Browse Items (94 total)
- Tags: Follow-up Studies
Antenatal Palliative Care Consultation: Implications For Decision-making And Perinatal Outcomes In A Single-centre Experience
Tags: 2017, Adult, Archives of Disease in Childhood. Fetal and Neonatal Edition, Decision Making, Female, Follow-up Studies, Gollehon N, Humans, Infant Newborn, Kukora S, Laventhal N, Male, March 2017 List, Palliative Care/methods, Pregnancy, Pregnancy Outcome, Prenatal Care/methods, Referral And Consultation/organization & Administration, Retrospective Studies, Young Adult
A Longitudinal, Randomized, Controlled Trial Of Advance Care Planning For Teens With Cancer: Anxiety, Depression, Quality Of Life, Advance Directives, Spirituality
METHODS:
Adolescent (age 14-20 years)/family dyads (N = 30) with a cancer…
Tags: 2014, Adolescent, Adult, Advance Care Planning, Advance Care Planning/statistics & Numerical Data, Advance Directive, Advance Directives/psychology, Advance Directives/statistics & Numerical Data, African-american, Anxiety/complications, Anxiety/psychology, Cancer, Communication, Decision-making, Depression/complications, Depression/psychology, End Of Life, Family, Family Intervention, Feasibility Studies, Female, Follow-up Studies, Humans, Journal of Adolescent Health, July 2016 List, Longitudinal Studies, M.E. Lyon, Male, Neoplasms/complications, Neoplasms/psychology, Patient Satisfaction/statistics & Numerical Data, Pediatric Palliative Care, Quality Of Life/psychology, Spirituality, Surveys And Questionnaires, United States, Wang J, Young Adult
Association of Mortality With the Death of a Sibling in Childhood.
Tags: 2017, Adolescent, Age Factors, Bereavement, Cause Of Death, Child, Child, Preschool, Cnattingius S, December 2017 List, Denmark/epidemiology, Family Health/ Statistics & Numerical Data, Female, Follow-up Studies, Fu B, Humans, JAMA Pediatrics, Li J, Liew Z, Life Change Events, Male, Mortality, Olsen J, Parner ET, Qin G, Registries, Risk Factors, Sex Factors, Siblings, Sweden/epidemiology, Time Factors, Vestergaard M, Yu Y, Zhao N
Cause of Death in Children With Mitochondrial Diseases
Tags: 2017, Age of Onset, Cause Of Death, Child, Children, Eom S, February 2018 List, Female, Follow-up Studies, Humans, Kang HC, Kim HD, Lee HN, Lee JS, Lee S, Lee YM, Male, mitochondrial disease, Mitochondrial Diseases, Mitochondrial Diseases/ mortality, Mortality, Only Child, Pediatric, Pediatric Neurology, Preschool, risk factor
The forgotten griever: a nationwide follow-up study of mortality subsequent to the death of a sibling
Tags: 2012, Adolescent, Adult, Age Factors, Aged, American Journal Of Epidemiology, Backlog, Bereavement, Cause Of Death, Female, Follow-up Studies, Humans, Journal Article, Kawachi I, Male, Middle Aged, Mortality, Proportional Hazards Models, Registries, Rostila Mikael, Saarela J, Sex Factors, sibling bereavement, Siblings, Sweden, Young Adult
Survival without disability to age 5 years after neonatal caffeine therapy for apnea of prematurity
Tags: 2012, Anderson PJ, Apnea/drug therapy, Asztalos EV, Backlog, Barrington KJ, Blindness/epidemiology/etiology/prevention & control, Caffeine/adverse effects/therapeutic use, Central Nervous System Stimulants/adverse effects/therapeutic use, Cerebral Palsy/epidemiology, Child, Child Development, Cognition Disorders/epidemiology/etiology/prevention & control, Davis PG, Deafness/epidemiology/etiology/prevention & control, Developmental Disabilities/epidemiology/etiology/prevention & control, Dewey D, Doyle LW, Female, Follow-up Studies, Grunau RE, Humans, Incidence, Infant, JAMA, Journal Article, Male, Moddemann D, N2N, Newborn, Odds Ratio, Ohlsson A, Premature, Preschool, Roberts RS, Schmidt B, Solimano A, Survival Analysis, Tin W, Treatment Outcome, Trial Investigators Caffeine for Apnea of Prematurity (CAP), Very Low Birth Weight
Factors important to patients' quality of life at the end of life
Tags: 2012, Adult, Aged, Archives Of Internal Medicine, Attitude To Death, Backlog, Caregivers, Drug Therapy, Female, Follow-up Studies, Humans, Journal Article, Male, Meditation, Middle Aged, Models, Neoplasms, Nilsson ME, Pastoral Care, Physician-patient Relations, Prigerson HG, Prospective Studies, Quality Of Life, statistical, Terminal Care, Terminally Ill, United States, Zhang B
Pediatric palliative care patients: a prospective multicenter cohort study
Tags: 2011, Adolescent, Backlog, Child, Chronic Disease, Chronic Disease/epidemiology/therapy, Dussel V, Eligibility Determination, Eligibility Determination/methods, Female, Feudtner C, Follow-up Studies, Friebert SE, Friedrichsdorf SJ, Hays Ross M, Hexem KR, Hospitalization, Hospitalization/trends, Humans, Infant, Journal Article, Kang T, Male, Medical Audit, Medical Audit/organization & administration, Newborn, Osenga K, Palliative Care, Palliative Care/organization & Administration, PEDI Study, Pediatrics, Preschool, Prevalence, Prospective Studies, Siden H, United States, United States/epidemiology, Wolfe J, Young Adult
Prognosis for survival and improvement in function in children with severe developmental disabilities
Tags: 1997, Age Distribution, Ashwal S, Backlog, California/epidemiology, Child, Cohort Studies, Developmental Disabilities/mortality, Eyman RK, Follow-up Studies, Human, Infant, Journal Article, Journal of Pediatrics, Newborn, P.H.S., Preschool, Prognosis, Severity Of Illness Index, Shavelle R, Strauss D, Support, Survival Rate, U.S. Gov't
Communication with parents of children with cancer
Tags: 1994, Adaptation, Adolescent, Adult, Backlog, Black I, Child, Communication, Defense Mechanisms, Eden OB, Emery AE, Female, Follow-up Studies, Grief, Human, Infant, Interview, Journal Article, Leukemia/psychology, MacKinlay GA, Male, Neoplasms/psychology, Palliative Medicine, Parent-child Relations, Parents/education/psychology, Patient Care Team, Preschool, Professional-family Relations, Psychological, Truth Disclosure
Seizures in children with congenital hydrocephalus: long-term outcome
Neurologic presentations of mitochondrial disorders
Tags: 2000, Backlog, Barash V, Brain Diseases, Child, Deafness/diagnosis/genetics, Developmental Disabilities/diagnosis/genetics, Fattal-Valevski A, Female, Follow-up Studies, Gutman A, Harel S, Humans, Inborn/diagnosis/genetics, Journal Article, Journal of Child Neurology, Lerman-Sagie T, Lev D, Male, MELAS Syndrome/diagnosis/genetics, Mental Retardation/diagnosis/genetics, MERRF Syndrome/diagnosis/genetics, Metabolic, Mitochondrial Myopathies/diagnosis/genetics, Neurologic Examination, Nissenkorn A, Q3 Scoping Review Results, Watemberg N, Zeharia A
Sleep and neuromuscular disease: bilevel positive airway pressure by nasal mask as a treatment for sleep disordered breathing in patients with neuromuscular disease
Tags: 1998, Adolescent, Adult, Backlog, Child, Female, Follow-up Studies, Guilleminault C, Humans, Intermittent Positive-Pressure Ventilation, Journal Article, Journal Of Neurology, Neurosurgery, And Psychiatry, Lung Volume Measurements, Male, Masks, Middle Aged, Muscular Dystrophies/physiopathology/therapy, Neuromuscular Diseases/physiopathology/therapy, Philip P, Polysomnography, Positive-Pressure Respiration, Pulmonary Ventilation/physiology, Q3 Scoping Review Results, Robinson A, Sleep Apnea Syndromes/physiopathology/therapy, Treatment Outcome
A follow up study of myocardial involvement in patients with mitochondrial encephalomyopathy, lactic acidosis, and stroke-like episodes (MELAS)
Tags: 1998, Adolescent, Adult, Aotsuka H, Backlog, Child, Echocardiography, Electrocardiography, Female, Follow-up Studies, Heart (british Cardiac Society), Humans, Hypertrophy, Journal Article, Left Ventricular/physiopathology/ultrasonography, Male, MELAS Syndrome/physiopathology/ultrasonography, Okajima Y, Q3 Scoping Review Results, Stroke Volume, Takayanagi M, Tanabe Y
Late onset globoid cell leukodystrophy (Krabbe's disease)--Swedish case with 15 years of follow-up.
Tags: 1995, Acta Paediatrica, Adult, Age of Onset, Arvidsson J, Backlog, Epilepsy/etiology, Follow-up Studies, Galactosylceramidase/blood, Globoid Cell/complications/enzymology/radiography, Hagberg B, Humans, Journal Article, Leukodystrophy, Longitudinal Studies, Male, Mansson JE, Musculoskeletal Equilibrium, Svennerholm L, Sweden, Tomography, Vision Disorders/etiology, X-Ray Computed
Reduced life expectancy in 40 cases of early onset cerebellar ataxia with retained tendon reflexes: a population-based study
Tags: 1993, Acta Neurologica Scandinavica, Adolescent, Adult, Aged, Backlog, Cerebellar Ataxia/genetics/mortality/physiopathology, Child, Chio A, Chromosome Aberrations/genetics, Chromosome Disorders, Female, Follow-up Studies, Genes, Humans, Italy/epidemiology, Journal Article, Life Expectancy, Male, Middle Aged, Mortara P, Neurologic Examination, Orsi L, Outcomes, Preschool, Recessive/genetics, Reflex, Schiffer D, Spinocerebellar Degenerations/genetics/mortality/physiopathology, Stretch/genetics/physiology, Survival Analysis, Survival Rate
Influence of epilepsy on mortality in mental retardation: an epidemiologic study
Tags: 1996, Adult, Backlog, Blomquist HK, Cause Of Death, Cerebral Palsy/ep [Epidemiology], Cerebral Palsy/mo [Mortality], Cohort Studies, Comorbidity, Confidence Intervals, Edvinsson SO, Epilepsia, Epilepsy, Epilepsy/di [diagnosis], Epilepsy/ep [Epidemiology], Epilepsy/mo [Mortality], Follow-up Studies, Forsgren L, Generalized/di [Diagnosis], Generalized/ep [Epidemiology], Generalized/mo [Mortality], Human, Journal Article, Mental Retardation/di [Diagnosis], Mental Retardation/ep [Epidemiology], Mental Retardation/mo [Mortality], Middle Age, Mortality, Nystrom L, Pneumonia/ep [Epidemiology], Pneumonia/mo [Mortality], Prevalence, Severity Of Illness Index, Sweden/ep [Epidemiology]
Status epilepticus in children: aetiology, treatment, and outcome
Tags: 1997, Adolescence, Age Distribution, Anesthetics, Anticonvulsants, Backlog, Barbiturates/ad [Administration & Dosage], Chi-Square Distribution, Child, Developmental Medicine & Child Neurology, Diazepam/ad [Administration & Dosage], Drug Administration Schedule, Electroencephalography, Encephalitis/co [Complications], Eriksson KJ, Female, Follow-up Studies, Human, Infant, Intravenous/ad [Administration & Dosage], Journal Article, Koivikko MJ, Male, Meningitis, Nervous System Diseases/ep [Epidemiology], Neuropsychological Tests, Non-U.S. Gov't, Preschool, Prevalence, Retrospective Studies, Risk Factors, Septic/co [Complications], Sex Distribution, Shock, Status Epilepticus/di [Diagnosis], Status Epilepticus/dt [Drug Therapy], Status Epilepticus/ep [Epidemiology], Status Epilepticus/et [Etiology], Streptococcal Infections/co [Complications], Support, Time Factors, Treatment Outcome, Viral/co [Complications]
Serious adverse events after measles-mumps-rubella vaccination during a fourteen-year prospective follow-up
Tags: 2000, Adolescent, Adult, Adverse Drug Reaction Reporting Systems, Backlog, Child, Davidkin I, Drug Hypersensitivity/etiology, Female, Finland, Follow-up Studies, Humans, Infant, Journal Article, Kallio MJ, Kurki T, Male, Measles-Mumps-Rubella Vaccine/adverse effects, Nervous System Diseases/etiology, Non-U.S. Gov't, Patja A, Peltola H, Preschool, Prospective Studies, Research Support, The Pediatric Infectious Disease Journal, Vaccination, Valle M
Spiritual aspects of loss among partners of men with AIDS: postbereavement follow-up
Tags: 1999, Acquired Immunodeficiency Syndrome/psychology, Acree M, Adaptation, Backlog, Bereavement, Caregivers/psychology, Cohort Studies, Death studies, Folkman S, Follow-up Studies, Homosexuality, Humans, Journal Article, Male, Male/psychology, Psychological, Religion and Psychology, Richards TA, San Francisco, United States
Predictors of husbands' and wives' grief reactions following infant death: the role of marital intimacy
Follow-up in children with Joubert syndrome
Tags: 1997, Adolescent, Adult, Ataxia/diagnosis/genetics/physiopathology, Backlog, Boltshauser E, Cerebellum/abnormalities, Child, Cross-sectional Studies, Developmental Disabilities/diagnosis/genetics/physiopathology, Disease Progression, Disease Specific, Facies, Female, Follow-up Studies, Humans, Infant, Journal Article, Kidney Diseases/complications, Landau K, Male, Mental Retardation/complications, Mesencephalon/abnormalities, Muscle Hypotonia/diagnosis/genetics/physiopathology, Neuropediatrics, Newborn, Ocular Motility Disorders/complications, Preschool, Respiration Disorders/complications, Retrospective Studies, Schmid M, Steinlin M, Survivors/classification, Syndrome
Efficacy and complications of morphine infusions in postoperative paediatric patients
Tags: 1999, Acute Disease, Adolescent, Akathisia, Analgesia/nursing, Analgesics, Anesthesia Recovery Period, Anoxemia/chemically induced, Arousal/drug effects, Backlog, Child, Confidence Intervals, Courtrn C, Drug-Induced/etiology, Esmail Z, Female, Follow-up Studies, Hamilton D, Humans, Incidence, Infant, Infusions, Intravenous, Journal Article, Kestle J, Male, Montgomery C, Morphine/administration & dosage/adverse effects/therapeutic use, Opioid/administration & dosage/adverse effects/therapeutic use, Paediatric Anaesthesia, Pain, Postoperative Nausea and Vomiting/chemically induced, Postoperative/prevention & control, Preschool, Pruritus/chemically induced, Respiration/drug effects, Retrospective Studies, Urinary Retention/chemically induced
Predictors of burden in spouse caregivers of individuals with Alzheimer's disease
Tags: 1991, Activities of Daily Living/psychology, Adaptation, Aged, Alzheimer Disease/psychology/therapy, Anger, Anxiety/psychology, Backlog, Depression/psychology, Female, Follow-up Studies, Hostility, Humans, Journal Article, Longitudinal Studies, Maiuro RD, Male, Marriage/psychology, Mental Status Schedule/statistics & numerical data, P.H.S., Personal Satisfaction, Personality Assessment/statistics & Psychometrics, Psychological, Psychology And Aging, Research Support, Russo J, Sick Role, Teri L, U.S. Gov't, Vitaliano PP, Young HM
Vulnerability and resilience to combat exposure: can stress have lifelong effects?
Tags: 1994, 80 And Over, Adaptation, Adult, Aged, Aldwin CM, Backlog, Combat Disorders/diagnosis/psychology, Defense Mechanisms, Europe, Follow-up Studies, Humans, Journal Article, Korea, Levenson MR, Longitudinal Studies, Male, Mathematical Computing, Middle Aged, Non-P.H.S., P.H.S., Personality Development, Personality Inventory/statistics & numerical data, Psychological, Psychological/complications, Psychology And Aging, Research Support, Software, Spiro A, Stress, U.S. Gov't, Veterans/psychology
Postbereavement depressive mood and its prebereavement predictors in HIV+ and HIV- gay men
Tags: 1996, Acquired Immunodeficiency Syndrome/psychology, Adaptation, Adult, Backlog, Bereavement, Boccellari A, Caregivers/psychology, Chesney M, Collette L, Cooke M, Depression/diagnosis/psychology, Folkman S, Follow-up Studies, HIV Seropositivity/psychology, Homosexuality, Humans, Journal Article, Journal Of Personality And Social Psychology, Male, Male/psychology, Middle Aged, P.H.S., Personality Inventory, Psychological, Research Support, Risk Factors, San Francisco, Sick Role, U.S. Gov't
Structural equation modeling with longitudinal data: strategies for examining group differences and reciprocal relationships
Tags: 1994, Adolescent, Alcohol Drinking/epidemiology/psychology, Alcoholism/epidemiology/psychology, Anger, Backlog, Cohort Studies, Farrell AD, Female, Follow-up Studies, Gender Identity, Humans, Journal Article, Journal Of Consulting And Clinical Psychology, Longitudinal Studies, Male, Models, Peer Group, Personality Inventory/statistics & numerical data, statistical
Living with cerebral palsy and tube feeding: A population-based follow-up study
Tags: 1999, Activities of Daily Living, Adaptation, Adolescent, Adult, Attitude To Health, Backlog, Camfield C, Camfield P, Caregivers/psychology, Cerebral Palsy/mortality/psychology/therapy, Child, Community Health Planning, Enteral Nutrition/adverse effects/psychology, Follow-up Studies, Gastrostomy/adverse effects/psychology, Humans, Infant, Jejunostomy/adverse effects/psychology, Journal Article, Nova Scotia/epidemiology, Nutritional Failure, Parents/psychology, Precipitating Factors, Preschool, Psychological, Quality Of Life, Questionnaires, Smith SW, Survival Analysis, The Journal Of Pediatrics
Magnetic resonance spectroscopy in Niemann-Pick disease type C: Correlation with diagnosis and clinical response to cholestyramine and lovastatin.
Tags: 1994, Arnold DL, Backlog, Brain/drug effects/metabolism/pathology, Cholesterol, Cholestyramine/administration & dosage/adverse effects, Chromosome Aberrations/genetics, Chromosome Disorders, Combined Modality Therapy, Dietary/administration & dosage, Follow-up Studies, Genes, Humans, Infant, Journal Article, Lipid Metabolism, Longitudinal Studies, Lovastatin/administration & dosage/adverse effects, Magnetic Resonance Imaging, Magnetic Resonance Spectroscopy, Male, Neuropsychological Tests, Niemann-Pick Diseases/diagnosis/drug therapy/genetics, Pediatric Neurology, Recessive/genetics, Schreiber R, Scriver CR, Shevell MI, Sylvain M
Tay-Sachs disease: Progression of changes on neuroimaging in four cases.
Tags: 1992, Atrophy, Backlog, Brain Diseases, Brain/pathology, Child, Demyelinating Diseases/diagnosis/pathology, Emission-Computed, Follow-up Studies, Fukumizu M, Humans, Infant, Journal Article, Kurokawa T, Longitudinal Studies, Magnetic Resonance Imaging, Male, Metabolic/diagnosis/pathology, Neuroradiology, Preschool, Sakuragawa N, Takashima S, Tay-Sachs Disease/diagnosis/pathology, Tomography, X-Ray Computed, Yoshikawa H
Causal links between stressful events, coping style, and adolescent symptomatology
Neuronal ceroid-lipofuscinosis: A clinical and morphological study of 19 patients.
Tags: 1995, Adolescent, Adult, Age of Onset, American Journal Of Medical Genetics, Angelini L, Atrophy, Backlog, Binelli S, Brain/pathology/radiography, Bugiani O, Cerebellum/pathology, Child, Female, Follow-up Studies, Humans, Infant, Journal Article, Longitudinal Studies, Magnetic Resonance Imaging, Male, Nardocci N, Neuronal Ceroid-Lipofuscinoses/diagnosis/physiopathology, Preschool, Time Factors, Tomography, Verga ML, X-Ray Computed, Zorzi G
Buffers for the bereaved: the impact of social factors on the emotional health of bereaving parents
Tags: 1984, Adaptation, Adult, Anxiety Disorders - psychology, Backlog, Bereavement Leave Policy Paper, Child, Cultural Characteristics, Depressive Disorder/psychology, Ethnic Groups/psychology, Female, Follow-up Studies, Grief, Humans, Infant, Interpersonal Relations, Israel, Journal Article, Male, Obsessive-Compulsive Disorder/psychology, Parents/psychology, Preschool, Psychological, Roskin M, Social Environment, Socioeconomic Factors, Somatoform Disorders/psychology, The International Journal Of Social Psychiatry
Continuity of care: an approach to measurement
Tags: 1972, Ambulatory Care, Backlog, Bass RD, Communication, Community Mental Health Services, Community Psychiatry, Comprehensive Health Care, Day Care, Evaluation Studies as Topic, Follow-up Studies, Hospitalization, Humans, Journal Article, Medical Records, Mental Disorders/therapy, Models, Prospective Studies, Psychotherapy, Questionnaires, Referral And Consultation, The American Journal Of Psychiatry, Theoretical, Transfer Agreement, Windle C
Juvenile neuronal ceroid lipofuscinosis (JNCL): quantitative description of its clinical variability
Beta-endorphin levels of children in acute stress
Tags: 1990, Acute Disease, Backlog, beta-Endorphin/blood, Biomarkers of Pain, Biomarkers Reference List, Blood Glucose/analysis, Child, Diabetes Research And Clinical Practice, Dindar A, Follow-up Studies, Gunoz H, Humans, Hyperglycemia/blood/epidemiology/pathology, Infant, Insulin/blood, Journal Article, Newborn, Neyzi O, Preschool, Prognosis, Stress/blood/epidemiology
Wilson's disease: a longitudinal study of psychiatric symptoms
Tags: 1990, Adolescent, Adult, Amnestic, Backlog, Berrios GE, Biological Psychiatry, Cognitive Disorders/di [Diagnosis], Cognitive Disorders/px [Psychology], Cohort Studies, Delirium, Dementia, Dening TR, Female, Follow-up Studies, Hepatolenticular Degeneration/di [Diagnosis], Hepatolenticular Degeneration/px [Psychology], Humans, IM, Journal Article, Liver Function Tests, Longitudinal Studies, Male, Neurologic Examination, Neuropsychological Tests, Retrospective Studies
Radiological manifestations of bisphosphonate treatment with APD in a child suffering from osteogenesis imperfecta
Congenital malformations of the central nervous system in a 1-year birth cohort followed to the age of 14 years
Tags: 1986, Abnormalities, Adolescent, Backlog, Central Nervous System/abnormalities, Child, Child's Nervous System, Disabled Persons, Follow-up Studies, Humans, Hydrocephalus/congenital, Infant, Journal Article, Meningomyelocele/diagnosis, Multiple/diagnosis, Newborn, Preschool, Q3 Scoping Review Results, Rantakallio P, von Wendt L
Therapeutic modification of membrane lipid abnormalities in juvenile neuronal ceroid-lipofuscinosis (Batten disease).
Tags: 1988, Adolescent, American Journal Of Medical Genetics, Backlog, Bennett MJ, Cartwright IJ, Corn Oil/therapeutic use, Dietary Fats, Fish Oils/therapeutic use, Follow-up Studies, Galloway JH, Gayton R, Hosking GP, Humans, Journal Article, Lipid Metabolism, Lipoproteins/blood, Longitudinal Studies, Neuronal Ceroid-Lipofuscinoses/diet therapy/drug therapy/therapy, Thompson G