Browse Items (291 total)
- Tags: Newborn
Withdrawal of mechanical ventilation in pediatric and neonatal intensive care units
Tags: 2007, Artificial, Backlog, Child, Diseases, Empathy, Humans, Infant, Intensive Care Units, Journal Article, Munson D, Neonatal, Newborn, Pediatric Clinics of North America, Premature, Professional-family Relations, Respiration, Social Support, United States, Withholding Treatment/legislation & jurisprudence
Period prevalence of epilepsy in children in BC: a population-based study
Tags: 2009, Adolescent, Age Distribution, Backlog, British Columbia/epidemiology, Child, Community Health Planning, Cross-sectional Studies, Databases, Epilepsy/epidemiology, Factual/statistics & numerical data, Farrell K, Female, Hoube JS, Humans, Infant, International Classification of Diseases, Journal Article, Lisonkova S, Longitudinal Studies, Male, Newborn, Preschool, Prevalence, Retrospective Studies, Schiariti V, Socioeconomic Factors, The Canadian Journal Of Neurological Sciences.Le Journal Canadien Des Sciences Neurologiques, Young Adult
Prediction of pediatric death in the year after hospitalization: a population-level retrospective cohort study
Tags: 2009, Adolescent, Backlog, Child, Cohort Studies, Feinstein JA, Female, Feudtner C, Hexem KR, Hospital Mortality, Humans, Infant, Journal Article, Journal of Palliative Medicine, Logistic Models, Male, Models, Mortality, Newborn, Patient Discharge, Pediatrics, Pennsylvania/epidemiology, Preschool, Prognosis, Retrospective Studies, Shabbout M, Silber JH, Sochalski J, Theoretical, Young Adult
Hospital care for parents after perinatal death
Tags: 2007, Adaptation, Adult, Autopsy, Backlog, Bereavement, Choice Behavior, Dalton VK, Female, Fetal Death, Funeral Rites, Gold KJ, Hospitalization, Humans, Infant, Infant Mortality, Journal Article, Male, Newborn, Obstetrics And Gynecology, Parent-child Relations, Parents/psychology, Patient Care Team, Photography, Pregnancy, Pregnancy Trimester, Psychological, Schwenk TL, Second, Stillbirth/psychology, Third
Parents' views of cancer-directed therapy for children with no realistic chance for cure
Tags: 2008, Adolescent, Adult, Antineoplastic Agents/adverse effects, Backlog, Child, Female, Hilden JM, Humans, Infant, Joffe S, Journal Article, Journal Of Clinical Oncology, Mack JW, Male, Middle Aged, Moore C, Neoplasms/drug therapy/psychology, Newborn, Parent-child Relations, Parents/psychology, Preschool, Questionnaires, Terminally Ill/psychology, Watterson J, Weeks JC, Wolfe J
Canadian cancer statistics at a glance: cancer in children
Tags: 2009, Adolescent, Backlog, Canada/epidemiology, Canadian Cancer Society's Steering Committee for Canadian Cancer Statistics, Canadian Medical Association Journal, Child, De P, Ellison LF, Grundy PE, Humans, Incidence, Infant, Journal Article, Mery LS, Neoplasms/diagnosis/epidemiology/mortality, Newborn, Population Surveillance, Preschool, Survival Rate
Long-term outcome and clinical spectrum of 73 pediatric patients with mitochondrial diseases
Tags: 2007, AIM, Backlog, Cause Of Death, Chevalier I, Child, Cohort Studies, Debray FG, Decarie JC, DNA, DNA Fragmentation, Female, Follow-up Studies, HEREDITARY, Humans, IM, Infant, Journal Article, Lambert M, Leber/di [Diagnosis], Leber/ge [Genetics], Leber/mo [Mortality], Longitudinal Studies, Male, MELAS Syndrome/di [Diagnosis], MELAS Syndrome/mo [Mortality], MELAS Syndrome/th [Therapy], Mitchell GA, Mitochondrial Diseases/di [Diagnosis], Mitochondrial Diseases/ge [Genetics], Mitochondrial Diseases/mo [Mortality], Mitochondrial Encephalomyopathies/di [Diagnosis], Mitochondrial Encephalomyopathies/mo [Mortality], Mitochondrial Encephalomyopathies/th [therapy], Mitochondrial Myopathies/di [Diagnosis], Mitochondrial Myopathies/ge [Genetics], Mitochondrial Myopathies/mo [Mortality], Mitochondrial/ge [Genetics], Newborn, Optic Atrophy, Pediatrics, Preschool, Probability, Proportional Hazards Models, Q3 Scoping Review Results, Retrospective Studies, Robinson BH, Robitaille Y, Severity Of Illness Index, Shoubridge EA, Survival Analysis, Time Factors
Scoring evaluation of the natural course of mucopolysaccharidosis type IIIA (Sanfilippo syndrome type A)
Tags: 2007, Adolescent, Adult, Backlog, Braulke T, Child, Cohort Studies, Disease Progression, Female, Gal A, Humans, Infant, Journal Article, Kossow K, Longitudinal Studies, Male, Meyer A, Mucopolysaccharidosis III/classification/diagnosis/pathology, Muhlhausen C, Muschol N, Newborn, Pediatrics, Preschool, Q3 Scoping Review Results, Questionnaires, Research Design, Ullrich K
Pediatric cardiopulmonary resuscitation: advances in science, techniques, and outcomes
Tags: 2008, Animals, Backlog, Berg RA, Blood Pressure, Cardiopulmonary Resuscitation, Child, Extracorporeal Membrane Oxygenation, Heart Arrest/epidemiology/mortality/physiopathology/therapy, Humans, Infant, Journal Article, Life Support Care, Magnetic Resonance Imaging, Nadkarni VM, Nerve Growth Factors/blood, Newborn, No-Reflow Phenomenon/physiopathology, Pediatrics, Premature, Prognosis, Quality Of Life, Regional Blood Flow, S100 Proteins/blood, Topjian AA, Vascular Resistance, Ventricular Fibrillation/epidemiology/physiopathology
Clinical report--Forgoing medically provided nutrition and hydration in children
Tags: 2009, Adolescent, Adult, American Academy of Pediatrics, Backlog, Botkin JR, Child, Committee on Bioethics, Diekema DS, Disabled Children/legislation & jurisprudence, Ethics, Feeding Methods/ethics, Fluid Therapy/ethics, Humans, Infant, Journal Article, Legal Guardians/legislation & jurisprudence, Medical, Medical Futility/ethics/legislation & jurisprudence, Newborn, Pediatrics, Preschool, Risk Assessment/legislation & jurisprudence, Terminal Care/ethics/legislation & jurisprudence, Treatment Refusal/ethics/legislation & jurisprudence, United States, Withholding Treatment/ethics/legislation & jurisprudence
The relationship between grief adjustment and continuing bonds for parents who have lost a child
Tags: 2009, Adaptation, Adolescent, Adult, Attitude To Death, Backlog, Davies B, Female, Field NP, Grief, Humans, Infant, Interpersonal Relations, Journal Article, Kramer R, Life Change Events, Long JK, Male, Newborn, Object Attachment, Omega, Packman W, Parent-child Relations, Parents/psychology, Psychological, Quality Of Life, Questionnaires, Ronen R
The clinical and demographic characteristics of nonneuronopathic Gaucher disease in 887 children at diagnosis
Tags: 2006, Adolescent, AIM, Andersson HC, Anemia/et [Etiology], Archives Of Pediatrics & Adolescent Medicine, Backlog, Bone Diseases/et [Etiology], Child, Female, Gaucher Disease/co [Complications], Gaucher Disease/di [Diagnosis], Growth Disorders/et [Etiology], Hepatomegaly/et [Etiology], Humans, IM, Infant, Journal Article, Kacena KA, Kaplan P, Longitudinal Studies, Male, Newborn, Preschool, Q3 Scoping Review Results, Splenomegaly/et [Etiology], Thrombocytopenia/et [Etiology], Yee JD
Clinical and MRI correlates of cerebral palsy: the European Cerebral Palsy Study
Tags: 2006, Backlog, Bax M, Brain/pathology, Cerebral Palsy/epidemiology/etiology/physiopathology, Child, Cross-sectional Studies, Delivery, Female, Flodmark O, Humans, Infant, Infectious, JAMA, Journal Article, Magnetic Resonance Imaging, Male, Multiple, Newborn, Obstetric, Pregnancy, Pregnancy Complications, Premature, Preschool, Risk Factors, Tydeman C
Clinical characteristics and survival of trisomy 18 in a medical center in Taipei, 1988-2004.
Tags: 2006, Abnormalities, Adult, American Journal Of Medical Genetics.Part A, Backlog, Birth Weight, Brain Diseases/ultrasonography, Chang JH, Chen MR, Chen YJ, Child, Child Health Services/economics/organization & administration/statistics & numerical data, Chromosomes, Congenital/ultrasonography, Female, Gestational Age, Heart Defects, Ho CS, Hospitals, Hsu CH, Huang FY, Human, Humans, Hung HY, Infant, Journal Article, Kao HA, Karyotyping, Lee HC, Lin DS, Lin HY, Lin SP, Longitudinal Studies, Male, Maternal Age, Middle Aged, Multiple/genetics/mortality/pathology, Newborn, Pair 18/genetics, Paternal Age, Pregnancy, Prenatal Diagnosis, Preschool, Retrospective Studies, Shyur SD, Survival Analysis, Survival Rate, Taiwan, Time Factors, Trisomy/diagnosis/genetics, Ultrasonography/methods
Neonatal management of trisomy 18: Clinical details of 24 patients receiving intensive treatment.
Tags: 2006, American Journal Of Medical Genetics.Part A, Baba A, Backlog, Birth Weight, Cause Of Death, Children W/SNI, Chromosome Disorders/genetics/mortality/therapy, Chromosomes, Female, Fetal Diseases/diagnosis/genetics, Fukushima Y, Gestational Age, Human, Humans, Infant, Journal Article, Kawame H, Kosho T, Longitudinal Studies, Male, Nakamura T, Newborn, Pair 18/genetics, Pregnancy, Prenatal Diagnosis, Prognosis, Survival Analysis, Survival Rate, Tamura M, Trisomy/diagnosis/genetics
Menkes' kinky hair syndrome
Tags: 2005, Backlog, Cerebral Angiography, Ceruloplasmin/analysis, Copper/blood, George S, Histidine/administration & dosage/analogs & derivatives/therapeutic use, Humans, Indian Journal Of Pediatrics, Infant, Injections, Journal Article, Low Birth Weight, Male, Matthai SA, Menkes Kinky Hair Syndrome/blood/diagnosis/drug therapy/radiography, Newborn, Organometallic Compounds/administration & dosage/therapeutic use, Prognosis, Sosamma MM, Subcutaneous, Sukumaran TU
Trisomy 18 in neonates: prenatal diagnosis, clinical features, therapeutic dilemmas and outcome
Tags: 2006, Abnormalities, Backlog, Bober K, Central Nervous System/abnormalities, Chromosomes, Congenital/diagnosis/genetics/therapy, Female, Goc B, Heart Defects, Human, Humans, Infant, Journal Article, Journal Of Applied Genetics, Krzystolik-Ladzinska J, Longitudinal Studies, Multiple/diagnosis/genetics/mortality/therapy, Newborn, Pair 18, Poland/epidemiology, Pregnancy, Prenatal Diagnosis, Prognosis, Retrospective Studies, Swietlinski J, Trisomy, Walencka Z, Wiecek-Wlodarska D, Wloch A, Wojciechowska E
A literature review on off-label drug use in children
Tags: 2005, Adolescent, Adult, Age Factors, Backlog, Bonati M, Child, Clodronate, Community Health Services/statistics & numerical data, Drug Labeling/statistics & numerical data, Drug/statistics & numerical data, European Journal of Pediatrics, Hospitals, Humans, Infant, Journal Article, Legislation, Newborn, Pandolfini C, Pediatric/statistics & Numerical Data, Preschool, Prescriptions
Status quo of palliative care in pediatric oncology-a nationwide survey in Germany
Tags: 2005, Adolescent, Backlog, Brun S, Child, Data Collection, Female, Friedrichsdorf SJ, Germany/epidemiology, Home Care Services/statistics & numerical data/trends, Humans, Infant, Journal Article, Journal of Pain and Symptom Management, Location Of Death, Male, Medical Oncology/methods/trends, Menke A, Neoplasms/mortality/therapy, Newborn, Non-U.S. Gov't, Palliative Care/methods/statistics & numerical data/trends, Pediatrics/methods/trends, Physician's Practice Patterns/statistics & numerical data, Preschool, Research Support, Treatment Outcome, Wamsler C, Zernikow B
A retrospective, multinational, multicenter study on the natural history of infantile-onset Pompe disease
Tags: 2006, Artificial, Backlog, Cohort Studies, Corzo D, Disease Progression, Europe/epidemiology, Female, Glycogen Storage Disease Type II/complications/epidemiology/therapy, Humans, Hwu WL, Infant, Infantile-Onset Pompe Disease Natural History Study Group, Israel/epidemiology, Journal Article, Kishnani PS, Longitudinal Studies, Male, Mandel H, Newborn, Nicolino M, North America/epidemiology, Respiration, Retrospective Studies, Survival Rate, Taiwan/epidemiology, The Journal Of Pediatrics, Yong F
The natural history of medium-chain acyl CoA dehydrogenase deficiency in the Netherlands: clinical presentation and outcome
Tags: 2006, Acyl-CoA Dehydrogenase/deficiency/genetics, Adolescent, Adult, Backlog, Child, Cohort Studies, Derks TG, Disease Progression, Gerver WJ, Humans, Inborn Errors/complications/diagnosis/genetics, Infant, Journal Article, Longitudinal Studies, Metabolism, Middle Aged, Mutation/genetics, Netherlands, Newborn, Preschool, Prognosis, Reijngoud DJ, Retrospective Studies, Sauer PJ, Severity Of Illness Index, Smit GP, The Journal Of Pediatrics, van den Berg MP, Waterham HR
A scale to monitor progression and treatment of mitochondrial disease in children.
Tags: 2006, Adolescent, Backlog, Bugiani M, Child, Disability Evaluation, Disease Progression, Elson JL, Female, Great Britain, Humans, Infant, Journal Article, Longitudinal Studies, Male, McFarland R, Mitochondrial Diseases/diagnosis/therapy, Mitochondrial Encephalomyopathies/diagnosis/therapy, Morava E, Neurology/methods, Neuromuscular Disorders, Newborn, Observer Variation, Pediatrics/methods, Phoenix C, Predictive Value of Tests, Preschool, Prognosis, Q3 Scoping Review Results, Reproducibility of Results, Schaefer AM, Smeitink JA, Turnbull DM, Uziel G
The Groningen protocol--euthanasia in severely ill newborns
Tags: 2005, Backlog, Death and Euthanasia, Euthanasia/ethics/legislation & jurisprudence, Humans, Infant, Intensive Care/ethics/legislation & jurisprudence, Journal Article, Netherlands, Newborn, Practice Guidelines, Prognosis, Sauer PJ, The New England Journal Of Medicine, Third-Party Consent/legislation & jurisprudence, Verhagen E
Pediatric advance care planning.
Tags: 2005, 7 died at home and 2 died at a hospital. Eight of the children's advance directives were followed during the dying process, 9 are deceased, Advance Care Planning/og [Organization & Administration], Advance Care Planning/organization & Administration, Backlog, Child, DNAR, DNAR Outcomes, Female, Hammes BJ, Humans, including preserving their child's quality of life and avoiding unnecessary suffering., individuals in the community raised concerns about the child's advance directive. CONCLUSIONS: Even though the topic of their child's death is difficult, Infant, Interviews As Topic, Journal Article, Journal of Palliative Medicine, Kempf M, Klevan J, Male, Newborn, Parents/psychology, Parents/px [psychology], Pediatrics, PedPal Lit, Preschool, the majority of the interviewed parents found the advance care planning process for the child helpful because it assured the best care for the child, while 1 was not. Th irteen parents were interviewed. Twelve stated that the process of advance care planning benefited their children and their family. Rarely, Williams MS, Wisconsin
Palliative care for infants, children, adolescents, and their families
Tags: 2006, Adolescent, Backlog, Child, Decision Making, Ethics, Health Services Accessibility, Himelstein BP, Humans, Infant, Journal Article, Journal of Palliative Medicine, Medical, Newborn, Palliative Care, Parent caregivers, Pediatrics, Preschool, Professional-family Relations, Professional-patient Relations
Thinking outside the box: prenatal care and the call for a prenatal advance directive
Tags: 2005, Advance Directives/ethics/legislation & jurisprudence/psychology, Backlog, Catlin A, Decision Making/ethics Female Feminism Fetal Viability Humans Infant, Education, Ethics, Infant, Journal Article, Journal of Perinatal & Neonatal Nursing, legislation & jurisprudence, legislation & jurisprudence Intensive Care, legislation & jurisprudence Nurse's Role, legislation & jurisprudence Parents, Neonatal, Newborn, PedPal Lit, Premature Informed Consent, Prenatal Care/ethics/legislation & jurisprudence United States, psychology Mass Media Neonatal Nursing, psychology Parental Consent, psychology Practice Guidelines Pregnancy
Evidence for healing interventions with perinatal bereavement
Tags: 2005, Adaptation, Adult, Age Factors, Attitude To Death, Backlog, Bereavement, Capitulo KL, Child, Child Psychology, Evidence-based Medicine, Female, Funeral Rites, Funeral Rites/psychology, Health Services Needs And Demand, Helping Behavior, Humans, Infant, Intervention, Interventions, Journal Article, Male, Maternal-Child Nursing, Maternal-Child Nursing/organization & administration, Newborn, Nurse's Role, Nurse's Role/psychology, Nursing Evaluation Research, Parents, Parents/education/psychology, Professional-family Relations, Psychological, Self-Help Groups, Sex Factors, sibling bereavement, Social Support, Spirituality, Symbolism, The American Journal Of Maternal Child Nursing
Utilizing an oral sucrose solution to minimize neonatal pain
Tags: 2005, Administration, administration & dosage, adverse effects Treatment Outcome, Backlog, Diagnosis, Diseases, Drug Therapy, etiology, Journal Article, Journal for Specialists in Pediatric Nursing, methods Pain, Newborn, Newborn Infant, Nursing, nursing Pain Measurement Randomized Controlled Trials Risk Assessment Severity of Illness Index Sucrose, Oral Comparative Study Evidence-Based Medicine Female Follow-Up Studies Humans Infant, PedPal Lit, therapy Intensive Care Units Male Neonatal Nursing, Thompson DG
Incubation time required for neonatal blood cultures to become positive
Tags: 2006, Backlog, Bacteremia/blood/diagnosis/microbiology, Bacteriological Techniques/methods, Birth Weight, Blood/microbiology, Davies MW, Faoagali J, Humans, Infant, Jardine L, Journal Article, Journal of Paediatrics and Child Health, Newborn, Retrospective Studies, Sepsis/blood/diagnosis/microbiology, Time Factors
Gastrostomy tube feeding in children with cerebral palsy: a prospective, longitudinal study
Tags: 2005, Adolescent, Alder N, Anthropometry/methods, Bachlet AM, Backlog, Body Height/physiology, Cerebral Palsy/classification/nursing/surgery, Child, Child Development/physiology, Demography, Developmental Medicine and Child Neurology, Eltumi M, Enteral Nutrition/methods, Female, Gastrostomy/methods, Grant HW, Head/growth & development, Humans, Infant, Journal Article, Juszczak E, Lambert B, Longitudinal Studies, Male, McLean L, Newborn, Nutritional Status/physiology, Preschool, Retrospective Studies, Sullivan P, Thomas AG, Time Factors, Treatment Outcome, Vernon-Roberts A, Weight Gain/physiology
Childhood idiopathic thrombocytopenic purpura in the Nordic countries: epidemiology and predictors of chronic disease
Tags: 2005, Acta Paediatrica, Acute Disease/epidemiology, Adolescent, Backlog, Child, Chronic Disease/epidemiology, Female, Finland/epidemiology, Hedlund-Treutiger I, Hemorrhage/epidemiology/etiology, Henter JI, Humans, Iceland/epidemiology, Idiopathic/complications/diagnosis/epidemiology, Incidence, Infant, Jonsson OG, Journal Article, Male, Newborn, Nonparametric, NOPHO ITP, Preschool, Prognosis, Prospective Studies, Purpura, Rajantie J, Risk Factors, Scandinavia/epidemiology, Statistics, Tedgard U, Thrombocytopenic, Wesenberg F, Zeller B
Sleep disturbance in Sanfilippo syndrome: a parental questionnaire study
Tags: 2005, Adolescent, Adult, Age of Onset, Archives of Disease in Childhood, Backlog, Behavior Therapy, Child, Delatycki MB, Fraser J, Gason AA, Humans, Incidence, Infant, Journal Article, Melatonin/therapeutic use, Mucopolysaccharidosis III/psychology, Newborn, Preschool, Q3 Scoping Review Results, Questionnaires, Sleep Disorders/epidemiology/etiology/therapy, Treatment Outcome, Wraith JE
Death in the neonatal intensive care unit: changing patterns of end of life care over two decades
Tags: 2006, Archives of Disease in Childhood. Fetal and Neonatal Edition, Backlog, Campbell NT, Cause of Death/trends, Chromosome Aberrations, Dargaville PA, Diseases/mortality, Fitzsimons JJ, Hospital Mortality/trends, Humans, Infant, Infant Mortality/trends, Intensive Care, Intensive Care Units, Journal Article, Loughnan PM, McDougall PN, Medical Audit, Mills JF, Neonatal/trends, Neural Tube Defects/mortality, Newborn, Premature, Prognosis, Terminal Care/trends, Victoria/epidemiology, Wilkinson DJ, Withholding Treatment/trends
Socioeconomic differences in childhood hospital inpatient service utilisation and costs: prospective cohort study
Tags: 2005, Backlog, Child, England, Epidemiologic Methods, Female, Health Services Research, Hospital Costs/statistics & numerical data, Hospitalized/classification/statistics & numerical data, Hospitals/utilization, Humans, Infant, Journal Article, Journal Of Epidemiology And Community Health, Kupek E, Length Of Stay/statistics & Numerical Data, Male, Newborn, Non-U.S. Gov't, Petrou S, Preschool, Prospective Studies, Research Support, Social Class, Socioeconomic Factors
Unusual clinical presentations in four cases of Leigh disease, cytochrome C oxidase deficiency, and SURF1 gene mutations
Tags: 2005, Akman HO, Backlog, Bonilla E, Cytochrome-c Oxidase Deficiency/complications/genetics/pathology, De Vivo DC, DiMauro S, DNA Mutational Analysis, Female, Frameshift Mutation, Humans, Infant, Journal Article, Journal of Child Neurology, Kidney Diseases/etiology, Leigh Disease/complications/genetics/pathology, Male, Membrane Proteins, Mitochondrial Proteins, Morales A, Morales JF, Muscle, Newborn, Phenotype, Proteins/genetics, Q3 Scoping Review Results, Sacconi S, Shanske S, Skeletal/pathology, Tay SK
Parent and physician perspectives on quality of care at the end of life in children with cancer
Tags: 2005, Adolescent, Adult, Backlog, Child, Communication, Extramural, Female, Grier HE, Health Care Surveys, Hilden JM, Humans, Infant, Journal Article, Journal Of Clinical Oncology, Mack JW, Male, Moore C, N.I.H., Newborn, Non-U.S. Gov't, Odds Ratio, Pain, Parent-child Relations, Physician-patient Relations, Physicians/standards, Preschool, Quality Of Health Care, Quality Of Life, Research Support, Terminal Care/standards, Turner B, Watterson J, Weeks JC, Wolfe J
Retrospective, multicentric study of 180 children with cytochrome C oxidase deficiency
Tags: 2006, Adolescent, Backlog, Bohm M, Carrier Proteins, Child, Cytochrome-c Oxidase Deficiency/diagnosis/genetics/mortality, Czech Republic, DNA, Female, Hansikova H, Houstek J, Houstkova H, Humans, Infant, Journal Article, Karczmarewicz E, Male, Membrane Proteins, Mierzewska H, Mitochondrial Proteins, Mitochondrial/genetics, Mutation, Newborn, Pediatric Research, Piekutowska-Abramczuk D, Poland, Preschool, Prognosis, Pronicka E, Pronicki M, Proteins/genetics, Q3 Scoping Review Results, Sequence Deletion, Slovakia, Sykut-Cegielska J, Tesarova M, Vesela K, Zeman J
Disease severity in children and adults with Pompe disease related to age and disease duration
Tags: 2005, 80 And Over, Activities of Daily Living, Adolescent, Adult, Age Factors, Age of Onset, Aged, Artificial/statistics & numerical data, Backlog, Child, Cross-sectional Studies, Disease Progression, Female, Glycogen Storage Disease Type II/diagnosis/epidemiology/physiopathology, Hagemans ML, Hop WC, Humans, Infant, Journal Article, Male, Middle Aged, Muscle, Neurology, Newborn, Preschool, Q3 Scoping Review Results, Questionnaires, Respiration, Respiratory Insufficiency/epidemiology/etiology/therapy, Reuser AJ, Severity Of Illness Index, Skeletal/physiopathology, Van der Ploeg AT, Van Doorn PA, Wheelchairs/statistics & numerical data, Winkel LP
Seeking and using families' views to shape children's hospice services
Tags: 2005, Adolescent, Adult, Backlog, Child, Child Health Services/organization & administration, Consumer Satisfaction, Female, Focus Groups, Great Britain, Health Care, Hospice Care/organization & administration, Humans, Infant, International Journal of Palliative Nursing, Journal Article, Male, Maynard L, Needs Assessment, Newborn, Parents, Preschool, Professional-family Relations, Quality Assurance, Rennie T, Shirtliffe J, Vickers D