Browse Items (75 total)
- Tags: psychology
"you Don't Know Until You Get There": The Positive And Negative "lived" Experience Of Parenting An Adult Child With 22q11.2 Deletion Syndrome.
22q11.2 deletion syndrome (22q11DS), a complex genetic syndrome associated with more than 180 features, presents complex challenges for parents including gaining a diagnosis. This phenomenological study sought the "lived" interpretations…
Tags: 2016, 22q11.2 Deletion Syndrome, Campbell LE, Developmental-disabilities, Disorders, Families, Goodwin J, Health Psychology, Interpretative Phenomenological Analysis, Ipa, McCormack L, Mothers, Prevalence, Psychological Growth, Psychology, Psychology Clinical, September 2016 List, Stress, Symptoms, Trauma, Traumatic Distress, Velo-cardio-facial Syndrome
Listening To Parents: The Role Of Symptom Perception In Pediatric Palliative Home Care
Tags: 2016, Adult, Borasio GD, Brandstatter M, Cross Sectional Study, Death, Duroux A, Dyspnea/di [diagnosis], Female, Führer M, Grasser M, Home Care, Human, January 2017 List, Male, Pain/di [diagnosis], Palliative & Supportive Care, Palliative Therapy, Parent, Pediatrics, Perception, Procedures, Psychology, Quality Of Life, Questionnaire, Retrospective Study, Standards, Symptom Assessment, Vollenbroich R
Problems And Hopes Perceived By Mothers, Fathers And Physicians Of Children Receiving Palliative Care
Tags: 2015, Adolescent, Carroll K W, Child, Decision Making, Faerber J A, Father, Female, Feudtner C, Health Expectations, Hexem K R, Hill D L, Hope, Human, Human Relation, Infant, Kang T, Male, Miller V A, Mother, Newborn, Palliative Therapy, Physician, Preschool Child, Problem Solving, Psychology, Quality Of Life, September 2017 List, Young Adult
Experiences Of Healthcare Professionals In The Community Dealing With The Spiritual Needs Of Children And Young People With Life-threatening And Life-limiting Conditions And Their Families: Report Of A Workshop
Tags: 2015, Adolescent, Adult, Barnes J, Bluebond-Langner M, BMJ Supportive & Palliative Care, Child, Craig F, Health Care Personnel, Health Personnel Attitude, Human, Human Relation, Jones L, Kelly P, Llewellyn H, O'Gorman B, Palliative Therapy, Psychology, Religion, September 2017 List, Young Adult
'In Palliative Care We Help Children Make Memories'
Psychosocial Health Outcomes for Family Caregivers Following the First Year of Bereavement
Tags: 2015, Adolescent, Adult, Aged, August 2017 List, Bereavement, Caregivers/ Psychology, Corner G, Death studies, Depression/epidemiology/etiology, Health Status, Humans, Hurley KE, Kissane DW, Masterson MP, Middle Aged, Psychiatric Status Rating Scales, Psychological Tests, Psychology, Schuler T, Social Adjustment, Spouses/psychology, Stress Psychological/epidemiology, Stress Psychological/etiology, Time Factors, Young Adult, Zaider T
Barriers of Palliative Care in Neonatal Intensive Care Units
Tags: 2017, Adult, Ahmadi JS, Azzizadeh Forouzi M, Banazadeh M, Clinical Competence, Cross Sectional Study, December 2017 List, Female, Health Personnel Attitude, Human, Iran, Islam, Male, Middle Aged, Neonatal Intensive Care Unit, Newborn, Nursing Staff, Organization, Organization And Management, Palliative Therapy, Psychology, Razban F, Reproducibility, Socioeconomics, Terminal Care, The American Journal of Hospice & Palliative Care
Discussing Serious News
Tags: 2017, Adult, Bereavement, December 2017 List, Doctor Patient Relation, Education, Emotion, Empathy, Female, Flint H, Hospital, Hossain M, Human, Interpersonal Communication, Klein M, Male, Medical Education, Meyer M, Palliative Therapy, Parent, Pediatrics, Procedures, Psychology, The American Journal of Hospice & Palliative Care
Exploring NICU Nurses' Affective Responses to End-of-Life Care
Tags: 2017, Adult, Advances In Neonatal Care : Official Journal Of The National Association Of Neonatal Nurses, Affect, Aged, Anger, Coping Behavior, December 2017 List, Female, Guilt, Human, Identity, Lewis SL, Mental Stress, Middle Aged, Neonatal Intensive Care Unit, Neonatal Nurse, Newborn Intensive Care, Psychology, Qualitative Research, Terminal Care, Verbal Communication
"It's not about treatment, it's how to improve your life": The lived experience of occupational therapy in palliative care
Tags: 2016, Adolescent, Adult, Aged, Australia, Badger S, December 2017 List, Female, Honey A, Human, Macleod R, Male, Middle Aged, Occupational Therapy, Palliative & Supportive Care, Palliative Therapy, Procedures, Professional-patient Relationship, Psychology, Qualitative Research, Quality Of Life, Standards, Very Elderly
Psychosocial adjustment in siblings of young people with Duchenne muscular dystrophy
Tags: 2010, Adaptation Psychological, Adolescent, Child, December 2017 List, European Journal of Paediatric Neurology, Female, Garralda ME, Humans, Kinali M, Male, Mental Health, Muntoni F, Muscular Dystrophy Duchenne/px [psychology], Psychiatric Status Rating Scales, Psychology, Read J, Siblings/px [psychology], Surveys And Questionnaires
End-Of-Life Research as a Priority for Pediatric Oncology
Tags: 2004, Adaptation, Attitude To Death, Child, Decision Making, Family/px [psychology], Grief, Harper J, Health Priorities/og [organization & Administration], Hinds PS, Humans, Journal Of Pediatric Oncology Nursing, Needs Assessment, Neoplasms, Neoplasms/nu [nursing], Neoplasms/px [psychology], Nursing Research/og [organization & Administration], Oncology 2017 List, Oncology Nursing/og [organization & Administration], Pediatric Nursing/og [organization & Administration], Pritchard M, Psychological, Psychology, Social Support, Survivors/px [psychology], Terminal Care/og [organization & Administration], Terminal Care/px [psychology]
Human suffering: the need for relationship-based research in pediatric end-of-life care
Tags: 2004, Adaptation, Child, Coldsmith A, Health Services Needs And Demand, Hellsten MB, Humans, Interpersonal Relations, Journal Of Pediatric Oncology Nursing, Kane JR, Neoplasms/co [complications], Nursing Research/og [organization & Administration], Oncology 2017 List, Oncology Nursing/og [organization & Administration], Pediatric Nursing/og [organization & Administration], Psychological, Psychological/et [etiology], Psychological/nu [nursing], Psychological/px [psychology], Psychology, Quality Of Life, Sick Role, Social Support, Spirituality, Stress, Terminal Care, Terminal Care/og [organization & Administration], Terminal Care/px [psychology]
Undergraduate nursing students' attitudes and preparedness toward caring for dying persons - A longitudinal study
Tags: 2017, Adolescent, Adult, Attitude To Death, Bergh I, Browall M, Ek K, Female, Hammarlund K, Health Personnel Attitude, Henoch I, Human, January 2018 List, longitudinal study, Lundh Hagelin C, Male, Melin-Johansson C, Middle Aged, Nurse Education In Practice, nursing education, nursing student, Osterlind J, Procedures, Psychology, Questionnaire, Strang S, Sweden, Terminal Care, Westin L
Impact of child death on paediatric trainees
Tags: 2018, Acute/ epidemiology, Adult, Archives of Disease in Childhood, Attitude To Death, Child, Death, February 2018 List, Female, Finn GM, Griksaitis MJ, Hollingsworth CE, Huckridge J, Humans, Intensive Care, Internship And Residency, Male, Middle Aged, Occupational Health, Only Child, Palliative Care, Pediatrics, Physicians/ psychology, Post-traumatic, Post-Traumatic/ epidemiology, Prevalence, Psychology, Stress Disorders, Surveys And Questionnaires, Traumatic, United Kingdom, Wesley C
Spirituality in patients with advanced illness: The role of symptom control, resilience and social network
Tags: 2016, Adolescent, Adult, Aged, Barreto P, Clinical Trial, Cross Sectional Study, Cross-sectional Studies, Emotion, February 2018 List, Female, Fombuena M, Galiana L, Human, Journal Of Health Psychology, Male, Middle Aged, Multicenter Study, Oliver A, Palliative Therapy, Pascual A, Psychological Resilience, Psychology, Religion, Social Support, Soto-Rubio A, Terminal Care, terminally Ill Patient, Very Elderly, Young Adult
Depression and anxiety symptoms in children and adolescents with autism spectrum disorders without intellectual disability
Tags: 2012, Adolescents, anxiety, ASPERGER-SYNDROME, At Risk Persons, Autism, Backlog, Case L, Children, Comorbidity, Daniolos P, Depression, Depression/psychology, DEVELOPMENTAL, DIAGNOSTIC INTERVIEW, Education, FRIENDSHIP, Intelligence Quotient, Journal Article, Kenworthy L, Martin A, Parent, People, PERVASIVE DEVELOPMENTAL DISORDERS, Prevalence, PSYCHIATRIC-DISORDERS, Psychiatry, Psychology, Rehabilitation, Research In Autism Spectrum Disorders, Special, Strang JF, Symptoms (Individual Disorders), VERSION, Wallace GL, Wills MC
Parent reports of quality of life for pediatric patients with cancer with no realistic chance of cure
Do specialist palliative care teams improve outcomes for cancer patients? A systematic literature review
Tags: 1998, Backlog, Developed Countries, Hearn J, Higginson IJ, Human, Journal Article, Neoplasms/therapy, Non-U.S. Gov't, Outcome Assessment (health Care), Palliative Care/economics/organization & administration/utilization, Palliative Medicine, Patient Care Team, Patient Satisfaction, Psychology, Quality Of Life, Social, Support
Loss and meaning: How do people make sense of loss
The perceived benefit scales: measuring perceived positive life changes after negative events
A review of subjective impact measures for use with children and adolescents with epilepsy
Tags: 2004, Adolescent Child Child, Backlog, Baker GA, Cowan J, instrumentation Quality of Life, Journal Article, PedPal Lit, physiopathology/psychology Female Great Britain Humans Male Outcome Assessment (Health Care) Psychometrics/, Preschool Epilepsy/, Psychology, Quality of Life Research, Sickness Impact Profile
Recommendations for using opioids in chronic non-cancer pain
Tags: 2003, Allan L, Analgesics, Backlog, Biomarkers of Pain, Chronic Disease, Dellemijn PL, Drug Administration Schedule, European Journal Of Pain, Faura CC, Humans, Ilias WK, Jensen TS, Journal Article, Kalso E, Opioid/therapeutic use, Pain/drug Therapy, Patient Education, Perrot S, Plaghki LH, Psychology, Quality Of Life/psychology, Zenz M
Changing geographies of care: employing the concept of therapeutic landscapes as a framework in examining home space
Tags: 2002, Aged, Backlog, Caregivers/psychology, Cost-Benefit Analysis, Delivery of Health Care/trends, Female, Geography, Home Nursing/economics/psychology, Hospitalization, Humans, Journal Article, Non-U.S. Gov't, Patient-centered Care, Psychology, Research Support, Self Concept, Social, Social Change, Social Environment, Social Responsibility, Social science & medicine, Williams A, Women/psychology
Bereavement outcomes for parents who lose a child to cancer: are place of death and sex of parent associated with differences in psychological functioning?
Tags: 2004, Adaptation, Adult, Anxiety/diagnosis/epidemiology/psychology, Attitude To Death, Backlog, Bereavement, Child, Depression/diagnosis/epidemiology/psychology, Drew D, Female, Goodenough B, Higgins S, Humans, Journal Article, Location Of Death, Longitudinal Studies, Male, Outcome Assessment (health Care), Parents/psychology, Psycho-Oncology, Psychological, Psychology, Questionnaires, Sex Factors, Trethewie S
Chronic abdominal pain in children: an update
Tags: 2006, Abdominal Pain/diagnosis/epidemiology/therapy, Adolescent, Backlog, Child, Chronic Disease, Combined Modality Therapy, Continuing, Education, Female, Friesen CA, Gastrointestinal Diseases/diagnosis/epidemiology/therapy, Humans, Journal Article, Male, Medical, Missouri Medicine, Missouri/epidemiology, Pain Measurement, PedPal Lit, Preschool, Prevalence, Prognosis, Psychology, Risk Assessment, Schurman JV, Severity Of Illness Index, Socioeconomic Factors
Factors related to the quality of life in adolescents with chronic pain
Tags: 2006, Adolescent, Backlog, Child, Chronic Disease, Cross-sectional Studies, Female, Hazebroek-Kampschreur AA, Humans, Hunfeld JA, Journal Article, Koes BW, Male, Merlijn VP, Netherlands/epidemiology, Pain Measurement, Pain/diagnosis/epidemiology/psychology, Passchier J, PedPal Lit, Prognosis, Psychology, Quality Of Life, Questionnaires, Risk Assessment/methods, Risk Factors, The Clinical Journal Of Pain, van der Wouden JC
The palliative care nurse's role in supporting the adolescent child of a dying patient
Tags: 2005, Adaptation, Adolescent Psychology/ethics Adult Attitude to Death Bereavement Female Helping Behavior Humans Information Services Internet Life Change Events Neoplasms/nursing/psychology Nurse's Role/, Backlog, International Journal of Palliative Nursing, Journal Article, Methods, PedPal Lit, Professional-Family Relations/ethics Prognosis Social Support Truth Disclosure/ethics, Psychological/ethics Adolescent, Psychology, psychology Palliative Care/ethics/, Sweetland C
Palliative care management of a child with juvenile onset Huntington's disease
Tags: 2005, Adolescent Adolescent Psychology Attitude to Death Attitude to Health Conscious Sedation, Backlog, complications, etiology, International Journal of Palliative Nursing, Journal Article, King N, Methods, methods England Family, methods Grief Helping Behavior Hospices, organization & administration, organization & administration Humans Huntington Disease, Organizational Nursing Assessment Pain, PedPal Lit, prevention & control Palliative Care, Psychology, psychology Female Gastrostomy, psychology Patient Care Planning Patient Care Team, the issues around terminal care management are very similar to those for any neuro-degenerative disorder, therapy Models
Parental grieving after a child dies from cancer: is stress from stem cell transplant a factor?
Tags: 2005, Adaptation, Backlog, Drew D, Foreman T, Goodenough B, Grief Health Services Needs and Demand Humans Male Mass Screening Neoplasms/psychology/, International Journal of Palliative Nursing, Journal Article, Maurice L, Non-U.S. Gov't Risk Assessment Risk Factors Stem Cell Transplantation/, PedPal Lit, Psychological Adult Analysis of Variance Anxiety/psychology Attitude to Death Attitude to Health Case-Control Studies Child Cross-Sectional Studies Depression/psychology Female, Psychological/diagnosis/etiology/, Psychology, psychology Questionnaires Research Support, Stress (Psychology), therapy New South Wales Nursing Assessment Nursing Methodology Research Parents/, Willis L
Quality of life in chronic illness: perceptions of parents and paediatricians
Tags: 2005, Acute/psychology/rehabilitation Longitudinal Studies Pain Measurement Parents/, Adolescent Arthritis, Archives of Disease in Childhood, at baseline and follow up, Backlog, but also after a period of follow up, differences at follow up did not decrease compared to baseline. CONCLUSION: At the onset of a chronic disease, especially in the subjective attributes. Systematic assessment of quality of life may contribute to better understanding between(TRUNCATED), Gemke RJ, Janse AJ, Journal Article, juvenile idiopathic arthritis, Juvenile Rheumatoid/psychology/rehabilitation Asthma/psychology/rehabilitationAttitude of Health Personnel Child Child, Kimpen JL, Lymphocytic, not only at diagnosis but also after a period of follow up. Differences were particularly clear in the subjective attributes emotion (range of agreement 28-68%) and pain/discomfort (range of agreement 11-33%). In all patient groups, Pediatrics Perception Pneumonia/complications, PedPal Lit, Preschool Chronic Disease/psychology/rehabilitation Cystic Fibrosis/complications/psychology/rehabilitation Emotions Health Status Humans Infant Leukemia, Psychology, Quality Of Life, quality of life of paediatric patients may be misunderstood by healthcare professionals, Sinnema G, the paediatrician asse ssed the patient to have less pain/discomfort in comparison to the parents. Despite a prolonged patient- paediatrician relationship, Uiterwaal CS
Medical, surgical, and health outcomes of gastrostomy feeding
Tags: 2006, Adolescent, Anthropometry, Backlog, Carr LJ, Cass H, Child, Cognition Disorders/epidemiology, Craig GM, Developmental Medicine and Child Neurology, Diet Records, Disabled Children, Female, Gastrostomy/statistics & numerical data, Hastings RP, Health Status, Humans, Infant, Journal Article, Lawson M, Male, Motor Skills Disorders/epidemiology, Nutritional Failure, Nutritional Status, Postoperative Complications/epidemiology, Preschool, Prospective Studies, Psychology, Reilly S, Ryan M, Spitz L, Townsend J
A difference in perception of quality of life in chronically ill children was found between parents and pediatricians
Tags: [95% CI 2.00-11.22]), [95% CI 2.88-18.97], 2005, Acute, Adolescent Arthritis, and asthma (2.3, Backlog, Gemke RJ, Janse AJ, Journal Article, Journal Of Clinical Epidemiology, juvenile idiopathic arthritis (4.7, Juvenile Rheumatoid/physiopathology/psychology/rehabilitation Asthma/physiopathology/psychology/rehabilitation Child Child, Kimpen JL, Lymphocytic, Pediatrics, PedPal Lit, physiology Male Pain, physiopathology, physiopathology Parents, Preschool Chronic Disease/psychology/, Psychology, Quality Of Life, rehabilitation Cognition Cross-Sectional Studies Cystic Fibrosis, rehabilitation Emotions Female Health Status Indicators Humans Infant Leukemia, rehabilitation Locomotion, Sinnema G, Social Perception Speech/physiology, Uiterwaal CS
Research Review: attention bias modification (ABM): a novel treatment for anxiety disorders
Tags: 2010, Adolescents, Analysis, Anxieties, anxiety, Anxiety Disorders, Anxiety Disorders - diagnosis, Anxiety Disorders - psychology, Anxiety Disorders - therapy, Attention, Attentional bias, Backlog, Bar-Haim Y, Care And Treatment, Child Psychology, Children, Cognitive Restructuring, Cognitive Therapy, Cognitive Therapy/methods, COGNITIVE-BEHAVIORAL THERAPY, DEVELOPMENTAL, Drug Therapy, EMOTIONAL FACES, EXPERIMENTAL MANIPULATION, Health Aspects, Journal Article, Journal Of Child Psychology And Psychiatry, Medical Research, Medical treatment, Outcomes of Treatment, Psychiatry, Psychology, RANDOMIZED CLINICAL-TRIAL, SCHIZOPHRENIA, SOCIAL PHOBIA, Therapy, THREAT, VISUAL-ATTENTION
Brief report: psychosocial functioning of fathers as primary caregivers of pediatric oncology patients
Tags: 2007, Adult, Backlog, Bonner MJ, Caregivers/statistics & numerical data, Child, Disabled Children/statistics & numerical data, father experience, Fathers/psychology/statistics & numerical data, Hardy KK, Humans, Hutchinson KC, Journal Article, Journal of Pediatric Psychology, Male, Neoplasms/epidemiology, Psychological/diagnosis/epidemiology/psychology, Psychology, Questionnaires, Social Adjustment, Social Behavior, Stress, Willard VW
Self-portraits of families with young adult cancer survivors: using photovoice
Tags: 2010, Adolescent, Backlog, Ethnic Groups/statistics & numerical data, Family/psychology, Female, Humans, Journal Article, Journal Of Psychosocial Oncology, Male, Narration, Neoplasms/ethnology/psychology, Photography, Psychology, Quality Of Life/psychology, Questionnaires, Self Concept, Semantics, Socioeconomic Factors, Survivors/psychology, Voice, Yi J, Young Adult, Zebrack B
Psychosocial and spiritual needs of children living with a life-limiting illness
Tags: 2007, Activities of Daily Living, Backlog, Carroll JM, Child, Chronic Disease, Expressed Emotion, Health Services Needs And Demand, Humans, Interdisciplinary Communication, Journal Article, Kang T, Kehoe K, McSherry M, Pain/psychology/therapy, Palliative Care/methods, Patient Care Team, Pediatric Clinics of North America, Psychology, Rourke MT, Sibling Relations, Social Support, Spirituality
Quantitative Evaluation of the Clinical Efficacy of Attention Bias Modification Treatment for Anxiety Disorders
Tags: 2015, Anxieties, anxiety, Anxiety Disorders, Anxiety Disorders - therapy, Backlog, Bar‐Haim Yair, Children, Clinical, Clinical Trials, Cognition, COGNITIVE-BEHAVIORAL THERAPY, computer, Confidence Intervals, Depression, Depression And Anxiety, GENERALIZED SOCIAL PHOBIA, INDIVIDUALS, Internet technology, Journal Article, Linetzky M, Meta-Analysis, MODIFICATION PROGRAM, Pergamin-HL, Pine DS, Psychiatry, Psychology, RANDOMIZED CONTROLLED-TRIAL, STIMULI, THREAT, Treatment