Browse Items (19 total)
- Tags: Quality Of Life/psychology
Families' Priorities In Life-limiting Illness: Improving Quality With Online Empowerment
Improving quality of life (QOL) is the central focus of palliative care support for children with life-limiting illness (LLI), but achieving this can be challenging.
INTERVENTION:
MyQuality is an online tool that enables families to choose…
Tags: 2016, Adolescent, Archives of Disease in Childhood, Beringer A, Child, Child Preschool, Disabled Children/psychology, Family, Female, Fletcher M, Harris N, Hospice, Humans, Infant, Internet, July 2016 List, Longitudinal Studies, Male, Outcome, Palliative Care, Parents, Parents/psychology, Power (psychology), Quality Of Life, Quality Of Life/psychology, Social Support, Surveys And Questionnaires, United Kingdom, Young Adult
Listening To Parents: The Role Of Symptom Perception In Pediatric Palliative Home Care
This study analyzes symptom perception by parents and healthcare professionals and the quality of symptom management in a pediatric palliative home care setting and identifies which factors contribute to a high quality of palliative and…
Tags: 2016, Adult, Borasio GD, Brandstatter M, Cross-sectional Studies, Death, Duroux A, Dyspnea/diagnosis, Dyspnea/psychology, End-of-life Symptoms, Female, Führer M, Grasser M, Home Care Services/standards, Humans, Male, November 2016 List, Pain/diagnosis, Pain/psychology, Palliative & Supportive Care, Palliative Care/methods, Palliative Care/psychology, Parents/psychology, Pediatric Palliative Home Care, Pediatrics/methods, Perception, Quality Of Life/psychology, Retrospective Studies, Surveys And Questionnaires, Symptom Assessment/psychology, Symptom Perception, Vollenbroich R
Protocol: Evaluating The Impact Of A Nation-wide Train-the-trainer Educational Initiative To Enhance The Quality Of Palliative Care For Children With Cancer
There are identified gaps in the care provided to children with cancer based on the self-identified lack of education for health care professionals in pediatric palliative care and in the perceptions of bereaved parents who describe…
Tags: 2016, Adolescent, BMC Palliative Care, Bouffet E, Canada, Cancer Quality Care, Child, Child Preschool, Curriculum/standards, Education Knowledge Translation, Friedrichsdorf SJ, Greenberg M, Health Personnel/education, Humans, Husain A, Liben S, Neoplasms/therapy, November 2016 List, Palliative Care, Palliative Care/methods, Palliative Care/standards, Pediatrics, Pediatrics/methods, Pole JD, Program Evaluation, Quality Of Life/psychology, Rapoport A, Siden H, Teaching/standards, Whitlock JA, Widger K, Wolfe J
A Longitudinal, Randomized, Controlled Trial Of Advance Care Planning For Teens With Cancer: Anxiety, Depression, Quality Of Life, Advance Directives, Spirituality
METHODS:
Adolescent (age 14-20 years)/family dyads (N = 30) with a cancer…
Tags: 2014, Adolescent, Adult, Advance Care Planning, Advance Care Planning/statistics & Numerical Data, Advance Directive, Advance Directives/psychology, Advance Directives/statistics & Numerical Data, African-american, Anxiety/complications, Anxiety/psychology, Cancer, Communication, Decision-making, Depression/complications, Depression/psychology, End Of Life, Family, Family Intervention, Feasibility Studies, Female, Follow-up Studies, Humans, Journal of Adolescent Health, July 2016 List, Longitudinal Studies, M.E. Lyon, Male, Neoplasms/complications, Neoplasms/psychology, Patient Satisfaction/statistics & Numerical Data, Pediatric Palliative Care, Quality Of Life/psychology, Spirituality, Surveys And Questionnaires, United States, Wang J, Young Adult
The Spanish version of the dementia quality of life questionnaire: a validation study
Tags: 2011, 80 And Over, Aged, Aging & Mental Health, Backlog, Brod M, Dementia/diagnosis/physiopathology/psychology, Diagnostic and Statistical Manual of Mental Disorders, European Continental Ancestry Group, Female, Gomez-Benito J, Humans, Journal Article, Language, Lucas-Carrasco R, Male, Middle Aged, Psychometrics/instrumentation, Quality Of Life/psychology, Questionnaires/standards, Rejas J, Reproducibility of Results, Sensitivity and Specificity, Severity Of Illness Index, Spain, Translations
Methodological challenges for measuring quality of care at the end of life
Evolution in measuring the quality of dying
Tags: 2002, Attitude To Death, Backlog, Clipp EC, Health Care/trends, Hospice Care/psychology/standards, Human, Journal Article, Journal of Palliative Medicine, Non-P.H.S., Non-U.S. Gov't, P.H.S., Process Assessment (Health Care)/methods, Quality Assurance, Quality Of Life/psychology, Steinhauser KE, Support, Terminal Care/psychology/standards, Tulsky JA, U.S. Gov't
Relationship between three palliative care outcome scales
Tags: 2004, 80 And Over, Adaptation, Adult, Aged, Backlog, Caregivers/psychology, Donaldson N, England, Family/psychology, Female, Health And Quality Of Life Outcomes, Higginson IJ, home care services, Hospitalization, Humans, Journal Article, Male, Middle Aged, Neoplasms/physiopathology/psychology/therapy, Outcome Assessment (Health Care)/methods, Palliative Care/psychology, Psychological, Psychometrics, Quality Of Life/psychology, Questionnaires, Sickness Impact Profile, Socioeconomic Factors
Recommendations for using opioids in chronic non-cancer pain
Tags: 2003, Allan L, Analgesics, Backlog, Biomarkers of Pain, Chronic Disease, Dellemijn PL, Drug Administration Schedule, European Journal Of Pain, Faura CC, Humans, Ilias WK, Jensen TS, Journal Article, Kalso E, Opioid/therapeutic use, Pain/drug Therapy, Patient Education, Perrot S, Plaghki LH, Psychology, Quality Of Life/psychology, Zenz M
A meta-analytic review of benefit finding and growth
Parental decision making in pediatric cancer end-of-life care: Using focus group methodology as a prephase to seek participant design input
Tags: 2006, Adaptation, Attitude To Health, Backlog, Barrera M, Baruchel S, Bouffet E, Capra M, Child, Decision Making, European Journal Of Oncology Nursing, Focus Groups/methods, Focus Groups/utilization, Gammon J, Geenberg ML, Helping Behavior, Hinds PS, Humans, Journal Article, Llewellyn-Thomas HA, Morale, Needs Assessment, Neoplasms, Nurse's Role, Nursing Methodology, Oncologic Nursing, Parents/psychology, Patient Selection, Patient-centered Care, Pediatric Nursing, PedPal Lit, Professional-family Relations, Program Development, Psychological, Qualitative Research, Quality Of Life/psychology, Questionnaires, Social Support, Sung L, Terminal Care, Tomlinson D, Volpe J
Impaired health-related quality of life in children and adolescents with chronic conditions: a comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL 4.0 Generic Core Scales
Tags: 2007, Adolescent, Age Factors, Backlog, Burwinkle TM, Case-Control Studies, Child, Chronic Disease/classification/epidemiology/psychology, Cluster Analysis, Disabled Children/psychology, Female, Health And Quality Of Life Outcomes, Humans, Journal Article, Limbers CA, Longitudinal Studies, Male, Pediatrics/instrumentation, Preschool, Proxy, Psychometrics/instrumentation, Quality Of Life/psychology, Self Disclosure, Severity Of Illness Index, Sickness Impact Profile, Varni JW, World Health
Impact of an inpatient palliative care team: a randomized control trial.
Tags: 2008, Advance Directives/sn [Statistics & Numerical Data], Advance Directives/statistics & Numerical Data, Aged, Backlog, Beane J, Blum M, Conner D, Cooperative Behavior, Critical Illness/ep [Epidemiology], Critical Illness/epidemiology, Critical Illness/psychology, Critical Illness/px [psychology], Critical Illness/rehabilitation, Critical Illness/rh [Rehabilitation], Della PR, DNAR, DNAR Outcomes, Gade G, Hospice Care/ut [Utilization], Hospice Care/utilization, Hospitalization, Hospitalization/statistics & numerical data, Humans, Journal Article, Journal of Palliative Medicine, Liberson M, McGrady K, Palliative Care/methods, Palliative Care/mt [methods], Patient Care Team, Patient Satisfaction, Prospective Studies, Quality Of Life/psychology, Quality Of Life/px [psychology], Richardson RH, Survival Rate, Venohr I, Williams MP
Self-portraits of families with young adult cancer survivors: using photovoice
Tags: 2010, Adolescent, Backlog, Ethnic Groups/statistics & numerical data, Family/psychology, Female, Humans, Journal Article, Journal Of Psychosocial Oncology, Male, Narration, Neoplasms/ethnology/psychology, Photography, Psychology, Quality Of Life/psychology, Questionnaires, Self Concept, Semantics, Socioeconomic Factors, Survivors/psychology, Voice, Yi J, Young Adult, Zebrack B
Providing care in chronic disease: the ever-changing balance of integrating palliative and restorative medicine
Long term posttraumatic growth after breast cancer: prevalence, predictors and relationships with psychological health
Tags: 2010, Adaptation, Adult, Aged, Attitude To Health, Backlog, Bonnaud-Antignac A, Breast Neoplasms/epidemiology/psychology, Cross-sectional Studies, Disease-Free Survival, Female, Florin A, Follow-up Studies, Humans, Journal Article, Journal Of Clinical Psychology In Medical Settings, Lelorain S, Middle Aged, Post-Traumatic/diagnosis/epidemiology/psychology, Predictive Value of Tests, Prevalence, Psychological, Quality Of Life/psychology, Retrospective Studies, Stress Disorders
Child and adolescent self-report symptom measurement in pediatric oncology research: a systematic literature review
Tags: 2018, Adolescent, Adult, Adverse event self-report, Baker JN, Biomedical Research, Child, Cross-sectional Studies, Freyer DR, Hinds PS, Humans, Lucas N, Mack JW, McFatrich M, Medical Oncology/standards, Oncology 2018 List, Pediatric Oncology, Pinheiro LC, Psychometrics, Quality of Life Research, Quality Of Life/psychology, Reeve BB, Reproducibility of Results, Self Report, Self-report instruments, Sung L, Tomlinson D, Walker JS, Withycombe JS, Young Adult
Use of subcutaneous fluids in palliative care with children: a case study
Tags: 2020, artificial hydration, Brimble MJ, Child Health, Clinical, End Of Life Care, ethical issues, fluid management, Hospices, Humans, Hydration, Hypodermoclysis/methods/standards, May 2021 List, Nursing Children and Young People, Nutrition, Palliative Care, Palliative Care/methods/standards, Parents, Patient Comfort/standards, Pediatrics/instrumentation/methods, Professional, Quality Of Life/psychology, Smith A, Terminal Care
An International Study of Caregiver-Reported Burden and Quality of Life in Metachromatic Leukodystrophy
Tags: Child, Quality of Life, 2022, Afriyie A, Barth M, Burden of illness, Caregiver Burden, Caregiver experience, Caregivers, Dillon A, Early-onset, Family, Howie K, Humans, juvenile, Late infantile, Leukodystrophy Metachromatic/Genetics, Metachromatic Leukodystrophy, Mld, November 2022 List, Orphanet Journal Of Rare Diseases, Pang F, Quality Of Life/psychology, Sevin C, Surveys And Questionnaires, Walz M, Wilds A