Browse Items · Pediatric Palliative Care Library

Psychological Correlates of Depression in Children with Recurrent Abdominal Pain

Objective To examine the associations between coping style, social support, self-efficacy, locus of control, maternal adjustment, and depressive symptoms in children with recurrent abdominal pain (RAP) of childhood. Methods Fifty children with RAP…

Tags: 2006, Backlog, Dewey D, Journal Article, Journal of Pediatric Psychology, Kaminsky L, PedPal Lit, Robertson M

A theory of healing in the aftermath of youth suicide. Implications for holistic nursing practice

The purpose of this family-focused, grounded-theory study was to develop a substantive theory that explains how individual family members heal in the aftermath of youth suicide. Individual healing following youth suicide is conceptualized as a…

Caregiver-reported nociceptive pain responses in children with significant neurological impairment (Poster)

Tags: Carleton B, Dewan T, Gnanakumar V, Holsti L, Johnston E, Oberlander T, Orkin J, PIUO, Richardson A, Siden H, Vadeboncoeur C

Exploring Resident Physicians' Experiences Practicing in Pediatric Palliative Care: A Hermeneutic Method of Inquiry

Objectives: The experiences of medical residents during training in pediatric palliative care has recently become an area of focus within medical education literature. Residents' medical knowledge, skill development, and comfort in clinical practice…

From death notification through the funeral: bereaved parents' experiences and their advice to professionals

Parents who experience the sudden death of a child will interact with many professionals in the period immediately following the death notification through to the funeral. The way these professionals respond to the parents during this critical period…

Tags: 2003, Attitude To Death, Backlog, Bereavement, Cadell S, Child, Death, Fatal Outcome, Funeral Rites, Grief, Janzen L, Journal Article, Omega, Parents, Sudden, Westhues A

PaedPalLit: The International Journal of Paediatric Palliative Care

Tags: 2007, Book/Book Section, Hunt A, Jassal S, McCulloch R, Siden H, Thompson A

Everyday struggling to survive: Experiences of the urban poor living with advanced cancer.

2007

Tags: 2007, Backlog, Davies B, Gudmundsdottir M, Hughes A, Journal Article, Oncology Nursing Forum, ONS Excellence in Cancer Nursing Research Award

Can you give me respect? Experiences of the urban poor on a dedicated AIDS nursing home unit

2008

Tags: 2008, Backlog, Davies B, Gudmundsdottir M, Hughes A, Journal Article, Journal Of The Association Of Nurses In Aids Care

Grief and growth in bereaved siblings: Interactions between different sources of social support

The objective was to characterize the relation between different sources of school-based social support (friends, peers, and teachers) and bereaved siblings’ grief and grief-related growth and to examine whether nonparental sources of social support…

Acute and Persistent Postoperative Functional Decline in Children with Severe Neurological Impairment: A Qualitative, Exploratory Study

Background: Children with severe neurologic impairment (SNI) regularly require major surgery to manage their underlying conditions. Anecdotal evidence suggests that children with SNI experience unexpected and persistent postoperative functional…

Tags: 2024, Caregivers, Child, Children, complex care, England S, function, Gibson M, Hermansen AM, Holsti L, May List 2024, McWilliams B, Only Child, Pediatrics, severe neurological impairment, Siden H, Surgery

The Family Liaison : an integral part of our research team (Poster)

Hermansen_A_et_al_Family_liason_poster_2021.pdf

In caring for children with serious illness the clinician’s approach is always family centred. As such our clinical research team has continuously involved families in our studies beyond their role as participants in our research. A Family Advisory…

Tags: 2021, Family Liaison, Hermansen AM, Kim L, Parent Participation, Siden H

End-of-Life Childhood Cancer Research: A Systematic Review

CONTEXT: Children with incurable cancer may participate in research studies at the end of life (EOL). These studies create knowledge that can improve the care of future patients. OBJECTIVE: To describe stakeholder perspectives regarding research…

Tags: 2021, 2021 Special Edition - Oncology, Hasan F, Oncology, Pediatrics, Sung L, Wheaton L, Widger K

End-of-life care of children with diffuse intrinsic pontine glioma

The end-of-life management of children with diffuse intrinsic pontine glioma (DIPG) is challenging. Families cope with debilitating symptoms and make complex decisions regarding their child's care. However, there is little evidence guiding palliative…

Tags: 2018, April 2018 List, Bartels U, Bouffet E, Child, Diffuse Intrinsic Pontine Glioma (DIPG), End-of-life Care, Glioma, Hasan F, Journal of Neuro-Oncology, Only Child, Palliative Care, Pediatric Oncology, Rapoport A, Terminal Care, Weingarten K

Understanding Canadian Punjabi-speaking South Asian women's experience of breast cancer: A qualitative study

2008

Tags: 2008, Backlog, Barroetavena MC, Cadell S, Doll R, Gurm BK, International Journal Of Nursing Studies, Journal Article, Mackenzie G, Stephen J

Clinician views on and ethics priorities for authorizing medical cannabis in the care of children and youth in Canada: a qualitative study

BACKGROUND: The use of cannabis for medical purposes by pediatric patients is expanding across Canada; however, supporting evidence, federal regulations and treatment guidelines are lacking. To understand factors affecting treatment decisions in this…

Tags: 2022, Canada, Children, Clinicians, Cmaj Open, Crooks B, Ethics, Gunning M, Illes J, Kelly LE, May 2022 List, medical cannabis, Oberoi S, Qualitative Study, Rapoport AL, Rassekh SR, Rotenberg AD, Youth

Ensuring pain relief for children at the end of life

2006

Tags: 2006, Adolescent, Analgesia/methods, Backlog, Child, Female, Frager G, Grégoire MC, Humans, Infant, Journal Article, Male, Pain Measurement/methods, Pain Research & Management : The Journal Of The Canadian Pain Society = Journal De La Societe Canadienne Pour Le Traitement De La Douleur, Pain/etiology/psychology/therapy, Palliative Care/methods, Preschool, Terminal Care/methods

"Doctor, I think my baby is in pain": the assessment of infants' pain by health professionals

2008

Tags: 2008, Backlog, Finley GA, Grégoire MC, Jornal De Pediatria, Journal Article

Power, pathalogical worldviews and the strengths perspective in social work

2009

Tags: 2009, Backlog, Cadell S, Families In Society, Grant J, Journal Article

Changes In Parents After The Death Of A Child From Cancer

CONTEXT: Few studies have compared multiple perspectives of changes experienced by parents after a child's death. OBJECTIVES: This study used interviews with bereaved parents and siblings to examine changes in parents during the first year after the…

Peer relationships of bereaved siblings and comparison classmates after a child's death from cancer

OBJECTIVES: To compare peer relationships among bereaved siblings and matched classmates, and to examine gender, grade level, and time since death as moderators. METHODS: Families were recruited from cancer registries at four hospitals 3-12 months…

Pain Reporting And Analgesia Management In 270 Children With A Progressive Neurologic, Metabolic Or Chromosomally Based Condition With Impairment Of The Central Nervous System: Cross-sectional, Baseline Results From An Observational, Longitudinal Study

Little is known about the prevalence, characterization and treatment of pain in children with progressive neurologic, metabolic or chromosomal conditions with impairment of the central nervous system. The primary aims of this study were to explore…

Tags: 2017, Andrews GS, Charting the territory, Friedrichsdorf SJ, Hamre K E, Hospice, Journal Of Pain Research, Life-limiting, Neuropathic Pain, October 2017 List, Pain and Irritability Project, Palliative, Pediatric Palliative Care, Postier A, Siden H, Steele R

Changes in siblings after the death of a child from cancer.

IMPLICATIONS FOR PRACTICE: Our findings offer guidance to improve aftercare for bereaved siblings and their families. Additional research is needed to further delineate the needs of bereaved siblings and to develop strategies to promote adaptation to…

Bereaved Parents’ and Siblings’ Reports of Legacies Created by Children With Cancer

This qualitative study explored bereaved parents’ and siblings’ reports of legacies created by children with advanced cancer. Participants included 40 families of children who died from cancer, with 36 mothers, 27 fathers, and 40 siblings (ages 8-18…

Symptoms, adverse events, and outcomes in the use of medicinal cannabis in children and adolescents with autism spectrum disorder: a scoping review protocol

OBJECTIVE: The objective of this scoping review is to map and identify the symptoms, adverse events, and outcomes in the use of medicinal cannabis in children and adolescents with autism spectrum disorder. INTRODUCTION: Autism spectrum disorder is a…

Tags: 2021, Adolescent, Autism spectrum disorder, Child, Delivery of Health Care, Fletcher S, Humans, Ip A, JBI Evidence Synthesis, Medical Marijuana, Medicinal Cannabis, Oberlander T, Parents, Pawliuk C, Review Literature as Topic, Siden H

Medicinal cannabis in children and adolescents with autism spectrum disorder: A scoping review

BACKGROUND: Autism spectrum disorder (ASD) is a neurodevelopmental condition estimated to affect 1 in 66 children in Canada and 1 in 270 individuals worldwide. As effective therapies for the management of ASD core and associated symptoms are limited,…

Supportive care needs of women with lung cancer

The main purpose of this exploratory study was to identify the supportive care needs of women with lung cancer who attend an ambulatory regional cancer centre. Lung cancer has more than a physical impact on those who are diagnosed with the disease,…

Tags: 2008, Backlog, Canadian Oncology Nursing Journal, Caregivers, Fitch MI, Journal Article, Lung Cancer, Lung Neoplasms, Questionnaires, Steele R, Support, Women

Evaluation of children with severe neurological impairment admitted to hospital with pain and irritability

BACKGROUND: Pain is the most common symptom reported by caregivers of children with severe neurological impairment (SNI), a descriptive term for children with disorders affecting the neurological system across multiple domains. In SNI, cognition,…

Growing up: Perspectives of children, families, and service providers regarding the needs of older children with perinatally-acquired HIV

2006

Tags: 2006, AIDS care, Alimenti A, Backlog, Cadell S, Chapman GE, Fielden SJ, Forbes JC, Frankish JC, Journal Article, Scheckter L, Sheps S

Managing Stigma in Adolescent HIV: Silence, Secrets and Sanctioned Spaces

Tags: 2011, Backlog, Cadell S, Chapman G, Culture, Health And Sexuality, Fielden S, Journal Article

Pediatric palliative care patients: a prospective multicenter cohort study

OBJECTIVE: To describe demographic and clinical characteristics and outcomes of patients who received hospital-based pediatric palliative care (PPC) consultations. DESIGN, SETTING, AND PATIENTS: Prospective observational cohort study of all patients…

Maintaining Integrity: How Nurses Navigate Boundaries in Pediatric Palliative Care

PURPOSE: To explore how nurses manage personal and professional boundaries in caring for seriously ill children and their families., DESIGN AND METHODS: Using a constructivist grounded theory approach, a convenience sample of 18 registered nurses…

Siblings’ voices: A prospective investigation of experiences with a dying child

Sibling relationships reflect a unique childhood bond, thus the impact on a sibling when a child is seriously ill or dying is profound. We conducted a prospective, longitudinal, qualitative study over 2 years using interpretive descriptive…

Identifying Indicators Of Quality Pediatric Palliative Care: A Systematic Review

Pediatric palliative care (PPC) is a relatively new but rapidly expanding specialty area with a variety of models of care provision. Identification and validation of quality indicators specific to PPC is essential to accurately monitor and assess the…

Tags: 2016, Duc J, February 2017 List, Feudtner C, Johnston K, Journal of Pain and Symptom Management, Rapoport A, Siden H, Widger K, Wolfe J

Case 2: A 10-year-old boy with leg pain and swelling.

Tags: 2015, Doherty M, Paediatrics & Child Health, Vadeboncoeur C, Wheaton L

Successful use of indwelling tunneled catheters for the management of effusions in children with advanced cancer

Background Malignant pleural effusion (MPE) and ascites (MA) negatively impact quality of life of palliative patients. Treatment options are limited. This study's purpose is to examine the experience with indwelling tunneled catheters (ITCs) for…

Tags: 2013, ascites, Backlog, catheters, Connolly BL, den Hollander BS, Grant RM, indwelling, Journal Article, malignant, Parra D, Pediatric Blood & Cancer, Pediatric Oncology, pleural effusion, Rapoport A, Sung L, Temple MJ, Zwaan Cm

Medical Assistance in Dying at a paediatric hospital

This article explores the ethical challenges of providing Medical Assistance in Dying (MAID) in a paediatric setting. More specifically, we focus on the theoretical questions that came to light when we were asked to develop a policy for responding to…

Tags: 2018, DeMichelis C, Journal of Medical Ethics, October 2018 List, Rapoport A, September 2018 List, Zlotnik SR

Bereavement

Tags: 2004, Book/Book Section, Children, Chronic Disease, Davies B, Gudsmundsdottir M, Longitudinal Studies, Orloff S, Palliative Care, Palliative Care For Infants, Children And Adolescents: A Practical Handbook, Sumner L, Terminal Care, Terminally Ill, Toce S, Worder W

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