Browse Items (134 total)
- Tags: Parents/psychology
Your child is dead
Tags: 1991, Attitude Of Health Personnel, Attitude To Death, Backlog, Bereavement, Bmj (clinical Research Ed.), Cause Of Death, Child, Communication, Dallimore D, Female, Finlay I, France, Great Britain, Humans, Infant, Interviews As Topic, Journal Article, Male, Newborn, Nurses, Parents/psychology, Physicians, Police, Preschool, Professional-family Relations, Questionnaires, Tissue and Organ Procurement, Tissue Donors
When Parents Face The Death Of Their Child: A Nationwide Cross-sectional Survey Of Parental Perspectives On Their Child’s End- Of Life Care.
Parents facing the death of their child have a strong need for compassionate professional support. Care services should be based on empirical evidence, be sensitive to the needs of the families concerned, take into account the…
Tags:
2016, Attitude Of Health Personnel, Attitude To Death, Bergstraesser E, BMC Palliative Care, Chantal Grandjean, Cross-sectional Studies, Death, Decision Making, End Of Life, Engberg S, Eva Cignacco
K, Female, Humans, Infant Newborn, Male, Marfurt-Russenberger, May 2016 List, Nicolas Von der Weid, Parental Perspectives, Parents/psychology, Patricia Fahrni-Nater, Pediatrics, Pediatrics/standards, Perception, Questionnaire Survey, Ramelet AS, Resuscitation Orders/psychology, Surveys And Questionnaires, Switzerland, Terminal Care, Terminal Care/standards, Von der Weid N, Zimmermann K
When a child dies: a systematic review of well-defined parent-focused bereavement interventions and their alignment with grief- and loss theories
Tags: 2020, Adaptation, Attitude To Death, Bereavement, BMC Palliative Care, Boelen PA, Deben LMA, December 2020 List, Fahner JC, Geleijns K, Grief, Hospice Care/methods/psychology/standards, Humans, Interventions, Jenken F, Kars MC, Kochen EM, Models Theoretical, Paediatrics, Parenting/psychology, Parents, Parents/psychology, Psychological, Psychological Theory, Social Support, Systematic Review, Teunissen SCCM, van den Hoogen A
What Information Do Parents Need When Facing End-of-life Decisions For Their Child? A Meta-synthesis Of Parental Feedback
Tags: 2015, BMC Palliative Care, Communication, Decision Making, Health Knowledge Attitudes Practice, Hope, Humans, Intensive Care Units Pediatric/organization & Administration, July 2017 List, Needs Assessment, Parents/education, Parents/psychology, Sullivan J, Terminal Care/methods, Terminal Care/psychology, Time Factors, Wilkinson D, Xafis V
What influences parents' decisions to limit or withdraw life support?
Tags: 2005, Adolescent, Adult, Attitude To Death, Backlog, Child, Decision Making, Emotions, Female, Humans, ICU Decision Making, Infant, Journal Article, Life Change Events, Life Support Care/psychology, Male, Meert KL, Middle Aged, Parents/psychology, Pediatric Critical Care Medicine, Pilot Projects, Preschool, Prospective Studies, Sarnaik AP, Sharman M, Withholding Treatment
Views of adolescents and parents on pediatric research without the potential for clinical benefit
Tags: 2012, Abdoler E, Adolescent, Adolescent Psychology, Adult, Altruism, Attitude To Health, Backlog, Benefits of PPC, Female, Grady C, Humans, Journal Article, Male, Motivation, Nontherapeutic Human Experimentation, Parents/psychology, Pediatrics, Questionnaires, Research Subjects/psychology, Risk-Taking, Wendler D, Wiener L
Using videotelephony to support paediatric oncology-related palliative care in the home: from abandoned RCT to acceptability study
Tags: 2009, Adolescent, Adult, Armfield NR, Australia, Backlog, Barnett AG, Bensink ME, Child, Computer Communication Networks/economics, Computer Security, Continuity Of Patient Care, Cost-Benefit Analysis, Early Termination of Clinical Trials, Female, Hallahan A, Health Services Accessibility/economics, Home Care Services/economics, Humans, Irving H, Journal Article, Male, Neoplasms/therapy, Palliative Care, Palliative Medicine, Parents/psychology, Patient Acceptance of Health Care, Patient Satisfaction, Pinkerton R, PPC Book Chapter 2011 (Kim Widger), Preschool, Rural Health Services/economics, Russell T, Scuffham P, Telemedicine/economics/instrumentation/methods, Theodoros DG, Videoconferencing/economics/instrumentation, Wootton R
Understanding parents' approaches to care and treatment of children with cancer when standard therapy has failed
Tags: 2007, Adolescent, Adult, Backlog, Belasco C, Belasco JB, Bluebond-Langner M, Caregivers/psychology, Child, Decision Making, Goldman A, Great Britain, Humans, Infant, Journal Article, Journal Of Clinical Oncology, Neoplasms/therapy, Parents/psychology, Preschool, Prospective Studies, Terminally Ill, United States
Understanding of prognosis among parents of children who died of cancer: Impact on treatment goals and integration of palliative care
Tags: 2000, Adult, Attitude To Death, Backlog, Child, Data Collection, Death and Euthanasia, Decision Making, Empirical Approach, et al, Female, Grier HE, Humans, JAMA, Journal Article, Klar N, Male, Neoplasms/mortality/therapy, Oncology at EOL, Palliative Care, Parents/psychology, Physicians/psychology, Professional Patient Relationship, Prognosis, Regression Analysis, Terminally Ill, Wolfe J
Toward family-centered inpatient medical care: The role of parents as participants in medical decisions.
Tags: 2007, Adolescent, Adult, Backlog, Child, Christakis DA, Consumer Participation, Data Collection, Decision Making, Family Nursing, Female, Hospitalization, Humans, Journal Article, Logistic Models, Longitudinal Studies, Lozano P, Male, Middle Aged, Multivariate Analysis, Parents/psychology, Self Efficacy, Tarini BA, The Journal Of Pediatrics
The use of the Impact on Sibling scale with families of children with chronic illness and developmental disability
Tags: 2009, Adaptation, Adolescent, Backlog, Child, Child Development Disorders, Child: Care, Health and Development, Chronic Disease, Developmental Disabilities/psychology, Female, Humans, Infant, Journal Article, Kao B, Lobato D, Male, Parents/psychology, Pervasive/psychology, Plante W, Preschool, Psychological, Psychometrics, Sibling Relations, Siblings/psychology, Socioeconomic Factors
The suffering in silence of older parents whose child died of cancer: A qualitative study
Tags: 2016, Aged, Aged 80 And Over, Attitude To Death, Critical Care Medicine, Dillen L, Female Grief, Grounded Theory, Grypdonck M, Guilt, Humans, Life Change Events, Loneliness, Male, Middle Aged, Neoplasms/psychology, Oncology 2017 List, Parents/psychology, Piers R, Qualitative Research Stress Psychological, Van Den Noortgate N, Van Humbeeck L
The relationship between grief adjustment and continuing bonds for parents who have lost a child
Tags: 2009, Adaptation, Adolescent, Adult, Attitude To Death, Backlog, Davies B, Female, Field NP, Grief, Humans, Infant, Interpersonal Relations, Journal Article, Kramer R, Life Change Events, Long JK, Male, Newborn, Object Attachment, Omega, Packman W, Parent-child Relations, Parents/psychology, Psychological, Quality Of Life, Questionnaires, Ronen R
The psychosocial well-being of children with chronic disease, their parents and siblings: an overview of the research evidence base.
Tags: 2006, Adaptation, Backlog, Barlow JH, Child, Child: Care, Health and Development, Children W/SNI, Chronic Disease/psychology/rehabilitation, Ellard DR, Evidence-based Medicine, Family Health, Humans, Journal Article, Literature review, Longitudinal Studies, Mental Disorders/etiology, Meta-Analysis, Parents/psychology, Psychological, Siblings/psychology
The Marital Implications of Bereavement: Child Death and Intimate Partner Violence in West and Central Africa
Tags: 2020, 2021 Special Edition 1 - Low Resource Settings, Adolescent, Adult, Africa Central, Africa Western, Bereavement, Child, Child Mortality, Child Preschool, Demography, Female, Humans, Infant, Infant Newborn, Intimate partner violence, Intimate Partner Violence/statistics & numerical data, Male, Marriage/statistics & numerical data, Middle Aged, Parents/psychology, Risk Factors, Smith-Greenaway E, Weitzman A, West and Central Africa, Young Adult
The impact of parental status on the risk of completed suicide.
Tags: 2003, Adolescent, Adult, Aged, Archives Of General Psychiatry, Backlog, Bereavement, Cause Of Death, Child, Denmark/epidemiology, Family Characteristics, Female, Grief, Humans, Infant, Journal Article, Longitudinal Studies, Male, Middle Aged, Mortensen PB, Parents/psychology, Preschool, Qin P, Registries, Risk Factors, Socioeconomic Factors, Suicide/prevention & control/psychology/statistics & numerical data
The Experiences Of Families Living With The Anticipatory Loss Of A School-age Child With Spinal Muscular Atrophy – The Parents’ Perspectives
To probe into parents’ anticipatory loss of school-age children with Type I or II spinal muscular atrophy.
Background
Spinal muscular atrophy is a rare disorder that causes death. Children die early due to either gradual atrophy…
Tags: 2016, Adult, Anticipatory Loss, Child, Female, Grief, Humans, Interviews As Topic, Journal of Clinical Nursing, July 2016 List, Male, Middle Aged, Muscular Atrophy Spinal/nursing, Muscular Atrophy Spinal/psychology, Nurse's Role, Parents/psychology, School-age Children, Spinal Muscular Atrophy, Taiwan, Yang
The effects of self-help and psychotherapy intervention on child loss: the limits of recovery
Tags: 1985, Adaptation, Adjustment Disorders/therapy, Backlog, Child, Combined Modality Therapy, Female, Grief, Humans, Intervention, Interventions, Journal Article, Lieberman M, Male, Non-U.S. Gov't, P.H.S., Parents/psychology, Psychological, Psychotherapy/methods, Research Support, Self-Help Groups, Social Adjustment, The American Journal Of Orthopsychiatry, U.S. Gov't, Videka-Sherman L
The deceased child in the psychic and social worlds of bereaved parents during the resolution of grief
Testing the grief to personal growth model using structural equation modeling.
Talking about death with children who have severe malignant disease
Tags: 2004, Adolescent, Adult, Backlog, Bereavement, Chi-Square Distribution, Child, Death, Female, Henter JI, Humans, Journal Article, Kreicbergs U, Logistic Models, Male, Neoplasms, New England Journal Of Medicine, Onelov E, Parent-child Relations, Parents/psychology, Preschool, Steineck G, Sweden, Terminally Ill, Truth Disclosure, Valdimarsdottir U
Supportive and palliative care needs of families of children with life-threatening illnesses in Western Australia: evidence to guide the development of a palliative care service
Tags: 2007, Aoun S, Backlog, Child, Community Health Nursing/organization & administration/standards, Critical Illness, Family Health, Humans, Journal Article, Kristjanson LJ, Monterosso L, Palliative Care/organization & administration/psychology/standards, Palliative Medicine, Parents/psychology, Patient Care Team, Phillips MB, Q3 Scoping Review Results, Quality of Health Care/organization & administration/standards, Social Support, Terminally Ill, Western Australia
Suicide ideation among parents bereaved by the violent deaths of their children.
Tags: 2003, Accidents/psychology, Adaptation, Adolescent, Adult, Backlog, Bereavement, Child, Depression/diagnosis/psychology, Family Health, Female, Homicide/psychology, Humans, Issues In Mental Health Nursing, Johnson LC, Journal Article, Lohan JA, Longitudinal Studies, Male, Middle Aged, Murphy SA, Parents/psychology, Post-Traumatic/diagnosis/psychology, Predictive Value of Tests, Psychiatric Status Rating Scales, Psychological, Psychological/diagnosis/psychology, Questionnaires, Self Efficacy, Social Support, Stress, Stress Disorders, Suicide/psychology, Tapper VJ, Violence/psychology
Stress levels experienced by the parents of enterally fed children
Tags: 2004, Backlog, Child, Child Nutrition, Child: Care, Health and Development, Chronic Disease, Dewey D, Enteral Nutrition/psychology, Humans, Infant, Journal Article, Non-U.S. Gov't, Parent-child Relations, Parents/psychology, Parsons HG, Pedersen SD, Preschool, Psychological/psychology, Research Support, Stress
Stillbirth memento photography
Sleep disorder and epilepsy in children with tuberous sclerosis: a questionnaire-based study
Tags: 1994, Adolescent, behavioral problems, characteristics, Child, Child Preschool, Developmental Disabilities/complications, Developmental Medicine and Child Neurology, Epilepsy/etiology, Female, Humans, Hunt A, Learning Disorders/complications, Male, Parents/psychology, sleep disturbance, Sleep Wake Disorders/etiology/psychology, Stores G, Stress Psychological/etiology, Surveys And Questionnaires, Trajectory, Tuberous Sclerosis, Tuberous Sclerosis/complications/psychology
Sick leave among parents of children with cancer - a national cohort study
Tags: 2017, Acta Oncologica, Adolescent, Adult, Child, Child Preschool, Cohort Studies, Female, Follow-up Studies, Hed MI, Hjelmstedt S, Hoven E, Humans, Infant, Infant Newborn, Lindahl NA, Male, Montgomery S, Neoplasms/diagnosis/epidemiology/psychology, Oncology 2018 List, Only Child, Parents/psychology, Prognosis, Registries, Sick Leave, Sick Leave/statistics & numerical data, Sweden/epidemiology
Resilience to loss in bereaved spouses, bereaved parents, and bereaved gay men
Tags: 2005, Affect, Backlog, Bereavement, Bonanno GA, Extramural, Folkman S, Homosexuality, Humans, Interview, Journal Article, Journal Of Personality And Social Psychology, Male, Male/psychology, Middle Aged, Moskowitz JT, N.I.H., P.H.S., Papa A, Parents/psychology, Psychological, Research Support, Social Behavior, Spouses/psychology, U.S. Gov't
Research with bereaved parents: A question of how not why.
Tags: 2006, Adult, Aroni R, Attitude, Backlog, Bauld C, Bereavement, Child, Ethics, Female, Humans, Hynson JL, Interview, Journal Article, Longitudinal Studies, Male, Palliative Care, Palliative Medicine, Parents/psychology, Preschool, Psychological, Research, Research Subjects/psychology, Sawyer SM
Psychosocial functioning in youth with glycogen storage disease type I
Tags: 2008, Adaptation, Adolescent, Adolescent Transitions, Adult, Backlog, Case-Control Studies, Child, Correia C, Diabetes Mellitus/psychology, Family Health, Female, Florida, Glycogen Storage Disease Type I/psychology, Humans, Jacob M, Journal Article, Journal of Pediatric Psychology, Keeley M, Loneliness, Male, Merlo L, Parents/psychology, Preschool, Psychological, Quality Of Life, Storch E, Weinstein D
Provision Of Services In Perinatal Palliative Care: A Multicenter Survey In The United States.
Congenital anomalies account for 20% of neonatal and infant deaths in the United States. Perinatal palliative care is a recent addition to palliative care and is meant to meet the needs of families who choose to continue a pregnancy…
Tags: 2016, Bereavement, Côté-Arsenault D, Critical Care/organization & Administration, Cross-sectional Studies, Denney-Koelsch E, Female, Fetal Mortality, Humans, Infant Newborn, Journal of Palliative Medicine, Kavanaugh K, Kim S, March 2016 List, Palliative Care/organization & Administration, Parents/psychology, Perinatal Care/organization & Administration, Perry Black B, Pregnancy, Professional-family Relations, Surveys And Questionnaires, United States, Wool C
Predictors of distress in parents of children with cancer: a prospective study.
Tags: 2000, Adaptation, Adolescent, Backlog, Child, Cost Of Illness, Depression/diagnosis/drug therapy/psychology, Female, Humans, Internal-External Control, Journal Article, Journal of Pediatric Psychology, Longitudinal Studies, Male, Neoplasms, Non-U.S. Gov't, Parent-child Relations, Parents/psychology, Prospective Studies, Psychological, Psychological/psychology, Questionnaires, Research Support, Sloper P, Social Adjustment, Social Support, Stress
Predicting death in children
Posttraumatic growth in parents caring for a child with a life-limiting illness: A structural equation model.
Tags: 2014, Adult, Aged, Cadell S, Caregivers/psychology, Child, Davies E, Disabled Children/psychology, Hemsworth D, Human Development, Humans, Liben S, Male, Middle Aged, Models Psychological, Palliative Care/psychology, Parents/psychology, Siden H, Smit QT, Steele R, Straatman L, The American Journal Of Orthopsychiatry, Young Adult
Perinatal loss. A critique of current hospital practices
Tags: 1992, Backlog, Bereavement, Caregivers/psychology, Clinical Pediatrics, Clinical Protocols, Female, Fetal Death, Grief, Hospital/psychology, Hospitals, Humans, Infant, Journal Article, Leon IG, Male, Newborn, Parent-child Relations, Parents/psychology, perinatology, Personnel, Professional-family Relations
Perinatal Counseling Following a Diagnosis of Trisomy 13 or 18: Incorporating the Facts, Parental Values, and Maintaining Choices
Tags: 2020, Acharya K, Advances in Neonatal Care, Counseling/ethics/methods, Female, Humans, Infant Newborn, Leuthner SR, May 2021 List, Palliative Care/ethics/methods/psychology, Parents/psychology, Pregnancy, Prenatal Diagnosis/methods/psychology, Psychosocial Support Systems, shared decision making, Trisomy 13 Syndrome/diagnosis/psychology/therapy, Trisomy 18 Syndrome/diagnosis/psychology/therapy
Pediatric advance care planning.
Tags: 2005, 7 died at home and 2 died at a hospital. Eight of the children's advance directives were followed during the dying process, 9 are deceased, Advance Care Planning/og [Organization & Administration], Advance Care Planning/organization & Administration, Backlog, Child, DNAR, DNAR Outcomes, Female, Hammes BJ, Humans, including preserving their child's quality of life and avoiding unnecessary suffering., individuals in the community raised concerns about the child's advance directive. CONCLUSIONS: Even though the topic of their child's death is difficult, Infant, Interviews As Topic, Journal Article, Journal of Palliative Medicine, Kempf M, Klevan J, Male, Newborn, Parents/psychology, Parents/px [psychology], Pediatrics, PedPal Lit, Preschool, the majority of the interviewed parents found the advance care planning process for the child helpful because it assured the best care for the child, while 1 was not. Th irteen parents were interviewed. Twelve stated that the process of advance care planning benefited their children and their family. Rarely, Williams MS, Wisconsin
Parents' views of cancer-directed therapy for children with no realistic chance for cure
Tags: 2008, Adolescent, Adult, Antineoplastic Agents/adverse effects, Backlog, Child, Female, Hilden JM, Humans, Infant, Joffe S, Journal Article, Journal Of Clinical Oncology, Mack JW, Male, Middle Aged, Moore C, Neoplasms/drug therapy/psychology, Newborn, Parent-child Relations, Parents/psychology, Preschool, Questionnaires, Terminally Ill/psychology, Watterson J, Weeks JC, Wolfe J
Parents' reactions to participating in interviews about end-of-life decision making
Parents' perspectives regarding a physician-parent conference after their child's death in the pediatric intensive care unit
Tags: 2007, Adult, Anand KJ, Backlog, Bereavement, Carcillo J, Communication, Critical Care, Dean JM, Death, Eggly S, Female, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Male, Meert KL, Middle Aged, National Institute of Child Health and Human Development Collaborative Pediatric Critical Care Research Network, Needs Assessment, Newborn, Newth CJ, Nicholson C, Parent-child Relations, Parents/psychology, Pediatric, Physician's Role, Pollack M, Questionnaires, The Journal Of Pediatrics, Willson DF, Zimmerman J