Browse Items (134 total)
- Tags: Parents/psychology
Pain in pediatric oncology: do the experiences of children and parents differ from those of nurses and physicians?
Tags: 2006, Adult, Attitude Of Health Personnel, Attitude To Health, Backlog, Child, Comparative Study, Gordh T, Humans, Journal Article, Kreuger A, Ljungman G, Neoplasms/complications/psychology, Non-U.S. Gov't, Nurses/psychology, Pain Measurement, Pain/etiology/prevention & control/psychology, Parents/psychology, PedPal Lit, Physicians/psychology, Research Support, Sorensen S, Upsala Journal of Medical Sciences
Parent Empowerment in Pediatric Healthcare Settings: A Systematic Review of Observational Studies
Parent moral distress in serious pediatric illness: A dimensional analysis
Tags: 2020, Child, Child Health/standards, Critical Illness/psychology/therapy, Ethics of care/care ethics, February 2021 List, Female, Humans, Male, Mooney-Doyle K, Moral Distress, Neonatal Care, Nursing Ethics, Palliative Care, Parents/psychology, pediatric practice, Pediatrics/methods/standards, Stress Psychological/etiology/psychology, theory/philosophical perspectives, Ulrich CM
Parental assessment of pain coping in individuals with intellectual and developmental disabilities
Tags: 2011, Adaptation, Adolescent, Adult, Backlog, Breau LM, Burkitt CC, Child, Developmental Disabilities/complications/psychology, Female, Humans, Intellectual Disability/complications/psychology, Journal Article, Male, Pain Measurement, Pain/complications/psychology, Parents/psychology, Preschool, Psychological, Questionnaires, Research in Developmental Disabilities, Social Support, Young Adult, Zabalia M
Parental bereavement: the crisis of meaning
Parental decision making in pediatric cancer end-of-life care: Using focus group methodology as a prephase to seek participant design input
Tags: 2006, Adaptation, Attitude To Health, Backlog, Barrera M, Baruchel S, Bouffet E, Capra M, Child, Decision Making, European Journal Of Oncology Nursing, Focus Groups/methods, Focus Groups/utilization, Gammon J, Geenberg ML, Helping Behavior, Hinds PS, Humans, Journal Article, Llewellyn-Thomas HA, Morale, Needs Assessment, Neoplasms, Nurse's Role, Nursing Methodology, Oncologic Nursing, Parents/psychology, Patient Selection, Patient-centered Care, Pediatric Nursing, PedPal Lit, Professional-family Relations, Program Development, Psychological, Qualitative Research, Quality Of Life/psychology, Questionnaires, Social Support, Sung L, Terminal Care, Tomlinson D, Volpe J
Parental Decision-making On
Utilisation Of Out-of- Home Respite In Children’s Palliative Care: Findings Of
Qualitative Case Study Research - A Proposed New Model.
Respite in children's palliative care aims to provide a break for family's from the routine of caring. Parental decision-making regarding the utilisation of out-of-home respite is dependent on many interlinking factors including the…
Tags: 2016, Adolescent, Adult, Child, Child Preschool, Child: Care, Health and Development, Children, Connaire K, Decision Making, Female, Humans, Ireland/epidemiology, Ling J, Longitudinal Studies, Male, May 2016 List, McCarron M, Palliative Care, Palliative Care/psychology, Parents, Parents/psychology, Payne S, Pediatrics, Qualitative Research, Quality Of Health Care, Respite, Respite Care, Social Support, Terminally Ill/psychology
Parental explicit heuristics in decision-making for children with life-threatening illnesses
Tags: 2013, Adolescent, Aphorisms and Proverbs as Topic, Backlog, Carroll KW, Child, Choice Behavior, Chronic Disease/psychology/therapy, Cohort Studies, Communication, Critical Illness/psychology/therapy, Decision Making, Female, Feudtner C, Hospitals, Humans, Infant, Interview, Journal Article, Judgment, Kang T, Male, Palliative Care/psychology, Parent caregivers, Parents/psychology, Pediatric, Pediatrics, Philadelphia, Preschool, Problem Solving, Professional-family Relations, Prospective Studies, Psychological, Renjilian CB, Womer JW, Young Adult
Parental perspectives on end-of-life care in the pediatric intensive care unit
Tags: 2002, Adult, Backlog, Boston, Burns JP, Child, Critical Care Medicine, Death and Euthanasia, Decision Making, Empirical Approach, Female, Griffith JL, Humans, ICU Decision Making, Intensive Care Units, Journal Article, Male, Meyer EC, Pain, Parents/psychology, Pediatric, Prognosis, Quality Of Health Care, Quality Of Life, Questionnaires, Terminal Care, Truog RD, Withholding Treatment
Parental perspectives on hospital staff members' acts of kindness and commemoration after a child's death
Tags: 2005, Backlog, Bereavement, Carnevale FA, Child, Cohen SR, Death, Hospital, Hospitals, Humans, Intensive Care Units, Journal Article, Liben S, Macdonald ME, Meloche D, Non-U.S. Gov't, Parents/psychology, Pediatric, Pediatrics, Personnel, Professional-family Relations, Rennick J, Research Support, Social Support, Wolf SL
Parental stress and burden following traumatic brain injury amongst children and adolescents.
Tags: 2003, Adaptation, Adolescent, Adult, Analysis of Variance, Backlog, Brain Injuries/economics/psychology, Brain Injury, Child, Comparative Study, Cost Of Illness, England, Family Characteristics, Family Health, Female, Follow-up Studies, Hawley CA, Health Education, Health Status, Humans, Journal Article, Long J, Longitudinal Studies, Magnay AR, Male, Mental Health, Non-U.S. Gov't, Parents/psychology, Poverty, Preschool, Psychological, Psychological/etiology, Questionnaires, Research Support, Stress, Ward AB
Parents' attitudes towards a difficult situation resulting from the chronic disease of their child
Tags: 2020, 2022 Special Edition 2 - Parent Perspectives, Adaptation, Adolescent, Adult, Annals of Agricultural and Environmental Medicine, Attitude To Health, Bartoszuk-Popko M, Brodowicz-Król M, Child, Children, Chronic Disease, difficult situation, Female, Guz E, Humans, Kulbaka E, Lutomski P, Male, Middle Aged, paediatric patient, Parental Attitudes, Parents, Parents/psychology, Poland, Preschool, Psychological
Parents' experiences of pediatric palliative care and the impact on long-term parental grief.
Tags: 2014, Adult, Backlog, Cancer, Children, Communication, Continuity Of Patient Care, Cross-sectional Studies, Darlington Anne-Sophie E, Female, Grief, Humans, Journal Article, Journal of Pain and Symptom Management, Male, Michiels EMC, Middle Aged, Multivariate Analysis, Neoplasms/therapy, Palliative Care, Palliative Care/psychology, Parental Grief, Parents/psychology, Pediatrics, Pieters R, Retrospective Studies, Streng IC, Surveys And Questionnaires, Symptom Management, van den Heuvel-Eibrink MM, van der Geest IMM
Parents' perspectives on physician-parent communication near the time of a child's death in the pediatric intensive care unit
Tags: 2008, Adult, Anand KJ, Backlog, Bereavement, Carcillo J, Child, Communication, Dean JM, Death, Eggly S, Female, Hospital Mortality, Hospitals, Human Development Collaborative Pediatric Critical Care Research Network, Humans, Intensive Care Units, Interviews As Topic, Journal Article, Male, Meert KL, Middle Aged, National Institute of Child Health, Newth CJ, Nicholson C, Parents/psychology, Pediatric, Pediatric Critical Care Medicine, Physician's Role, Pollack M, Preschool, Professional-family Relations, Prognosis, Truth Disclosure, United States, Willson DF, Zimmerman J
Parents' perspectives regarding a physician-parent conference after their child's death in the pediatric intensive care unit
Tags: 2007, Adult, Anand KJ, Backlog, Bereavement, Carcillo J, Communication, Critical Care, Dean JM, Death, Eggly S, Female, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Male, Meert KL, Middle Aged, National Institute of Child Health and Human Development Collaborative Pediatric Critical Care Research Network, Needs Assessment, Newborn, Newth CJ, Nicholson C, Parent-child Relations, Parents/psychology, Pediatric, Physician's Role, Pollack M, Questionnaires, The Journal Of Pediatrics, Willson DF, Zimmerman J
Parents' reactions to participating in interviews about end-of-life decision making
Parents' views of cancer-directed therapy for children with no realistic chance for cure
Tags: 2008, Adolescent, Adult, Antineoplastic Agents/adverse effects, Backlog, Child, Female, Hilden JM, Humans, Infant, Joffe S, Journal Article, Journal Of Clinical Oncology, Mack JW, Male, Middle Aged, Moore C, Neoplasms/drug therapy/psychology, Newborn, Parent-child Relations, Parents/psychology, Preschool, Questionnaires, Terminally Ill/psychology, Watterson J, Weeks JC, Wolfe J
Pediatric advance care planning.
Tags: 2005, 7 died at home and 2 died at a hospital. Eight of the children's advance directives were followed during the dying process, 9 are deceased, Advance Care Planning/og [Organization & Administration], Advance Care Planning/organization & Administration, Backlog, Child, DNAR, DNAR Outcomes, Female, Hammes BJ, Humans, including preserving their child's quality of life and avoiding unnecessary suffering., individuals in the community raised concerns about the child's advance directive. CONCLUSIONS: Even though the topic of their child's death is difficult, Infant, Interviews As Topic, Journal Article, Journal of Palliative Medicine, Kempf M, Klevan J, Male, Newborn, Parents/psychology, Parents/px [psychology], Pediatrics, PedPal Lit, Preschool, the majority of the interviewed parents found the advance care planning process for the child helpful because it assured the best care for the child, while 1 was not. Th irteen parents were interviewed. Twelve stated that the process of advance care planning benefited their children and their family. Rarely, Williams MS, Wisconsin
Perinatal Counseling Following a Diagnosis of Trisomy 13 or 18: Incorporating the Facts, Parental Values, and Maintaining Choices
Tags: 2020, Acharya K, Advances in Neonatal Care, Counseling/ethics/methods, Female, Humans, Infant Newborn, Leuthner SR, May 2021 List, Palliative Care/ethics/methods/psychology, Parents/psychology, Pregnancy, Prenatal Diagnosis/methods/psychology, Psychosocial Support Systems, shared decision making, Trisomy 13 Syndrome/diagnosis/psychology/therapy, Trisomy 18 Syndrome/diagnosis/psychology/therapy
Perinatal loss. A critique of current hospital practices
Tags: 1992, Backlog, Bereavement, Caregivers/psychology, Clinical Pediatrics, Clinical Protocols, Female, Fetal Death, Grief, Hospital/psychology, Hospitals, Humans, Infant, Journal Article, Leon IG, Male, Newborn, Parent-child Relations, Parents/psychology, perinatology, Personnel, Professional-family Relations
Posttraumatic growth in parents caring for a child with a life-limiting illness: A structural equation model.
Tags: 2014, Adult, Aged, Cadell S, Caregivers/psychology, Child, Davies E, Disabled Children/psychology, Hemsworth D, Human Development, Humans, Liben S, Male, Middle Aged, Models Psychological, Palliative Care/psychology, Parents/psychology, Siden H, Smit QT, Steele R, Straatman L, The American Journal Of Orthopsychiatry, Young Adult
Predicting death in children
Predictors of distress in parents of children with cancer: a prospective study.
Tags: 2000, Adaptation, Adolescent, Backlog, Child, Cost Of Illness, Depression/diagnosis/drug therapy/psychology, Female, Humans, Internal-External Control, Journal Article, Journal of Pediatric Psychology, Longitudinal Studies, Male, Neoplasms, Non-U.S. Gov't, Parent-child Relations, Parents/psychology, Prospective Studies, Psychological, Psychological/psychology, Questionnaires, Research Support, Sloper P, Social Adjustment, Social Support, Stress
Provision Of Services In Perinatal Palliative Care: A Multicenter Survey In The United States.
Congenital anomalies account for 20% of neonatal and infant deaths in the United States. Perinatal palliative care is a recent addition to palliative care and is meant to meet the needs of families who choose to continue a pregnancy…
Tags: 2016, Bereavement, Côté-Arsenault D, Critical Care/organization & Administration, Cross-sectional Studies, Denney-Koelsch E, Female, Fetal Mortality, Humans, Infant Newborn, Journal of Palliative Medicine, Kavanaugh K, Kim S, March 2016 List, Palliative Care/organization & Administration, Parents/psychology, Perinatal Care/organization & Administration, Perry Black B, Pregnancy, Professional-family Relations, Surveys And Questionnaires, United States, Wool C
Psychosocial functioning in youth with glycogen storage disease type I
Tags: 2008, Adaptation, Adolescent, Adolescent Transitions, Adult, Backlog, Case-Control Studies, Child, Correia C, Diabetes Mellitus/psychology, Family Health, Female, Florida, Glycogen Storage Disease Type I/psychology, Humans, Jacob M, Journal Article, Journal of Pediatric Psychology, Keeley M, Loneliness, Male, Merlo L, Parents/psychology, Preschool, Psychological, Quality Of Life, Storch E, Weinstein D
Research with bereaved parents: A question of how not why.
Tags: 2006, Adult, Aroni R, Attitude, Backlog, Bauld C, Bereavement, Child, Ethics, Female, Humans, Hynson JL, Interview, Journal Article, Longitudinal Studies, Male, Palliative Care, Palliative Medicine, Parents/psychology, Preschool, Psychological, Research, Research Subjects/psychology, Sawyer SM
Resilience to loss in bereaved spouses, bereaved parents, and bereaved gay men
Tags: 2005, Affect, Backlog, Bereavement, Bonanno GA, Extramural, Folkman S, Homosexuality, Humans, Interview, Journal Article, Journal Of Personality And Social Psychology, Male, Male/psychology, Middle Aged, Moskowitz JT, N.I.H., P.H.S., Papa A, Parents/psychology, Psychological, Research Support, Social Behavior, Spouses/psychology, U.S. Gov't
Sick leave among parents of children with cancer - a national cohort study
Tags: 2017, Acta Oncologica, Adolescent, Adult, Child, Child Preschool, Cohort Studies, Female, Follow-up Studies, Hed MI, Hjelmstedt S, Hoven E, Humans, Infant, Infant Newborn, Lindahl NA, Male, Montgomery S, Neoplasms/diagnosis/epidemiology/psychology, Oncology 2018 List, Only Child, Parents/psychology, Prognosis, Registries, Sick Leave, Sick Leave/statistics & numerical data, Sweden/epidemiology
Sleep disorder and epilepsy in children with tuberous sclerosis: a questionnaire-based study
Tags: 1994, Adolescent, behavioral problems, characteristics, Child, Child Preschool, Developmental Disabilities/complications, Developmental Medicine and Child Neurology, Epilepsy/etiology, Female, Humans, Hunt A, Learning Disorders/complications, Male, Parents/psychology, sleep disturbance, Sleep Wake Disorders/etiology/psychology, Stores G, Stress Psychological/etiology, Surveys And Questionnaires, Trajectory, Tuberous Sclerosis, Tuberous Sclerosis/complications/psychology
Stillbirth memento photography
Stress levels experienced by the parents of enterally fed children
Tags: 2004, Backlog, Child, Child Nutrition, Child: Care, Health and Development, Chronic Disease, Dewey D, Enteral Nutrition/psychology, Humans, Infant, Journal Article, Non-U.S. Gov't, Parent-child Relations, Parents/psychology, Parsons HG, Pedersen SD, Preschool, Psychological/psychology, Research Support, Stress
Suicide ideation among parents bereaved by the violent deaths of their children.
Tags: 2003, Accidents/psychology, Adaptation, Adolescent, Adult, Backlog, Bereavement, Child, Depression/diagnosis/psychology, Family Health, Female, Homicide/psychology, Humans, Issues In Mental Health Nursing, Johnson LC, Journal Article, Lohan JA, Longitudinal Studies, Male, Middle Aged, Murphy SA, Parents/psychology, Post-Traumatic/diagnosis/psychology, Predictive Value of Tests, Psychiatric Status Rating Scales, Psychological, Psychological/diagnosis/psychology, Questionnaires, Self Efficacy, Social Support, Stress, Stress Disorders, Suicide/psychology, Tapper VJ, Violence/psychology
Supportive and palliative care needs of families of children with life-threatening illnesses in Western Australia: evidence to guide the development of a palliative care service
Tags: 2007, Aoun S, Backlog, Child, Community Health Nursing/organization & administration/standards, Critical Illness, Family Health, Humans, Journal Article, Kristjanson LJ, Monterosso L, Palliative Care/organization & administration/psychology/standards, Palliative Medicine, Parents/psychology, Patient Care Team, Phillips MB, Q3 Scoping Review Results, Quality of Health Care/organization & administration/standards, Social Support, Terminally Ill, Western Australia
Talking about death with children who have severe malignant disease
Tags: 2004, Adolescent, Adult, Backlog, Bereavement, Chi-Square Distribution, Child, Death, Female, Henter JI, Humans, Journal Article, Kreicbergs U, Logistic Models, Male, Neoplasms, New England Journal Of Medicine, Onelov E, Parent-child Relations, Parents/psychology, Preschool, Steineck G, Sweden, Terminally Ill, Truth Disclosure, Valdimarsdottir U
Testing the grief to personal growth model using structural equation modeling.
The deceased child in the psychic and social worlds of bereaved parents during the resolution of grief
The effects of self-help and psychotherapy intervention on child loss: the limits of recovery
Tags: 1985, Adaptation, Adjustment Disorders/therapy, Backlog, Child, Combined Modality Therapy, Female, Grief, Humans, Intervention, Interventions, Journal Article, Lieberman M, Male, Non-U.S. Gov't, P.H.S., Parents/psychology, Psychological, Psychotherapy/methods, Research Support, Self-Help Groups, Social Adjustment, The American Journal Of Orthopsychiatry, U.S. Gov't, Videka-Sherman L
The Experiences Of Families Living With The Anticipatory Loss Of A School-age Child With Spinal Muscular Atrophy – The Parents’ Perspectives
To probe into parents’ anticipatory loss of school-age children with Type I or II spinal muscular atrophy.
Background
Spinal muscular atrophy is a rare disorder that causes death. Children die early due to either gradual atrophy…
Tags: 2016, Adult, Anticipatory Loss, Child, Female, Grief, Humans, Interviews As Topic, Journal of Clinical Nursing, July 2016 List, Male, Middle Aged, Muscular Atrophy Spinal/nursing, Muscular Atrophy Spinal/psychology, Nurse's Role, Parents/psychology, School-age Children, Spinal Muscular Atrophy, Taiwan, Yang
The impact of parental status on the risk of completed suicide.
Tags: 2003, Adolescent, Adult, Aged, Archives Of General Psychiatry, Backlog, Bereavement, Cause Of Death, Child, Denmark/epidemiology, Family Characteristics, Female, Grief, Humans, Infant, Journal Article, Longitudinal Studies, Male, Middle Aged, Mortensen PB, Parents/psychology, Preschool, Qin P, Registries, Risk Factors, Socioeconomic Factors, Suicide/prevention & control/psychology/statistics & numerical data
The Marital Implications of Bereavement: Child Death and Intimate Partner Violence in West and Central Africa
Tags: 2020, 2021 Special Edition 1 - Low Resource Settings, Adolescent, Adult, Africa Central, Africa Western, Bereavement, Child, Child Mortality, Child Preschool, Demography, Female, Humans, Infant, Infant Newborn, Intimate partner violence, Intimate Partner Violence/statistics & numerical data, Male, Marriage/statistics & numerical data, Middle Aged, Parents/psychology, Risk Factors, Smith-Greenaway E, Weitzman A, West and Central Africa, Young Adult