Browse Items · Pediatric Palliative Care Library

The Delphi technique: a critique

The development of the Delphi technique, as a survey method of research, and examples of its use are described. The technique's key characteristics, anonymity, use of experts and controlled feedback, are examined. The method's usefulness in…

Tags: 1987, Backlog, Delphi Technique, Goodman CM, Humans, Journal Article, Journal Of Advanced Nursing, Nursing, Questionnaires, Research

NICU Nurses' Moral Distress Surrounding the Deaths of Infants

BACKGROUND: As Korean neonatal nurses frequently experience the deaths of infants, moral distress occurs when they provide end-of-life care to the infants and their families. Although they need to care for the patients' deaths and consequently…

Tags: 2022, December List 2022, end-of-life, Ethical dilemma, Han S, infants and families, Kim S, Min H, Moral Distress, neonatal intensive care, Nursing, Nursing Ethics

Death of an Infant: Accessing the Voices of Bereaved Mothers to Create Healing

AIMS AND OBJECTIVES: To describe the health challenge for mothers whose infants have died and approaches and resources they used to manage the loss. BACKGROUND: The death of an infant is a devastating experience for families. Bereaved mothers have…

Tags: 2020, 2022 Special Edition 2 - Parent Perspectives, Bereavement, Coping, Death and Dying, Gaucher E, Hawthorne DM, Infant, Journal of Clinical Nursing, Joyner R, Liehr P, Nursing, Qualitative Study, Women’s Health

Discerning differences: gastroesophageal reflux and gastroesophageal reflux disease in infants

2004

Tags: 2004, Advances in Neonatal Care, Backlog, Diagnosis, Differential Directories Gastroesophageal Reflux, Henry SM, Journal Article, Newborn Infant, Nursing, PedPal Lit, physiology Internet Nursing Assessment%X Gastroesophageal reflux (GER) is a frequently encountered problem in infancy, physiopathology, Premature, therapy Health Education Humans Infant Infant

Caring for children with complex needs: staff education and training

Children who live with medical conditions that were previously considered incompatible with long term survival are often highly dependent on interventions and equipment which would traditionally have required hospitalization. However, it is generally…

Tags: 2005, Attitude of Health Personnel Caregivers/education Child Community Health Nursing/educationEducation, Backlog, Continuing Home Care Services/manpower HumansInservice TrainingLong-Term Care Nursing Staff/education Pediatric Nursing/education Professional-Family Relations, Hewitt-Taylor J, Journal Article, Journal Of Child Health Care, Nursing, PedPal Lit

The role of the specialist nurse in paediatric oncology in the United Kingdom

National guidance in the United Kingdom on the provision of services for children and young people with cancer and their families has consistently emphasised the need for specialist nursing as central to the delivery of safe and effective care. The…

Tags: 2005, Backlog, Child Clinical Competence/standards Education, European Journal Of Cancer, Hollis R, Journal Article, Nursing, nursing Nurse Clinicians, organization & administration Great Britain Health Policy Humans Neoplasms, organization & administration Pediatric Nursing, organization & administration State Medicine, organization & administrationNurse's Role Oncologic Nursing, PedPal Lit

Hospice nurses request paediatric-specific educational resources and training programs to improve care for children and families in the community: Qualitative data analysis from a population-level survey

BACKGROUND: Children with serious illness who receive hospice care often interface with nurses who lack training, experience and comfort in the provision of paediatric palliative and hospice care. Hospice nurse preferences for paediatric-specific…

Tags: 2019, Applegarth J, Baker JN, Education, Gattas M, Health Care Surveys, Hospice And Palliative Care Nursing, Hospice Care, Kaye EC, Kiefer A, Nursing, Paediatrics, Palliative Care, Palliative Medicine, Qualitative Research, Reynolds J, September 2019 List, Zalud K

The Scream: The Emotional Dimensions of Nursing in Children's Palliative Care

When working on an ethnographic study into communication between children and health professionals about their cancer, the researcher witnessed an event that seemed to capture the often-invisible emotional challenges associated with such work (Bryan…

Tags: 2023, Brimble M, Child, Editorial, Female, Human, Human Experiment, International Journal of Palliative Nursing, Kelly D, Male, March List 2023, Nursing, Only Child, Palliative Care, Palliative Therapy

Evaluation of an Electronic Medical Record Module for Nursing Documentation in Paediatric Palliative Care: Involvement of Nurses with a Think-Aloud Approach

Background: Paediatric palliative care (PPC) is a noncurative approach to the care of children and adolescents with life-limiting and life-threatening illnesses. Electronic medical records (EMRs) play an important role in documenting such complex…

Tags: 2022, Busse TS, Documentation, Dreier LA, Ehlers JP, electronic medical record, International Journal of Environmental Research and Public Health, Jux C, Kernebeck S, May 2022 List, Meyer D, Nurses, Nursing, Palliative Care, Pediatrics, think-aloud, Zenz D, Zernikow B

Neonatal Palliative Care: Assessing the Nurses Educational Needs for Terminally Ill Patients

BACKGROUND: For terminally sick neonates and their families, it's crucial to provide holistic nursing care that incorporates both curative and palliative care as much as feasible. It is well known that the biggest obstacle to delivering palliative…

Variation In State Medicaid Implementation Of The ACA: The Case Of Concurrent Care For Children

More than 55,000 children die each year in the United States, and hospice is used for very few of them at the end of their lives. Nearly one-third of pediatric deaths are a result of chronic, complex conditions, and the majority of these children are…

Tags: 2020, ACT, affordable care, Care coordination, Children's Health, Cozad M J, Health Affairs, Healthcare Providers, Hospice, Keim-Malpass J, Laird J, Lindley L C, Mack J W, Medicaid, November 2020 List, Nursing, payment, state medicaid

Human research ethics committees: issues in palliative care research

Palliative care research is fraught with many difficulties. There are challenges associated with conducting research with vulnerable patients and families, difficulties with obtaining informed consent, and methodological complexities. Thoughtful…

Treatment of pain in pediatric oncology: a Swedish nationwide survey

Pain treatment is a crucial aspect in the care of children with cancer and there are many studies demonstrating inefficient pain treatment. In this study, questionnaires dealing with pain treatment of children with malignant diseases were sent to all…

Nursing research: Methods and critical appraisal for evidence-based practice

Tags: 2005, Book/Book Section, Haber J, LoBiondo-Wood G, Methods, Nursing, Research

Maternal mourning: pain and coping with the loss of a baby

Objective: to understand how mothers experienced the experience of their babies' mourning. Methods: this is a qualitative study, conducted with nine mothers who experienced the loss of a child under one year. Semi-structured interviews were…

Tags: 2017, Borges PKD, Coradassi CE, Damasceno NFP, December 2017 List, Grden CRB, Grief, Infant Mortality, Lopes BG, Mother-child Relations, Nursing, Revista Da Rede De Enfermagem Do Nordeste, Sales CD

Animal-assisted Therapy In Pediatric Palliative Care

Animal-assisted therapy is an emerging complementary strategy with an increasing presence in the literature. Limited studies have been conducted with children, particularly those with life-threatening and life-limiting conditions. Although outcomes…

Contributions of Palliative Care to Pediatric Patient Care

Objectives To provide an overview of pediatric palliative care (PPC) as it relates to children and families living with oncologic disease. Data Sources Journal articles, clinical research reports, clinical guidelines, and national statistics.…

Tags: 2014, Backlog, Battista V, Journal Article, Mandac C, Nursing, Pediatric Oncology, Pediatric Palliative Care, Seminars In Oncology Nursing

Facilitating transitions: redefinition of the nursing mission

1994

Tags: 1994, Backlog, Journal Article, Meleis AI, Models, Nursing, Nursing Outlook, Nursing/organization & administration, Organizational Innovation, Organizational Objectives, Philosophy, Trangenstein PA

The development of an interdisciplinary outpatient clinic in specialist palliative care

The interdisciplinary team approach is essential in the assessment and management of the palliative care of patients and their families. An innovative approach has been developed to allow the interdisciplinary team to see patients and their families…

Good death term in the aspect of paediatric palliative care nursing

Introduction: When faced with serious illness and the possibility of a child's death, a family experiences many uncertainties and traumatic experiences. The expected normal order of life is significantly disrupted, and a diagnosis of a…

Tags: 2019, Cogent Medicine. Conference: 11th Annual Excellence in Pediatrics Conference. Denmark., Good Death, July 2020 List, Nursing, Ozkan S, Pediatric Palliative Care, Tas Arslan F

Rituals At End-of-life.

Understanding the significance of rituals at the end-of-life enables health care professionals to offer meaningful and compassionate interventions that enhance quality of life and support those dying and those who grieve. Rituals contribute to the…

Using computer-assisted learning to gain knowledge about child death and bereavement

Computer-assisted learning (CAL) can be a useful tool in helping nurses to learn about child death and bereavement. A CAL package on the care of children with life-limited illnesses and their families has been designed, developed and evaluated with…

Tags: 2005, Attitude of Health PersonnelBereavement Child Clinical Competence/standards Computer-Assisted Instruction/methods/standards Curriculum Education, Baccalaureate, Backlog, education Problem-Based Learning Program Evaluation Psychology, Educational Students, International Journal of Palliative Nursing, Journal Article, Nursing, Nursing/psychologyTerminal Care/psychology, organization & administration Evidence-Based Medicine Family, PedPal Lit, Pfund R, psychology Forecasting Health Services Needs and Demand Holistic Health Humans Nursing Education Research Nursing Theory Pediatric Nursing

Two Futures: Financial and Practical Realities for Parents of Living With a Life Limited Child

Today more and more children are living with complex health care needs, many of these children are living with life limiting and/or threatening conditions, some are medically fragile. To live a childhood these children must live in communities and…

A framework for integrated pediatric palliative care: being with dying

Recent studies highlight the need for an integrated model for palliative and end-of-life pediatric care. About 55,000 children die each year in the United States and, on any given day, about 8,600 children could benefit from care that acknowledges…

Continuous sedation until death: moral justifications of physicians and nurses--a content analysis of opinion pieces

Continuous sedation until death (CSD), the act of reducing or removing the consciousness of an incurably ill patient until death, often provokes medical-ethical discussions in the opinion sections of medical and nursing journals. A content analysis…

Exploring the benefits of a subjective approach in qualitative nursing research

1994

Tags: 1994, Backlog, Journal Article, Journal Of Advanced Nursing, Nursing, Research, Schutz S

The family, crisis and chronic illness: an evolutionary model

While chronic illness has a profound impact upon the individual, an immense burden is imposed upon the family. When the competing demands of an illness and the family escalate exponentially, there may be a crisis. Traditionally, crisis theory has…

Tags: 1992, Adolescent, Attitude To Health, Backlog, Chronic Disease/nursing/psychology, Crisis Intervention, Emergencies/nursing/psychology, Family/psychology, Female, Halliday PH, Humans, Journal Article, Journal Of Advanced Nursing, Models, Nursing, Parent caregivers, Role, Shaw MC, Systems Theory

Mapping the journey of cancer patients through health care system. Part 1: developing the research question

This is the first in a series of articles relating results from research which constructed a complete history of interactions with the health care system from available data sources for all patients diagnosed in 1990 with primary breast, colorectal,…

The Neonatal Palliative Care Attitude Scale: Psychometric properties for Portuguese neonatal nurses

BACKGROUND: This study is aimed to perform the translation and cultural adaptation of the Neonatal Palliative Care Attitude Scale (NiPCAS) and evaluation of its psychometric properties with Portuguese neonatal nurses. METHOD(S): The research started…

Tags: 2022, alpha, Analysis, Article, Attitude, Barbosa J, CARE, Clinical, coefficient, confirmatory, consistency, controlled, convergent, Cronbach, degree, discriminant, Education, end-of-life, error, experiment, Face, factor, Female, Figueira AR, Fradique E, Freedom, Human, intensive, internal, Major, Male, mean, Neonatal, Newborn, Nurse, Nursing, October 2022 List, Of, Palliative, Palliative & Supportive Care, quantitative, Rebotim AM, Reliability, Roldao MG, root, Santos Curado MA, Scale, Software, Sousa F P, squared, study, supportive, terminal, Therapy, Unit, VALIDATION, Validity

Living With Dying In The Pediatric Intensive Care Unit: A Nursing Perspective

BACKGROUND:
Despite reported challenges encountered by nurses who provide palliative care to children, few researchers have examined this phenomenon from the perspective of nurses who care for children with life-threatening illnesses in pediatric…

Do we have the power to create our own future as oncology nurses?

2005

Tags: 2005, Backlog, Canadian Oncology Nursing Journal, Female, Humans, Journal Article, Leadership, Male, Nurse's Role, Nursing, Nursing/psychology, Oncologic Nursing, Power (psychology), Sex Factors, Societies, Steele R, Students

Towards clarification of convergent concepts: sense of coherence, will to meaning, locus of control, learned helplessness and hardiness

The multidisciplinary field of stress and stress-related health outcomes has generated theoretical and practical knowledge which is of interest to nurses. Theoretical developments which have assumed a prominent role in the study of stress, health and…

Tags: 1993, Attitude, Backlog, Freedom, Health, Helplessness, Humans, Internal-External Control, Journal Article, Journal Of Advanced Nursing, Learned, Models, Nursing, Philosophy, Psychological, Psychological/psychology, Self Concept, Stress, Sullivan GC

Extending palliative care into pregnancy and the immediate newborn period: state of the practice of perinatal palliative care

Many infants die immediately prior to birth or in the neonatal period; thus, it is imperative that we begin to recognize the importance of integrating palliative care into pregnancy and the immediate newborn period. While advances in perinatal care…

Independent non-medical prescribing in children's hospices in the UK: a practice snapshot

Background: Non-medical prescribing is well established within the British health service, with increasing numbers of nurses practicing within children's hospices. Aim: To identify the context of non-medical prescribing in children's hospices in the…

Tags: 2017, Children, December 2017 List, Hospice, Independent Prescribing, International Journal of Palliative Nursing, Non-medical, Nursing, Tatterton MJ

Utilizing an oral sucrose solution to minimize neonatal pain

ISSUES AND PURPOSE: To present an evidence-based practice protocol for oral sucrose administration to minimize neonatal procedural pain. CONCLUSION: Examination of published research may provide additional modalities to expand an established…

What are virtual wards and how do they work?: primary care nursing roles are being reinvented as virtual ward and hospital at home services evolve

Virtual wards are expanding in many parts of the UK, with the aim of allowing patients to get the care they need at home, rather than in hospital.

Paediatric fever management: continuing education for clinical nurses

PURPOSE: This study examined the influence of level of practice, additional paediatric education and length of paediatric and current experience on nurses' knowledge of and beliefs about fever and fever management. METHOD: Fifty-one nurses from…

CAMHS liaison: supporting care in general paediatric settings

Increasing numbers of children and young people with mental health problems are being cared for in general paediatric settings, presenting a challenge to nurses who do not have mental health nursing qualification and experience. A survey of nurses in…

Factors influencing nurse retention within children's palliative care

Retention of staff presents major challenges within children's palliative care; this has substantial implications for children, families and the nursing workforce. To address this, a programme was undertaken that provided pathways of professional…

Tags: 2020, Children, Education, January 2021 List, Journal Of Child Health Care, nurse’s role, Nursing, O'Grady M, Palliative Care Nursing, Petty J, Whiting L, Whiting M

Support for families of a child in a palliative situation in the cardiac pediatric intensive care unit

Background and Aim: The birth prevalence of children with congenital heart disease is about one percent a year. This might mean that a palliative diagnosis maybe directly exists from birth due to the complexity of the congenital heart disease. The…

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