Cancer-related symptoms most concerning to parents during the last week and last day of their child's life

Title

Cancer-related symptoms most concerning to parents during the last week and last day of their child's life

Creator

Pritchard M; Burghen E; Srivastava DK; Okuma J; Anderson L; Powell B; Furman WL; Hinds PS

Publisher

Pediatrics

Date

2008

Subject

Child; Female; Humans; Male; Palliative Care; Terminal Care; Adult; Parents; Death; Time; adolescent; Preschool; infant; Health; Parents/psychology; Neoplasms/physiopathology/psychology/therapy

Description

OBJECTIVE: Studies of symptoms in children dying a cancer-related death typically rely on medical chart reviews or parental responses to symptom checklists. However, the mere presence of a symptom does not necessarily correspond with the distress it can cause the child's parents. The purpose of this study was to identify the cancer-related symptoms that most concerned parents during the last days of their child's life and the strategies parents identified as helpful with their child's care. METHODS: Sixty-five parents of 52 children who had died a cancer-related death within the previous 6 to 10 months participated in telephone interviews. Eligibility criteria included being the parent or guardian of a child aged 0 to 21 years who had died within the previous 6 to 10 months after being treated at a pediatric cancer center, having been with their child during the last week of the child's life, speaking English, being willing to participate, and having access to a telephone. RESULTS: Eighteen symptoms of concern were identified as occurring during their child's final week and final day of life. The most frequently reported symptoms at both times included changes in behavior, changes in appearance, pain, weakness and fatigue, and breathing changes. The proportion of reported symptoms did not differ according to patient gender, disease, or location of death (intensive care, elsewhere in the hospital, or home). The most helpful strategies used by health care professionals to assist the child or parents included giving pain and anxiety medications, spending time with the child or family, providing competent care, and giving advice. CONCLUSIONS: This knowledge can guide professionals in preparing parents for the symptoms that a child imminently dying of cancer is likely to experience and in providing care that will be helpful to parents.
2008

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Type

Journal Article

Citation List Month

Backlog

Pages

e1301-9

Issue

5

Volume

121

Citation

Pritchard M; Burghen E; Srivastava DK; Okuma J; Anderson L; Powell B; Furman WL; Hinds PS, “Cancer-related symptoms most concerning to parents during the last week and last day of their child's life,” Pediatric Palliative Care Library, accessed July 31, 2021, https://pedpalascnetlibrary.omeka.net/items/show/13976.

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