilance], Multidisciplinary team, nasal mask, Neuromuscular Disease, noninvasive positive pressure ventilation, nose obstruction/co [Complication], obstructive sleep apnea/th [Therapy], Only Child, onset age, orthodontic procedure, Palliative Therapy, Pneumonia, Polysomnography, psychological aspect, respiratory care, Respiratory Distress Syndrome, Retrospective Study, Saarenpaa-Heikkila O, skin irritation/co [Complication], Sleep Apnea Syndromes, Sleep Apnea Syndromes/th [Therapy], sleep disorder/co [Complication], Sleep Disorders, SPSS version 28.00, steroid/pv [Special Situation for Pharmacovigilance], Tonsillectomy, tonsillotomy, Tracheostomy, treatment duration, University Hospital
Fatigue and depression in children with demyelinating disorders
Tags: 2013, acquired demyelinating syndromes, acute disseminated encephalomyelitis, Adolescent, alertness, Article, Benedict R H B, Canada, characteristics, Child, Child Behavior, Childhood Disease, Clinical Article, Cohort Analysis, Comorbidity, Controlled Study, Cross-sectional Study, demyelinating disease, demyelinating disorders, Depression, disease duration, Epidemiology, Fatigue, Female, Health Survey, Human, Journal of Child Neurology, Male, Mood, Multiple Sclerosis, Parrish J B, Priority Journal, psychological aspect, School Child, Self Report, Sleep, Smerbeck A, Therapy, Trajectory, Weinstock-Guttman B, Yeh E A
Family-Centered Advance Care Planning: What Matters Most for Parents of Children with Rare Diseases
Tags: 2022, Adult, Advance Care Planning, Aoun SM, Article, attitude to illness, body movement, Caregiver, Child Care, Children, Cohort Analysis, collaborative care team, Content Analysis, Conversation, Disease Burden, Family Centered Care, Family Decision Making, Feasibility Study, Female, Fratantoni K, Human, Human Relation, July List 2023, Livingston J, Lyon ME, Palliative Therapy, Parent, Parental Attitude, pediatric patient, psychosocial care, Qualitative Analysis, Rare Disease, Schellinger SE, social connectedness, videorecording
Factors associated with place of death for children in South Yorkshire: a retrospective cohort study
Tags: 2020, Alison L, anonymised data, April 2020 List, Article, BMJ Supportive & Palliative Care, Child, Cohort Analysis, Controlled Study, Ethnicity, Female, Gender, Home Care, Hospice Care, Human, Major Clinical Study, Male, Mayer A P T, Newborn, Newborn Death, Palliative Therapy, Pediatrics, Renton K, Retrospective Study, Yeomanson D
End-of-life care in children with hematologic malignancies
Tags: 2017, 52-26-6 (morphine), 57-27-2 (morphine), Adolescent, Adult, Article, Balzer S, Blood Transfusion, Borkhardt A, Child, Child Care, Clinical Article, Cohort Analysis, Controlled Study, Fatigue, Female, hematologic malignancy/dt [Drug Therapy], hematologic malignancy/th [Therapy], Hoell JI, Home Care, Hospital Mortality, Human, Intensive Care Unit, Janßen G, Kuhlen M, Male, Morphine/dt [drug Therapy], mucosa inflammation, Oncology 2018 List, Oncotarget, Palliative Therapy, pallor, Patient Referral, petechia, prescription, Retrospective Study, somnolence, Terminal Care, treatment duration, walking difficulty, Warfsmann J
Early palliative care reduces stress in parents of neonates with congenital heart disease: validation of the "Baby, Attachment, Comfort Interventions"
Tags: 2019, anxiety, Article, Brumarie L, Callahan K, Child Parent Relation, Cohort Analysis, Comfort, Congenital Heart Disease, Controlled Study, emotional attachment, Female, Health Care Quality, Human, Infant, Journal of perinatology : official journal of the California Perinatal Association., Male, Mental Stress, Newborn, November 2019 List, Palliative Therapy, Parravicini E, Prospective Study, Schechter S, Steinwurtzel R
Disparities in the intensity of end-of-life care for children with cancer
Tags: 2017, Adolescent, Adult, Alvarez E, Article, Bhatia S, Cancer Chemotherapy, Caucasian, Chamberlain LJ, Child, Childhood Cancer, Childhood Mortality, Cohort Analysis, Controlled Study, Demography, Female, Health Care Disparity, Hematologic Malignancy, Hemodialysis, Hospital Admission, Hospital Mortality, Human, Infant, Intensive Care Unit, Intubation, Johnston EE, Major Clinical Study, Male, Newborn, Oncology 2017 List, Pediatrics, Population Research, Priority Journal, Resuscitation, Retrospective Study, Sanders L, Saynina O, Terminal Care
Costs of Care and Location of Death in Community-Based Pediatric Palliative Care
Tags: 2019, Adolescent, Adult, Article, cardiovascular disease/dm [Disease Management], Child, Child Death, Child Health Care, child health insurance, childhood cancer/dm [Disease Management], childhood disease/dm [Disease Management], Chirico J, Cohort Analysis, community care, community-based, congenital disorder/dm [Disease Management], Cost, Cromwell P, Dawson C, Donnelly J P, Dying, family income, Female, groups by age, Gupton A, Health Care Cost, health maintenance organization, Home Care, Human, Journal of Palliative Medicine, July 2019 List, Korones D N, Major Clinical Study, Male, Medicaid, Miller M, neuromuscular disease/dm [Disease Management], newborn disease/dm [Disease Management], Palliative Therapy, Pediatric Palliative Care, pediatric patient, Prematurity/dm [disease Management], Race Difference, Retrospective Study
Clinical practice and outcomes of palliative radiation therapy in pediatric oncology patients: An international comparison of experiences from two distinct countries and health care systems
Tags: 2019, Alcorn S R, Anorexia, Article, bradycardia, Brain Metastasis, Cancer Palliative Therapy, cancer radiotherapy, Cancer Survival, Chen M J, Chen Q, Child, Childhood Cancer/rt [radiotherapy], Clinical Outcome, Clinical Practice, Cohort Analysis, Figueiredo M L S, Follow Up, Human, Ladra M, leukemia/rt [Radiotherapy], lymphoma/rt [Radiotherapy], Major Clinical Study, mucosa inflammation, neuroblastoma/rt [Radiotherapy], Oncology 2019 List, Opiate/dt [drug Therapy], opiate/pv [Special Situation for Pharmacovigilance], osteosarcoma/rt [Radiotherapy], Pain/dt [drug Therapy], Palliative radiation therapy, Palliative Therapy, pediatric patient, Pediatric radiation therapy, Preschool Child, Priority Journal, radiation dermatitis, Radiation Dose Fractionation, radiation induced neoplasm, Radiotherapy and Oncology, Rao A D, rectum hemorrhage, Sehgal S, Terezakis S A, Treatment Outcome, treatment response, tumor growth, Villar R, Yegya-Raman N
Challenges of palliative care in children with inborn metabolic diseases
Tags: 2018, Adult, Advance Care Planning, Article, Attention, Borkhardt A, Child, Cohort Analysis, Controlled Study, Decision Making, Distelmaier F, February 2019 List, Female, Gastrointestinal Symptom, gastrointestinal tract, Hoell JI, Home Visit, Human, Janßen G, Kuhlen M, Major Clinical Study, Male, Metabolic Disorder, Neurologic Disease, Orphanet Journal Of Rare Diseases, Palliative Therapy, Patient Referral, Preschool Child, Resuscitation, Retrospective Study, Warfsmann J, Young Adult
Center, Gestational Age, and Race Impact End-of-Life Care Practices at Regional Neonatal Intensive Care Units
Tags: 2019, Article, Asselin J, Bartman T, Black person, Brozanski B, Cause Of Death, Central Nervous System, Child, Coghill C H, Cohort Analysis, Controlled Study, Datta A, DiGeronimo R, do not resuscitate order, Drug Withdrawal, Durand D, Dykes F, Evans J, February 2020 List, Female, Fry J T, Gestational Age, Grover T, Human, Infant, injury, Journal of Pediatrics, Leuthner S R, Life Sustaining Treatment, Major Clinical Study, Male, Matoba N, Murthy K, Natarajan G, Neonatal Intensive Care Unit, Newborn, Newborn Death, Niehaus J Z, Padula M, Pallotto E, Piazza A, Reber K, Retrospective Study, Schlegel A B, Shah A, Short B, Sullivan K M, Terminal Care, Zaniletti I
Appropriateness of end-of-life care for children with genetic and congenital conditions: a cohort study using routinely collected linked data
Tags: 2023, administrative health data, Article, August List 2043, Beernaert K, Belgium, Bereavement, Child, Cohen J, Cohort Analysis, Cohort Studies, computer assisted tomography, congenital disorder, Debulpaep S, Decision Making, Deliens L, Drawing, Empirical Research, European Journal of Pediatrics, Female, General Practitioner, genetic association, Genetic Disorder, Health Care System, Human, Major Clinical Study, Male, nuclear magnetic resonance imaging, Palliative Therapy, paramedical personnel, Pediatrics, Physician, Piette V, Terminal Care, X ray
Aggressiveness of care at the end of life in children with cancer: A nationwide cohort study
Tags: 2017, Aggression, aggressiveness, Annals of Oncology, Cancer Staging, Cardoso A, Cause Of Death, Child, Cohort Analysis, Cohort Studies, developmental stage, Female, Gomes B, Hospitalization, Human, Icd-9, immunotherapy, Intensive Care Unit, Lacerda A, Lopes S, Major Clinical Study, Male, Martins BD, Morbidity, Multicenter Study, Oncology 2018 List, Only Child, Palliative Care, Palliative Therapy, Portugal, Prevalence, Quality Of Life, Resuscitation, School Child, total parenteral nutrition, vascular access