Browse Items (236 total)
- Tags: 2004
Denial of impending death: a discourse analysis of the palliative care literature
Mitochondrial disorders
Tags: 2004, Adult, Backlog, Brain, Child, Di Donato S, DNA, DNA/genetics, Electron Transport/genetics, Gene Rearrangement/genetics, Humans, Journal Article, Mitochondrial Diseases/genetics/therapy, Mitochondrial/genetics, Mutation, Oxidative Phosphorylation, Point Mutation/genetics, Proteins/genetics, Zeviani M
A descriptive study of children dying in the pediatric intensive care unit after withdrawal of life-sustaining treatment
Tags: 2004, Adolescent, Analgesics/administration & dosage, Backlog, Child, DeVita MA, Euthanasia, Female, Humans, Hypnotics and Sedatives/administration & dosage, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Male, Neuromuscular Blockade, Palliative Care, Parents/psychology, Passive, Patient Participation, Pediatric, Pediatric Critical Care Medicine, Preschool, Retrospective Studies, Time Factors, Zawistowski CA
Using industrial processes to improve patient care
Tags: 2004, Backlog, Bmj (clinical Research Ed.), Brailsford S, Connell C, Davies R, Decision Making, Great Britain, Harper P, Humans, Industry/methods/standards, Journal Article, Klein JH, Occupational Health, Patient Care/standards, Quality Of Health Care, State Medicine/standards, Waiting Lists, Young T
Prolotherapy injections, saline injections, and exercises for chronic low-back pain: a randomized trial
Morphine is not the only analgesic in palliative care: Literature review
Tags: 2004, Analgesics, Analgesics/therapeutic use, Backlog, Fentanyl/therapeutic use, Humans, Journal Article, Journal Of Advanced Nursing, Ketamine/therapeutic use, Methadone/therapeutic use, Morphine/therapeutic Use, Neoplasms/complications, Opioid/therapeutic use, Pain/drug Therapy, Palliative Care/methods, Wootton M
Good practices that address continuity during transition from child to adult care: synthesis of the evidence
Tags: 2004, Adolescent, Adolescent Health Services/organization & administration/standards, Adolescent Transitions, Adult, AID - 10.1111/j.1365-2214.2004.00440.x [doi], AID - CCH440 [pii], Backlog, Child, Child Health Services/organization & administration/standards, Child: Care, Health and Development, Continuity of Patient Care/organization & administration/standards, CRDT- 2004/08/24 05:00, Delivery of Health Care/organization & administration/standards, EDAT- 2004/08/24 05:00, Family, Forbes A, Griffiths P, Health Services/standards, Humans, Journal Article, Lewis S, Mathes L, MHDA- 2005/02/04 09:00, Models, Organizational, PST - ppublish, Quality of Health Care/organization & administration/standards, Research Design, Ullman R, While A
I am not the kind of woman who complains of everything': illness stories on self and shame in women with chronic pain
Use of hospitals, physician visits, and hospice care during last six months of life among cohorts loyal to highly respected hospitals in the United States
Tags: 2004, 80 And Over, Aged, Backlog, Bmj (clinical Research Ed.), Bronner KK, Cohort Studies, Fisher ES, General/utilization, Health Services Needs and Demand/statistics & numerical data, Hospice Care/utilization, Hospitalization/statistics & numerical data, Hospitals, Humans, Journal Article, Non-U.S. Gov't, Outcome Assessment (health Care), P.H.S., Patient Acceptance Of Health Care/statistics & Numerical Data, Research Support, Retrospective Studies, Sharp SM, Skinner JS, Stukel TA, Teaching/utilization, Terminal Care/utilization, Terminally Ill/statistics & numerical data, U.S. Gov't, United States, Wennberg JE
Integrating palliative care in pediatrics
The natural history of type B Niemann-Pick disease: Results from a 10-year longitudinal study.
Tags: 2004, Adolescent, Adult, Backlog, Blood Cell Count, Child, Desnick RJ, Disease Progression, Female, Genotype, Hossain S, Humans, Hypersplenism/etiology, Journal Article, Lamm C, Leukopenia/etiology, Lipids/blood, Liver/physiopathology, Longitudinal Studies, Male, McGovern MM, Middle Aged, Niemann-Pick Diseases/blood/complications/genetics/physiopathology, Pediatrics, Phenotype, Preschool, Q3 Scoping Review Results, Respiratory Physiology, Schuchman EH, Splenomegaly/etiology, Thrombocytopenia/etiology, Wallenstein S, Wasserstein MP
Family, maternal, and child health through photovoice
Tags: 2004, Adolescent, Adult, Backlog, California, Child, Child welfare, Community Networks, Family Health, Female, Health Planning, Humans, Journal Article, Male, Maternal And Child Health Journal, Maternal Welfare, Middle Aged, Needs Assessment, Non-U.S. Gov't, Photography, Pies CA, Policy Making, Research Support, Wang CC
An analogue assessment of repetitive hand behaviours in girls and young women with Rett syndrome
Coordinating the norms and values of medical research, medical practice and patient worlds-the ethics of evidence based medicine in orphaned fields of medicine
Tags: 2004, Allied Health Occupations/ethics, Analytical Approach, Attitude To Health, Backlog, Clinical Competence, Cognitive Therapy/ethics, Delivery of Health Care, Ethics, Evidence-Based Medicine/ethics, Health Care and Public Health, Houtepen R, Humans, Integrated/ethics, Interprofessional Relations/ethics, Journal Article, Journal of Medical Ethics, Logic, Medical, Models, Patient Care Team/ethics, Personal Autonomy, Physical Therapy Modalities/ethics, Social Justice/ethics, Social Responsibility, Theoretical, Vos R, Willems D
The pain experience of children with leukemia during the first year after diagnosis
Tags: 0-4). For the children 8 to 17 years old, 2004, Acute, Adaptation, Adlard K, ages 4 to 17 years, Alvarez O, and back (14.(TRUNCATED), and from their English- and Spanish-speaking parents. Age-appropriate instruments were used to examine the variables of pain intensity, and functional status. RESULTS: All the children reported pain over the course of the year. Pain intensity scores incorporated the full range of possible responses. For the children 4 to 7 years old, and outcomes during the first year after the diagnosis of acute leukemia. METHODS: A longitudinal descriptive approach was used to collect data at seven data points from 95 English- and Spanish-speaking children, and quality, and the associated procedures. For children with leukemia, as well as strategies for managing pain, Backlog, Beecroft P, Bossert E, head/neck (16.6%), Journal Article, L1/complications Longitudinal Studies Male Models, location, Lymphocytic, management strategies, Nursing Research, P.H.S. Treatment Outcome%X BACKGROUND: Children with cancer experience pain related to the disease process, pattern over time, PedPal Lit, perceived effectiveness of management strategies, Preschool European Continental Ancestry Group/psychology Female Hispanic Americans/psychology Humans Leukemia, Psychological Adolescent African Americans/psychology Age Factors Analysis of Variance Asian Americans/psychologyAttitude to Health California ChildChild Psychology Child, Psychological Nursing Assessment Nursing Methodology Research Pain/etiology/prevention & control/psychology Pain Measurement Questionnaires Research Support, receiving care in one of three southern California hospitals, respectively, Savedra MC, the highest and lowest mean scores, the pain experienced after diagnosis has received scant attention. OBJECTIVE: To examine the pain experience, the treatment, U.S. Gov't, Van Cleve L, were 2 and 1.6 (scale, were 50.1 and 39.5 (scale
Infantile systemic hyalinosis or juvenile hyaline fibromatosis?
Intravenous ketamine infusion as an adjuvant to morphine in a 2-year-old with severe cancer pain from metastatic neuroblastoma
Tags: 2004, Administration, Analgesics, Backlog, Codeine/administration & Drug Therapy, Combination, Davies D, Desai S, Dyspnea/chemically induced, Fatal Outcome, Female, Hallucinations/chemically induced, Humans, Infusions, Intractable/drug therapy/etiology, Intravenous, Journal Article, Journal Of Pediatric Hematology/oncology, Ketamine/administration & Methadone/administration & dosage/adverse effects/therapeutic use, Malherbe S, Morphine/administration & Neuroblastoma/physiopathology, Non-Narcotic/administration & dosage/therapeutic use, Non-U.S. Gov't, Opioid/administration & Child, Oral, Pain, Palliative Care, Preschool, Quality Of Life, Research Support, Tsui BC
The biochemical basis of metabolism in cancer cachexia
Tags: 2004, Anorexia/etiology, Antineoplastic Agents/therapeutic use, Appetite Stimulants/therapeutic use, Backlog, Cachexia/etiology/metabolism/mortality/physiopathology/therapy, Carbohydrate Metabolism, Cytokines/antagonists & inhibitors/physiology, Dimensions Of Critical Care Nursing, Disease Progression, Energy Metabolism, Humans, Hydrazines/therapeutic use, Journal Article, Lipid Metabolism, Neoplasms/complications, Nutritional Failure, Nutritional Support/methods, Proteins/metabolism, Survival Rate, Tijerina AJ, Weight Loss
Use of the parenting stress index in mothers of preterm infants
Tags: 2004, Adult Female Humans Infant, Advances in Neonatal Care, Backlog, Depaul D, future research should examine missing items more closely., however, Journal Article, Newborn Infant, Non-P.H.S. Stress, PedPal Lit, Premature, Psychological/diagnosis, psychology Male Mother-Child Relations Mothers/, psychology Parenting/, psychology Questionnaires/, Renaud MT, standards Reproducibility of Results Research Support, Thomas KA, U.S. Gov't
Place of death: preferences among cancer patients and their carers
Tags: 2004, 80 And Over, Adult, Aged, Attitude To Death, Backlog, Caregivers/psychology, Clark D, Cohort Studies, Comparative Study, Female, Great Britain, Hospice Care/standards/trends, Humans, Journal Article, Location Of Death, Longitudinal Studies, Male, Middle Aged, Morris SM, Neoplasms/mortality/therapy, Non-U.S. Gov't, Patient Satisfaction, Research Support, Social science & medicine, Terminally Ill, Thomas C
Improving transition: a qualitative study examining the attitudes of young people with chronic illness transferring to adult care
Tags: 2004, Adolescent, Adolescent Health Services/organization & administration, Adolescent Psychology, Adolescent Transitions, Adult, Age Factors, Attitude To Health, Backlog, Chronic Disease/psychology/therapy, Continuity Of Patient Care, Female, Great Britain, Humans, Interviews As Topic, Journal Article, Journal Of Child Health Care, Male, Patient Transfer, Professional-patient Relations, Qualitative Research, Soanes C, Social Support, Timmons S
Mapping the journey of cancer patients through health care system. Part 1: developing the research question
Tags: 2004, Adaptation, Attitude To Health, Backlog, Blood P, Canadian Oncology Nursing Journal, Clinch J, Data Collection, Delivery of Health Care/standards, El Sayed S, Humans, Journal Article, Khoo K, Longitudinal Studies, Manitoba, Motivation, Nemecek A, Neoplasms/diagnosis/psychology/therapy, Non-U.S. Gov't, Nursing, Nursing Methodology Research/methods, Philosophy, Psychological, Research Design, Research Support, Scott-Findlay S, Sloan JA, Trylinski C, Whittaker H
Mapping the journey of cancer patients through the health care system. Part 2: Methodological approaches and basic findings
Tags: 2004, Aged, Backlog, Blood P, Canadian Oncology Nursing Journal, Cancer Care Facilities, Clinch J, Data Collection/methods, Databases, Delivery of Health Care/organization & administration, El Sayed S, Factual/utilization, Female, Health Services Research/methods, Humans, Journal Article, Khoo K, Length Of Stay/statistics & Numerical Data, Male, Manitoba/epidemiology, Medical Oncology, Medical Record Linkage/methods, Middle Aged, Nemecek A, Neoplasms/diagnosis/mortality/therapy, Non-U.S. Gov't, Patient Admission/statistics & numerical data, Proportional Hazards Models, Quality Of Health Care, Registries, Research Support, Scott-Findlay S, Sloan JA, Survival Analysis, Trylinski C, Whittaker H
Gastrostomy feeding versus oral feeding alone for children with cerebral palsy
The World Health Organization's WHOQOL-BREF quality of life assessment: psychometric properties and results of the international field trial. A report from the WHOQOL group
Tags: 2004, 80 and over Child Comparative Study Cross-Cultural Comparison Cross-Sectional Studies Female Humans Male Middle Aged Psychometrics/, 830). Sick and well respondents were sampled from the general population, Adolescent Adult Aged Aged, and to test its main psychometric properties. The WHOQOL-BREF is a 26-item version of the WHOQOL-100 assessment. Its psychometric properties were analysed using cross-sectional data obtained from a survey of adults carried out in 23 countries (n = 11, as reflected by its four domains: physical, as well as from hospital, Backlog, clinical settings and clinical trials. Using data from the WHOQOL-BREF field trials, cross-culturally valid assessment of QOL, discriminant validity and construct validity through confirmatory factor analysis, indicate that the WHOQOL-BREF has good to excellent psychometric properties of reliability and performs well in preliminary tests of validity. These results indicate that overall, instrumentation, item-total correlations, Journal Article, Lotfy M, O'Connell KA, PedPal Lit, Psychological, Quality Of Life, Quality of Life Research, rehabilitation and primary care settings, serving patients with physical and mental disorders and with respect to quotas of important socio-demographic variables. The WHOQOL-BREF self-assessment was completed, Sickness Impact Profile World Health Organization%X Quality of life (QOL) assessments that are easily administered and which do not impose a great burden on the respondent are needed for use in large epidemiological surveys, Skevington SM, social and environment., the objectives of this work are to examine the performance of the WHOQOL-BREF as an integrated instrument, the WHOQOL-BREF is a sound, together with socio-demographic and health status questions. Analyses of internal consistency
Ethical issues in pediatric critical care neurology
Tags: 2004, Backlog, Biomedical and Behavioral Research, Child, Critical Care/ethics, Death and Euthanasia, Ethics, Health Care and Public Health, Humans, ICU Decision Making, Informed Consent, Intensive Care Units/ethics, Journal Article, Jurisprudence, Medical, Medical Futility, Neurology/ethics, Pediatrics, Professional Patient Relationship, Research, Seminars In Pediatric Neurology, Shevell M
Risperidone in the treatment of disruptive behavioral symptoms in children with autistic and other pervasive developmental disorders
Tags: 2004, Aggression/drug effects, Antipsychotic Agents/adverse effects/pharmacology/therapeutic use, Autistic Disorder/drug therapy, Backlog, Carroll A, Child, Child Development Disorders, Dopamine Antagonists/therapeutic use, Double-Blind Method, Dunbar F, Female, Humans, Irritable Mood/drug effects, Journal Article, Male, Orlik H, Pediatrics, Pervasive/drug therapy, Preschool, Risperidone/adverse effects/pharmacology/therapeutic use, Schulz M, Serotonin Antagonists/therapeutic use, Shea S, Smith I, Treatment Outcome, Turgay A
Cardiac transplantation: a temporary solution for Friedreich's ataxia-induced dilated cardiomyopathy
Tags: 2004, Adult, Backlog, Cardiomyopathy, Chandavimol M, Dilated/etiology/surgery, Friedreich Ataxia/complications, Heart transplantation, Humans, Journal Article, Male, Sedlak TL, Straatman L, The Journal Of Heart And Lung Transplantation : The Official Publication Of The International Society For Heart Transplantation, Time Factors
At the crossroads: making the transition to hospice
Tags: 2004, Adult, Aged, Backlog, Bradley E, Caregivers/psychology, Cherlin E, Connecticut, Curry L, Decision Making, Family Relations, Female, Hospice Care/psychology, Humans, Interpersonal Relations, Johnson-Hurzeler R, Journal Article, Male, McCorkle R, Middle Aged, Narration, Neoplasms/nursing, Non-P.H.S., Non-U.S. Gov't, Palliative & Supportive Care, Palliative Care/psychology, Parent-child Relations, Questionnaires, Research Support, Schulman-Green D, U.S. Gov't
EXPERIENCES FOLLOWING THE DEATHS OF DISABLED FOSTER CHILDREN: "WE DON'T FEEL LIKE 'FOSTER' PARENTS"
Tags: 2004, Backlog, Journal Article, Omega, Parent caregivers, Schormans AF
Clinical spectrum, morbidity, and mortality in 113 pediatric patients with mitochondrial disease
Tags: 2004, Adolescent, Age of Onset, Backlog, Belmont JW, Cardiomyopathies/etiology/mortality, Child, Craigen WJ, DNA, Electron Transport, Electron Transport Chain Complex Proteins/deficiency, Female, Fernbach SD, Humans, Hunter JV, Infant, Journal Article, Male, Mitochondrial, Mitochondrial Diseases/complications/genetics/mortality, Mutation, Neish SR, Neuromuscular Diseases/etiology/mortality, Newborn, Non-U.S. Gov't, Pediatrics, Preschool, Research Support, Retrospective Studies, Scaglia F, Smith EO, Survival Analysis, Towbin JA, Vladutiu GD, Vogel H, Ware SM, Wong LJ
Systematic review of bisphosphonates for hypercalcaemia of malignancy
Tags: 2004, Backlog, Broadley KE, Diphosphonates/therapeutic use, Edmonds PM, Humans, Hypercalcemia/drug therapy, Journal Article, Neoplasms/complications, Non-U.S. Gov't, Palliative Medicine, Patel S, Randomized Controlled Trials, Research Support, Ross JR, Saunders Y, Steering Group, Treatment Outcome
Navigating the waves: The usefulness of a pilot in qualitative research
Tags: 2004, Backlog, Journal Article, Qualitative Research, Research, Sampson H
Fast fact and concepts #107: Controlled sedation for refractory symptoms: Part II
Children, cancer, and nutrition--A dynamic triangle in review
Tags: 2004, Backlog, Barr RD, Cancer, Child, Child welfare, Developing Countries, Health Status, Humans, Incidence, Infant, Journal Article, Malnutrition/epidemiology/physiopathology, Neoplasms/complications/therapy, Newborn, Non-U.S. Gov't, Nutrition Assessment, Nutritional Failure, Nutritional Status, Nutritional Support, Pencharz P, Preschool, Prognosis, Research Support, Sala A, Survival Analysis
Facilitating communication in children with multiple disabilities: three case studies of girls with Rett syndrome
Tags: 2004, Abnormalities, Akermanis M, Backlog, Diagnosis, Disability And Rehabilitation, however, increased communication opportunities provided by caregivers did not elicit increased responses from the girls. CONCLUSION: There is a difference in cueing by teachers in their interactions with children with multiple disabilities. Also, Journal Article, McGregor F, means findings should be viewed cautiously and that more research is indicated., more frequent communicative interactions did not necessarily lead to increased student responses. It is suggest ed that amount and type of cueing may need to be considered to be effective in generating student responses. The small number of participants, Multiple/diagnosis/rehabilitation Child Behavior/physiology Child, Non-U.S. Gov't Rett Syndrome, PedPal Lit, Preschool Communication Disorders/diagnosis/rehabilitation Female Follow-Up Studies Humans Infant Interpersonal Relations Language Development Disorders/diagnosis/rehabilitation Research Support, Ramke M, rehabilitation Risk Factors Sampling Studies Severity of Illness Index Sickness Impact Profile Treatment Outcome, Ryan D, Southwell K, Woodyatt G