Browse Items · Pediatric Palliative Care Library

Physicians' attitudes and experiences about withholding/withdrawing life-sustaining treatments in pediatrics: a systematic review of quantitative evidence

BACKGROUND: One of the most important and ethically challenging decisions made for children with life-limiting conditions is withholding/withdrawing life-sustaining treatments (LST). As important (co-)decision-makers in this process, physicians are…

Tags: 2023, Attitudes, Bmc Palliat Care, Cavolo A, Decision-making, Experiences, Gastmans C, Labarque V, November List 2024, Pediatric, Physician, Withhold/withdraw life-sustaining treatments, Zhong Y

Palliative care of children with brain tumors: a parental perspective

OBJECTIVE: To explore the end-of-life experience of children with brain tumors and their families. DESIGN: Qualitative analysis of focus group interviews. SETTING: Children's Hospital, London Health Sciences Center. PARTICIPANTS: Twenty-five parents…

Perspectives of patients with cystic fibrosis on preventive counseling and transition to adult care

The purpose of this study was to investigate how adolescents and adults with cystic fibrosis (CF) view preventive counseling and their transition to adult-centered care within a children's hospital. Thirty-two patients >/=16 years old diagnosed with…

The impact of a palliative care team on residents' experiences and comfort levels with pediatric palliative care

BACKGROUND: 8,600 children are eligible for palliative care services each day in the US, yet many pediatric residents and pediatricians do not feel comfortable providing palliative/end of life care. OBJECTIVE: To evaluate the impact of a palliative…

The experiences of Chinese family members of terminally ill patients - a qualitative study

AIM: To describe and understand the experiences of Chinese family members of terminally ill patients during the end of life process in a palliative care unit. BACKGROUND: Palliative care aims to provide care to dying patients and their family…

Paediatric fever management: continuing education for clinical nurses

PURPOSE: This study examined the influence of level of practice, additional paediatric education and length of paediatric and current experience on nurses' knowledge of and beliefs about fever and fever management. METHOD: Fifty-one nurses from…

Understanding adolescents: a guide for researchers

2005

Tags: & Hall, 2001)., 2001). Consent processes are standardized, 2005, Adolescent Adolescent Behavior/physiology/psychologyAdolescent Development/physiologyAdolescent Psychology Adult Child Child Advocacy Cognition/physiology Decision Making Health Knowledge, adolescents often are conceptualized as children. Adolescents represent a vulnerable study population. To effectively and ethically involve adolescents in research, and federal regulations have been established to protect both adults and children. As a research population, and psychosocial developmental factors, and they must bear in mind that the voluntary and informed consent principles may be easily and inadvertently violated (Nelson & Rushton, as well as an understanding of the research processes needed to protect adolescents. Adolescents need to be active participants in the decision-making process (e.g., assent/consent, Attitudes, Backlog, cognitive, etc.). Researchers must be aware of and accountable for the power they hold in influencing adolescents' decisions to participate in research, Extramural Research Support, however, Journal Article, Journal of Neuroscience Nursing, knowledge of the risks and benefits, N.I.H., P.H.S. Vulnerable Populations/psychology%X The research establishment often has a "one size fits all" mentality with regard to the research process (Broome, PedPal Lit, PracticeHuman Experimentation Humans Informed Consent/psychology Mental Competency/psychology Minors/education/psychology Nurse's Role Parental Consent Power (Psychology) Research Subjects/psychology Research Support, researchers must understand and integrate knowledge of the variability in physical, Richards, Turner-Henson A, U.S. Gov't

Adherence to medical recommendations and transition to adult services in pediatric transplant recipients

PURPOSE OF REVIEW: Nonadherence to treatment recommendations, especially when associated with transition to adult care providers, account, by some estimates, for most organ rejections and death in long-term pediatric survivors of solid organ…

Dimensions of the role of the social worker in palliative care

There has been very little research focusing on the role of the social worker in a specialist palliative care service. A qualitative research methodology was used which sought to capture the essence of that role, as perceived by those carrying it…

Tags: 2000, Anxiety/rehabilitation, Attitudes, Backlog, Great Britain, Health Knowledge, Humans, Journal Article, Judgment, Palliative Care/organization & Administration, Palliative Medicine, Practice, Professional Practice, Professional-family Relations, Questionnaires, Sheldon FM, Social Work/organization & administration

Gender-specific factors in the utilization of medical services during adolescence

Although adolescents suffer from a variety of complaints, they do not often consult a doctor. Following a high rate of medical consultation during infancy and childhood, the rate dramatically decreases at the age of 10 and increases again around the…

The effects of the Palliative Medicine Consultation on the DNR status of African Americans in a safety-net hospital.

OBJECTIVE: To examine the effectiveness of palliative medicine consultation on completion of advance directives/do-not-resuscitate (DNR) orders by racial/ethnic minorities., METHOD: A sample of 1999 seriously ill African American and Hispanic…

Pediatric Palliative Care through the Eyes of Healthcare Professionals, Parents and Communities: A Narrative Review

BACKGROUND AND OBJECTIVE: Pediatric palliative care is a holistic approach that aims to enhance the quality of life of seriously ill children and their families. Despite the documented benefits, many barriers challenge early integration of such care.…

Opinions Of Paediatricians Who Teach Neonatal Resuscitation About Resuscitation Practices On Extremely Preterm Infants In The Delivery Room.

Abstract
Objective To describe the opinions of paediatricians who teach resuscitation in Brazil regarding resuscitation practices in the delivery room (DR) of preterm infants with gestational ages of 23–26 weeks.

Methods Cross-sectional study with…

Treatment adherence of youth and young adults with and without a chronic illness

The present study was undertaken to explore the psychosocial functioning of young people with chronic illness, their beliefs about treatment adherence, difficulties with adherence and concerns about living with their illness. A small correlational…

The use of methadone for cancer pain

Methadone is not a new analgesic drug [69]. Several studies have demonstrated that methadone is a valid alternative to morphine, hydromorphone, and fentanyl for the treatment of cancer-related pain, and extensive reviews on the subject have been…

Estimates of life expectancy by adolescents and young adults with congenital heart disease

OBJECTIVES: This study sought to determine what adolescents and young adults with moderate to complex congenital heart disease (CHD) believe their life span to be and to examine correlates of their beliefs. BACKGROUND: Patients with moderate to…

An Online Educational Program Improves Pediatric Oncology Nurses' Knowledge, Attitudes, and Spiritual Care Competence

This study evaluated the potential impact of an online spiritual care educational program on pediatric nurses' attitudes toward and knowledge of spiritual care and their competence to provide spiritual care to children with cancer at the end of life.…

Palliative care on the net: an online survey of health care professionals

A survey was conducted to explore Internet use by palliative care health professionals (HCP). The survey was placed on the World Wide Web with an underlying database, and palliative care HCP were invited to participate via a palliative-care-related…

Collaborative clinical research on end-of-life care in pediatric oncology

OBJECTIVES: To present an overview of research into end-of-life (EoL) care for pediatric patients with cancer and to describe research completed by a newly formed collaboration of researchers. DATA SOURCES: Professional group position papers and…

Tags: 2005, Adolescent Adolescent Psychology Attitude of Health Personnel Attitude to Death Attitude to Health Child Child Psychology Clinical Nursing Research/, Attitudes, Backlog, Extramural Research Support, Hinds PS, Journal Article, Lafond DA, Multi-site Ethics, N.I.H., Non-U.S. Gov't Research Support, Nursing Models, Nuss SL, organization & administration Communication Cooperative Behavior Decision Making Forecasting Health Knowledge, P.H.S. Terminal Care/organization & administration, PedPal Lit, Practice Health Priorities Humans Models, Psychological Neoplasms/nursing/psychology Oncologic Nursing/organization & administration Parents/psychology Pediatric Nursing/organization & administration Practice Guidelines Research Design Research Support, Seminars In Oncology Nursing, U.S. Gov't

Nurses' attitudes to pain management during routine venepuncture in young children

Venepuncture is one of the most commonly performed clinical procedures carried out on young children. Evidence indicates inconsistency in the use of pain management strategies during these procedures. A survey method was used to explore nurses' views…

Experiencing transitions: an emerging middle-range theory

Changes in health and illness of individuals create a process of transition, and clients in transition tend to be more vulnerable to risks that may in turn affect their health. Uncovering these risks may be enhanced by understanding the transition…

Family beliefs regarding the nutritional care of a terminally ill relative: a qualitative study

OBJECTIVE: To develop a conceptual model of family caregiver beliefs and behavior related to nutritional care of the terminally ill by examining the perspectives of family members, patients, and health care providers. DESIGN: Qualitative study using…

The Cardiovascular Health Education Program: assessing the impact on rural and urban adolescents' health knowledge

In this research study, a quasi-experimental, nonequivalent control group pretest-posttest design was used to assess the impact of the Cardiovascular Health Education Program (CHEP) on the cardiovascular health knowledge of grade eight adolescents. A…

Brief report: family-based group intervention for young siblings of children with chronic illness and developmental disability

OBJECTIVE: To evaluate the impact of a family-based group intervention for young siblings of children with chronic illness and developmental disability (CI/DD). METHODS: Forty-three healthy siblings (ages 4-7 years) of children with CI/DD and their…

Telling tales: a qualitative exploration of how children's nurses interpret work with unaccompanied hospitalized children

2005

Tags: 2005, AdultAttitude of Health Personnel Child Child, Attitudes, Backlog, Hospital/organization & administration/psychology Parents/education/psychology Pediatric Nursing/organization & administration Qualitative Research Questionnaires%X AIMS AND OBJECTIVES: To explore how qualified children's nurses define, Hospitalized/psychology Communication England Female Grief Health Knowledge, Journal Article, Journal of Clinical Nursing, Livesley J, PedPal Lit, Practice HumansLoneliness Male Middle Aged NarrationNurse's Role Nurse-Patient Relations Nursing Methodology ResearchNursing Staff

Adolescents' reports of parental knowledge of adolescents' use of sexual health services and their reactions to mandated parental notification for prescription contraception

CONTEXT: Legislation has been proposed that would mandate parental notification for adolescents younger than 18 years (minors) obtaining prescription contraception from federally funded family planning clinics. OBJECTIVE: To determine the extent to…

Trisomy 18: A Survey Of Opinions, Attitudes, And Practices Of Neonatologists

We conducted a survey-based study of the opinions, attitudes, and management practices of neonatologists across the United States regarding prenatally diagnosed Trisomy 18. The survey was designed based on previously validated surveys of severe fetal…

Tags: 2016, American Journal of Medical Genetics Part A, Attitudes, Biggio JR, Edwards RK, Genetics & Heredity, Infant, Intervention, Jacobs AP, June 2016 List, Management, Neonatology, Philips JB, Robin NH, Subramaniam A, Tang Y, Trisomy 18

Prevalence and correlates of successful transfer from pediatric to adult health care among a cohort of young adults with complex congenital heart defects

OBJECTIVES: More than 85% of children born today with chronic medical conditions will live to adulthood, and many should transfer from pediatric to adult health care. The numbers of adults with congenital heart defects (CHDs) are increasing rapidly.…

Social work competencies in palliative and end-of-life care

Social workers from clinical, academic, and research settings met in 2002 for a national Social Work Leadership Summit on Palliative and End-of-Life Care. Participants placed the highest priority on the development and broad dissemination of a…

Good-parent beliefs of parents of seriously ill children

IMPORTANCE: Parents' beliefs about what they need to do to be a good parent when their children are seriously ill influence their medical decisions, and better understanding of these beliefs may improve decision support. OBJECTIVE: To assess parents'…

Barriers to conducting advance care discussions for children with life-threatening conditions.

BACKGROUND AND OBJECTIVE: Advance care discussions (ACD) occur infrequently or are initiated late in the course of illness. Although data exist regarding barriers to ACD among the care of adult patients, few pediatric data exist. The goal of this…

The Delphi technique: a comparison of results obtained using two expert panels

The Delphi technique is a useful method of obtaining group consensus. However, "consensus" is not usually defined when this technique is used. This paper describes a study in which two panels of experts (registered nurses who were nurse managers or…

Tags: 1993, Attitudes, Backlog, Delphi Technique, Duffield C, Health Knowledge, Humans, International Journal Of Nursing Studies, Job Description, Journal Article, New South Wales, Nursing, Nursing Administration Research, Practice, Professional Competence/standards, Supervisory/standards

Pediatric oncology providers' perceptions of barriers and facilitators to early integration of pediatric palliative care

BACKGROUND: Pediatric patients experience significant symptoms during cancer treatment. Symptom management is frequently inadequate. We studied perceptions of pediatric oncology care providers regarding early integration of palliative care (PC) for…

Confidentiality in health care. A survey of knowledge, perceptions, and attitudes among high school students

OBJECTIVE--To assess adolescent knowledge, perceptions, and attitudes about health care confidentiality. DESIGN--Anonymous self-report survey with 64 items addressing confidentiality issues in health care. SETTING--Rural, suburban, and urban high…

End-of-life care in the pediatric intensive care unit: research review and recommendations

Improving the quality of end-of-life care has become a national health care priority. A necessary step in this process in the pediatric intensive care unit (ICU) is examining the knowledge, attitudes,and behaviors of pediatric critical care…

End-of-life care in the pediatric intensive care unit: attitudes and practices of pediatric critical care physicians and nurses

OBJECTIVE: To determine the attitudes and practices of pediatric critical care attending physicians and pediatric critical care nurses on end-of-life care. DESIGN: Cross-sectional survey. SETTING: A random sample of clinicians at 31 pediatric…

Development and validation of the Communicating with Family about Brain Death Scale

This study reports development of a scale assessing communication with family about brain-dead organ donation. Two cross-sectional studies demonstrated scale validity. Tests of internal, external, and predictive validity were conducted using…

Social work and end-of-life care: reviewing the past and moving forward

This paper reviews the professional literature with respect to the social work profession's involvement in end-of-life care. The search process was conducted by entering key words in various combinations to electronic databases. Eligible articles…

Tags: 2005, Altruism, Attitudes, Backlog, Brandsen CK, Clinical Competence, Health Knowledge, Health Services Accessibility, Humans, Interdisciplinary Communication, Journal Article, Journal of Social Work in End-of-Life & Palliative Care, Practice, Social Work/education/organization & administration, Terminal Care/organization & Administration

Forgoing treatment at the end of life in 6 European countries

Background: Modern medicine provides unprecedentedopportunities in diagnostics and treatment. However,in some situations at the end of a patientâ€™s life, manyphysicians refrain from using all possible measures to prolonglife. We studied the…

Creating social work competencies for practice in hospice palliative care

Social workers play an important role in the delivery of Hospice Palliative Care in many diverse settings. The profession brings a unique perspective to end-of-life care that reflects and supports the holistic philosophy of Hospice Palliative Care.…

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