Browse Items (291 total)
- Tags: Newborn
Cultural and religious considerations in pediatric palliative care
Memory making in neonatal end-of-life care
Death of One Twin during the Perinatal Period: An Interpretative Phenomenological Analysis
Tags: 2017, April 2018 List, Bereavement, congenital abnormality, Corcoran P, Female, Humans, Infant, Interviews As Topic, Journal of Palliative Medicine, Male, Meaney S, Newborn, O'Donoghue K, Palliative Care, Parents, Parents/ Psychology, Perinatal Death, Pregnancy, Qualitative, Qualitative Research, Twins
Worth a Try? Describing the Experiences of Families during the Course of Care in the Neonatal Intensive Care Unit When the Prognosis is Poor
Survey on Neonatal End-of-Life Comfort Care Guidelines Across America
Tags: 2018, anxiety, April 2018 List, Article, bodily secretions, Canada, Carter B, Comfort, Compassion Fatigue, Farooqi S, Gastrointestinal Symptom, geographic distribution, Haug S, Hopper A, Human, Infant, Institutional Review, Intensive Care, Journal of Pain and Symptom Management, neonatal nurse practitioner, Neonatologist, Newborn, Oei G, Pain, Palliative Care, Palliative Therapy, Pediatrics, Perinatal Care, Practice Guideline, Satisfaction, Terminal Care, Wilson CG
Parental assessment of comfort in newborns affected by lifelimiting conditions treated by a standardized neonatal comfort care program
Tags: 2018, Adult, April 2018 List, Article, Byrne M, Child Parent Relation, Clinical Article, Daho M, Female, fluid intake, Foe G, Health Care Delivery, Health Care Quality, health program, Health Survey, Human, Infant, Infant Nutrition, Journal Of Perinatology, kangaroo care, Life Expectancy, life limiting disease, Male, Newborn, Newborn Care, Parental Attitude, parental behavior, Parravicini E, Patient Comfort, Peer Review, physical disease, Prospective Study, Self Report, standardization, Steinwurtzel R
Brachytherapy in children with rhabdomyosarcomas of the nasolabial fold
Tags: 2014, Adolescent, Backlog, Brachytherapy, Child, Disease-Free Survival, Dumas I, Facial Neoplasms, Female, Goulart J, Haie-Méder C, Humans, Infant, Journal Article, Kolb F, Male, Mazeron R, Nasolabial Fold, Newborn, Oberlin O, Pediatric Blood & Cancer, Preschool, Retrospective Studies, Rhabdomyosarcoma, Rivin E, Skin Neoplasms, Survival Rate
AIMP1 deficiency presents as a cortical neurodegenerative disease with infantile onset
Tags: 2014, Age Factors, Armstrong L, Backlog, Biancheri R, Brain, Cytokines, Female, Humans, Infant, Journal Article, Mutation, Neoplasm Proteins, Neurodegenerative Diseases, Neurogenetics, Newborn, RNA-Binding Proteins, Ross CJ, Rossi A, Shyr C, Sinclair G, Tarailo-Graovac M, van Karnebeek CD, Wasserman WW, White Matter
Birth weight percentile and the risk of term perinatal death
Clinical and laboratory factors that predict death in very low birth weight infants presenting with late-onset sepsis
Tags: 2014, Backlog, Bhandari V, Bizzarro MJ, Comorbidity, Connecticut, Female, Gallagher PG, Humans, Infant, Intensive Care Units, Journal Article, Levit O, Li Fang-Yong, Male, Multivariate Analysis, Neonatal, Newborn, Retrospective Studies, Risk Factors, Sepsis, Shabanova V, The Pediatric Infectious Disease Journal, Very Low Birth Weight
Sleep disturbances in children, adolescents, and young adults with severe psychomotor impairment: impact on parental quality of life and sleep
Tags: 2014, Adolescent, Adult, Backlog, Blankenburg M, Caregivers, Child, Developmental Medicine and Child Neurology, Female, Health Status, Humans, Infant, Journal Article, Male, Michel E, Newborn, Parents, Preschool, Psychomotor Disorders, Quality Of Life, Questionnaires, Retrospective Studies, Sleep Disorders, Tietze AL, Young Adult, Zernikow B
Withdrawal of ventilatory support outside the intensive care unit: guidance for practice
Tags: 2014, Adolescent, Archives of Disease in Childhood, Backlog, Bluebond-Langner M, Brierley J, Child, Craig F, Female, Guildlines, Humans, Infant, Intensive Care Units, Journal Article, Kelly P, Laddie J, Male, Mechanical, Newborn, Paediatric Intensive Care (PICU), Palliative Care, Pediatric, Place Of Death, Practice Guidelines As Topic, Preschool, Resuscitation Orders, Retrospective Studies, Ventilators
Cultural explanations and clinical ethics: active euthanasia in neonatology
Assessment of the need for palliative care for children in South Africa
Tags: 2014, Adolescent, Backlog, Child, Connor S, Cross-sectional Studies, Downing J, Health Services Accessibility, Health Services Needs And Demand, Humans, Infant, International Journal of Palliative Nursing, Journal Article, King E, Lim Ah KP, Marston J, Newborn, Palliative Care, Preschool, Sisimayi C, South Africa, Yates R, Young Adult
Perinatal palliative care: a developing specialty
Bereavement support used by mothers in Ireland following the death of their child from a life-limiting condition
Unilateral pediatric "do not attempt resuscitation" orders: the pros, the cons, and a proposed approach
Childhood and adolescent cancer statistics, 2014
Tags: 2014, Adolescent, American Cancer Society, Backlog, Ca: A Cancer Journal For Clinicians, Centers for Disease Control and Prevention (U.S.), Child, DeSantis C, Female, Humans, Incidence, Infant, Jemal A, Journal Article, Kohler B, Male, National Cancer Institute (U.S.), Neoplasms, Newborn, Preschool, Registries, Risk Factors, Robbins A, SEER Program, Survival Analysis, United States, Ward E, Young Adult
Development of an in-home standardized end-of-life treatment program for pediatric patients dying of brain tumors
Tags: 2013, Adolescent, Arland LC, Backlog, Brain Neoplasms, Child, Colorado, Female, Foreman NK, Health Personnel, Hendricks-Ferguson VL, home care services, Hospice Care, Hospital Mortality, Humans, Infant, Journal Article, Journal for Specialists in Pediatric Nursing, Length Of Stay, Madden JR, Male, Newborn, Palliative Care, Patient Admission, Pearson J, Pediatric Nursing, Preschool, Program Development, Program Evaluation, Retrospective Studies, Terminal Care, Young Adult
The attitudes of neonatal professionals towards end-of-life decision-making for dying infants in Taiwan
Tags: 2013, Adult, Attitude Of Health Personnel, Attitude To Death, Backlog, Chang YC, Chen CH, Clinical, Continuing, Cross-sectional Studies, Decision Making, Education, Ethics Committees, Female, Hospital, Huang L-C, Humans, Infant, Intensive Care Units, Journal Article, Journal of Medical Ethics, Lee Ho-Yu, Liu Hsin-Li, Male, Medical, Medical Staff, Middle Aged, Neonatal, Neonatology, Newborn, Nursing Staff, Peng Niang-Huei, Questionnaires, Referral And Consultation, Resuscitation Orders, Self Report, Taiwan, Terminal Care, Wang Teh-Ming, Withholding Treatment
Postmortem computed tomography imaging in the investigation of nontraumatic death in infants and children
Differences in characteristics of dying children who receive and do not receive palliative care
Tags: 2013, Adolescent, Age Factors, Backlog, Bratton SL, Cause Of Death, Child, Cohort Studies, Complex Chronic Conditions, Female, Hospital Mortality, Hospitals, Humans, Infant, Intensive Care Units, Journal Article, Keele L, Keenan HT, Length Of Stay, Location Of Death, Male, Neonatal, Newborn, Palliative Care, Pediatric, Pediatric Palliative Care, Pediatrics, Preschool, Retrospective Studies, Sheetz J, Terminal Care, United States, Utilization Review
Pediatric Palliative Care and Hospice Care Commitments, Guidelines, and Recommendations
Healthcare users' experiences of communicating with healthcare professionals about children who have life-limiting conditions: a qualitative systematic review protocol
Tags: 2015, Adolescent, Adult, Bradford N, Child, Communication, Critical Illness/px [psychology], Danby S, Ekberg S, Female, Health Personnel/px [psychology], Herbert A, Humans, Infant, Jbi Database Of Systematic Reviews And Implementation Reports, Male, March 2018 List, Newborn, Palliative Care/px [psychology], Parents/px [psychology], Preschool, Professional-family Relations, Qualitative Research, Yates P, Young Adult
Palliative care in neonatal neurology: robust support for infants, families and clinicians
Tags: 2015, Bidegain M, Boss RD, Clinical Decision-Making/es [Ethics], Diseases, Diseases/px [Psychology], Diseases/th [Therapy], Humans, Infant, Intensive Care Units, Journal Of Perinatology, Lemmon ME, March 2018 List, Neonatal/og [Organization & Administration], Nervous System Diseases, Nervous System Diseases/px [Psychology], Nervous System Diseases/th [Therapy], Neurology/mt [Methods], Newborn, Palliative Care, Palliative Care/es [Ethics], Palliative Care/mt [methods], Palliative Care/px [psychology], Parents/px [psychology], Social Support
Early neurodevelopmental outcomes of extremely preterm infants
Tags: 2016, Adhd, Biomedical Research, Brain/embryology/ physiopathology, Cerebral Palsy, Developmental Disabilities/etiology/ physiopathology, Diseases/ physiopathology, Extremely Premature/growth & development/physiology/psychology, Fetal Organ Maturity, Hintz SR, Humans, Infant, Intellectual Impairment, intraventricular hemorrhage, March 2018 List, Neonatology, Nervous System Diseases/etiology/ physiopathology, neurodevelopment, Neurodevelopmental Outcomes, Newborn, Premature, preterm birth, Risk Factors, Rogers EE, Seminars in Perinatology, sensory impairment, Survival Rate/trends, Very Low Birth Weight/growth & development/physiology/psychology, white matter injury
Recruiting bereaved parents for research after infant death in the neonatal intensive care unit
Tags: 2016, Adult, Applied Nursing Research, Bakitas M, Bereaved Parents, Bereavement, Christian BJ, Currie ER, Humans, Infant, Infant Death, Intensive Care Units, March 2018 List, Meneses K, Neonatal, Neonatal Intensive Care Unit, Newborn, Parents/ Psychology, Qualitative Research, Recruitment, Roche C, Sensitive topic
Neonatal Hospital Course and Outcomes of Live-born Infants with Trisomy 18 at Two Tertiary Care Centers in the United States
Tags: 2017, American Journal of Perinatology, Artificial, Birth Weight, Cardiotonic Agents/therapeutic use, Congenital/etiology, Dereddy NR, Dhanireddy R, Female, Gestational Age, Heart Defects, Humans, Infant, Infant Death, Intensive Care Units, Length Of Stay, Live Birth, Male, March 2018 List, Neonatal, Newborn, Patient Discharge, Perinatal Death, Pivnick EK, Respiration, Sex Factors, Survival Rate, Talati AJ, Tertiary Care Centers, Trisomy 18 Syndrome/complications/ therapy, United States, Upadhyay K
Neonatal end-of-life care: A single-center NICU experience in Israel over a decade
Tags: 2013, adrenal insufficiency/ep [Epidemiology], anemia/ep [Epidemiology], Article, Bar-Oz B, brain edema/ep [Epidemiology], brain hemorrhage/ep [Epidemiology], Cause Of Death, Child Parent Relation, congenital malformation/ep [Epidemiology], Eventov-Friedman S, Gestational Age, Human, Incidence, Israel, Jerusalem, Kanevsky H, kidney failure/ep [Epidemiology], March 2018 List, Medical Decision Making, Middle East, necrotizing enterocolitis/ep [Epidemiology], Newborn, Newborn Care, Newborn Death, newborn hypoxia/ep [Epidemiology], Newborn Intensive Care, newborn mortality, newborn sepsis/ep [Epidemiology], Pediatrics, Practice Guideline, Prematurity, Priority Journal, Quality Of Life, Religion, respiratory failure/ep [Epidemiology], sepsis/ep [Epidemiology], shock/ep [Epidemiology], treatment duration
Good-parent beliefs of parents of seriously ill children
Tags: 2015, Acute Disease, Adaptation, Adolescent, Attitudes, Backlog, Carroll KW, Child, Child welfare, Chronic Disease, Cross-sectional Studies, Faerber JA, Female, Feudtner C, Health Knowledge, Hill DL, Hinds PS, Humans, Infant, JAMA Pediatrics, Journal Article, Kang T, Male, Miller VA, Mollen CJ, Morrison WE, Munson DA, Newborn, Parent-child Relations, Parents, Philadelphia, Practice, Preschool, Psychological, Questionnaires, Stress, Walter JK
Talking with parents about end-of-life decisions for their children
Tags: 2015, Adolescent, Advance Directives, Backlog, Bos AP, Child, Communication, de Graaff Bert M, de Vos MA, Decision Making, DNAR, Female, Humans, Infant, Intensive Care Units, Journal Article, Life Support Care, Male, Netherlands, Newborn, Palliative Care, Pediatric, Pediatrics, Plötz FB, Preschool, Professional-family Relations, Prospective Studies, Qualitative Research, Tates K, Truog RD, van Heerde M, Willems DL, Withholding Treatment
Neonatologist training to guide family decision making for critically ill infants
Tags: 2009, Archives Of Pediatrics & Adolescent Medicine, Arnold RM, Attitude Of Health Personnel, Backlog, Boss RD, Clinical Competence, Communication, Critical Illness, Decision Making, Donohue PK, Education, Fellowships And Scholarships, Graduate, Humans, Hutton N, Infant, Internet, Journal Article, Linear Models, Medical, Neonatology/education, Newborn, Nonparametric, Premature, Professional-family Relations, Questionnaires, Statistics, United States
Shifting place of death among children with complex chronic conditions in the United States, 1989-2003
Tags: 2007, Adolescent, Attitude To Death, Backlog, Child, Chronic Disease/mortality, Feinstein JA, Female, Feudtner C, Hospitals/statistics & numerical data, Humans, Infant, Journal Article, Journal Of The American Medical Association, Kang T, Male, Newborn, Palliative Care/statistics & Numerical Data, Preschool, Residence Characteristics/statistics & numerical data, Retrospective Studies, Satchell M, Terminally Ill/statistics & numerical data, United States/epidemiology, Zhao H
Anxiety is contagious-symptoms of anxiety in the terminally ill child affect long-term psychological well-being in bereaved parents
Tags: 2010, Adaptation, Adolescent, Adult, Anxiety/epidemiology/etiology/psychology, Backlog, Bereavement, Child, Depression/epidemiology, Female, Henter JI, Humans, Infant, Jalmsell L, Journal Article, Kreicbergs U, Male, Neoplasms/psychology, Newborn, Onelov E, Parent-child Relations, Parents/psychology, Pediatric Blood & Cancer, Preschool, Psychological, Quality Of Life, Steineck G, Sweden/epidemiology, Terminally Ill/psychology, Young Adult
The natural history of Niemann-Pick disease type C in the UK
Tags: 2007, Adolescent, Adult, Backlog, Besley GT, Child, Dasgupta S, Female, Fensom AH, Genetic, Great Britain, Harris C, Heptinstall L, Humans, Imrie J, Infant, Jacklin E, Journal Article, Journal Of Inherited Metabolic Disease, Knight S, Lipid Metabolism Disorders/diagnosis/metabolism, Lipids/chemistry, Male, Middle Aged, Models, Newborn, Niemann-Pick Disease, Preschool, Q3 Scoping Review Results, Type C/diagnosis/epidemiology, Vanier MT, Ward C, Whitehouse C, Wraith JE
New treatment paradigms in neonatal metabolic epilepsies.
Tags: 2009, Backlog, Brain Diseases, Electroencephalography, Epilepsy/cn [Congenital], Epilepsy/ge [Genetics], Epilepsy/th [Therapy], Humans, Inborn/ge [Genetics], Inborn/th [Therapy], Infant, Journal Article, Journal Of Inherited Metabolic Disease, KT Synthesis, Metabolic, Newborn, Pearl PL, Pyridoxine/ph [Physiology], Seizures/cn [Congenital], Seizures/et [Etiology], Seizures/th [Therapy], Vitamin B 6 Deficiency/ge [Genetics], Vitamin B 6 Deficiency/pp [Physiopathology]
Changing mortality in congenital heart disease
Tags: 2010, Abrahamowicz M, Adolescent, Adolescent Transitions, Age Factors, Aged, Backlog, Cardiac Surgical Procedures/methods/mortality, Cause Of Death, Child, Cohort Studies, Congenital/diagnosis/mortality/surgery, Female, Heart Defects, Humans, Infant, Ionescu-Ittu R, Journal Article, Journal of the American College of Cardiology, Khairy P, Mackie AS, Male, Marelli AJ, Middle Aged, Newborn, Pilote L, Preschool, Prognosis, Quebec, Retrospective Studies, Sex Factors, Survival Analysis, Young Adult
Parents' perspectives regarding a physician-parent conference after their child's death in the pediatric intensive care unit
Tags: 2007, Adult, Anand KJ, Backlog, Bereavement, Carcillo J, Communication, Critical Care, Dean JM, Death, Eggly S, Female, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Male, Meert KL, Middle Aged, National Institute of Child Health and Human Development Collaborative Pediatric Critical Care Research Network, Needs Assessment, Newborn, Newth CJ, Nicholson C, Parent-child Relations, Parents/psychology, Pediatric, Physician's Role, Pollack M, Questionnaires, The Journal Of Pediatrics, Willson DF, Zimmerman J
Categorizing neonatal deaths: a cross-cultural study in the United States, Canada, and The Netherlands.
Tags: 2010, Andrews B, Artificial, Backlog, Bos AF, Canada, Cross-cultural Comparison, Decision Making, Diseases/mortality, Female, Gestational Age, Humans, Infant, Intensive Care Units, Janvier A, Journal Article, Lagatta J, Leuthner SR, Male, Meadow W, Neonatal, Netherlands, Newborn, Physician Assisted Dying PAD, Respiration, Terminal Care, The Journal Of Pediatrics, United States, Verhagen AAE, Withholding Treatment/statistics & Numerical Data