Browse Items (134 total)
- Tags: Parents/psychology
Meeting the needs of parents around the time of diagnosis of disability among their children: evaluation of a novel program for information, support, and liaison by key workers
Tags: 2004, Backlog, Child, Child Health Services/manpower/organization & administration, Disabled Children, Female, Health Personnel, Hospital Departments, Humans, Hundt GL, Infant, Journal Article, London, Male, Manaras I, Miller 2009 BMC HSR Refs, Parents/psychology, Patient Care Team, Patient Satisfaction, Pediatrics, Preschool, Questionnaires, Rahi JS, Social Work, Tuomainen H, Vision Disorders/diagnosis/psychology
The impact of parental status on the risk of completed suicide.
Tags: 2003, Adolescent, Adult, Aged, Archives Of General Psychiatry, Backlog, Bereavement, Cause Of Death, Child, Denmark/epidemiology, Family Characteristics, Female, Grief, Humans, Infant, Journal Article, Longitudinal Studies, Male, Middle Aged, Mortensen PB, Parents/psychology, Preschool, Qin P, Registries, Risk Factors, Socioeconomic Factors, Suicide/prevention & control/psychology/statistics & numerical data
Cancer-related symptoms most concerning to parents during the last week and last day of their child's life
Tags: 2008, Adolescent, Adult, Anderson L, Backlog, Burghen E, Child, Death, Female, Furman WL, Health, Hinds PS, Humans, Infant, Journal Article, Male, Neoplasms/physiopathology/psychology/therapy, Okuma J, Palliative Care, Parents, Parents/psychology, Pediatrics, Powell B, Preschool, Pritchard M, Srivastava DK, Terminal Care, Time
Bereaved mothers' and fathers' prolonged grief and psychological health 1 to 5 years after loss-A nationwide study
Tags: 2019, Adaptation, Adult, Attitude To Death, Child, Childhood Cancer, Depression, Depression/psychology, Fathers, Fathers/*psychology, Female, Grief, Humans, insomnia, Kreicbergs U, Male, May 2020 List, Mental Health/*statistics & numerical data, Middle Aged, Mothers, Mothers/*psychology, Parents/psychology, Pediatric Oncology, Pgd, Pohlkamp L, Posttraumatic stress, prolonged grief disorder, Psycho-Oncology, Psychological, Sveen J
Stress levels experienced by the parents of enterally fed children
Tags: 2004, Backlog, Child, Child Nutrition, Child: Care, Health and Development, Chronic Disease, Dewey D, Enteral Nutrition/psychology, Humans, Infant, Journal Article, Non-U.S. Gov't, Parent-child Relations, Parents/psychology, Parsons HG, Pedersen SD, Preschool, Psychological/psychology, Research Support, Stress
Coping with Dravet syndrome: parental experiences with a catastrophic epilepsy
Tags: 2006, Adaptation, Adolescent, Adult, Backlog, Camfield CS, Camfield PR, Caregivers/psychology, Child, Chronic Disease, Developmental Medicine and Child Neurology, Epilepsy/nursing/psychology, Family Health, Female, Humans, Journal Article, Male, Middle Aged, Nolan KJ, Parent-child Relations, Parents/psychology, Preschool, Psychological, Psychological/psychology, Q3 Scoping Review Results, Seizures/nursing/psychology, Severity Of Illness Index, Social Isolation, Social Support, Stress, Syndrome
Caregiver Perceptions about their Decision to Pursue Tracheostomy for Children with Medical Complexity
Tags: 2018, Adolescent, Adult, Caregivers/psychology, Child, Child Preschool, Death, Decision Making, Decision-making, Disabled Children, Female, Golden SL, Gower WA, Grandparents/psychology, home care services, Humans, Infant, Journal of Pediatrics, King NMP, Life-sustaining treatments, Male, May 2019 List, Middle Aged, Nageswaran S, Outcomes, Parents/psychology, Pediatrics, Qualitative Research, Quality Of Life, Tracheostomy, Young Adult
Suicide ideation among parents bereaved by the violent deaths of their children.
Tags: 2003, Accidents/psychology, Adaptation, Adolescent, Adult, Backlog, Bereavement, Child, Depression/diagnosis/psychology, Family Health, Female, Homicide/psychology, Humans, Issues In Mental Health Nursing, Johnson LC, Journal Article, Lohan JA, Longitudinal Studies, Male, Middle Aged, Murphy SA, Parents/psychology, Post-Traumatic/diagnosis/psychology, Predictive Value of Tests, Psychiatric Status Rating Scales, Psychological, Psychological/diagnosis/psychology, Questionnaires, Self Efficacy, Social Support, Stress, Stress Disorders, Suicide/psychology, Tapper VJ, Violence/psychology
Parent moral distress in serious pediatric illness: A dimensional analysis
Tags: 2020, Child, Child Health/standards, Critical Illness/psychology/therapy, Ethics of care/care ethics, February 2021 List, Female, Humans, Male, Mooney-Doyle K, Moral Distress, Neonatal Care, Nursing Ethics, Palliative Care, Parents/psychology, pediatric practice, Pediatrics/methods/standards, Stress Psychological/etiology/psychology, theory/philosophical perspectives, Ulrich CM
Supportive and palliative care needs of families of children with life-threatening illnesses in Western Australia: evidence to guide the development of a palliative care service
Tags: 2007, Aoun S, Backlog, Child, Community Health Nursing/organization & administration/standards, Critical Illness, Family Health, Humans, Journal Article, Kristjanson LJ, Monterosso L, Palliative Care/organization & administration/psychology/standards, Palliative Medicine, Parents/psychology, Patient Care Team, Phillips MB, Q3 Scoping Review Results, Quality of Health Care/organization & administration/standards, Social Support, Terminally Ill, Western Australia
Parents' reactions to participating in interviews about end-of-life decision making
Improving the quality of end-of-life care in the pediatric intensive care unit: parents' priorities and recommendations
Tags: 2006, Adolescent, Backlog, Burns JP, Child, Communication, Decision Making, Humans, Infant, Intensive Care Units, Journal Article, Meyer EC, Newborn, Non-U.S. Gov't, Palliative Care/psychology, Parent-child Relations, Parents/psychology, Pediatric, Pediatrics, PedPal Lit, Preschool, Professional-family Relations, Questionnaires, Research Support, Ritholz MD, Terminal Care/psychology, Truog RD
Parental perspectives on end-of-life care in the pediatric intensive care unit
Tags: 2002, Adult, Backlog, Boston, Burns JP, Child, Critical Care Medicine, Death and Euthanasia, Decision Making, Empirical Approach, Female, Griffith JL, Humans, ICU Decision Making, Intensive Care Units, Journal Article, Male, Meyer EC, Pain, Parents/psychology, Pediatric, Prognosis, Quality Of Health Care, Quality Of Life, Questionnaires, Terminal Care, Truog RD, Withholding Treatment
Parents' perspectives on physician-parent communication near the time of a child's death in the pediatric intensive care unit
Tags: 2008, Adult, Anand KJ, Backlog, Bereavement, Carcillo J, Child, Communication, Dean JM, Death, Eggly S, Female, Hospital Mortality, Hospitals, Human Development Collaborative Pediatric Critical Care Research Network, Humans, Intensive Care Units, Interviews As Topic, Journal Article, Male, Meert KL, Middle Aged, National Institute of Child Health, Newth CJ, Nicholson C, Parents/psychology, Pediatric, Pediatric Critical Care Medicine, Physician's Role, Pollack M, Preschool, Professional-family Relations, Prognosis, Truth Disclosure, United States, Willson DF, Zimmerman J
Parents' perspectives regarding a physician-parent conference after their child's death in the pediatric intensive care unit
Tags: 2007, Adult, Anand KJ, Backlog, Bereavement, Carcillo J, Communication, Critical Care, Dean JM, Death, Eggly S, Female, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Male, Meert KL, Middle Aged, National Institute of Child Health and Human Development Collaborative Pediatric Critical Care Research Network, Needs Assessment, Newborn, Newth CJ, Nicholson C, Parent-child Relations, Parents/psychology, Pediatric, Physician's Role, Pollack M, Questionnaires, The Journal Of Pediatrics, Willson DF, Zimmerman J
Exploring parents' environmental needs at the time of a child's death in the pediatric intensive care unit
Parents' views of cancer-directed therapy for children with no realistic chance for cure
Tags: 2008, Adolescent, Adult, Antineoplastic Agents/adverse effects, Backlog, Child, Female, Hilden JM, Humans, Infant, Joffe S, Journal Article, Journal Of Clinical Oncology, Mack JW, Male, Middle Aged, Moore C, Neoplasms/drug therapy/psychology, Newborn, Parent-child Relations, Parents/psychology, Preschool, Questionnaires, Terminally Ill/psychology, Watterson J, Weeks JC, Wolfe J
Parental perspectives on hospital staff members' acts of kindness and commemoration after a child's death
Tags: 2005, Backlog, Bereavement, Carnevale FA, Child, Cohen SR, Death, Hospital, Hospitals, Humans, Intensive Care Units, Journal Article, Liben S, Macdonald ME, Meloche D, Non-U.S. Gov't, Parents/psychology, Pediatric, Pediatrics, Personnel, Professional-family Relations, Rennick J, Research Support, Social Support, Wolf SL
Pain in pediatric oncology: do the experiences of children and parents differ from those of nurses and physicians?
Tags: 2006, Adult, Attitude Of Health Personnel, Attitude To Health, Backlog, Child, Comparative Study, Gordh T, Humans, Journal Article, Kreuger A, Ljungman G, Neoplasms/complications/psychology, Non-U.S. Gov't, Nurses/psychology, Pain Measurement, Pain/etiology/prevention & control/psychology, Parents/psychology, PedPal Lit, Physicians/psychology, Research Support, Sorensen S, Upsala Journal of Medical Sciences
Parental Decision-making On
Utilisation Of Out-of- Home Respite In Children’s Palliative Care: Findings Of
Qualitative Case Study Research - A Proposed New Model.
Respite in children's palliative care aims to provide a break for family's from the routine of caring. Parental decision-making regarding the utilisation of out-of-home respite is dependent on many interlinking factors including the…
Tags: 2016, Adolescent, Adult, Child, Child Preschool, Child: Care, Health and Development, Children, Connaire K, Decision Making, Female, Humans, Ireland/epidemiology, Ling J, Longitudinal Studies, Male, May 2016 List, McCarron M, Palliative Care, Palliative Care/psychology, Parents, Parents/psychology, Payne S, Pediatrics, Qualitative Research, Quality Of Health Care, Respite, Respite Care, Social Support, Terminally Ill/psychology
Mortality in parents after death of a child in Denmark: A nationwide follow-up study.
Tags: 2003, Adolescent, Adult, Backlog, Bereavement, Cause Of Death, Child, Death, Denmark/epidemiology, Female, Follow-up Studies, Health Status, Humans, Incidence, Infant, Journal Article, Lancet, Li J, Life Change Events, Longitudinal Studies, Male, Mortality, Mortensen PB, Olsen J, Parents/psychology, Population Surveillance, Precht DH, Preschool, Proportional Hazards Models, Registries, Risk Factors, Sex Distribution, SSHRC CURA, Time Factors
Hospitalization for mental illness among parents after the death of a child.
Tags: 2005, Adult, Backlog, Bereavement, Child, Comparative Study, Death, Female, Follow-up Studies, Hospitalization/statistics & numerical data, Hospitals, Humans, Infant, Journal Article, Laursen TM, Li J, Life Change Events, Longitudinal Studies, Male, Mental Disorders/epidemiology, Middle Aged, Mood Disorders/epidemiology, Mortensen PB, Non-U.S. Gov't, Olsen J, Parents/psychology, Precht DH, Preschool, Psychiatric, Registries, Regression Analysis, Research Support, Risk, Schizophrenia/epidemiology, Sex Factors, Substance-Related Disorders/epidemiology, The New England Journal Of Medicine
Cancer incidence in parents who lost a child: a nationwide study in Denmark
Tags: 2002, Backlog, Bereavement, Cancer, Causality, Child, Denmark/epidemiology, Female, Hansen D, Humans, Incidence, Johansen C, Journal Article, Li J, Longitudinal Studies, Male, Neoplasms/epidemiology/mortality/psychology, Olsen J, Parents/psychology, Psychological/complications, Risk Factors, Stress
Perinatal Counseling Following a Diagnosis of Trisomy 13 or 18: Incorporating the Facts, Parental Values, and Maintaining Choices
Tags: 2020, Acharya K, Advances in Neonatal Care, Counseling/ethics/methods, Female, Humans, Infant Newborn, Leuthner SR, May 2021 List, Palliative Care/ethics/methods/psychology, Parents/psychology, Pregnancy, Prenatal Diagnosis/methods/psychology, Psychosocial Support Systems, shared decision making, Trisomy 13 Syndrome/diagnosis/psychology/therapy, Trisomy 18 Syndrome/diagnosis/psychology/therapy
Perinatal loss. A critique of current hospital practices
Tags: 1992, Backlog, Bereavement, Caregivers/psychology, Clinical Pediatrics, Clinical Protocols, Female, Fetal Death, Grief, Hospital/psychology, Hospitals, Humans, Infant, Journal Article, Leon IG, Male, Newborn, Parent-child Relations, Parents/psychology, perinatology, Personnel, Professional-family Relations
Evolution of parental stress and coping processes: a framework for critical care practice
Tags: 1995, Adaptation, Backlog, Child, Emergency Nursing, Hepworth JT, Hospitalized/psychology, Humans, Johnson BD, Journal Article, Journal of Pediatric Nursing, LaMontagne LL, Non-U.S. Gov't, Parent caregivers, Parents/psychology, Psychological, Psychological Theory, Psychological/psychology, Research Support, Stress
Caregiving stress, immune function, and health: implications for research with parents of medically fragile children
A population-based nationwide study of parents' perceptions of a questionnaire on their child's death due to cancer.
Tags: 2004, Attitude, Attitude To Death, Backlog, Bereavement, Biomedical and Behavioral Research, Child, Data Collection, Death and Euthanasia, Empirical Approach, Ethics, Female, Henter JI, Humans, Interviews, Journal Article, Kreicbergs U, Lancet, Longitudinal Studies, Male, Parents/psychology, Pilot Projects, Questionnaires, Research, Steineck G, Sweden, Valdimarsdottir U
Talking about death with children who have severe malignant disease
Tags: 2004, Adolescent, Adult, Backlog, Bereavement, Chi-Square Distribution, Child, Death, Female, Henter JI, Humans, Journal Article, Kreicbergs U, Logistic Models, Male, Neoplasms, New England Journal Of Medicine, Onelov E, Parent-child Relations, Parents/psychology, Preschool, Steineck G, Sweden, Terminally Ill, Truth Disclosure, Valdimarsdottir U
When a child dies: a systematic review of well-defined parent-focused bereavement interventions and their alignment with grief- and loss theories
Tags: 2020, Adaptation, Attitude To Death, Bereavement, BMC Palliative Care, Boelen PA, Deben LMA, December 2020 List, Fahner JC, Geleijns K, Grief, Hospice Care/methods/psychology/standards, Humans, Interventions, Jenken F, Kars MC, Kochen EM, Models Theoretical, Paediatrics, Parenting/psychology, Parents, Parents/psychology, Psychological, Psychological Theory, Social Support, Systematic Review, Teunissen SCCM, van den Hoogen A
Impact of caring for a child with cancer on parents' health-related quality of life
Tags: 2008, Adolescent, Backlog, Canada, Caregivers/psychology, Child, Dix D, Female, Health Status, Humans, Infant, Journal Article, Journal Of Clinical Oncology, Klaassen R, Klassen AF, Male, Neoplasms/nursing, O'Donnell ME, Parents/psychology, Preschool, Pritchard S, Quality Of Life, Questionnaires, Scott A, Sung L, Yanofsky R
The deceased child in the psychic and social worlds of bereaved parents during the resolution of grief
Factors influencing parental readiness to let their child with cancer die
Tags: 2010, Adolescent, Adult, Attitude To Death, Backlog, Beishuizen A, Child, Female, Grief, Grypdonck MH, Humans, Infant, Journal Article, Kars MC, Male, Meijer-van den Bergh EM, Middle Aged, Neoplasms/psychology, Parent caregivers, Parent-child Relations, Parents/psychology, Pediatric Blood & Cancer, Preschool, Professional-family Relations, van Delden JJ
The use of the Impact on Sibling scale with families of children with chronic illness and developmental disability
Tags: 2009, Adaptation, Adolescent, Backlog, Child, Child Development Disorders, Child: Care, Health and Development, Chronic Disease, Developmental Disabilities/psychology, Female, Humans, Infant, Journal Article, Kao B, Lobato D, Male, Parents/psychology, Pervasive/psychology, Plante W, Preschool, Psychological, Psychometrics, Sibling Relations, Siblings/psychology, Socioeconomic Factors
Factors Influencing The Uptake Of Neonatal Bereavement Support Services – Findings From Two Tertiary Neonatal Centres In The Uk
Research on perinatal bereavement services is limited. The aim of the study was to compare the uptake of bereavement support services between two tertiary neonatal units (NNU), and to investigate influencing factors.
Method
The medical…
Tags: 2016, Autopsy, Bereavement, Bereavement Follow Up, BMC Palliative Care, Charanjit Kaur, Death, England, Ethnicity, Female, Humans, Infant, Infant Death, Infant Newborn, Intensive Care Units Neonatal, Jayanta Banerjee, June 2016 List, Male, Narendra Aladangady, Neonatal, Parents/psychology, Patient Acceptance Of Health Care/statistics & Numerical Data, Perinatal Care/utilization, Rahul Roy, Referral And Consultation/utilization, Social Support, Socio-economic, Socioeconomic Factors, Sridhar Ramaiah, Stillbirth/psychology
Factors influencing family participation in a longitudinal study: comparison of pediatric and healthy samples.
Tags: 1997, Analysis of Variance, Backlog, Case-Control Studies, Chi-Square Distribution, Congenital/psychology, Cystic Fibrosis/psychology, Family Health, Goldberg S, Heart Defects, Humans, Infant, Janus M, Journal Article, Journal of Pediatric Psychology, Longitudinal Studies, Parents/psychology, Patient Dropouts/statistics & numerical data, Patient Participation/statistics & numerical data, Regression Analysis, Research/statistics & numerical data, Severity Of Illness Index
Anxiety is contagious-symptoms of anxiety in the terminally ill child affect long-term psychological well-being in bereaved parents
Tags: 2010, Adaptation, Adolescent, Adult, Anxiety/epidemiology/etiology/psychology, Backlog, Bereavement, Child, Depression/epidemiology, Female, Henter JI, Humans, Infant, Jalmsell L, Journal Article, Kreicbergs U, Male, Neoplasms/psychology, Newborn, Onelov E, Parent-child Relations, Parents/psychology, Pediatric Blood & Cancer, Preschool, Psychological, Quality Of Life, Steineck G, Sweden/epidemiology, Terminally Ill/psychology, Young Adult
On The Child's Own Initiative: Parents Communicate With Their Dying Child About Death
Tags: 2015, Adolescent, Adult, Attitude To Death, Behavioral Research, Child, Child Behavior, Child Care/psychology, Child Preschool, Death studies, Female, Henter JI, Humans, Infant, Jalmsell L, Kontio T, Kreicbergs U, Male, March 2016 List, Neoplasms/psychology, Neoplasms/therapy, Palliative Care/psychology, Parent-child Relations, Parents/psychology, Qualitative Research, Stein M, Sweden, Terminally Ill/psychology
Research with bereaved parents: A question of how not why.
Tags: 2006, Adult, Aroni R, Attitude, Backlog, Bauld C, Bereavement, Child, Ethics, Female, Humans, Hynson JL, Interview, Journal Article, Longitudinal Studies, Male, Palliative Care, Palliative Medicine, Parents/psychology, Preschool, Psychological, Research, Research Subjects/psychology, Sawyer SM
Sleep disorder and epilepsy in children with tuberous sclerosis: a questionnaire-based study
Tags: 1994, Adolescent, behavioral problems, characteristics, Child, Child Preschool, Developmental Disabilities/complications, Developmental Medicine and Child Neurology, Epilepsy/etiology, Female, Humans, Hunt A, Learning Disorders/complications, Male, Parents/psychology, sleep disturbance, Sleep Wake Disorders/etiology/psychology, Stores G, Stress Psychological/etiology, Surveys And Questionnaires, Trajectory, Tuberous Sclerosis, Tuberous Sclerosis/complications/psychology