Browse Items (195 total)
- Tags: Longitudinal Studies
Do Interventions Make a Difference to Bereaved Parents? A Systematic Review of Controlled Studies.
Do positive psychological states shed light on recovery from bereavement? Findings from a 3-year longitudinal study
Tags: 2003, Acree M, Adaptation, Backlog, Bereavement, California, Caregivers/psychology, Death studies, Depression, Folkman S, Health Status, HIV Infections/mortality/psychology, Homosexuality, Humans, Journal Article, Longitudinal Studies, Male, Male/psychology, Moskowitz JT, Psychological, Social Support, United States
Does gastrostomy tube feeding in children with cerebral palsy increase the risk of respiratory morbidity?
Tags: 2006, Adolescent, Archives of Disease in Childhood, Backlog, Cerebral Palsy/therapy, Child, Eltumi M, Female, Gastrostomy/adverse effects, Grant H, Home, Humans, Infant, Journal Article, Longitudinal Studies, Lung Diseases/etiology, Male, Morrice JS, Non-U.S. Gov't, Parenteral Nutrition, Preschool, Research Support, Risk Assessment/methods, Sullivan P, Thomas AG, Vernon-Roberts A
Early integration of pediatric palliative care: For some children, palliative care starts at diagnosis.
Emerging strategies for the treatment of hereditary metabolic storage disorders.
Tags: 1-Deoxynojirimycin/analogs & derivatives/therapeutic use, 2006, Backlog, Bone Marrow Transplantation, Brady RO, Enzyme Inhibitors/therapeutic use, Fabry Disease/therapy, Gangliosidosis, Gaucher Disease/therapy, Gene Therapy, GM1/therapy, Humans, Imino Sugars/therapeutic use, Journal Article, Longitudinal Studies, Piperidines/therapeutic use, Rejuvenation Research
End-of-life decision-making and satisfaction with care: parental perspectives.
Enzyme reconstitution/replacement therapy for lysosomal storage diseases.
Equivalence reliability of the functional independence measure for children (WeeFIM) administration methods.
Tags: 1997, Activities of Daily Living, Backlog, Braun SL, Cerebral Palsy/rehabilitation, Child, Developmental Disabilities/rehabilitation, Disability Evaluation, Down Syndrome/rehabilitation, Female, Humans, Infant, Interviews As Topic, Journal Article, Lane SJ, Longitudinal Studies, Male, Nochajski S, Observer Variation, Ottenbacher KJ, Preschool, Psychometrics, Reproducibility of Results, Sperle PA, The American Journal Of Occupational Therapy.: Official Publication Of The American Occupational Therapy Association
Evaluating Palliative Care: Bereaved Family Members' Evaluations of Patients' Pain, Anxiety and Depression.
Tags: 2004, Addington-Hall JM, anxiety, Backlog, Bereavement, Depression, Family Members, Female, Grief, Human, Journal Article, Journal of Pain and Symptom Management, Longitudinal Studies, Major Depression, Male, McPherson CJ, Pain, Palliative Care, psychological symptoms, symptom evaluation, Symptoms
Evidence-based assessment of coping and stress in pediatric psychology
Experiences of families in which a child has a prolonged terminal illness: modifying factors.
Facilitating the care of terminally ill children.
Factors influencing family participation in a longitudinal study: comparison of pediatric and healthy samples.
Tags: 1997, Analysis of Variance, Backlog, Case-Control Studies, Chi-Square Distribution, Congenital/psychology, Cystic Fibrosis/psychology, Family Health, Goldberg S, Heart Defects, Humans, Infant, Janus M, Journal Article, Journal of Pediatric Psychology, Longitudinal Studies, Parents/psychology, Patient Dropouts/statistics & numerical data, Patient Participation/statistics & numerical data, Regression Analysis, Research/statistics & numerical data, Severity Of Illness Index
Families caring for chronically ill children with tuberous sclerosis complex.
Tags: 1996, Backlog, Caregivers, Caregivers-Psychological Aspects, Chronically Ill Children-Home Care, Family & Community Health, Journal Article, Longitudinal Studies, Parker M, Pediatric Neurology, Pediatric Neurology-Care and Treatment, Stress (Psychology), Stress (Psychology)-Care and Treatment, Tuberous Sclerosis, Tuberous Sclerosis-Psychological Aspects
Families' Priorities In Life-limiting Illness: Improving Quality With Online Empowerment
Improving quality of life (QOL) is the central focus of palliative care support for children with life-limiting illness (LLI), but achieving this can be challenging.
INTERVENTION:
MyQuality is an online tool that enables families to choose…
Tags: 2016, Adolescent, Archives of Disease in Childhood, Beringer A, Child, Child Preschool, Disabled Children/psychology, Family, Female, Fletcher M, Harris N, Hospice, Humans, Infant, Internet, July 2016 List, Longitudinal Studies, Male, Outcome, Palliative Care, Parents, Parents/psychology, Power (psychology), Quality Of Life, Quality Of Life/psychology, Social Support, Surveys And Questionnaires, United Kingdom, Young Adult
Family focused grief therapy: a randomized, controlled trial in palliative care and bereavement
Tags: 2006, Adult, Backlog, Bereavement, Bloch S, Caregivers/psychology, Depressive Disorder/therapy, Family Health, Family Relations, Family Therapy/methods, Family/psychology, Female, Follow-up Studies, Grief, Humans, Journal Article, Kissane DW, Longitudinal Studies, Male, McKenzie DP, McKenzie M, Middle Aged, Moskowitz C, O'Neill I, Palliative Care, Personality Inventory, Psychological/therapy, Social Adjustment, SSHRC CURA, Stress, Terminal Care, The American Journal Of Psychiatry, Treatment Outcome
Family functioning: Impact on siblings.
Tags: 1999, Attitude to death -- In infancy & childhood, Bereavement -- in infancy & childhood, Bereavement In Children, Book/Book Section, Brothers and sisters -- Death -- Psychological aspects, Children and death, Davies B, Grief in children, Longitudinal Studies, Shadows In The Sun: The Experiences Of Sibling Bereavement In Childhood., Sibling Relations -- in infancy & childhood
Family perspectives on the quality of pediatric palliative care.
Feasibility of Conducting a Palliative Care Randomized Controlled Trial in Children With Advanced Cancer: Assessment of the PediQUEST Study
Tags: 2015, Adolescent, Chen K, Child, Dussel V, Feasibility Studies, Female, Feudtner C, Geyer JR, Humans, Journal Of Pain & Symptom Management, Kang TI, Longitudinal Studies, Male, Neoplasms/th [therapy], Oncology 2017 List, Orellana L, Palliative Care, Palliative Care/mt [methods], Patient Dropouts, Patient Selection, Pilot Projects, Preschool, Soto N, Terminal Care, Ullrich C, Wolfe J
Focus group interview with parents of children with medically complex needs: an intimate look at their perceptions and feelings.
Tags: 1991, Backlog, Children's Health Care, Counseling, Diehl SF, Family Health, Female, Florida, Health Services Needs And Demand, Home Nursing/psychology, Humans, Interviews, Journal Article, Longitudinal Studies, Male, Moffitt KA, Parents/psychology, Patient Care Planning/standards, Respite Care, Self-Help Groups, Wade SM
Follow-up on seven adult patients with mild Sanfilippo B-disease.
Tags: 1987, Adult, Age Factors, American Journal Of Medical Genetics, Backlog, Dementia/complications/genetics, Female, Follow-up Studies, Humans, Journal Article, Longitudinal Studies, Male, Mental Retardation/complications/genetics, Mucopolysaccharidoses/genetics, Mucopolysaccharidosis III/genetics, Pedigree, van de Kamp JJ, van Schrojenstein-de Valk HM
Functional ability, social support, and depression in rheumatoid arthritis
Tags: 2004, Activities of Daily Living, Adult, Aged, Arthritis, Backlog, Depressive Disorder, Doeglas DM, Humans, Journal Article, Krol B, Longitudinal Studies, Middle Aged, Netherlands, Quality Of Life, Quality of Life Research, Regression Analysis, Rheumatoid, Sanderman R, Sickness Impact Profile, Social Support, Social Support and Chronic Pain, Suurmeijer Th PBM, van den Heuvel WJA, van Leeuwen MA, van Rijswijk MH
Gastrostomy tube feeding in children with cerebral palsy: a prospective, longitudinal study
Tags: 2005, Adolescent, Alder N, Anthropometry/methods, Bachlet AM, Backlog, Body Height/physiology, Cerebral Palsy/classification/nursing/surgery, Child, Child Development/physiology, Demography, Developmental Medicine and Child Neurology, Eltumi M, Enteral Nutrition/methods, Female, Gastrostomy/methods, Grant HW, Head/growth & development, Humans, Infant, Journal Article, Juszczak E, Lambert B, Longitudinal Studies, Male, McLean L, Newborn, Nutritional Status/physiology, Preschool, Retrospective Studies, Sullivan P, Thomas AG, Time Factors, Treatment Outcome, Vernon-Roberts A, Weight Gain/physiology
Geographic variation in California pediatric hospice care for children and adolescents: 2007-2010
Tags: 2018, Adolescent, Adolescents, American Journal of Hospice & Palliative Medicine, California, Child, Children, Chronic Illness, Complex Chronic Conditions, Edwards SL, February 2018 List, geographic variation, Hospice, Hospice Care, Hospices, Lindley Lisa C, Longitudinal Studies, Los Angeles, Medicaid, Only Child, Pediatrics, Regional Differences
Health outcomes of bereavement.
Tags: 2007, Backlog, Journal Article, Longitudinal Studies, Schut H, Stroebe M, The Lancet
Health status of bereaved parents
Tags: 1996, Adolescent, Adult, Backlog, Bereavement, Birenbaum LK, Case-Control Studies, Child, Death, Female, Health Status, Humans, Infant, Journal Article, Longitudinal Studies, Male, Neoplasms/psychology, Nursing Research, Parent caregivers, Parents/psychology, Phillips DS, Preschool, Questionnaires, Stewart BJ, Time Factors
Health-related quality of life among child and adolescent survivors of childhood cancer.
Tags: 2006, Adolescent, Backlog, Barrera M, Canada, Case-Control Studies, Central Nervous System Neoplasms/psychology, Child, Cranial Irradiation/adverse effects, Female, Health Status, Humans, Journal Article, Journal Of Clinical Oncology, Leukemia/psychology, Longitudinal Studies, Lymphoma/psychology, Male, Maunsell E, Morrison HI, Neoplasms/psychology/therapy, Quality Of Life, Shaw AK, Speechley KN, Survivors
Healthcare utilization and costs of pediatric home mechanical ventilation in Canada
Tags: 2020, Adult, Ambulatory Care/economics, Amin R, Canada, Caregivers/economics, Child, Child Preschool, Coyte PC, Female, Guerriere D, Health Care Costs, Health Expenditures, healthcare costs, healthcare utilization, Home Care Services/economics, home mechanical ventilation, Humans, Katz SL, long-term mechanical ventilation, Longitudinal Studies, Male, March 2021 List, McKim DA, Middle Aged, Nonoyama ML, Patient Acceptance of Health Care, Pediatric Pulmonology, Pediatrics, Prospective Studies, Quality Of Life, Respiration Artificial/economics, Rose L, Tracheostomy, ventilator assisted individual, Wasilewski M, Zagorski B
Hildegard Peplau meets family systems nursing: Innovation in theory-based practice.
Hospital staff and family perspectives regarding quality of pediatric palliative care.
Tags: 2004, Attitude Of Health Personnel, Attitude To Health, Backlog, Bereavement, Child, Cohen HJ, Communication, Contro N, Data Collection, Family/psychology, Hospital/psychology, Humans, Journal Article, Larson J, Longitudinal Studies, Non-U.S. Gov't, Pain/therapy, Palliative Care/standards, Pediatrics, Pediatrics/education/standards, Personnel, Professional-family Relations, Quality Of Health Care, Research Support, Scofield S, Sourkes B
Hospitalization for mental illness among parents after the death of a child.
Tags: 2005, Adult, Backlog, Bereavement, Child, Comparative Study, Death, Female, Follow-up Studies, Hospitalization/statistics & numerical data, Hospitals, Humans, Infant, Journal Article, Laursen TM, Li J, Life Change Events, Longitudinal Studies, Male, Mental Disorders/epidemiology, Middle Aged, Mood Disorders/epidemiology, Mortensen PB, Non-U.S. Gov't, Olsen J, Parents/psychology, Precht DH, Preschool, Psychiatric, Registries, Regression Analysis, Research Support, Risk, Schizophrenia/epidemiology, Sex Factors, Substance-Related Disorders/epidemiology, The New England Journal Of Medicine
Hospitalizations for mitochondrial disease across the lifespan in the U.S
Tags: 2017, Adolescent, Adult, Child, Cost Of Illness, Cross-sectional Studies, Cunningham ZZ, Damrauer SM, Databases, Factual, Falk MJ, Female, Ganetzky RD, Goldstein A, Health Services Research, Hospital Mortality, Hospitalization/ec [Economics], Hospitalization/sn [Statistics & Numerical Data], Humans, Infant, Karlsson M, Kilbaugh TJ, Longitudinal Studies, Male, McCormack SE, Middle Aged, Mitochondrial Diseases/ec [Economics], Mitochondrial Diseases/ep [Epidemiology], Mitochondrial Diseases/mo [Mortality], Molecular Genetics and Metabolism, Preschool, September 2018 List, United States/ep [Epidemiology], Xiao Rui, Young Adult
How children die in hospital.
Tags: 2000, Backlog, Bruera E, Byrne P, Canuck Place 15 year chart review, Child, Children, Communication, Critical Care, Death, DNAR, Dying, Euthanasia, Hospital Mortality, Human, Humans, Infant, Infant Mortality, Infants, Journal Article, Journal of Pain and Symptom Management, Longitudinal Studies, McCallum DE, Palliative Care, Passive, Pediatric Intensive Care Unit, Preschool, Resuscitation Orders, Symptoms
How couples cope with the death of a twin or higher order multiple
Impact on parents when a child has a progressive, life-threatening illness.
Impaired health-related quality of life in children and adolescents with chronic conditions: a comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL 4.0 Generic Core Scales
Tags: 2007, Adolescent, Age Factors, Backlog, Burwinkle TM, Case-Control Studies, Child, Chronic Disease/classification/epidemiology/psychology, Cluster Analysis, Disabled Children/psychology, Female, Health And Quality Of Life Outcomes, Humans, Journal Article, Limbers CA, Longitudinal Studies, Male, Pediatrics/instrumentation, Preschool, Proxy, Psychometrics/instrumentation, Quality Of Life/psychology, Self Disclosure, Severity Of Illness Index, Sickness Impact Profile, Varni JW, World Health
Influence of pain treatment by epidural fentanyl and bupivacaine on homing of opioid-containing leukocytes to surgical wounds
Tags: 2007, Adjuvants, Aged, Analgesia, Analgesics, Anesthesia, Anesthesia/immunology/pharmacology, Anesthetics, Backlog, beta-Endorphin/drug effects/immunology/metabolism, Biomarkers of Pain, Brain, Behavior, And Immunity, Bupivacaine/immunology/therapeutic use, Cell Movement/drug effects/immunology, Enkephalin, Epidural, Female, Fentanyl/immunology/therapeutic use, Heurich M, Humans, Journal Article, Kopf A, Lenzner M, Leukocytes/drug effects/immunology/metabolism, Local/immunology/therapeutic use, Longitudinal Studies, Male, Methionine/drug effects/immunology/metabolism, Middle Aged, Morciniec P, Mousa SA, Nociceptors/drug effects/immunology, Opioid/immunology/therapeutic use, Pain, Patient-Controlled, Pirinitramide/therapeutic use, Postganglionic/drug effects/immunology, Postoperative/immunology/prevention & control, Stein C, Subcutaneous Tissue/immunology, Sympathetic Fibers, Welte M, Wound Healing/drug effects/immunology