Browse Items (52 total)
- Tags: Caregivers/psychology
A community survey of children with severe intellectual disability and their families: psychological adjustment, carer distress and the effect of respite care
Tags: 1998, Adaptation, Backlog, Caregivers/psychology, Child, Community Mental Health Services, Family/psychology, Female, Harris M, Hoare P, Humans, Jackson P, Journal Article, Journal Of Intellectual Disability Research, Kerley S, Male, Mental Retardation/diagnosis, Parent caregivers, Psychological, Psychological/psychology, Questionnaires, Respite Care, Severity Of Illness Index, Social Adjustment, Stress
A Qualitative Investigation of Fathers' Experiences of Looking After a Child with a Life-Limiting Illness, In Process and In Retrospect
Tags: 2007, Adaptation, Adult, Attitude To Death, Backlog, Caregivers/psychology, Child, Chronic Disease/psychology, Clinical Child Psychology And Psychiatry, father experience, Father-child Relations, Fathers/psychology, Female, Gender Identity, Grief, Home Nursing/psychology, Humans, Interview, Journal Article, Life Change Events, Male, Marriage/psychology, Palliative Care/psychology, Professional-family Relations, Psychological, Raval H, Social Support, Terminal Care/psychology, Ware J
A Tertiary Care-based Complex Care Program: Improving Care for Children With Medical Complexity
Tags: 2020, Aredas BL, Caregivers/psychology, Case Management/organization & administration, Child, Child Preschool, Dye M, Emergency Service Hospital/statistics & numerical data, English R, February 2021 List, Galligan MM, Hogan AK, Hospitalization/statistics & numerical data, Humans, Infant, Infant Newborn, Leach KF, Length Of Stay, Medical Care, Multiple Chronic Conditions/therapy, Patient Acceptance Of Health Care/statistics & Numerical Data, Patient Care Team/organization & administration, Patient Satisfaction, Quality Improvement/organization & administration, Rubin D, Stack NJ, Tertiary Healthcare/economics/organization & administration
Adaptational process of parents of pediatric oncology patients
Tags: 2000, Adaptation, Adolescent, Adult, Aged, Backlog, Caregivers/psychology, Chen ML, Child, Data Collection, Family Health, Family Relations, Female, Humans, Infant, Journal Article, Lee TT, Li W, Male, Middle Aged, Neoplasms/psychology, Non-U.S. Gov't, Parents/psychology, Pediatric Hematology And Oncology, Preschool, Psychological, Religion, Research Support, Social Support, Stress, Taiwan/ethnology, Yeh CH
At the crossroads: making the transition to hospice
Tags: 2004, Adult, Aged, Backlog, Bradley E, Caregivers/psychology, Cherlin E, Connecticut, Curry L, Decision Making, Family Relations, Female, Hospice Care/psychology, Humans, Interpersonal Relations, Johnson-Hurzeler R, Journal Article, Male, McCorkle R, Middle Aged, Narration, Neoplasms/nursing, Non-P.H.S., Non-U.S. Gov't, Palliative & Supportive Care, Palliative Care/psychology, Parent-child Relations, Questionnaires, Research Support, Schulman-Green D, U.S. Gov't
Attitudes toward limitation of support in a pediatric intensive care unit
Tags: 2000, Backlog, Caregivers/psychology, Child, Critical Care Medicine, Cummings P, Diekema DS, Ethics, Euthanasia, Female, Humans, ICU Decision Making, Intensive Care Units, Journal Article, Keenan HT, Life Support Care/psychology, Male, Medical, Medical Futility, O'Rourke PP, Passive/psychology, Patient Care Team, Pediatric, Prospective Studies, Quality Of Life, Resuscitation Orders/psychology, Woodrum DE
Caregiver Perceptions about their Decision to Pursue Tracheostomy for Children with Medical Complexity
Tags: 2018, Adolescent, Adult, Caregivers/psychology, Child, Child Preschool, Death, Decision Making, Decision-making, Disabled Children, Female, Golden SL, Gower WA, Grandparents/psychology, home care services, Humans, Infant, Journal of Pediatrics, King NMP, Life-sustaining treatments, Male, May 2019 List, Middle Aged, Nageswaran S, Outcomes, Parents/psychology, Pediatrics, Qualitative Research, Quality Of Life, Tracheostomy, Young Adult
Caregivers' perceptions following gastrostomy in severely disabled children with feeding problems
Tags: 1997, Adolescent, Adult, Attitude To Health, Backlog, Caregivers/psychology, Child, Clarke M, Cost Of Illness, Developmental Disabilities/complications, Developmental Medicine and Child Neurology, Dickson A, Eating Disorders/etiology/therapy, Female, Fundoplication, Gastrostomy, Humans, Infant, Journal Article, Male, Nutritional Failure, Parents/psychology, Preschool, Psychological/psychology, Q3 Scoping Review Results, Quality Of Life, Questionnaires, Stress, Tawfik R, Thomas AG, Time Factors, Treatment Outcome
Caregiving process and caregiver burden: conceptual models to guide research and practice.
Tags: 2004, Adaptation, Backlog, Bmc Pediatrics, Brehaut J, Caregivers/psychology, Child, Disabled Children, Humans, Journal Article, King G, King S, Longitudinal Studies, Models, Non-U.S. Gov't, O'Donnell ME, Parents/psychology, Psychological, Raina P, Research Support, Rosenbaum P, Russell D, Schwellnus H, Stress, Swinton M, Walter SD, Wong M, Wood E
Caregiving stress, immune function, and health: implications for research with parents of medically fragile children
Changing geographies of care: employing the concept of therapeutic landscapes as a framework in examining home space
Tags: 2002, Aged, Backlog, Caregivers/psychology, Cost-Benefit Analysis, Delivery of Health Care/trends, Female, Geography, Home Nursing/economics/psychology, Hospitalization, Humans, Journal Article, Non-U.S. Gov't, Patient-centered Care, Psychology, Research Support, Self Concept, Social, Social Change, Social Environment, Social Responsibility, Social science & medicine, Williams A, Women/psychology
Coping with Dravet syndrome: parental experiences with a catastrophic epilepsy
Tags: 2006, Adaptation, Adolescent, Adult, Backlog, Camfield CS, Camfield PR, Caregivers/psychology, Child, Chronic Disease, Developmental Medicine and Child Neurology, Epilepsy/nursing/psychology, Family Health, Female, Humans, Journal Article, Male, Middle Aged, Nolan KJ, Parent-child Relations, Parents/psychology, Preschool, Psychological, Psychological/psychology, Q3 Scoping Review Results, Seizures/nursing/psychology, Severity Of Illness Index, Social Isolation, Social Support, Stress, Syndrome
Disease trajectories and ACT/RCPCH categories in paediatric palliative care
Tags: 2010, Attitude To Health, Backlog, Barnes E, Caregivers, Caregivers/psychology, Child, Disease Progression, Family, Family/psychology, Female, Focus Groups, Hain R, Humans, Interviews As Topic, Journal Article, Male, Palliative Care, Palliative Care/psychology, Palliative Medicine, PEDI Study, Professional-family Relations, Qualitative Research, Simpson S, Wales, Wood F
Do positive psychological states shed light on recovery from bereavement? Findings from a 3-year longitudinal study
Tags: 2003, Acree M, Adaptation, Backlog, Bereavement, California, Caregivers/psychology, Death studies, Depression, Folkman S, Health Status, HIV Infections/mortality/psychology, Homosexuality, Humans, Journal Article, Longitudinal Studies, Male, Male/psychology, Moskowitz JT, Psychological, Social Support, United States
Evidence for improving palliative care at the end of life: a systematic review
Tags: 2008, Advance Care Planning/standards, Annals Of Internal Medicine, Backlog, Caregivers/psychology, Continuity of Patient Care/standards, Depression/therapy, Dy SM, Dyspnea/therapy, Hilton LK, Hughes RG, Humans, Journal Article, Lorenz KA, Lynn J, Maglione M, Morton SC, Mularski RA, Pain/therapy, Palliative Care/standards, Patient Care Team/standards, RDF Project, Referral And Consultation, Rhodes SL, Rolon C, Shekelle PG, Shugarman LR, Social Support, Sun VC, Wilkinson A
Evidence-based interventions to improve the palliative care of pain, dyspnea, and depression at the end of life: a clinical practice guideline from the American College of Physicians
Tags: 2008, Advance Care Planning/standards, Annals Of Internal Medicine, Assessment Subcommittee of the American College of Physicians Clinical Efficacy, Backlog, Caregivers/psychology, Casey DE, Continuity of Patient Care/standards, Cross JT, Dallas P, Depression/therapy, Dolan NC, Dyspnea/therapy, Forciea MA, Halasyamani L, Hopkins RH, Humans, Intervention, Interventions, Journal Article, Owens DK, Pain/therapy, Palliative Care/standards, Patient Care Team/standards, Qaseem A, Referral And Consultation, Shekelle PG, Snow V, Social Support
Experiencing transitions: an emerging middle-range theory
Tags: 2000, Adaptation, Advances in Nursing Science, Attitudes, Backlog, Caregivers/psychology, Cultural Diversity, Emigration and Immigration, Family/psychology, Health Care, Health Knowledge, Health Status, Helping Behavior, Hilfinger Messias DK, Humans, Im EO, Journal Article, Life Change Events, Meleis AI, Menopause/psychology, Nursing Care/methods/psychology/standards, nursing theory, Outcome And Process Assessment (health Care), Parenting/psychology, Practice, Psychological, Psychological Theory, Quality Indicators, Quality Of Life, Sawyer LM, Schumacher K
Family focused grief therapy: a randomized, controlled trial in palliative care and bereavement
Tags: 2006, Adult, Backlog, Bereavement, Bloch S, Caregivers/psychology, Depressive Disorder/therapy, Family Health, Family Relations, Family Therapy/methods, Family/psychology, Female, Follow-up Studies, Grief, Humans, Journal Article, Kissane DW, Longitudinal Studies, Male, McKenzie DP, McKenzie M, Middle Aged, Moskowitz C, O'Neill I, Palliative Care, Personality Inventory, Psychological/therapy, Social Adjustment, SSHRC CURA, Stress, Terminal Care, The American Journal Of Psychiatry, Treatment Outcome
Family function in families of children with Duchenne muscular dystrophy
Tags: 2007, Adaptation, Adult, Age Factors, Backlog, Caregivers/psychology, Chen JY, Child, Clark MJ, Cost Of Illness, Cross-sectional Studies, Disabled Children, Duchenne/economics/physiopathology, Family & Community Health, Family Health, Family Relations, Female, Humans, Journal Article, Male, Middle Aged, Muscular Dystrophy, Parents/psychology, Preschool, Psychological, Questionnaires, Sickness Impact Profile, Social Support, Socioeconomic Factors, Stress, Taiwan
Final transitions: family caregiving at the end of life
Tags: 2005, 80 And Over, Aged, Backlog, Caregivers/psychology, Female, Finn W, Humans, Interviews, Journal Article, Journal of Palliative Medicine, Kramer BJ, Male, Middle Aged, Milch RA, Non-U.S. Gov't, Psychological/etiology, Research Support, Skretny JA, Stress, Terminal Care, United States, Waldrop DP
Gender differences in burden and depression among informal caregivers of demented elders in the community
Tags: 2002, Adult, Aged, Alzheimer Disease/psychology, Backlog, Baumgarten M, Canada, Caregivers/psychology, Cost Of Illness, Cross-sectional Studies, Depressive Disorder/diagnosis/epidemiology/psychology, Female, Gallicchio L, Gender Identity, Humans, International Journal Of Geriatric Psychiatry, Journal Article, Langenberg P, Male, Middle Aged, Non-U.S. Gov't, Research Support, Siddiqi N
Grandma's hands: parental perceptions of the importance of grandparents as secondary caregivers in families of children with disabilities
Tags: 2001, Adult, Aged, Attitude To Health, Backlog, Caregivers/psychology, Child, Disabled Children/psychology, Family Relations, Florida, Green SE, Home Nursing/manpower/psychology, Humans, Intergenerational Relations, International Journal Of Aging & Human Development, Journal Article, Middle Aged, Parent caregivers, Parent-child Relations, Parents/psychology, Preschool, Questionnaires, Social Support, Socioeconomic Factors
Impact of caring for a child with cancer on parents' health-related quality of life
Tags: 2008, Adolescent, Backlog, Canada, Caregivers/psychology, Child, Dix D, Female, Health Status, Humans, Infant, Journal Article, Journal Of Clinical Oncology, Klaassen R, Klassen AF, Male, Neoplasms/nursing, O'Donnell ME, Parents/psychology, Preschool, Pritchard S, Quality Of Life, Questionnaires, Scott A, Sung L, Yanofsky R
Improving estimates of caregiver time cost and family impact associated with birth defects
Issues in end-of-life care: patient, caregiver, and clinician perceptions
Tags: 2003, 80 And Over, Adult, Aged, Attitude Of Health Personnel, Attitude To Death, Backlog, Caregivers/psychology, Cohort Studies, Cost Of Illness, Egnew TR, Family/psychology, Farber SJ, Female, Guldin GE, Herman-Bertsch JL, Humans, Interpersonal Relations, Interviews, Journal Article, Journal of Palliative Medicine, Male, Middle Aged, Non-U.S. Gov't, Palliative Care/psychology, Patients/psychology, Physicians, Qualitative Research, Quality Of Health Care, Research Support, Taylor TR, Terminal Care/psychology, Washington
Living with cerebral palsy and tube feeding: A population-based follow-up study
Tags: 1999, Activities of Daily Living, Adaptation, Adolescent, Adult, Attitude To Health, Backlog, Camfield C, Camfield P, Caregivers/psychology, Cerebral Palsy/mortality/psychology/therapy, Child, Community Health Planning, Enteral Nutrition/adverse effects/psychology, Follow-up Studies, Gastrostomy/adverse effects/psychology, Humans, Infant, Jejunostomy/adverse effects/psychology, Journal Article, Nova Scotia/epidemiology, Nutritional Failure, Parents/psychology, Precipitating Factors, Preschool, Psychological, Quality Of Life, Questionnaires, Smith SW, Survival Analysis, The Journal Of Pediatrics
Managing end-of-life care: comparing the experiences of terminally Ill patients in managed care and fee for service
Tags: 2002, 80 And Over, Adolescent, Adult, Aged, Backlog, Bottorff D, Caregivers/psychology, Comparative Study, Death and Euthanasia, Emanuel EJ, Emanuel LL, Empirical Approach, Fairclough D, Fee-for-Service Plans, Female, Health Care and Public Health, Health Services Accessibility, Health Services/utilization, Humans, Journal Article, Journal Of The American Geriatrics Society, Male, Managed Care Programs, Middle Aged, Non-U.S. Gov't, Outcome Assessment (health Care), Physician-patient Relations, Professional Patient Relationship, Research Support, Slutsman J, Terminal Care/economics
Meaning in caregiving and its contribution to caregiver well-being.
Tags: 1997, 80 And Over, Adult, Aged, Backlog, Caregivers/psychology, Child, Comparative Study, Disabled Persons, Education, Emotions, Female, Frail Elderly, Gerontologist, Home Nursing, Humans, Income, Interviews, Journal Article, Longitudinal Studies, Male, Middle Aged, Noonan AE, P.H.S., Regression Analysis, Research, Research Support, Spouses, Tennstedt SL, Time Factors, U.S. Gov't
Mental and physical health of spouse caregivers: the role of personality
Tags: 1992, Adaptation, Aged, Alzheimer Disease/psychology, Arousal, Backlog, Caregivers/psychology, Dementia/psychology, Female, Hooker K, Humans, Hutchinson C, Journal Article, Male, Monahan D, Neurotic Disorders/psychology, Non-U.S. Gov't, P.H.S., Personality Inventory, Psychological, Psychological/complications, Psychology And Aging, Research Support, Shifren K, Sick Role, Stress, U.S. Gov't
Pediatric out-of-hospital deaths following hospital discharge: a mixed-methods study
Tags: 2016, African Health Sciences, Ansermino JM, Caregivers/psychology, Child, Child Mortality, Communicable Diseases/ mortality, Educational Status, English L, Female, Health Services Accessibility/ statistics & numerical data, Humans, Infant, Infant Mortality, infectious diseas, Kabakyenga J, Kissoon N, Kiwanuka J, Kumbakumba E, Larson CP, Length Of Stay, Logistic Models, Male, March 2018 List, Patient Acceptance of Health Care/psychology, Patient Discharge/ statistics & numerical data, Pediatrics, post-discharge mortality, Preschool, Qualitative interviews, Singer J, Time Factors, uganda, Uganda/epidemiology, Water Supply, Wiens MO, Wong H
Perceptions Of The Pediatric Hospice Experience Among English- And Spanish-speaking Families
Many children who die are eligible for hospice enrollment but little is known about parental perceptions of the hospice experience, the benefits, and disappointments. The objective of this study was to explore parental perspectives of the…
Tags: 2016, Adolescent, Adult, Attitude To Death/ethnology, Caregivers/psychology, Child, Child Preschool, Communication, Ethnic Groups/psychology, European Continental Ancestry, Family/psychology, Female, Funes M, Group/psychology, Hispanic Americans/psychology, Hospice Care/psychology, Humans, Infant, Journal of Palliative Medicine, Lee SC, Male, Marks E, Martinez-Puente LM, Middle Aged, Neoplasms/nursing, Neoplasms/psychology, October 2016 List, Thienprayoon R, Winick N, Young Adult
Perinatal loss. A critique of current hospital practices
Tags: 1992, Backlog, Bereavement, Caregivers/psychology, Clinical Pediatrics, Clinical Protocols, Female, Fetal Death, Grief, Hospital/psychology, Hospitals, Humans, Infant, Journal Article, Leon IG, Male, Newborn, Parent-child Relations, Parents/psychology, perinatology, Personnel, Professional-family Relations
Physical and mental health of mothers caring for a child with Rett syndrome
Tags: 2006, Adolescent, Adult, Backlog, Bone/etiology/nursing, Bower C, Caregivers/psychology, Child, de Klerk N, Disabled Children, Emotions, Employment, Family Health, Family Relations, Female, Fractures, Health Status, Humans, Journal Article, Laurvick CL, Leonard H, Male, Mental Health, Middle Aged, Mother-child Relations, Msall ME, Pediatrics, Preschool, Psychological, Rett Syndrome/complications/nursing, Silburn S, Social Support, Stress, Telemeres
Physical functioning in female caregivers of children with physical disabilities compared with female caregivers of children with a chronic medical condition
Tags: 2002, Adult, Aged, Archives Of Pediatrics & Adolescent Medicine, Back Pain/etiology, Backlog, Caregivers/psychology, Child, Chronic Disease, Cross-sectional Studies, Depression/etiology, Disabled Persons, Female, Haig AJ, Humans, Journal Article, Kandala G, Middle Aged, Mothers/psychology, Nelson VS, Physical Fitness, Regression Analysis, Shin KY, Tong HC, Yamakawa KS
Place of death: preferences among cancer patients and their carers
Tags: 2004, 80 And Over, Adult, Aged, Attitude To Death, Backlog, Caregivers/psychology, Clark D, Cohort Studies, Comparative Study, Female, Great Britain, Hospice Care/standards/trends, Humans, Journal Article, Location Of Death, Longitudinal Studies, Male, Middle Aged, Morris SM, Neoplasms/mortality/therapy, Non-U.S. Gov't, Patient Satisfaction, Research Support, Social science & medicine, Terminally Ill, Thomas C
Positive aspects of caregiving: rounding out the caregiver experience
Tags: 2002, 80 And Over, Activities of Daily Living/psychology, Adult, Aged, Alzheimer Disease/psychology, Backlog, Canada, Caregivers/psychology, Cohen CA, Colantonio A, Cost Of Illness, Depressive Disorder/diagnosis/psychology, Female, Humans, International Journal Of Geriatric Psychiatry, Journal Article, Male, Middle Aged, Motivation, Non-U.S. Gov't, Personality Inventory, Research Support, Vernich L
Positive psychological states and coping with severe stress
Postbereavement depressive mood and its prebereavement predictors in HIV+ and HIV- gay men
Tags: 1996, Acquired Immunodeficiency Syndrome/psychology, Adaptation, Adult, Backlog, Bereavement, Boccellari A, Caregivers/psychology, Chesney M, Collette L, Cooke M, Depression/diagnosis/psychology, Folkman S, Follow-up Studies, HIV Seropositivity/psychology, Homosexuality, Humans, Journal Article, Journal Of Personality And Social Psychology, Male, Male/psychology, Middle Aged, P.H.S., Personality Inventory, Psychological, Research Support, Risk Factors, San Francisco, Sick Role, U.S. Gov't
Posttraumatic growth in parents caring for a child with a life-limiting illness: A structural equation model.
Tags: 2014, Adult, Aged, Cadell S, Caregivers/psychology, Child, Davies E, Disabled Children/psychology, Hemsworth D, Human Development, Humans, Liben S, Male, Middle Aged, Models Psychological, Palliative Care/psychology, Parents/psychology, Siden H, Smit QT, Steele R, Straatman L, The American Journal Of Orthopsychiatry, Young Adult