Browse Items (59 total)

Tags: 1991, Adaptation, Backlog, Baum JD, Brain Diseases/psychology/therapy, Child, Continuity Of Patient Care, Developmental Medicine and Child Neurology, Family/psychology, Forrest GC, Grief, Home Nursing/psychology, Hospices, Humans, Journal Article, Longitudinal Studies, Neuromuscular Diseases/psychology/therapy, Patient Care Team, Professional-family Relations, Psychological, Public Assistance, Sick Role, Social Support, Stein A, Terminal Care/psychology, Woolley H

Tags: 2020, Batey N, Bifani E, Chameleon Project, Chhaochharia A, Children, Clements H, Connolly A, Deorukker S, Developmental Medicine and Child Neurology, Dorsett C, Douglas E, end-of-life, Griffin H, Haynes S, Hill S, July 2020 List, Kelly N, Lovegrove S, Manning J, quality improvement project, Sheikh N, Turnbull J, Webb K, Whitehouse W P, Wolff A

Tags: 2014, Adolescent, Adult, Backlog, Blankenburg M, Caregivers, Child, Developmental Medicine and Child Neurology, Female, Health Status, Humans, Infant, Journal Article, Male, Michel E, Newborn, Parents, Preschool, Psychomotor Disorders, Quality Of Life, Questionnaires, Retrospective Studies, Sleep Disorders, Tietze AL, Young Adult, Zernikow B

Tags: 2003, Backlog, Biography, Child, Child welfare, Communication, Developmental Medicine and Child Neurology, Health Services, Humans, Journal Article, Physician-patient Relations, Taylor DC

Tags: 1997, Adolescent, Adult, Attitude To Health, Backlog, Caregivers/psychology, Child, Clarke M, Cost Of Illness, Developmental Disabilities/complications, Developmental Medicine and Child Neurology, Dickson A, Eating Disorders/etiology/therapy, Female, Fundoplication, Gastrostomy, Humans, Infant, Journal Article, Male, Nutritional Failure, Parents/psychology, Preschool, Psychological/psychology, Q3 Scoping Review Results, Quality Of Life, Questionnaires, Stress, Tawfik R, Thomas AG, Time Factors, Treatment Outcome

Tags: 2000, Adolescent, Backlog, Child, Cross-sectional Studies, Developmental Medicine and Child Neurology, Disabled Children, Feeding and Eating Disorders of Childhood/epidemiology/etiology, Female, Ford-Adams ME, Griffiths P, Humans, Johnson A, Journal Article, Lambert B, Male, Nervous System Diseases/complications, Non-U.S. Gov't, Nutrition Disorders/epidemiology/etiology, Parent-child Relations, Preschool, Prevalence, Research Support, Rose M, Severity Of Illness Index, Sullivan P

Tags: 2002, Adolescent, Anthropometry, Backlog, Brain Damage, Child, Child Nutrition Disorders/diagnosis, Chronic/diagnosis, Developmental Disabilities/diagnosis, Developmental Medicine and Child Neurology, Disabled Children, Eating Disorders/diagnosis/etiology, Failure to Thrive/diagnosis/etiology, Female, Ford-Adams ME, Humans, Johnson A, Journal Article, Juszczak E, Lambert BR, Male, Nutrition Assessment, Nutritional Failure, Preschool, Rose M, Sullivan P

Tags: 2005, Adolescent, Alder N, Anthropometry/methods, Bachlet AM, Backlog, Body Height/physiology, Cerebral Palsy/classification/nursing/surgery, Child, Child Development/physiology, Demography, Developmental Medicine and Child Neurology, Eltumi M, Enteral Nutrition/methods, Female, Gastrostomy/methods, Grant HW, Head/growth & development, Humans, Infant, Journal Article, Juszczak E, Lambert B, Longitudinal Studies, Male, McLean L, Newborn, Nutritional Status/physiology, Preschool, Retrospective Studies, Sullivan P, Thomas AG, Time Factors, Treatment Outcome, Vernon-Roberts A, Weight Gain/physiology

Tags: 1993, Adolescent, Anthropometry, Backlog, Cerebral Palsy/complications, Charney EB, Child, Comparative Study, Cronk CE, Davies JC, Developmental Medicine and Child Neurology, Female, Growth Disorders/diagnosis/etiology, Humans, Journal Article, Male, Non-U.S. Gov't, Nutrition Assessment, Nutrition Disorders/complications, Nutritional Status, P.H.S., Preschool, Quadriplegia/complications, Research Support, Sex Factors, Stallings VA, U.S. Gov't

Tags: 2017, 302-17-0 (chloral hydrate), 4205-90-7 (clonidine), 4205-91-8 (clonidine), 57066-25-8 (clonidine), benzodiazepine derivative, Child, chloral hydrate, Clinical Article, clonidine, Cohort Analysis, Cross-sectional Study, Developmental Medicine and Child Neurology, Diagnosis, Documentation, Dystonia, England, Female, Hughes G, Human, joint, Laddie J, Lumsden DE, Male, March 2018 List, Neurology, Palliative Therapy, precancer, Preschool Child, Prevalence, Seizure, Slater T

Tags: 2005, Adolescent, Adult, Aggression, alertness, anxiety, behavioral problems, characteristics, Child, Depression, Developmental Medicine and Child Neurology, distractibility, Female, Harris J C, Humans, Jinnah H A, Lesch-Nyhan syndrome, Lesch-Nyhan Syndrome/px [Psychology], Male, Meyer S M, Nyhan W L, Puig J G, Schretlen D J, Self-Injurious behavior, self-injury, Severity Of Illness Index, Trajectory, Ward J, Yun J

Tags: 2019, Children, Children With Medical Complexity, CMC, Developmental Medicine and Child Neurology, Goodwin E, July 2020 List, Kennedy M, Medical Complexity, PCP, primary care providers, Savolt T, Smith T

Tags: 2003, AACPDM, Adolescent, Backlog, Butler C, Cerebral Palsy/complications, Child, Developmental Medicine and Child Neurology, Enteral Nutrition, Gastrostomy, Growth Disorders/etiology/prevention & control, Humans, Infant, Journal Article, Nutrition Disorders/etiology/prevention & control, Nutritional Failure, O'Donnell ME, Preschool, Samson-Fang L

Tags: 2002, Adolescent, Backlog, Child, Davies P, Developmental Disabilities/complications, Developmental Medicine and Child Neurology, Dose-Response Relationship, Drug, Epilepsy/complications, Female, Humans, Infant, Journal Article, Male, Medical Records, Melatonin/therapeutic use, Nervous System Diseases/complications, Outpatients, Preschool, Q3 Scoping Review Results, Ross C, Sex Factors, Sleep Disorders/complications/drug therapy, Vision Disorders/complications, Whitehouse W

Tags: 2002, Adolescent, Child, Child Preschool, Davies P, Developmental Disabilities, Developmental Disabilities/complications, Developmental Medicine and Child Neurology, Dose-Response Relationship Drug, Epilepsy, Epilepsy/complications, Female, Humans, Infant, Lennox-Gastaut syndrome, Leukodystrophy, Male, Medical Records, melatonin, Melatonin/therapeutic use, MPSII, MPSIII, Nervous System Diseases, Nervous System Diseases/complications, Outpatients, pharmacologic intervention, Q3 Scoping Review Results, Ross C, Sex Factors, Sleep Disorders/complications/drug therapy, sleep disturbance/disorders, Sleep Wake Disorders, Vision Disorders, Vision Disorders/complications, Whitehouse W

Tags: 2006, characteristics, Developmental Medicine and Child Neurology, Dusing S C, Escolar M L, Female, Humans, Infant, Male, Mercer V, Motor Activity, MPSI, Mucopolysaccharidosis I, Rosenberg A, Thorpe D, tone and motor problems, Trajectory

Tags: 2003, Adolescent, Adult, Anticonvulsants/therapeutic use, Barabas G, behavioral problems, Carbamazepine/therapeutic use, characteristics, Child, Child Preschool, Chromosomes Human X/genetics, Developmental Medicine and Child Neurology, Diazepam/therapeutic use, Eddey G E, Female, Giacomini K D, Humans, Infant, Lesch-Nyhan syndrome, Lesch-Nyhan Syndrome/genetics, Male, Reck J F, Robey K L, Self-Injurious Behavior/diagnosis/drug therapy, self-injury, Surveys And Questionnaires, Trajectory

Tags: 1969, Backlog, Brain Diseases/therapy, Brain Injuries/therapy, Cerebral Palsy/therapy, Chafiian J, Child, Child Nutrition, Deglutition Disorders/therapy, Developmental Medicine and Child Neurology, Diffuse Cerebral Sclerosis of Schilder/therapy, Encephalitis/therapy, Gastrostomy, Humans, Infant, Infant Nutrition, Journal Article, Lipoidosis/therapy, Postoperative Complications, Pourfar M, Preschool, Time Factors

Tags: 1993, Anderson C, Developmental Medicine and Child Neurology, feeding difficulties, Fisher W, girls, Neurosciences & Neurology, Pediatrics, Piazza C C, psychological intervention, Rett syndrome, splints, tone and motor problems

Tags: 2004, Antioxidants/therapeutic use, Appleton R E, Brain/physiopathology, Child, Developmental Disabilities/drug therapy/epidemiology/physiopathology, Developmental Medicine and Child Neurology, Humans, melatonin, Melatonin/therapeutic use, pharmacologic intervention, Phillips L, Rett syndrome, sleep disturbance/disorders, Sleep Wake Disorders/epidemiology, Wakefulness/physiology

Tags: 2017, Atkinson R, Child, Cohort Analysis, Developmental Medicine and Child Neurology, Endogenous Compound, Female, Human, Language, Male, March 2018 List, Mood, Music Therapy, neuronal ceroid lipofuscinosis, Ockelford A, Perception, singing, Speech, Teaching

Tags: 2001, Adult, Attitude Of Health Personnel, Backlog, Caregivers, Child, Child welfare, Developmental Medicine and Child Neurology, Female, Health Care Surveys, Humans, Journal Article, Male, Nervous System Diseases/complications, O'Donnell ME, Oberlander T, Pain, Physician-patient Relations, Quality Of Life

Tags: 1999, Clarke A, Developmental Medicine and Child Neurology, Hancock E, Hunt A B A, melatonin, O'Callaghan F J K, Osborne J P, pharmacologic intervention, sleep disturbance/disorders, Tuberous Sclerosis

Tags: 2006, Adaptation, Adolescent, Adult, Backlog, Camfield CS, Camfield PR, Caregivers/psychology, Child, Chronic Disease, Developmental Medicine and Child Neurology, Epilepsy/nursing/psychology, Family Health, Female, Humans, Journal Article, Male, Middle Aged, Nolan KJ, Parent-child Relations, Parents/psychology, Preschool, Psychological, Psychological/psychology, Q3 Scoping Review Results, Seizures/nursing/psychology, Severity Of Illness Index, Social Isolation, Social Support, Stress, Syndrome

Tags: 2006, Activities of Daily Living, Adolescent, Backlog, Campbell K, Caregivers, Cerebral Palsy/classification/nursing/psychology, Child, Developmental Medicine and Child Neurology, Disabled Persons/psychology/rehabilitation, Fehlings D, Female, Health Status, Humans, Journal Article, Kiran S, Knights S, Longitudinal Studies, Male, Narayanan UG, Preschool, Quality Of Life, Questionnaires, Reproducibility of Results, Severity Of Illness Index, Weir S

Tags: 2018, Adult, August 2018 List, catering service, Child, conference abstract, Developmental Medicine and Child Neurology, Diagnosis, Epilepsy, Female, Hills M, Hospice, Human, landscape, life event, Major Clinical Study, Male, Medical Care, Morbidity, Mortality, muscle spasm, Nallapeta N, Palliative Therapy, Retrospective Study, Young Adult

Tags: 2017, behavioral problems, characteristics, De Lange syndrome, Developmental Medicine and Child Neurology, Hennekam R C, Huisman S A, Mulder P A, Oliver C, Piening S, Trajectory, Van Balkom I D C

Tags: 2000, Adolescent, Adult, Aerophagy/di [Diagnosis], Aerophagy/pp [Physiopathology], Aerophagy/px [Psychology], air bloat, Apnea/di [Diagnosis], Apnea/pp [Physiopathology], Apnea/px [Psychology], Child, Child Preschool, Developmental Medicine and Child Neurology, Ellis R E, Feeding Behavior/ph [Physiology], feeding difficulties, Female, Fluoroscopy, gum shield, hollow tube, Humans, hyperventilation, Larynx/pp [Physiopathology], Morton R E, palatal training devices, physical intervention, Pinnington L, Rett syndrome, Rett Syndrome/di [Diagnosis], Rett Syndrome/pp [Physiopathology], Rett Syndrome/px [Psychology], Risk Factors, Stress Psychological/co [Complications], Video Recording

Tags: 1998, Budden S S, Developmental Medicine and Child Neurology, McArthur A J, melatonin, pharmacologic intervention, Rett syndrome, sleep disturbance/disorders

Tags: 2016, ataxia telangectasia, cerebral-palsy, characteristics, Crawford T O, Developmental Medicine and Child Neurology, Disease, dynamics, Dysphagia, expiratory patterns of peri-deglutitive airflow, feeding difficulties, He X M, Lederman H M, Lefton-Greif M A, Management, neurodegeneration, Neurosciences & Neurology, Patterns, Pediatrics, Perlman A L, pharyngeal, Trajectory

Tags: 2022, Adnan A, advance care plan, Cerebral Palsy, Child, Comorbidity, Developmental Medicine and Child Neurology, Fong CY, Ganesan V, Khalid F, Li L, Lim WK, Ng Voon SI, Ong L C, School, September 2022 List, Teh C M, Terminal Care

Tags: 2019, Butcher N J, Chee-a-tow A, Cohen E, core outcome set, Developmental Medicine and Child Neurology, Farid-Kapadia M, gastrojejunostomy, Gastrostomy, Guttmann A, Joachim K C, Mahant S, Monsour A, neurological impairment, October 2019 List, Offringa M, Pediatrics, tube feeding

Tags: 2014, Activities of Daily Living, Adolescent, Backlog, Boyd R, Cerebral Palsy, Child, Developmental Medicine and Child Neurology, Disability Evaluation, Female, Humans, James S, Journal Article, Male, PEDI Study, Psychometrics, Reproducibility of Results, Ziviani J

Tags: 2004, Adolescent, Analgesia, Backlog, Brady M, Child, Communication Disorders, Crichton N, Developmental Medicine and Child Neurology, Disabled Children, Female, Goldman A, Humans, Hunt A, Infant, Journal Article, Male, Mastroyannopoulou K, Moffat V, Nervous System Diseases/complications, Non-U.S. Gov't, Operative, Oulton K, Pain Measurement/methods, Preschool, Q3 Scoping Review Results, Reproducibility of Results, Research Support, Seers K, Sensitivity and Specificity, Surgical Procedures

Tags: 1994, Adolescent, behavioral problems, characteristics, Child, Child Preschool, Developmental Disabilities/complications, Developmental Medicine and Child Neurology, Epilepsy/etiology, Female, Humans, Hunt A, Learning Disorders/complications, Male, Parents/psychology, sleep disturbance, Sleep Wake Disorders/etiology/psychology, Stores G, Stress Psychological/etiology, Surveys And Questionnaires, Trajectory, Tuberous Sclerosis, Tuberous Sclerosis/complications/psychology

Tags: 2019, August 2019 List, Barnerias C, Cances C, Caregiver, Chabrol B, Child, Clinical Research, conference abstract, Controlled Study, Cuisset J M, Death, Desguerre I, Developmental Medicine and Child Neurology, Drug Therapy, Female, France, Gastrostomy, History, Hully M, Human, Intensive Care Unit, Isapoff A, Major Clinical Study, Male, new drug, Noninvasive Ventilation, nusinersen, nutrition supplement, Palliative Therapy, Physician, Prospective Study, Rivier F, Ropars J, Sabouraud P, Sedation, Sedative Agent, standardization, Vuillerot C, Werdnig Hoffmann disease

Tags: 2020, Developmental Medicine and Child Neurology, End-of-life Care, Huey R, Jennings J, July 2020 List, Maxwell V, Pediatric Intensive Care Unit, Picu, Richardson J, UK, United Kingdom

Tags: 2004, Achilles Tendon/pathology/physiopathology, Backlog, Cerebellar Ataxia/physiopathology/radiography, Cerebellum/abnormalities/radiography, Child, Chong K, Developmental Disabilities/physiopathology/radiography, Developmental Medicine and Child Neurology, Disease Specific, Evoked Potentials, Eye Movements, Female, Follow-up Studies, Harris CM, Hodgkins PR, Humans, Journal Article, Kriss A, Magnetic Resonance Imaging, Male, Pigment Epithelium of Eye/pathology/physiopathology, Prognosis, Russell-Eggitt I, Shawkat FS, Taylor DS, Thompson DA, Timms C, Tomography, Visual, X-Ray Computed

Tags: 2008, Adolescent, Backlog, Body Temperature Regulation, Child, Cohort Studies, Developmental Disabilities/complications/physiopathology, Developmental Medicine and Child Neurology, Female, Hauer JM, Humans, Hypothermia/complications/prevention & control/psychology, Journal Article, Male, Pancreatitis/diagnosis/etiology/therapy, Preschool, Q3 Scoping Review Results, Recurrence, Retrospective Studies, Risk Factors

Tags: 2017, Baba M, Beringer A, Developmental Medicine and Child Neurology, Harris N, Hospice Care, May 2017 List, Mellor C, Midazolam, Paediatric, Rogers R, Seizures, Sharples P, Taylor K, Terminal Care