Browse Items · Pediatric Palliative Care Library

Variability in physician opinion on limiting pediatric life support

OBJECTIVE: We conducted this study to investigate how physicians in a pediatric intensive care unit (ICU) currently make decisions to withdraw and withhold life support. Consultation with the patient's primary caregiver often precedes decisions about…

Using reflexivity to optimize teamwork in qualitative research

1999

Tags: 1999, Backlog, Barber N, Barry CA, Bradley C, Britten N, Journal Article, Qualitative Health Research, Stevenson F

Use of melatonin to treat sleep disorders in tuberous sclerosis

The results of a therapeutic trial of the use of melatonin in patients with tuberous sclerosis complex who also have severe sleep problems are reported. We used a randomized double-blind placebo-controlled crossover design. Seven patients with…

Tags: 1999, Clarke A, Developmental Medicine and Child Neurology, Hancock E, Hunt A B A, melatonin, O'Callaghan F J K, Osborne J P, pharmacologic intervention, sleep disturbance/disorders, Tuberous Sclerosis

Trisomy 18 in Kuwait.

1999

Tags: 1999, Abulhassan SA, Al-Awadi SA, Backlog, Bastaki L, Gouda S, International Journal Of Epidemiology, Journal Article, Longitudinal Studies, Moussa MA, Murthy DS, Mustafa F, Naguib KK, Redha MA, Tayel SM

Trends in transition from pediatric to adult health care services for young adults with chronic conditions

PURPOSE: The rationale underlying this study was the need to move the transition health services model from a theoretical framework to an empirically-based investigation. Thus, it was necessary to identify programs for youth with chronic or disabling…

Treasure Weekend: supporting bereaved siblings

The importance of allowing bereaved siblings the opportunity to be involved and mourn the loss of a sibling family member has gained increasing recognition. Child family members may need support in the same way that parents might need support to cope…

Transition from paediatric to adult care for persons with cystic fibrosis: patient and parent perspectives

OBJECTIVES: To gauge the perspectives of adolescents and adults with cystic fibrosis (CF) and their parents regarding the transition from paediatric to adult-oriented health care. METHODS: Cross-sectional survey using an anonymous, semi-structured…

Toward an integrative perspective on bereavement

For nearly a century, bereavement theorists have assumed that recovery from loss requires a period of grief work in which the ultimate goal is the severing of the attachment bond to the deceased. Reviews appearing in the 1980s noted a surprising…

Tags: 1999, Adaptation, Backlog, Bereavement, Bonanno GA, Grief, Humans, Journal Article, Kaltman S, Object Attachment, P.H.S., Psychological, Psychological Bulletin, Psychological Theory, Research Support, U.S. Gov't

The Timing of Do-Not-Resuscitate Orders and Hospital Costs

The relation between the timing of do-not-resuscitate (DNR) orders and the cost of medical care is not well understood. This prospective observational study compares hospital costs and length of stay of 265 terminally ill patients with admission DNR…

Tags: 1999, Backlog, De Jonge KE, DNAR Outcomes, Eisenberg John M, Epstein A, Gold Karen G, Harper Michael G, Journal Article, Journal Of General Internal Medicine, Schulman KA, Sulmasy DP

The role of palliative care in advanced muscular dystrophy and spinal muscular atrophy.

OBJECTIVE: This study examines the potential role for palliative care services in the care of individuals with muscular dystrophy and spinal muscular atrophy, and the support of their families., METHODOLOGY: Semistructured interviews were conducted…

The proopiomelanocortin system in cutaneous neuroimmunomodulation. An introductory overview

1999

Tags: 1999, Animals, Annals Of The New York Academy Of Sciences, Backlog, Biomarkers of Pain, Humans, Journal Article, Lipton J, Luger TA, Neuroimmunomodulation/physiology, Paus R, Pro-Opiomelanocortin/physiology, Skin Physiology, Skin/immunology, Slominski A

The Cardiovascular Health Education Program: assessing the impact on rural and urban adolescents' health knowledge

In this research study, a quasi-experimental, nonequivalent control group pretest-posttest design was used to assess the impact of the Cardiovascular Health Education Program (CHEP) on the cardiovascular health knowledge of grade eight adolescents. A…

The attitude of young adults with chronic disease or handicaps towards enforced treatment and euthanasia

One hundred fifty-nine young adults in the 17-18 year old age group suffering from chronic disease or handicap participated in this study which examined their attitudes towards enforced treatment and euthanasia in terminal patients. The comparison…

Systematic review and meta-analysis of randomized controlled trials of cognitive behaviour therapy and behaviour therapy for chronic pain in adults, excluding headache

A computer and a hand search of the literature recovered 33 papers from which 25 trials suitable for meta-analysis were identified. We compared the effectiveness of cognitive-behavioural treatments with the waiting list control and alternative…

Stress, social support, and sense of coherence

In the Salutogenic Model, Aaron Antonovsky suggested that a sense of coherence (SOC) is the key determinant in the maintenance of health. He theorized that individuals with a strong SOC have the ability to (a) define life events as less stressful…

Spiritual aspects of loss among partners of men with AIDS: postbereavement follow-up

This article is a follow-up study of bereaved caregiving male partners of men with AIDS (T.A. Richards & S. Folkman, 1997). The earlier study examined spiritual beliefs, experiences, and practices reported in interviews with 125 caregivers conducted…

Sexual dysfunction in male cardiac transplant recipients

Sexual dysfunction in male cardiac transplant recipients has received little systematic study. Problems reported in the literature include impotence, ejaculation problems, decreased libido and avoidance of sexual opportunities. PURPOSE: Investigate…

Tags: 1999, Abbey S, Backlog, Cardiac Transplant, Cohen E, Heart Transplant, Heart transplantation, Journal Article, Male, Ross H, Sex disorders, Sexual Dysfunction, Straatman L, Transplant, Transplant Recipient, Transplantation

Serum melatonin kinetics and long-term melatonin treatment for sleep disorders in Rett syndrome

We studied the circadian rhythm of serum melatonin levels in two patients with classical Rett syndrome having severe sleep disorders; serum melatonin levels were measured before and during melatonin treatment using radioimmunoassay. Patient 1 had a…

Tags: 1999, Brain and Development, melatonin, Miyamoto A, Oki J, Okuno A, pharmacologic intervention, Rett syndrome, sleep disturbance/disorders, Takahashi S

Sedation and analgesia in paediatric intensive care units: a guide to drug selection and use

The indications for sedation in the paediatric intensive care unit (PICU) patient are varied ranging from short term use for various procedures to prolonged administration to provide comfort during mechanical ventilation. When faced with the decision…

Tags: 1999, Analgesics/tu [Therapeutic Use], Backlog, Child, Human, Hypnotics and Sedatives/tu [Therapeutic Use], Intensive Care Units, Journal Article, Paediatric Drugs, Pediatric, Tobias JD

Research in children: ethical and scientific aspects

Research agenda for developing measures to examine quality of care and quality of life of patients diagnosed with life-limiting illness

Despite the universality of dying, research has not focused on developing conceptual models and measurement tools for examining the quality of care and quality of life of dying patients and their loved ones. We present here a vision and research…

Tags: 1999, Backlog, Byock I, Field MJ, Journal Article, Journal of Pain and Symptom Management, Palliative Care, Patients, Quality Of Health Care, Quality Of Life, Research Design, Teno JM, Terminal Care, Terminally Ill

Quality of care at a children's hospital: the parents' perspective

OBJECTIVES: To develop a measure of parental perceptions of pediatric inpatient quality of care, to identify processes of care that influence these perceptions, and to describe these perceptions of care. DESIGN: An interdisciplinary team modified an…

Tags: 1999, Alpert HR, Archives Of Pediatrics & Adolescent Medicine, Backlog, Brustowicz RM, Cleary PD, Crowley Ganser CM, Goldmann DA, Homer CJ, Journal Article, Marino B, Smith B

Putting patient and family voice back into measuring quality care for the dying

1999

Tags: 1999, Backlog, Journal Article, Teno JM, The Hospice Journal

Psychosocial impact of pediatric BMT on siblings

1999

Tags: 1999, Backlog, Bone Marrow Transplantation, Journal Article, Packman WL

Prospective study of symptom control in 133 cases of palliative care inpatients in Shatin Hospital

We report a prospective study assessing the prevalence and severity of physical and nonphysical symptoms, and the benefits from treatment and intervention, in advanced cancer patients presenting to a local palliative care unit in Hong Kong. Patients…

Proopiomelanocortin and the immune-neuroendocrine connection

This presentation will cover the history, recent developments in, and implications of the ability of both the immune and neuroendocrine systems to produce POMC. The discovery of POMC in immune cells was one of the events that heralded a molecular…

Tags: 1999, Amino Acid Sequence, Animals, Annals Of The New York Academy Of Sciences, Backlog, Base Sequence, Biomarkers of Pain, Biomarkers Reference List, Blalock JE, Humans, Immune System/physiology, Interleukin-1/physiology, Journal Article, Molecular Sequence Data, Neuroimmunomodulation/physiology, Neurosecretory Systems/physiology, Pro-Opiomelanocortin/genetics/physiology

Proopiomelanocortin (POMC) disregulation and response to opiate blockers

Autism is a collection of disorders or subtypes with distinctive or prominent phenotypes and genotypes. The study of adults with autism offers a unique opportunity to examine its phenotypic diversity. Recent evidence has identified disturbances in…

Tags: 1999, Adult, Autistic disorder, Backlog, Journal Article, Mental Retardation And Developmental Disabilities Research Reviews, Naltrexone, Pro-Opiomelanocortin, Sandman CA, Self-Injurious behavior, Smith M, Spence MA

Preparation for oncology settings: what hospice social workers say they need

According to recent data, 78 percent of hospice social workers' direct practice hours are spent with patients and families diagnosed with terminal cancer. A national sample of 108 hospice social workers participated in an exploratory study…

Tags: 1999, Attitude Of Health Personnel, Backlog, Bronstein LR, Cooperative Behavior, Florida, Health & Social Work, Health Services Research, Hospice Care/manpower/methods, Humans, Inservice Training, Journal Article, Kovacs PJ, Needs Assessment, Neoplasms/nursing, Oncologic Nursing/education/manpower, Patient Care Team, Professional Competence, Social Work/education

Population pharmacokinetics of oral morphine and its glucuronides in children receiving morphine as immediate-release liquid or sustained-release tablets for cancer pain

OBJECTIVES: (1) To determine the pharmacokinetics of morphine, morphine-6-glucuronide (M6G), and morphine-3-glucuronide (M3G) in children with cancer receiving morphine as immediate-release morphine liquid or sustained-release tablets. (2) To…

Perceptions of control and long-term recovery from rape

The relationship between perceptions of control and symptoms of both long-term depression and post-traumatic stress was examined. Enduring beliefs of personal competence and control were found to be associated with lower rates of depression and…

Pediatric sedation with analgesia

Sedation with analgesia is frequently required to perform painful or invasive procedures in children. The best medication combination for pediatric sedation with analgesia is yet to be identified. Sixty-four of 243 total sedation with analgesia…

Patient-controlled analgesia

In appropriately selected patients, PCA safely provides analgesia superior to that obtained with traditional IM prn opioid administration; however, to date, no compelling evidence shows that PCA is associated with a reduction in morbidity or a more…

Pain management and weaning from narcotics and sedatives

Over the last 10 years, there has been a fundamental change in physicians' attitudes toward analgesia and sedation in pediatrics. In this time, basic and clinical research have provided a wealth of information. In this paper we review important…

Tags: 1999, Analgesia/trends, Analgesics/pharmacology/therapeutic use, Attitude Of Health Personnel, Backlog, Bogue CW, Child, Current Opinion In Pediatrics, Drug Administration Schedule, Ganea GR, Human, Hypnotics and Sedatives/administration & dosage, Journal Article, Narcotics/administration & dosage, Pain/psychology/therapy, Physician's Practice Patterns/standards/trends

Pain in Children with Significant Neurological Impairment

1999

Tags: 1999, Analgesics/therapeutic use, Backlog, Cerebral Palsy/complications, Child, Communication, Developmental And Behavioral Pediatrics, Humans, Journal Article, Montgomery C, Nervous System Diseases/complications, O'Donnell M, Oberlander T, Pain Measurement, Pain/complications/diagnosis/drug therapy/etiology, RDF Project

Oropharyngeal dysfunction and gastroesophageal dysmotility are present in girls and women with Rett syndrome

BACKGROUND: Feeding impairment frequently complicates the course of children with neurologic disorders and places them at risk for malnutrition and growth failure. Although feeding abnormalities have been reported in female patients with Rett…

Operationalizing a conceptually based noncategorical definition: a first look at US children with chronic conditions

1999

Tags: 1999, Archives Of Pediatrics & Adolescent Medicine, Backlog, Journal Article, Miller 2009 BMC HSR Refs, Silver EJ, Stein RE

Occurrence of withdrawal in critically ill sedated children

OBJECTIVES: To record the number of children with withdrawal symptoms after the administration of sedatives for mechanical ventilation, and to discuss the possible connection with the administration of midazolam. DESIGN: Retrospective data collection…

Neuropathic pain: aetiology, symptoms, mechanisms, and management

We highlight current theories about peripheral neuropathic pain and show that progress in management is contingent on targeting treatment not at the aetiological factors or the symptoms but at the mechanisms that operate to produce the symptoms. This…

Tags: 1999, Backlog, Humans, Journal Article, Lancet, Mannion RJ, Pain Threshold/physiology, Pain/drug therapy/etiology/physiopathology, Peripheral Nerves/physiopathology, Peripheral Nervous System Diseases/drug therapy/etiology/physiopathology, Woolf CJ

Neuromuscular disorders of childhood

Neuromuscular disorders are common causes of weakness and hypotonia in the infantile period and in childhood. Accurate diagnosis of specific neuromuscular disorders depends first on identification of which aspect of the peripheral neuromuscular…

Tags: 1999, Andersson PB, Backlog, Charcot-Marie-Tooth Disease/diagnosis/physiopathology, Child, Current Opinion In Pediatrics, Diagnosis, Differential, Human, Journal Article, Muscular Dystrophies/diagnosis/genetics, Myasthenia Gravis/diagnosis, Neuromuscular Diseases/diagnosis/physiopathology/therapy, Peripheral Nervous System Diseases/diagnosis, Rando TA, Spinal Muscular Atrophies of Childhood/diagnosis

Neostigmine for the treatment of acute colonic pseudo-obstruction

BACKGROUND: Acute colonic pseudo-obstruction -- that is, massive dilation of the colon without mechanical obstruction -- may develop after surgery or severe illness. Although it may resolve with conservative therapy, colonoscopic decompression is…

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