Browse Items · Pediatric Palliative Care Library

The posttraumatic growth inventory: measuring the positive legacy of trauma.

The development of the Posttraumatic Growth Inventory, an instrument for assessing positive outcomes reported by persons who have experienced traumatic events, is described. This 21-item scale includes factors of New Possibilities, Relating to…

The positive impact of children with an intellectual disability on the family.

This paper reports the findings of a qualitative study on the positive impacts of children with an intellectual disability on their families. The study identified nine core themes: source of joy and happiness; increased sense of purpose and…

Tags: <25-70+ yr old parents, 1998, Backlog, Besser H, Disorders, Family Life, Family Relations, Female, Human, Journal Article, Journal Of Intellectual & Developmental Disability, Longitudinal Studies, Male, Parents, positive impacts of children with disabilities, Positivism, Stainton Tim

The perceived benefit scales: measuring perceived positive life changes after negative events

The article focuses on a study that introduced measures of self-reported positive life changes after negative events. The study of the psychosocial consequences of negative events has been conducted largely using a deficit approach. In the past three…

Tags: 1998, anxiety, Backlog, Depression, Factor Analysis, Fisher R, Journal Article, Life Change Events, McMillen JC, Psychological, Psychology, Social Work Research, statistical, Stress

The natural history of degenerative ataxia: a retrospective study in 466 patients

The aim of the present study was (i) to compare disease progression and survival in different types of degenerative ataxia, and (ii) to identify variables that may modify the rate of disease progression. We included patients suffering from…

The multiple meanings of long-term gastrostomy in children with severe disability

Although the physiological implications of long-term gastrostomy for children with severe disability are well documented in the nursing literature, little is known about the psychosocial effect of this technological intervention. This study documents…

The meaning of peak and nadir experiences of pediatric oncology nurses: Secondary analysis

1998

Tags: 1998, Backlog, Clarke-Steffen L, Jounral Of Pediatric Oncology Nursing, Journal Article, Meaning, Nurses

The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability

This is the first report on the McGill Quality of Life Questionnaire (MQOL), a questionnaire relevant to all phases of the disease trajectory for people with a life-threatening illness. This questionnaire differs from most others in three ways: the…

The long-term effects of later life spousal and parental bereavement on personal functioning

Using data from Americans' Changing Lives: Wave 1, 1986, this study examined the long-term effects on the personal functioning of older women and men following the death of an adult child or a spouse. Guided by Weiss's (1993) theoretical framework,…

The legitimacy of grieving: The partner's experience at miscarriage

1997

Tags: 1997, Backlog, Johnson MP, Journal Article, Puddifoot JE, Social science & medicine

The interactional context of problem-, emotion-, and relationship-focused coping: the role of the big five personality factors

This study examined the role that personality and situational factors play in three forms of coping responses: problem-, emotion- and relationship-focused. Coping responses were strongly associated with whether the situation involved a primarily…

Tags: 1996, Adaptation, Backlog, Defense Mechanisms, DeLongis A, Emotions, Empathy, Humans, Individuality, Interpersonal Relations, Journal Article, Journal Of Personality, Non-U.S. Gov't, O'Brien TB, Personality, Problem Solving, Psychological, Research Support, Social Environment

The future of the doctor-payer-patient relationship

The double effect of pain medication: separating myth from reality

The principle of double effect is used to justify the administration of medication to relieve pain even though it may lead to the unintended, although foreseen, consequence of hastening death by causing respiratory depression. Although a review of…

Tags: 1998, Analgesics, Assisted, Backlog, Death and Euthanasia, Double Effect Principle, Euthanasia, Fohr SA, Humans, Intention, Journal Article, Journal of Palliative Medicine, Opioid/adverse effects/therapeutic use, Pain/drug Therapy, Palliative Care/ethics, Refusal to Treat, Respiratory Insufficiency/chemically induced, Suicide

The delphi technique: an adaptive research tool

The Delphi technique is one type of research methodology that is growing in popularity. This paper introduces this technique to therapists searching for a user-friendly method of conducting research. The Delphi process is explained and several issues…

Tags: 1998, Backlog, British Journal Of Occupational Therapy, Delphi Technique, Journal Article, Methodology, Research Methodology, Sumsion T

The Delphi method?

The deceased child in the psychic and social worlds of bereaved parents during the resolution of grief

A core dynamic by which grief is resolved by parents in Bereaved Parents, a self-help group, is a series of transformations of the inner representation of the dead child in the parent's inner world and in the parent's social world. As the reality of…

Tags: 1997, Backlog, Bereavement, Death studies, Humans, Journal Article, Klass D, Parent-child Relations, Parents/psychology, Self-Help Groups, Social Values, SSHRC CURA, United States

The death of a twin

Death or disability is much more common in multiple births than single children, especially in the perinatal period. Parents face particular problems in that their loss may be underestimated; their grieving may be impeded by the confusion between the…

Tags: 1995, Adolescent, Adult, Backlog, Bryan EM, Child, Child Psychology, Counseling, Death, Female, Fetal Death, Grief, Guilt, Humans, Infant, Journal Article, Male, Newborn, Palliative Medicine, Parent-child Relations, Preschool, sibling bereavement, Social Support, Twins

The control of pain in peripheral tissue by opioids

1995

Tags: 1995, Afferent/drug effects, Animals, Backlog, Biomarkers of Pain, Humans, Journal Article, Narcotics/therapeutic use, Neurons, Opioid/drug effects, Pain/drug Therapy, Peripheral Nervous System Diseases/drug therapy/physiopathology, Receptors, Stein C, The New England Journal Of Medicine

The child with cancer: Influence of culture on truth-telling and patient care

1997

Tags: 1997, Annals Of New York Academy Of Sciences, Backlog, Child, Die Trill M, Journal Article, Kovalcik R

The Cardiovascular Health Education Program: assessing the impact on rural and urban adolescents' health knowledge

In this research study, a quasi-experimental, nonequivalent control group pretest-posttest design was used to assess the impact of the Cardiovascular Health Education Program (CHEP) on the cardiovascular health knowledge of grade eight adolescents. A…

The attitude of young adults with chronic disease or handicaps towards enforced treatment and euthanasia

One hundred fifty-nine young adults in the 17-18 year old age group suffering from chronic disease or handicap participated in this study which examined their attitudes towards enforced treatment and euthanasia in terminal patients. The comparison…

T-lymphocyte concentrations of cholecystokinin-8 and beta-endorphin in eating disorders: II. Bulimia nervosa

Concentrations of cholecystokinin-8 (CCK-8) and beta-endorphin (beta-EP) in T-lymphocytes of 26 women with bulimia nervosa (BN) and in 26 age- and sex-matched healthy comparison subjects were measured. Ten patients were then treated with 300 mg/day…

T-lymphocyte cholecystokinin-8 and beta-endorphin concentrations in eating disorders: I. Anorexia nervosa

Baseline concentrations of cholecystokinin-8 (CCK-8) and beta-endorphin (beta-EP) were measured in T-lymphocytes from 33 restricting patients with anorexia nervosa (AN-R), 23 binging/purging patients with anorexia nervosa (AN-BP), and 24 healthy…

Systematic review and meta-analysis of randomized controlled trials of cognitive behaviour therapy and behaviour therapy for chronic pain in adults, excluding headache

A computer and a hand search of the literature recovered 33 papers from which 25 trials suitable for meta-analysis were identified. We compared the effectiveness of cognitive-behavioural treatments with the waiting list control and alternative…

Switching from morphine to oral methadone in treating cancer pain: what is the equianalgesic dose ratio?

PURPOSE: To define the dose ratio between morphine and methadone in relation to the previous morphine dose and the number of days needed to achieve the same level of analgesia in a group of patients with advanced cancer with pain who switched from…

Survival rates among children with severe neurologic disabilities

BACKGROUND: This study was done to determine survival rates in subpopulations of severely neurologically disabled children who reside in pediatric skilled nursing facilities and to compare these survival rates with those in previously published…

Survival estimates of severely disabled children

Surgical treatment of carpal tunnel syndrome and trigger digits in children with mucopolysaccharide storage disorders

The role of surgical intervention for carpal tunnel syndrome (CTS) and trigger digits in children with mucopolysaccharide storage disorders (MPSDs) has not been clearly defined, particularly as the treatment of the underlying disease has advanced to…

Tags: 1998, annular pulley release, bone-marrow transplantation, House J, hurler-syndrome, Journal of Hand Surgery, Krivit W, MPSI, MPSIII, MPSVI, Orthopedics, partial flexor digitorum superficialis tendon resection, Surgery, surgical intervention, tone and motor problems, Van Heest A E, Walker K

Subcutaneous clodronate: a study evaluating efficacy in hypercalcemia of malignancy and local toxicity

The logistics of administering intravenous bisphosphonates may be problematic in the care of advanced cancer patients, especially in the home setting. Hypodermoclysis is a convenient method of administering fluid via subcutaneous infusion, presently…

Subcutaneous clodronate

1996

Tags: 1996, Aged, Analgesics, Backlog, Bruera E, Clodronic Acid/administration & dosage, Humans, Hypercalcemia/drug therapy, Infusions, Journal Article, Lancet, Lawlor P, Male, Middle Aged, Non-Narcotic/administration & dosage, Parenteral, Walker P, Watanabe S

Studies on nutrition in severely neurologically disabled children in an institution

Severe neurological handicaps in children are frequently accompanied by growth retardation. We have studied 13 severely neurologically impaired children in an institution to see if their poor growth was related to a low intake of energy and…

Stress, social support, and sense of coherence

In the Salutogenic Model, Aaron Antonovsky suggested that a sense of coherence (SOC) is the key determinant in the maintenance of health. He theorized that individuals with a strong SOC have the ability to (a) define life events as less stressful…

Status epilepticus in children: aetiology, treatment, and outcome

This retrospective study includes 65 children treated for status epilepticus at Tampere University Hospital in Finland. Aetiology of the condition, effectiveness of the treatment protocol, including short barbiturate anaesthesia to prevent prolonged…

Tags: 1997, Adolescence, Age Distribution, Anesthetics, Anticonvulsants, Backlog, Barbiturates/ad [Administration & Dosage], Chi-Square Distribution, Child, Developmental Medicine & Child Neurology, Diazepam/ad [Administration & Dosage], Drug Administration Schedule, Electroencephalography, Encephalitis/co [Complications], Eriksson KJ, Female, Follow-up Studies, Human, Infant, Intravenous/ad [Administration & Dosage], Journal Article, Koivikko MJ, Male, Meningitis, Nervous System Diseases/ep [Epidemiology], Neuropsychological Tests, Non-U.S. Gov't, Preschool, Prevalence, Retrospective Studies, Risk Factors, Septic/co [Complications], Sex Distribution, Shock, Status Epilepticus/di [Diagnosis], Status Epilepticus/dt [Drug Therapy], Status Epilepticus/ep [Epidemiology], Status Epilepticus/et [Etiology], Streptococcal Infections/co [Complications], Support, Time Factors, Treatment Outcome, Viral/co [Complications]

Standards of Care for PACCÂ® Programs

1997

Tags: 1997, Anonymous, Backlog, Journal Article, NET Grey Lit

Spirituality, resilience, and narrative: coping with parental death

1998

Tags: 1998, Angell GB, Backlog, Coping, Death, Dennis BG, Dumain LE, Families In Society, Grief, Journal Article, Parental Death, Parents, Resilience, Spirituality

Spiritual aspects of loss at the time of a partner's death from AIDS

Spiritual phenomena were spontaneously reported in interviews of 68 of 125 recently bereaved HIV-positive and HIV-negative partners of men who died from AIDS. Spiritual schemas involving beliefs, experiences, rituals, social support, and roles were…

Tags: 1997, Acquired Immunodeficiency Syndrome, Backlog, Caregivers/psychology, Cohort Studies, Death studies, Folkman S, Grief, Homosexuality, Humans, Interviews As Topic, Journal Article, Longitudinal Studies, Male, Male/psychology, Religion and Psychology, Richards TA, San Francisco

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