Experiences Of Healthcare Professionals In The Community Dealing With The Spiritual Needs Of Children And Young People With Life-threatening And Life-limiting Conditions And Their Families: Report Of A Workshop

Title

Experiences Of Healthcare Professionals In The Community Dealing With The Spiritual Needs Of Children And Young People With Life-threatening And Life-limiting Conditions And Their Families: Report Of A Workshop

Creator

Llewellyn H; Jones L; Kelly P; Barnes J; O'Gorman B; Craig F; Bluebond-Langner M

Publisher

Bmj Supportive & Palliative Care

Date

2015

Subject

Health Personnel Attitude; Psychology; Religion; Adolescent; Adult; Child; Health Care Personnel; Human; Human Relation; Palliative Therapy; Young Adult

Description

OBJECTIVE: We sought to understand how healthcare professionals (HCP) conceptualise spirituality among seriously ill children and young people (CYP) and their families, and their experiences in dealing with spiritual issues that emerge in practice. METHOD: We analysed thematically presentations and small group discussions with HCP that took place as part of a day-long workshop exploring the place of spirituality in paediatric healthcare. RESULTS: (1) HCP conceptualised spirituality as highly individualised searches for meaning, hope and connectedness to self, others and the world. They saw spirituality within a developmental context. (2) HCP described spiritual concerns that were tied to their own conceptualisations of spirituality, centring on ideas of loss, including loss of hope or meaning. (3) HCP approached spiritual concerns of CYP and families by 'being there' and supporting spiritual enquiry. (4) Challenges to their work included managing hopes of CYP and families in the face of poor prognoses, discussions about miracles and issues with their own faith. Spiritual care was seen as different to other areas of care which HCP felt had a greater prescription in delivery. CONCLUSIONS: The findings underscore the complexity of spirituality in times of illness and the challenges faced in its management. HCP should be alerted to the myriad ways spirituality emerges in serious illness and opportunities for developing confidence in attending to spiritual issues with CYP and families through training. Research should explore with patients, families and HCP how tensions among CYP, autonomy, the maintenance of hope and miracle beliefs are best approached within care.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

September 2017 List

Notes

Using Smart Source Parsing ( (pp Date of Publication: 01 Sep 2015

Citation

Llewellyn H; Jones L; Kelly P; Barnes J; O'Gorman B; Craig F; Bluebond-Langner M, “Experiences Of Healthcare Professionals In The Community Dealing With The Spiritual Needs Of Children And Young People With Life-threatening And Life-limiting Conditions And Their Families: Report Of A Workshop,” Pediatric Palliative Care Library, accessed August 4, 2021, https://pedpalascnetlibrary.omeka.net/items/show/10917.

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