Browse Items (58 total)
- Tags: Quality Of Health Care
Parent Reported Outcomes Of Quality Care And Satisfaction In The Context Of A Life-limiting Fetal Diagnosis.
Methods: A cross-sectional design using a validated tool was administered using a Web-based platform. Parents (n = 405) who experienced a life-limiting fetal…
Parental Decision-making On
Utilisation Of Out-of- Home Respite In Children’s Palliative Care: Findings Of
Qualitative Case Study Research - A Proposed New Model.
Respite in children's palliative care aims to provide a break for family's from the routine of caring. Parental decision-making regarding the utilisation of out-of-home respite is dependent on many interlinking factors including the…
Tags: 2016, Adolescent, Adult, Child, Child Preschool, Child: Care, Health and Development, Children, Connaire K, Decision Making, Female, Humans, Ireland/epidemiology, Ling J, Longitudinal Studies, Male, May 2016 List, McCarron M, Palliative Care, Palliative Care/psychology, Parents, Parents/psychology, Payne S, Pediatrics, Qualitative Research, Quality Of Health Care, Respite, Respite Care, Social Support, Terminally Ill/psychology
Key Factors Affecting Dying Children And Their Families
Tags: 2005, Adolescent, Baker J, Bereavement, Child, Communication, Decision Making, Family/px [psychology], Hinds PS, Humans, Journal of Palliative Medicine, May 2017 List, Only Child, Palliative Care/st [standards], Professional-family Relations, Quality Of Health Care, Schum L, Stress Psychological/et [etiology], Terminal Care, Terminal Care/st [standards], Wolfe J
Patterns Of Palliative Care Service Consultation In A Sample Of Critically Ill Icu Patients At High Risk Of Dying
[Difficulties in communication with parents of pediatric cancer patients during the transition to palliative care]
Tags: 2017, Article, Attitude Of Health Personnel, Cancer Mortality, Cancer Palliative Therapy, Cancer Patient, Cancer Therapy, Child, Childhood Cancer, Communication Barrier, Communication Barriers, Critical Illness/nu [nursing], Critical Illness/px [psychology], Disease Management, Dying, Empathy, Female, Hauser P, Hegedus K, Human, Humans, Interpersonal Communication, Medical Expert, Nyiro J, Oncologist, Oncology 2017 List, Orvosi Hetilap, Palliative Care/mt [methods], Palliative Care/px [psychology], Parent-child Relations, Parental Attitude, Parents/px [psychology], Pediatrician, Physician-patient Relations, Psychologist, Quality Of Health Care, Self Defense, Structured Interview, Zorgo S
The impact of care pathways for patients with proximal femur fracture: rationale and design of a cluster-randomized controlled trial.
Tags: 2012, Aged, Backlog, BMC Health Services Research, Boonen S, Boto P, Critical Pathways, Deneckere S, EQCP study group, Femoral Fractures/mo [Mortality], Femoral Fractures/th [Therapy], Humans, Journal Article, Leigheb F, Lodewijckx C, Mendes RV, Outcome And Process Assessment (health Care), Panella M, Peers J, Quality Of Health Care, Research Design, Sermeus W, Sermon An
Quality of life for children with life-limiting and life-threatening illnesses: description and evaluation of a regional, collaborative model for pediatric palliative care
Tags: 2011, Adolescent, Backlog, Biomedical Research, Carpenter P, Child, Continuity Of Patient Care, District of Columbia, Farley J, Female, Gomez CF, Health Personnel, Holson D, Humans, Infant, Inservice Training, Journal Article, Male, Markowitz M, Newborn, Nigra Peter, Palliative Care, PEDI Study, Pediatrics, Preschool, Program Evaluation, Quality Of Health Care, Quality Of Life, Referral And Consultation, Rogers SK, Rood B, Smith K, Terminal Care, The American Journal of Hospice & Palliative Care
Measuring the quality of dying
Tags: 2001, Attitude Of Health Personnel, Attitude To Death, Attitude To Health, Backlog, Chronic/psychology, Family/psychology, Health Services Research/methods/standards, Human, Journal Article, Journal of Palliative Medicine, Kidney Failure, Moss AH, Quality Of Health Care, Quality Of Life, Research Design/standards, Terminal Care/psychology/standards
Reviewing audit: barriers and facilitating factors for effective clinical audit
Tags: 2000, Alder EM, Attitude Of Health Personnel, Backlog, Bibliographic, Comparative Study, Crombie IK, Databases, Davies HT, Evaluation Studies, Family Practice, General, Great Britain, Hospital, Hospitals, Interprofessional Relations, Job Satisfaction, Johnston G, Journal Article, Leadership, Medical Audit/standards, Medical Records/standards, Medical Staff, Medline, Millard A, Non-U.S. Gov't, Nursing Audit, Partnership Practice, Patient Satisfaction, Physician-patient Relations, Physician's Role, Primary Health Care, Quality In Health Care, Quality Of Health Care, Retrospective Studies, Support
Symptoms and Suffering at the End of Life in Children with Cancer
Tags: 2000, Anorexia/etiology/therapy, Backlog, Boston, Child, Children's Hospital (Boston), Clodronate, Constipation/etiology/therapy, Dana-Farber Cancer Institute (Boston), Death and Euthanasia, Diarrhea/etiology/therapy, Dyspnea/etiology/therapy, Ellenbogen JM, Emanuel EJ, Empirical Approach, Fatigue/etiology/therapy, Grier Holcombe E, Health Care Surveys, home care services, Humans, Journal Article, Klar Neil, Levin SB, Logistic Models, Longitudinal Studies, Neoplasms/complications/therapy, New England Journal Of Medicine, Non-U.S. Gov't, Oncology at EOL, P.H.S., Pain/etiology/therapy, Palliative Care/standards/statistics & Numerical Data, Parents, Physicians, Professional Patient Relationship, Psychological, Quality Of Health Care, Quality Of Life, Questionnaires, Research Support, Salem-Schatz S, Stress, Terminal Care, U.S. Gov't, Weeks Jane C, Withholding Treatment, Wolfe J
What is wrong with end-of-life care? Opinions of bereaved family members
Tags: 1997, Aged, Artificial/statistics & numerical data, Attitude To Death, Attitude To Health, Backlog, Bereavement, Cause Of Death, Communication, Consumer Satisfaction/statistics & numerical data, Danis M, Death and Euthanasia, Empirical Approach, Family, Female, Garrett J, Hanson LC, Health Care Surveys, Home Nursing, Humans, Intensive Care/statistics & numerical data, Journal Article, Journal Of The American Geriatrics Society, Male, Non-U.S. Gov't, North Carolina, Nursing Homes/standards, Pain/nursing/therapy, Physician-patient Relations, Quality Of Health Care, Quality Of Life, Research Support, Respiration, Terminal Care/standards/statistics & numerical data
End-of-life care in the intensive care unit: a research agenda.
Tags: 2001, Attitude To Death, Backlog, Critical Care Medicine, Evidence-based Medicine, Female, Health Services Research/organization & administration, Humans, Intensive Care Units, Intensive Care/standards, Intensive Care/trends, Journal Article, Male, Outcome Assessment (health Care), Palliative Care/standards, Palliative Care/trends, Program Evaluation, Quality Of Health Care, Randall CJ, Rubenfeld GD, The End-of-Life Care in the ICU Working Group, United States
Long-stay patients in the pediatric intensive care unit
Tags: 2001, Age Distribution, algorithms, Analysis of Variance, Backlog, Child, Comorbidity, Cost Savings, Critical Care Medicine, Decision Trees, Discriminant Analysis, Emergencies, Female, Health Services Research, Hospital Mortality, Humans, ICU Decision Making, Infant, Intensive Care Units, Intensive Care/economics/standards, Journal Article, Length Of Stay/statistics & Numerical Data, Logistic Models, Male, Marcin JP, Patient Admission/statistics & numerical data, Pediatric/utilization, Pollack MM, Predictive Value of Tests, Preschool, Quality Of Health Care, Risk Factors, Ruttimann UE, Sensitivity and Specificity, Severity Of Illness Index, Slonim AD, Treatment Outcome, United States/epidemiology
The importance of 'knowing the patient': community nurses' constructions of quality in providing palliative care
Tags: 2000, Austin L, Backlog, Caress A, Community Health Nursing, Death and Euthanasia, Empirical Approach, England, Hallett CE, Health Care Reform, Humans, Journal Article, Journal Of Advanced Nursing, Luker KA, Nurse-patient Relations, Palliative Care/standards, Quality Of Health Care, Questionnaires
Research agenda for developing measures to examine quality of care and quality of life of patients diagnosed with life-limiting illness
Satisfaction with palliative care: what should we be aware of?
Tags: 1998, Backlog, Fakhoury WK, Humans, International Journal Of Nursing Studies, Journal Article, Outcome Assessment (Health Care)/organization & administration, Palliative Care/psychology, Palliative Care/standards, Patient Satisfaction, Prospective Studies, Quality Of Health Care, Research Design, Retrospective Studies
Learning to care for people with chronic illness facing the end of life
Tags: 2000, Backlog, Death and Euthanasia, Health Services Accessibility, Health Services Research, JAMA, Journal Article, Lynn J, Palliative Care/economics/standards/trends, Policy Making, Professional Patient Relationship, Quality Of Health Care, RDF Project, Terminal Care/economics/standards/trends, United States
Helen House--a hospice for children: analysis of the first year
Tags: 1984, Adolescent, Backlog, Baum JD, British Medical Journal (clinical Research Ed.), Burne SR, Canuck Place 15 year chart review, Cerebellar Neoplasms/therapy, Child, Dominica F, England, Family Health, Female, Hospices/organization & administration, Humans, Journal Article, Male, Medulloblastoma/therapy, Neuronal Ceroid-Lipofuscinoses/therapy, Patient Admission, Quality Of Health Care, Terminal Care/standards
A pathway to advancing end-of-life education
Children's hospices: organizational and staff issues
Tags: 2002, Adolescent, Adult, Attitude Of Health Personnel, Backlog, Child, Child Health Services/organization & administration/trends, Great Britain, Hospices/organization & administration, Human, Journal Article, Organizational Culture, Palliative Care/organization & administration/trends, Palliative Medicine, Personal Satisfaction, Quality Of Health Care, Sheldon F, Speck P
Mapping the journey of cancer patients through the health care system. Part 2: Methodological approaches and basic findings
Tags: 2004, Aged, Backlog, Blood P, Canadian Oncology Nursing Journal, Cancer Care Facilities, Clinch J, Data Collection/methods, Databases, Delivery of Health Care/organization & administration, El Sayed S, Factual/utilization, Female, Health Services Research/methods, Humans, Journal Article, Khoo K, Length Of Stay/statistics & Numerical Data, Male, Manitoba/epidemiology, Medical Oncology, Medical Record Linkage/methods, Middle Aged, Nemecek A, Neoplasms/diagnosis/mortality/therapy, Non-U.S. Gov't, Patient Admission/statistics & numerical data, Proportional Hazards Models, Quality Of Health Care, Registries, Research Support, Scott-Findlay S, Sloan JA, Survival Analysis, Trylinski C, Whittaker H
Hospital staff and family perspectives regarding quality of pediatric palliative care.
Tags: 2004, Attitude Of Health Personnel, Attitude To Health, Backlog, Bereavement, Child, Cohen HJ, Communication, Contro N, Data Collection, Family/psychology, Hospital/psychology, Humans, Journal Article, Larson J, Longitudinal Studies, Non-U.S. Gov't, Pain/therapy, Palliative Care/standards, Pediatrics, Pediatrics/education/standards, Personnel, Professional-family Relations, Quality Of Health Care, Research Support, Scofield S, Sourkes B
Using industrial processes to improve patient care
Tags: 2004, Backlog, Bmj (clinical Research Ed.), Brailsford S, Connell C, Davies R, Decision Making, Great Britain, Harper P, Humans, Industry/methods/standards, Journal Article, Klein JH, Occupational Health, Patient Care/standards, Quality Of Health Care, State Medicine/standards, Waiting Lists, Young T
Research methods used in developing and applying quality indicators in primary care
Tags: 2003, Backlog, Bmj (clinical Research Ed.), Braspenning J, Campbell SM, Consensus, Evidence-based Medicine, Health Care, Health Services Research/methods, Humans, Hutchinson A, Journal Article, Marshall MN, Practice Guidelines, Primary Health Care/standards, Quality Indicators, Quality Of Health Care
Frequency and determinants of formal respite service use among caregivers of children with cerebral palsy in Ontario
Tags: 2004, Adult, Attitude To Health, Backlog, Caregivers, Cerebral Palsy/complications/rehabilitation, Child, Child: Care, Health and Development, Cross-sectional Studies, Damiani G, Female, Health Services Accessibility, Humans, Journal Article, Male, Non-U.S. Gov't, Patient Acceptance of Health Care, Quality Of Health Care, Research Support, Respite Care, Rosenbaum P, Russell D, Sex Factors, Social Support, Socioeconomic Factors, Swinton M
Parental perspectives on end-of-life care in the pediatric intensive care unit
Tags: 2002, Adult, Backlog, Boston, Burns JP, Child, Critical Care Medicine, Death and Euthanasia, Decision Making, Empirical Approach, Female, Griffith JL, Humans, ICU Decision Making, Intensive Care Units, Journal Article, Male, Meyer EC, Pain, Parents/psychology, Pediatric, Prognosis, Quality Of Health Care, Quality Of Life, Questionnaires, Terminal Care, Truog RD, Withholding Treatment
Issues in end-of-life care: patient, caregiver, and clinician perceptions
Tags: 2003, 80 And Over, Adult, Aged, Attitude Of Health Personnel, Attitude To Death, Backlog, Caregivers/psychology, Cohort Studies, Cost Of Illness, Egnew TR, Family/psychology, Farber SJ, Female, Guldin GE, Herman-Bertsch JL, Humans, Interpersonal Relations, Interviews, Journal Article, Journal of Palliative Medicine, Male, Middle Aged, Non-U.S. Gov't, Palliative Care/psychology, Patients/psychology, Physicians, Qualitative Research, Quality Of Health Care, Research Support, Taylor TR, Terminal Care/psychology, Washington
Do hospital-based palliative teams improve care for patients or families at the end of life?
Tags: 2002, Backlog, Cook AM, Douglas HR, Edwards AG, Family, Finlay I, Goodwin DM, Higginson IJ, Hood K, Hospitals, Humans, Journal Article, Journal of Pain and Symptom Management, Norman CE, Outcome And Process Assessment (health Care), Palliative Care, Patient Care Team, Quality Of Health Care, Terminal Care
Survey of specialized tertiary care facilities for adults with congenital heart disease
Tags: 2004, Adolescent, Adolescent Transitions, Adult, Backlog, Cardiac Care Facilities/organization & administration/utilization, Congenital/diagnosis/mortality/surgery, Europe/epidemiology, Female, Gatzoulis MA, Health Care Surveys, Heart Defects, Hospitalization/statistics & numerical data, Humans, International Journal Of Cardiology, Journal Article, Liberthson R, Male, Middle Aged, Murphy D, Niwa K, North America/epidemiology, Patient Admission/statistics & numerical data, Patient Care Team, Perloff JK, Program Evaluation, Quality Of Health Care, Questionnaires, Reoperation/utilization, Resource Allocation, Survival Analysis, Treatment Outcome, Warnes CA, Webb GD
Improving health care for adult survivors of childhood cancer: recommendations from a delphi panel of health policy experts
Tags: 2004, Adult, Backlog, Cotter KL, Delphi Technique, Eshelman D, Foster BM, Health Policy, Health Policy (amsterdam, Netherlands), Health Services Research, Hudson MM, Humans, Journal Article, Loftis L, Mertens AC, Neoplasms, Non-U.S. Gov't, Oeffinger KC, Quality Of Health Care, Research Support, Sozio M, Survivors, United States, Zebrack BJ
Parent and physician perspectives on quality of care at the end of life in children with cancer
Tags: 2005, Adolescent, Adult, Backlog, Child, Communication, Extramural, Female, Grier HE, Health Care Surveys, Hilden JM, Humans, Infant, Journal Article, Journal Of Clinical Oncology, Mack JW, Male, Moore C, N.I.H., Newborn, Non-U.S. Gov't, Odds Ratio, Pain, Parent-child Relations, Physician-patient Relations, Physicians/standards, Preschool, Quality Of Health Care, Quality Of Life, Research Support, Terminal Care/standards, Turner B, Watterson J, Weeks JC, Wolfe J
Key factors affecting dying children and their families
Tags: 2005, Adolescent, Backlog, Baker JN, Bereavement, Child, Communication, Decision Making, Family/psychology, Hinds PS, Humans, Journal Article, Journal of Palliative Medicine, Palliative Care/standards, Professional-family Relations, Psychological/etiology, Quality Of Health Care, Schum L, Stress, Terminal Care/standards, Wolfe J