Browse Items (195 total)
- Tags: Longitudinal Studies
“have No Regrets:” Parents’ Experiences And Developmental Tasks In Pregnancy With A Lethal Fetal Diagnosis.
Lethal fetal diagnoses are made in 2% of all pregnancies. The pregnancy experience is certainly changed for the parents who choose to continue the pregnancy with a known fetal diagnosis but little is known about how the psychological…
Tags: 2016, Adult, Choice Behavior, Côté-Arsenault D, Denney-Koelsch E, Developmental Task, Emotions, Female, Fetal Diseases/diagnosis, Fetal Diseases/mortality, Humans, Infant, Lethal Fetal Diagnosis, Longitudinal, Longitudinal Studies, Male, March 2016 List, Middle Aged, Needs Assessment, Palliative Care, Parents/psychology, Perinatal Care, Perinatal Palliative Care, Phenomenology, Pregnancy, Prenatal Diagnosis, Prenatal Diagnosis/psychology, Qualitative Research, Social science & medicine, Usa, Young Adult
A clinical rating scale for Batten disease Reliable and relevant for clinical trials
Tags: 2005, Adams H, Adolescent, Adult, Backlog, Child, Children W/SNI, Clinical Trials/standards, de Blieck EA, DeYoung J, Disease Progression, Dure L, Female, Humans, Journal Article, Levy Erika, Longitudinal Studies, Male, Marshall FJ, McDonough T, Messing S, Mink JW, Neurologic Examination/methods/standards, Neurology, Neuronal Ceroid-Lipofuscinoses/diagnosis/physiopathology/psychology, Neuropsychological Tests/standards, others, Personality Tests/standards, Predictive Value of Tests, Preschool, Prognosis, Rothberg PG, Severity Of Illness Index, Treatment Outcome
A global measure of perceived stress.
Tags: 1983, Adult, Affective Symptoms, Affective Symptoms/psychology, Backlog, Cohen S, Female, Humans, Journal Article, Journal Of Health And Social Behavior, Kamarck T, Life Change Events, Longitudinal Studies, Male, Mermelstein R, Psychological, Psychological/diagnosis, Psychometrics, Stress, Students, Students/psychology, Tobacco Use Disorder, Tobacco Use Disorder/psychology
A longitudinal method of teaching pediatric palliative care to interns: preliminary findings regarding changes in interns' comfort level
Tags: 2010, Adult, Attitude Of Health Personnel, Attitude To Death, Backlog, Chung PJ, Curriculum/standards, Documentation/standards, Evan E, Female, Humans, Internship And Residency, Journal Article, Longitudinal Studies, Male, Palliative & Supportive Care, Palliative Care/methods, Pediatrics/education, Professional Competence, Professional-family Relations, Professional-patient Relations, Questionnaires, Roubinov D, Teaching/methods, Yazdani S, Young Adult, Zeltzer L
A Longitudinal, Randomized, Controlled Trial Of Advance Care Planning For Teens With Cancer: Anxiety, Depression, Quality Of Life, Advance Directives, Spirituality
METHODS:
Adolescent (age 14-20 years)/family dyads (N = 30) with a cancer…
Tags: 2014, Adolescent, Adult, Advance Care Planning, Advance Care Planning/statistics & Numerical Data, Advance Directive, Advance Directives/psychology, Advance Directives/statistics & Numerical Data, African-american, Anxiety/complications, Anxiety/psychology, Cancer, Communication, Decision-making, Depression/complications, Depression/psychology, End Of Life, Family, Family Intervention, Feasibility Studies, Female, Follow-up Studies, Humans, Journal of Adolescent Health, July 2016 List, Longitudinal Studies, M.E. Lyon, Male, Neoplasms/complications, Neoplasms/psychology, Patient Satisfaction/statistics & Numerical Data, Pediatric Palliative Care, Quality Of Life/psychology, Spirituality, Surveys And Questionnaires, United States, Wang J, Young Adult
A population-based nationwide study of parents' perceptions of a questionnaire on their child's death due to cancer.
Tags: 2004, Attitude, Attitude To Death, Backlog, Bereavement, Biomedical and Behavioral Research, Child, Data Collection, Death and Euthanasia, Empirical Approach, Ethics, Female, Henter JI, Humans, Interviews, Journal Article, Kreicbergs U, Lancet, Longitudinal Studies, Male, Parents/psychology, Pilot Projects, Questionnaires, Research, Steineck G, Sweden, Valdimarsdottir U
A retrospective, multinational, multicenter study on the natural history of infantile-onset Pompe disease
Tags: 2006, Artificial, Backlog, Cohort Studies, Corzo D, Disease Progression, Europe/epidemiology, Female, Glycogen Storage Disease Type II/complications/epidemiology/therapy, Humans, Hwu WL, Infant, Infantile-Onset Pompe Disease Natural History Study Group, Israel/epidemiology, Journal Article, Kishnani PS, Longitudinal Studies, Male, Mandel H, Newborn, Nicolino M, North America/epidemiology, Respiration, Retrospective Studies, Survival Rate, Taiwan/epidemiology, The Journal Of Pediatrics, Yong F
A scale to monitor progression and treatment of mitochondrial disease in children.
Tags: 2006, Adolescent, Backlog, Bugiani M, Child, Disability Evaluation, Disease Progression, Elson JL, Female, Great Britain, Humans, Infant, Journal Article, Longitudinal Studies, Male, McFarland R, Mitochondrial Diseases/diagnosis/therapy, Mitochondrial Encephalomyopathies/diagnosis/therapy, Morava E, Neurology/methods, Neuromuscular Disorders, Newborn, Observer Variation, Pediatrics/methods, Phoenix C, Predictive Value of Tests, Preschool, Prognosis, Q3 Scoping Review Results, Reproducibility of Results, Schaefer AM, Smeitink JA, Turnbull DM, Uziel G
A systematic review of physicians' survival predictions in terminally ill cancer patients.
Tags: 2003, Analysis of Variance, Backlog, Bmj (clinical Research Ed.), Christakis NA, Clinical Competence/standards, Death and Euthanasia, Decision Making, Empirical Approach, Eychmuller S, Glare P, Hudson M, Humans, Jones M, Journal Article, Longitudinal Studies, Neoplasms/mortality, Physicians/standards, Regression Analysis, Reproducibility of Results, Simes J, Survival Analysis, Terminally Ill, Virik K
An assessment of gender differences in the perception of benefit resulting from the loss of a child.
Tags: 2000, Adaptation, Adult, Aged, Backlog, Bereavement, Child, Esprey Y, Female, Gender Identity, Grief, Growth, Humans, Journal Article, Journal Of Traumatic Stress, Life Change Events, Longitudinal Studies, Male, Middle Aged, Perception, Polantinsky S, Psychological, Questionnaires, Sex Factors
Anxiety and depression in parents 4-9 years after the loss of a child owing to a malignancy: a population-based follow-up.
Tags: 2004, Adult, Age Factors, Aged, Anxiety Disorders/etiology, Backlog, Bereavement, Case-Control Studies, Child, Death, Depression/etiology, Female, Henter JI, Humans, Journal Article, Kreicbergs U, Longitudinal Studies, Male, Middle Aged, Morbidity, Neoplasms, Non-U.S. Gov't, Onelov E, Parent-child Relations, Preschool, Psychological, Psychological Medicine, Research Support, Risk Factors, Steineck G, Stress, Valdimarsdottir U
Aromatic L-amino acid decarboxylase deficiency: overview of clinical features and outcomes
Tags: 2003, Age of Onset, Annals Of Neurology, Aromatic-L-Amino-Acid Decarboxylases/cerebrospinal fluid/deficiency/genetics, Autonomic Nervous System Diseases/genetics/physiopathology, Backlog, Child, Consanguinity, Female, Hemodynamics/physiology, Humans, Hyland K, Infant, Journal Article, Longitudinal Studies, Magnetic Resonance Imaging, Male, McKenna CE, Movement Disorders/genetics/physiopathology, Nervous System Diseases/cerebrospinal fluid/genetics/physiopathology, Newborn, Nitroprusside/diagnostic use, Pedigree, Preschool, Q3 Scoping Review Results, Saul JP, Speller NB, Swoboda KJ, Treatment Outcome, Vasodilator Agents/diagnostic use
Assessing the impact of pediatric epilepsy and concomitant behavioral, cognitive, and physical/neurologic disability: Impact of Childhood Neurologic Disability Scale
Tags: 2003, Adolescent, Backlog, Breau L, Camfield C, Camfield P, Child, Child Behavior Disorders/diagnosis/etiology, Chronic Disease, Cognition Disorders/diagnosis/etiology, Developmental Medicine and Child Neurology, Diagnostic and Statistical Manual of Mental Disorders, Disability Evaluation, Epilepsy/complications/diagnosis, Female, Follow-up Studies, Humans, Journal Article, Longitudinal Studies, Male, Preschool, Questionnaires, Reproducibility of Results
Barriers to palliative care for children: Perceptions of pediatric health care providers
Behavioral, social, and educational outcomes after pediatric stem cell transplantation and related factors
Tags: 2009, Adaptation, Adolescent, Adult, Atenafu E, Backlog, Barrera M, Behavior, Cancer, Child, Cranial Irradiation, Depression, Female, Humans, Internal-External Control, Journal Article, Longitudinal Studies, Male, Mental Health, Mothers, Neoplasms, Parent-child Relations, Pinto J, Psychological, Social Adjustment, Social Behavior, Stem Cell Transplantation, Survivors, Teaching, Treatment Outcome
Bereaved parents' experience of research participation.
Tags: 2004, Accidents/psychology, Adolescent, Adult, Attitude, Backlog, Bereavement, Biomedical and Behavioral Research, Child, Dyregrov K, Empirical Approach, Ethics, Female, Follow-up Studies, Humans, Infant, Interview, Journal Article, Longitudinal Studies, Male, Medical/methods, Middle Aged, Multi-site Ethics, Newborn, Norway, Parents/psychology, Preschool, Psychological, Registries, Regression Analysis, Research, Research Subjects/psychology, Social science & medicine, Sociology, Sudden Infant Death, Suicide/psychology
Bereavement outcomes for parents who lose a child to cancer: are place of death and sex of parent associated with differences in psychological functioning?
Tags: 2004, Adaptation, Adult, Anxiety/diagnosis/epidemiology/psychology, Attitude To Death, Backlog, Bereavement, Child, Depression/diagnosis/epidemiology/psychology, Drew D, Female, Goodenough B, Higgins S, Humans, Journal Article, Location Of Death, Longitudinal Studies, Male, Outcome Assessment (health Care), Parents/psychology, Psycho-Oncology, Psychological, Psychology, Questionnaires, Sex Factors, Trethewie S
Biochemical, clinical and molecular findings in LCHAD and general mitochondrial trifunctional protein deficiency
Tags: 2005, Acyl-CoA Dehydrogenase, Andresen BS, Backlog, Bischoff C, Bonham JR, Cardiomyopathies/diagnosis/genetics, Carnitine/analogs & derivatives/metabolism, Chakrapani A, Clark S, Downing M, Exons, Fatty Acids/metabolism, Fibroblasts/metabolism, Gregersen N, Homozygote, Humans, Inborn Errors/diagnosis/genetics, Journal Article, Journal Of Inherited Metabolic Disease, Lipid Metabolism, Long-Chain/deficiency, Longitudinal Studies, Male, Manning NJ, Mitochondria/pathology, Multienzyme Complexes/deficiency, Muntoni F, Mutation, Olpin SE, Olsen RK, Phenotype, Polyneuropathies/diagnosis/genetics, Pourfarzam M, Prognosis, Rhabdomyolysis/diagnosis/genetics, Sharrard M, Turnbull DN
Cancer incidence in parents who lost a child: a nationwide study in Denmark
Tags: 2002, Backlog, Bereavement, Cancer, Causality, Child, Denmark/epidemiology, Female, Hansen D, Humans, Incidence, Johansen C, Journal Article, Li J, Longitudinal Studies, Male, Neoplasms/epidemiology/mortality/psychology, Olsen J, Parents/psychology, Psychological/complications, Risk Factors, Stress
Caregiving process and caregiver burden: conceptual models to guide research and practice.
Tags: 2004, Adaptation, Backlog, Bmc Pediatrics, Brehaut J, Caregivers/psychology, Child, Disabled Children, Humans, Journal Article, King G, King S, Longitudinal Studies, Models, Non-U.S. Gov't, O'Donnell ME, Parents/psychology, Psychological, Raina P, Research Support, Rosenbaum P, Russell D, Schwellnus H, Stress, Swinton M, Walter SD, Wong M, Wood E
Certainty and mortality prediction in critically ill children.
Tags: 2004, Backlog, Child, Clinical Competence, Critical Illness/mortality, Death and Euthanasia, Empirical Approach, Health Care and Public Health, Hospital, Hospital Mortality, Humans, Intensive Care Units, Journal Article, Journal of Medical Ethics, Longitudinal Studies, Marcin JP, Medical Staff, Patel KM, Pediatric, Pollack MM, Pretzlaff RK, Professional Patient Relationship, Prognosis, Prospective Studies, Risk Assessment, Ruttimann UE
Change in gross motor abilities of girls and women with rett syndrome over a 3- to 4-year period
Tags: 2011, Adolescent, Adult, Age Factors, Arginine/genetics, Australia, Bebbington A, characteristics, Disease Progression, Downs J, Female, Foley K R, Girdler S, Humans, Jacoby P, Journal of Child Neurology, Kaufmann W E, Leonard H, Linear Models, Longitudinal Studies, Methyl-CpG-Binding Protein 2/genetics, Motor Skills/physiology, Movement Disorders/etiology/genetics, Mutation/genetics, Retrospective Studies, Rett syndrome, Rett Syndrome/complications/genetics, tone and motor problems, Trajectory, Young Adult
Changes in mothers' basic beliefs following a child's bone marrow transplantation: the role of prior trauma and negative life events
Tags: 2004, Adaptation, Adult, Attitude To Health, Austin J, Backlog, Bone Marrow Transplantation/psychology, Boulad F, Child, DuHamel KN, Female, Health Status, Hospitalization, Humans, Journal Article, Journal Of Traumatic Stress, Longitudinal Studies, Male, Manne S, Martini R, Mee L, Mental Health, Mother-child Relations, Ostroff J, P.H.S., Parsons SK, Psychological, Redd WH, Research Support, Rini C, Sexson S, Stress, U.S. Gov't, Williams S, Wounds and Injuries/psychology
Circumplex Model VII: Validation studies and FACES III.
Circumstances surrounding the deaths of hospitalized children: opportunities for pediatric palliative care.
Tags: 2004, Academic Medical Centers, Adolescent, Backlog, Carter BS, Child, et al, Female, Gilmer MJ, Hospital Mortality, Hospitalization, Hospitalized, Howenstein M, Humans, Infant, Journal Article, Length Of Stay, Longitudinal Studies, Male, Newborn, Non-U.S. Gov't, Pain/diagnosis/drug therapy, Palliative Care, Pediatrics, Preschool, Research Support, Retrospective Studies, Terminal Care, Terminally Ill, Withholding Treatment
Clinical and biochemical spectrum of D-bifunctional protein deficiency
Tags: 2006, 3-Hydroxyacyl CoA Dehydrogenases/deficiency, Annals Of Neurology, Backlog, Barth PG, Blood Chemical Analysis, Boltshauser E, Bone and Bones/anatomy & histology/pathology, Brain/anatomy & histology/pathology, Child, Cohort Studies, Dekker C, Denis S, Duran M, Enoyl-CoA Hydratase/deficiency, Ferdinandusse S, Fibroblasts/cytology/metabolism, Gartner J, Humans, Inborn Errors, Infant, Isomerases/deficiency, Journal Article, Kidney/anatomy & histology/pathology, Life Expectancy, Lipid Metabolism, Liver/anatomy & histology/pathology, Longitudinal Studies, Macaya A, Magnetic Resonance Imaging, Majoie CB, Mooyer PA, Multienzyme Complexes/deficiency, Peroxisomal Disorders/classification/pathology/physiopathology, Poll-The BT, Preschool, Questionnaires, Soorani-Lunsing RJ, Wanders RJ
Clinical characteristics and survival of trisomy 18 in a medical center in Taipei, 1988-2004.
Tags: 2006, Abnormalities, Adult, American Journal Of Medical Genetics.Part A, Backlog, Birth Weight, Brain Diseases/ultrasonography, Chang JH, Chen MR, Chen YJ, Child, Child Health Services/economics/organization & administration/statistics & numerical data, Chromosomes, Congenital/ultrasonography, Female, Gestational Age, Heart Defects, Ho CS, Hospitals, Hsu CH, Huang FY, Human, Humans, Hung HY, Infant, Journal Article, Kao HA, Karyotyping, Lee HC, Lin DS, Lin HY, Lin SP, Longitudinal Studies, Male, Maternal Age, Middle Aged, Multiple/genetics/mortality/pathology, Newborn, Pair 18/genetics, Paternal Age, Pregnancy, Prenatal Diagnosis, Preschool, Retrospective Studies, Shyur SD, Survival Analysis, Survival Rate, Taiwan, Time Factors, Trisomy/diagnosis/genetics, Ultrasonography/methods
Combat experience and emotional health: impairment and resilience in later life
Tags: 1989, Adaptation, Adolescent, Adult, Assertiveness, Backlog, Clipp EC, Ego, Elder GH, Human Development, Humans, Journal Article, Journal Of Personality, Longitudinal Studies, Male, Memory, Non-P.H.S., P.H.S., Post-Traumatic/psychology, Psychological, Research Support, Risk Factors, Stress Disorders, U.S. Gov't, Veterans/psychology, War
Communication strategies and persuasion as core components of shared decision-making for children with life-limiting conditions: A multiple case study
Conducting End-of-Life Studies in Pediatric Oncology
Tags: 2007, Backlog, Burghen E, Clinical Nursing Research, dying children and adolescents, end-of-life research, Hinds PS, Humans, Journal Article, Longitudinal Studies, Oncologic Nursing/ethics, Oncology at EOL, Pediatric Nursing, Pediatric Oncology, Pediatrics, Pritchard M, Reproducibility of Results, Terminal Care, Western Journal of Nursing Research
Constructing a prospective model of psychosocial adaptation in young adolescents with spina bifida: an application of optimal data analysis
Tags: 2006, Adaptation, Adolescent, Adolescent Transitions, Backlog, Body Image, Bryant FB, Child, Coakley RM, Conflict (Psychology), Educational Status, Family/psychology, Female, Holmbeck GN, Humans, Individuation, Intelligence, Journal Article, Journal of Pediatric Psychology, Longitudinal Studies, Male, Models, Motivation, Parents/psychology, Prospective Studies, Psychological, Psychological/complications, Self Concept, Sick Role, Social Adjustment, Social Behavior, Spinal Dysraphism/psychology, statistical, Stress
Cornerstone care for families of children with life-threatening illness.
Tags: 1991, Adaptation, Backlog, Baum JD, Brain Diseases/psychology/therapy, Child, Continuity Of Patient Care, Developmental Medicine and Child Neurology, Family/psychology, Forrest GC, Grief, Home Nursing/psychology, Hospices, Humans, Journal Article, Longitudinal Studies, Neuromuscular Diseases/psychology/therapy, Patient Care Team, Professional-family Relations, Psychological, Public Assistance, Sick Role, Social Support, Stein A, Terminal Care/psychology, Woolley H
Data equivalency of an interactive voice response system for home assessment of back pain and function
Tags: 2007, Adult, Automation, Back Pain/physiopathology, Backlog, Data Collection/methods, Disability Evaluation, Evaluation Studies as Topic, Female, Humans, Journal Article, Longitudinal Studies, Male, Pain Research & Management : The Journal Of The Canadian Pain Society = Journal De La Societe Canadienne Pour Le Traitement De La Douleur, Shaw WS, Telephone, Verma SK
Depression, distress and positive mood in late-stage cancer: a longitudinal study
Tags: 2009, Acree M, Affect, Backlog, Depression/epidemiology/psychology, Depressive Disorder/epidemiology/psychology, Disease Progression, Folkman S, Humans, Journal Article, Longitudinal Studies, McElhiney M, Moran P, Neoplasms/psychology, New York City/epidemiology, Psycho-Oncology, Rabkin JG, Risk Factors, San Francisco/epidemiology, Terminally Ill/psychology