A community survey of children with severe intellectual disability and their families: psychological adjustment, carer distress and the effect of respite care

Title

A community survey of children with severe intellectual disability and their families: psychological adjustment, carer distress and the effect of respite care

Creator

Hoare P; Harris M; Jackson P; Kerley S

Publisher

Journal Of Intellectual Disability Research

Date

1998

Subject

Child; Female; Humans; Male; Questionnaires; Severity of Illness Index; Social Adjustment; Respite Care; Stress; Adaptation; Psychological; Caregivers/psychology; Family/psychology; Parent caregivers; Psychological/psychology; Community Mental Health Services; Mental Retardation/diagnosis

Description

The present paper describes a cross-sectional study of the psychosocial adjustment of 143 children with severe disability and their families identified from a regional case register for children with special needs. Thirty-eight per cent of the children had significant psychiatric morbidity. By contrast, the overall level of distress in carers was not that different from probable community prevalence figures. Nevertheless, distress among carers was consistently associated with increased disability in the child. Although respite care is a valuable resource for many carers, its use is indicative of underlying distress in the carer.
1998

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Type

Journal Article

Citation List Month

Backlog

Pages

218-227

Volume

42 ( Pt 3)

Citation

Hoare P; Harris M; Jackson P; Kerley S, “A community survey of children with severe intellectual disability and their families: psychological adjustment, carer distress and the effect of respite care,” Pediatric Palliative Care Library, accessed July 2, 2022, https://pedpalascnetlibrary.omeka.net/items/show/12143.

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