Browse Items · Pediatric Palliative Care Library

Children with Cognitive Impairment: Parent report of pain and coping

1999

Tags: 1999, Backlog, Conrad T, Developmental And Behavioral Pediatrics, Fanurik D, Harrison RD, Journal Article, Koh J, Schmitz M

Better for it: how people benefit from adversity

Recently, researchers in several different fields have discovered that people who have experienced seriously adverse events frequently report that they were positively changed by the experience. Respondents in these studies typically have reported a…

Tags: 1999, Adaptation, Backlog, Humans, Internal-External Control, Journal Article, Life Change Events, McMillen JC, P.H.S., Psychiatric, Psychological, Research Support, Social Work, Survivors/psychology, U.S. Gov't

Preparation for oncology settings: what hospice social workers say they need

According to recent data, 78 percent of hospice social workers' direct practice hours are spent with patients and families diagnosed with terminal cancer. A national sample of 108 hospice social workers participated in an exploratory study…

Tags: 1999, Attitude Of Health Personnel, Backlog, Bronstein LR, Cooperative Behavior, Florida, Health & Social Work, Health Services Research, Hospice Care/manpower/methods, Humans, Inservice Training, Journal Article, Kovacs PJ, Needs Assessment, Neoplasms/nursing, Oncologic Nursing/education/manpower, Patient Care Team, Professional Competence, Social Work/education

Narrative strategies in grief therapy

The field of grief therapy is currently in a state of conceptual revolution, opening the prospect of reconfiguring our understanding of the human experience of loss along constructivist lines. In this article I outline some of the tenets of such an…

Tags: 1999, Backlog, Grief, Human, Journal Article, Journal Of Constructivist Psychology, Meaning, Narrative, Neimeyer RA

Laboratory integration and utilization of tandem mass spectrometry in neonatal screening: a model for clinical mass spectrometry in the next millennium

Clinical and neonatal screening methods using a tandem mass spectrometer are clearly a model for modern laboratory testing in the new Millennium. By the year 2000, more than 1 million blood and plasma samples will have been tested in laboratories…

Comparing parent loss with sibling loss

The death of a loved one is a traumatic loss for children, but little attention has been paid to how children's responses vary according to who died--a parent or a sibling. This article reports the findings of a comparison between children's…

Spiritual aspects of loss among partners of men with AIDS: postbereavement follow-up

This article is a follow-up study of bereaved caregiving male partners of men with AIDS (T.A. Richards & S. Folkman, 1997). The earlier study examined spiritual beliefs, experiences, and practices reported in interviews with 125 caregivers conducted…

Dying, mourning, and spirituality: A psychological perspective

1999

Tags: 1999, Backlog, Death studies, Journal Article, Marrone R, mourning

Putting patient and family voice back into measuring quality care for the dying

1999

Tags: 1999, Backlog, Journal Article, Teno JM, The Hospice Journal

Clinical and neuroradiological follow-up in mucopolysaccharidosis type III (Sanfilippo syndrome)

Mucopolysaccharidosis type III (Sanfilippo syndrome) is an autosomal recessive disorder characterised by progressive nervous system involvement with mental retardation, behavioural problems and seizures. Three patients, of 20 months to 12 years of…

Adrenoleukodystrophy.

1999

Tags: 1999, Backlog, Coves OFJ, Journal Article, Medicina Intensiva, Q3 Scoping Review Results, Tabernero TC

Efficacy and complications of morphine infusions in postoperative paediatric patients

The aim of the study was to evaluate the efficacy and the incidence of clinically significant adverse drug reactions (ADRs) in paediatric patients receiving continuous intravenous morphine infusions for acute postoperative pain. Definitions were…

Transition from paediatric to adult care for persons with cystic fibrosis: patient and parent perspectives

OBJECTIVES: To gauge the perspectives of adolescents and adults with cystic fibrosis (CF) and their parents regarding the transition from paediatric to adult-oriented health care. METHODS: Cross-sectional survey using an anonymous, semi-structured…

The role of palliative care in advanced muscular dystrophy and spinal muscular atrophy.

OBJECTIVE: This study examines the potential role for palliative care services in the care of individuals with muscular dystrophy and spinal muscular atrophy, and the support of their families., METHODOLOGY: Semistructured interviews were conducted…

Can the needs of the critically ill child be identified using scenarios? Experiences of a modified Delphi study

The Delphi technique enables the structuring of group opinion and discussion using a survey approach, maintaining the anonymity of panel members and preventing contamination of individual responses through peer pressure. The Delphi technique was used…

Tags: 1999, Backlog, Child, Clifford CM, Critical Illness/nursing, Delphi Technique, Endacott R, Evaluation Studies, Health Services Needs and Demand/statistics & numerical data, Humans, Intensive Care/statistics & numerical data, Journal Article, Journal Of Advanced Nursing, Pilot Projects, Questionnaires, Reproducibility of Results, Tripp JH

Applying the Delphi technique in a study of GPs' information requirements

This article describes some dilemmas and problems encountered in a Delphi study of general practitioners' (GPs) information requirements. The research involved a three-round Delphi administered to an expert panel of 50 GPs in one Welsh health…

Tags: 1999, Backlog, Delphi Technique, Green B, Health & Social Care in the Community, Hughes D, Jones M, Journal Article, Williams A

Psychosocial impact of pediatric BMT on siblings

1999

Tags: 1999, Backlog, Bone Marrow Transplantation, Journal Article, Packman WL

Perceptions of control and long-term recovery from rape

The relationship between perceptions of control and symptoms of both long-term depression and post-traumatic stress was examined. Enduring beliefs of personal competence and control were found to be associated with lower rates of depression and…

Toward an integrative perspective on bereavement

For nearly a century, bereavement theorists have assumed that recovery from loss requires a period of grief work in which the ultimate goal is the severing of the attachment bond to the deceased. Reviews appearing in the 1980s noted a surprising…

Tags: 1999, Adaptation, Backlog, Bereavement, Bonanno GA, Grief, Humans, Journal Article, Kaltman S, Object Attachment, P.H.S., Psychological, Psychological Bulletin, Psychological Theory, Research Support, U.S. Gov't

Adolescent girls' and boys' preferences for provider gender and confidentiality in their health care

PURPOSE: To assess the influence of demographic variables and health risk status on adolescents' preferences and actual receipt of services regarding provider gender, sharing a physician with parents, and private examinations. METHODS: Data from…

Trends in transition from pediatric to adult health care services for young adults with chronic conditions

PURPOSE: The rationale underlying this study was the need to move the transition health services model from a theoretical framework to an empirically-based investigation. Thus, it was necessary to identify programs for youth with chronic or disabling…

Beta-endorphin levels in peripheral blood mononuclear cells and long-term naltrexone treatment in autistic children

We assessed the clinical and biological effects of high-dose, long-term Naltrexone (NTX) treatment in 11 children (3-11 years), who had been diagnosed as autistic. The drug was given following an open design, for 12 weeks. Beta-Endorphin (beta-END)…

The Cardiovascular Health Education Program: assessing the impact on rural and urban adolescents' health knowledge

In this research study, a quasi-experimental, nonequivalent control group pretest-posttest design was used to assess the impact of the Cardiovascular Health Education Program (CHEP) on the cardiovascular health knowledge of grade eight adolescents. A…

Methadone response in advanced cancer patients with pain followed at home

Concerns about the safety of therapy with methadone, which may arise because of its pharmacokinetic characteristics and inappropriate dosing, may deter clinicians from using this drug, especially in elderly patients. Experience is accumulating that…

Conceptual models and the outcomes of caring

Conceptual models and the taxonomies associated with them are inherent tools of goal-directed activity. Conceptual models partition reality, discerning differences within a phenomenologic continuum; a process that is a fundamental requisite for…

Tags: 1999, Backlog, Byock IR, Journal Article, Journal of Pain and Symptom Management

Research agenda for developing measures to examine quality of care and quality of life of patients diagnosed with life-limiting illness

Despite the universality of dying, research has not focused on developing conceptual models and measurement tools for examining the quality of care and quality of life of dying patients and their loved ones. We present here a vision and research…

Tags: 1999, Backlog, Byock I, Field MJ, Journal Article, Journal of Pain and Symptom Management, Palliative Care, Patients, Quality Of Health Care, Quality Of Life, Research Design, Teno JM, Terminal Care, Terminally Ill

Methodological challenges for measuring quality of care at the end of life

Measurement is a fundamental step in improving the quality of care for dying patients and their families. Yet, there are important methodological challenges to be addressed. In conducting surveys about the patient and family experience, research is…

Tags: 1999, Backlog, Coppola KM, Fowler FJ, Health Care/methods, Health Care/statistics & numerical data, Humans, Journal Article, Journal of Pain and Symptom Management, Quality Assurance, Quality Of Life/psychology, Research Design, Teno JM, Terminal Care/standards

The attitude of young adults with chronic disease or handicaps towards enforced treatment and euthanasia

One hundred fifty-nine young adults in the 17-18 year old age group suffering from chronic disease or handicap participated in this study which examined their attitudes towards enforced treatment and euthanasia in terminal patients. The comparison…

Efficacy of pharmacological treatments of neuropathic pain: An update and effect related to mechanism of drug action

Tricyclic antidepressants and carbamazepine have become the mainstay in the treatment of neuropathic pain. Within the last decade, controlled trials have shown that numerous other drugs relieve such pain. We identified all placebo-controlled trials…

N of 1 randomised controlled trials of oral ketamine in patients with chronic pain

Anecdotal reports suggest that the general anaesthetic drug ketamine, taken orally in low doses, can give rise to some extra analgesia in patients with refractory neuropathic pain. This study was designed to determine the proportion of patients with…

Tags: 1999, Administration, Analgesics/administration & dosage/therapeutic use, Backlog, Female, Gaines SP, Haines DR, Humans, Journal Article, Ketamine/administration & dosage/therapeutic use, Male, Oral, Pain, Pain/drug therapy/etiology/physiopathology, Placebos

Systematic review and meta-analysis of randomized controlled trials of cognitive behaviour therapy and behaviour therapy for chronic pain in adults, excluding headache

A computer and a hand search of the literature recovered 33 papers from which 25 trials suitable for meta-analysis were identified. We compared the effectiveness of cognitive-behavioural treatments with the waiting list control and alternative…

Do parents want to be present during invasive procedures performed on their children in the emergency department? A survey of 400 parents

STUDY OBJECTIVES: No large study has addressed whether parents want to be present when invasive procedures are performed on their children in the emergency department. We conducted a survey to address this question. METHODS: The study used a…

Research in children: ethical and scientific aspects

Neuropathic pain: aetiology, symptoms, mechanisms, and management

We highlight current theories about peripheral neuropathic pain and show that progress in management is contingent on targeting treatment not at the aetiological factors or the symptoms but at the mechanisms that operate to produce the symptoms. This…

Tags: 1999, Backlog, Humans, Journal Article, Lancet, Mannion RJ, Pain Threshold/physiology, Pain/drug therapy/etiology/physiopathology, Peripheral Nerves/physiopathology, Peripheral Nervous System Diseases/drug therapy/etiology/physiopathology, Woolf CJ

Patient-controlled analgesia

In appropriately selected patients, PCA safely provides analgesia superior to that obtained with traditional IM prn opioid administration; however, to date, no compelling evidence shows that PCA is associated with a reduction in morbidity or a more…

Expanding role of bisphosphonate therapy in children

1999

Tags: 1999, Backlog, Bone Diseases/drug therapy, Calcinosis/drug therapy, Child, Clodronate, Diphosphonates/pharmacokinetics/pharmacology/therapeutic use, Humans, Hypercalcemia/drug therapy, Journal Article, Shoemaker LR, The Journal Of Pediatrics

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