Browse Items · Pediatric Palliative Care Library

Community resources for children with special healthcare needs

1997

Tags: 1997, Backlog, Blasco PA, Child, Chronic Disease, Community Health Services, Family/psychology, Health Services Needs And Demand, Humans, Information Services, Johnson CP, Journal Article, Pediatric Annals, Pediatrics/organization & Administration, Physician's Role, Social Support, United States

Palliative care for children.

This statement presents an integrated model for providing palliative care for children living with a life-threatening or terminal condition. Advice on the development of a palliative care plan and on working with parents and children is also…

Tags: 2000, American Academy of Pediatrics, American Academy of Pediatrics Committee on Hospital Care, Backlog, Child, Committee on Bioethics, Death and Euthanasia, Humans, Infant, Journal Article, Longitudinal Studies, Palliative Care, Pediatrics, Practice Guidelines, Preschool, Terminal Care, United States

Advancing social work practice in end-of-life care

Insufficient training of health professionals has often been cited as a major barrier to improving the system of care for dying patients and for the bereaved. Although specific problems have been identified for physicians and nurses, the problems of…

Tags: 1999, Backlog, Bereavement, Christ GH, Continuing, Education, Focus Groups, Health Care Surveys, Humans, Journal Article, New Jersey, New York City, Palliative Care, Social Work in Health Care, Social Work/education, Sormanti M, Terminal Care, United States

Health-related, help-seeking behaviors in female Mexican-American adolescents

PURPOSE: To explore and describe the health-related, help-seeking behaviors of young female Mexican-American adolescents. DESIGN: Qualitative exploratory-descriptive design using focus groups. SETTING: Community recreation centers. PARTICIPANTS: 18…

Tags: 1997, Adolescent, Adolescent Health Services, Backlog, Child, Female, Focus Groups, Health Behavior, Health Promotion, Health Services Needs And Demand, Hispanic Americans, Humans, Journal Article, Journal Of The Society Of Pediatric Nurses, Mexico/ethnology, Pregnancy, Rew L, Sex Education, United States

Transition from pediatric to adult-oriented health care: a challenge for patients with chronic disease

Pediatric providers can expect that 1 of every 10 patients they see will have a chronic, activity-limiting health condition. Thanks to earlier diagnosis and improved therapies, most of these children will live well into adulthood. This means that…

End-of-life care in the intensive care unit: a research agenda.

BACKGROUND: The intensive care unit (ICU) represents a unique clinical setting in which mortality is relatively high and the professional culture tends to be one of "rescue therapy" using technological and invasive interventions. For these reasons,…

End-of-life care in the pediatric intensive care unit: attitudes and practices of pediatric critical care physicians and nurses

OBJECTIVE: To determine the attitudes and practices of pediatric critical care attending physicians and pediatric critical care nurses on end-of-life care. DESIGN: Cross-sectional survey. SETTING: A random sample of clinicians at 31 pediatric…

Variability among institutional review boards' decisions within the context of a multicenter trial

BACKGROUND: Institutional review boards (IRBs) are given discretion to interpret and apply the federal regulations governing the protection of human subjects in research. OBJECTIVE: To determine the extent of the variability among different IRBs on…

Relationship of illness severity and length of stay to functional outcomes in the pediatric intensive care unit: a multi-institutional study

OBJECTIVE: The purpose of this study was to establish relationships between illness severity, length of stay, and functional outcomes in the pediatric intensive care unit (PICU) by using multi-institutional data. We hypothesized that a positive…

Experiences of mothers in five countries whose child died of cancer

Although increasing attention is being focused on the emotional aspects of caring for dying children and their families, few research reports concentrate on the experiences of mothers, particularly in different countries. This article describes the…

Hospice social work: a search for identity

This article describes social work's contribution to hospice philosophy and practice, calls attention to the lack of a distinct social work function on hospice teams, and examines various ways to resolve the problem of social work identity in hospice…

Tags: 1991, Aged, Backlog, Health & Social Work, Hospice Care/psychology, Hospices/trends, Humans, Journal Article, MacDonald D, Philosophy, Role, Social Work, United States

NHPCO Task Force Statement on the Ethics of Hospice Participation in Research

There is an urgent need for robust empirical data to guide the assessment and treatment of patients near the end of life. Because they are important providers of end-of-life care in this country, hospices have an important role to play in…

Laboratory integration and utilization of tandem mass spectrometry in neonatal screening: a model for clinical mass spectrometry in the next millennium

Clinical and neonatal screening methods using a tandem mass spectrometer are clearly a model for modern laboratory testing in the new Millennium. By the year 2000, more than 1 million blood and plasma samples will have been tested in laboratories…

Comparing parent loss with sibling loss

The death of a loved one is a traumatic loss for children, but little attention has been paid to how children's responses vary according to who died--a parent or a sibling. This article reports the findings of a comparison between children's…

Spiritual aspects of loss among partners of men with AIDS: postbereavement follow-up

This article is a follow-up study of bereaved caregiving male partners of men with AIDS (T.A. Richards & S. Folkman, 1997). The earlier study examined spiritual beliefs, experiences, and practices reported in interviews with 125 caregivers conducted…

The deceased child in the psychic and social worlds of bereaved parents during the resolution of grief

A core dynamic by which grief is resolved by parents in Bereaved Parents, a self-help group, is a series of transformations of the inner representation of the dead child in the parent's inner world and in the parent's social world. As the reality of…

Tags: 1997, Backlog, Bereavement, Death studies, Humans, Journal Article, Klass D, Parent-child Relations, Parents/psychology, Self-Help Groups, Social Values, SSHRC CURA, United States

Bereavement and mourning in pediatric rehabilitation settings

Developmental changes in children's acquisition of death concepts and in their emotional reactions are reviewed. Moderating variables that may affect the nature of grieving processes after parental or sibling death are discussed, including…

Tags: 1993, Attitude To Death, Backlog, Bereavement, Brain Injuries, Child, Death studies, Donders J, Hospitalized, Humans, Journal Article, Male, Parents, Preschool, Rehabilitation Centers, sibling bereavement, Sibling Relations, United States

Rethinking the role of tube feeding in patients with advanced dementia

New antiepileptic drugs

1996

Tags: 1996, Anticonvulsants/adverse effects/contraindications/therapeutic use, Backlog, Brodie MJ, Canada, Dichter MA, Drug Approval, Drugs, Europe, Humans, Investigational, Japan, Journal Article, The New England Journal Of Medicine, United States

Evidence-based approach to the medical literature

Adolescent girls' and boys' preferences for provider gender and confidentiality in their health care

PURPOSE: To assess the influence of demographic variables and health risk status on adolescents' preferences and actual receipt of services regarding provider gender, sharing a physician with parents, and private examinations. METHODS: Data from…

Trends in transition from pediatric to adult health care services for young adults with chronic conditions

PURPOSE: The rationale underlying this study was the need to move the transition health services model from a theoretical framework to an empirically-based investigation. Thus, it was necessary to identify programs for youth with chronic or disabling…

Health care access and utilization among pregnant adolescents

PURPOSE: To assess access to and use of health care by adolescents prior to their becoming pregnant. METHODS: An interviewer-administered questionnaire was completed by all pregnant adolescents (n = 65) entering the Rochester Adolescent Maternity…

Health care information sources for adolescents: age and gender differences on use, concerns, and needs

OBJECTIVES: To assess adolescents' sources of health care information, explore beliefs about topics which health care providers should address and about those which have been addressed, and identify topics that are embarrassing for adolescents to…

The multiple meanings of long-term gastrostomy in children with severe disability

Although the physiological implications of long-term gastrostomy for children with severe disability are well documented in the nursing literature, little is known about the psychosocial effect of this technological intervention. This study documents…

Task force 5: adults with congenital heart disease: access to care

Ethical issues in the pediatric intensive care unit

Advanced technology and better scientific understanding of mechanisms of disease now permit intensive care personnel to extend life beyond what some patients and families consider reasonable, leading, in part, to the "patients' rights" movement and…

Terminal nutrition: framing the debate for the withdrawal of nutritional support in terminally ill patients

Nutrition and hydration have long been considered to be life-sustaining therapies that are associated with comfort and relief of suffering. This belief is largely based on our own experiences with the sensations of thirst and hunger, which have led…

Tags: 2000, Backlog, Death and Euthanasia, Enteral Nutrition/adverse effects, Ethics, Fasting/physiology/psychology, Humans, Journal Article, Medical, Medical Futility, Parenteral Nutrition/adverse effects, Terminal Care/methods/standards, The American Journal Of Medicine, United States, Winter SM

Between two worlds: bridging the cultures of child health and adult medicine

Pediatric pain practices: a national survey of health professionals

The purpose of this study was to examine how health-care providers in U.S. teaching hospitals assess and manage children's pain. A 59-item questionnaire was sent to institutions with pediatric residency programs listed in the 1992 National Residency…

Tags: 1996, Alexander M, Backlog, Broome ME, Child, Hospitals, Humans, Journal Article, Journal of Pain and Symptom Management, Maikler V, Pain Measurement, Pain/therapy, Physician's Practice Patterns, Questionnaires, Richtsmeier A, Teaching, United States

Learning to care for people with chronic illness facing the end of life

2000

Tags: 2000, Backlog, Death and Euthanasia, Health Services Accessibility, Health Services Research, JAMA, Journal Article, Lynn J, Palliative Care/economics/standards/trends, Policy Making, Professional Patient Relationship, Quality Of Health Care, RDF Project, Terminal Care/economics/standards/trends, United States

Tags: 1987, American Journal Of Hospice Care, Backlog, Evaluation Studies as Topic, Health Care, Hospices/standards, Humans, Journal Article, Management Audit, Outcome and Process Assessment (Health Care)/methods, Quality Assurance, Richie ND, United States

Browse Items (203 total)