Browse Items (195 total)
- Tags: Longitudinal Studies
Wilson's disease: a longitudinal study of psychiatric symptoms
Tags: 1990, Adolescent, Adult, Amnestic, Backlog, Berrios GE, Biological Psychiatry, Cognitive Disorders/di [Diagnosis], Cognitive Disorders/px [Psychology], Cohort Studies, Delirium, Dementia, Dening TR, Female, Follow-up Studies, Hepatolenticular Degeneration/di [Diagnosis], Hepatolenticular Degeneration/px [Psychology], Humans, IM, Journal Article, Liver Function Tests, Longitudinal Studies, Male, Neurologic Examination, Neuropsychological Tests, Retrospective Studies
WHO Definition of Palliative Care.
WeeFIM: Normative sample of an instrument for tracking functional independence in children.
Tags: 1994, Adaptation, Age Factors, Backlog, Braun S, Child, Clinical Pediatrics, Cross-sectional Studies, DiGaudio K, Disability Evaluation, Duffy LC, Female, Granger CV, Humans, Infant, Journal Article, LaForest S, Longitudinal Studies, Male, Msall ME, Neuropsychological Tests, Preschool, Psychological, Self Care
Vulnerability and resilience to combat exposure: can stress have lifelong effects?
Tags: 1994, 80 And Over, Adaptation, Adult, Aged, Aldwin CM, Backlog, Combat Disorders/diagnosis/psychology, Defense Mechanisms, Europe, Follow-up Studies, Humans, Journal Article, Korea, Levenson MR, Longitudinal Studies, Male, Mathematical Computing, Middle Aged, Non-P.H.S., P.H.S., Personality Development, Personality Inventory/statistics & numerical data, Psychological, Psychological/complications, Psychology And Aging, Research Support, Software, Spiro A, Stress, U.S. Gov't, Veterans/psychology
Validity of the McGill Quality of Life Questionnaire in the palliative care setting: a multi-centre Canadian study demonstrating the importance of the existential domain
Tags: 1997, Backlog, Bruera E, Cohen SR, Humans, Journal Article, Longitudinal Studies, Mental Health, Mental Status Schedule, Mount BM, Multicenter Studies as Topic, Neoplasms/psychology, Palliative Care, Palliative Medicine, Provost M, Quality Of Life, Questionnaires, Reproducibility of Results, Rowe J, Sensitivity and Specificity, Tong K
Trisomy 18 in neonates: prenatal diagnosis, clinical features, therapeutic dilemmas and outcome
Tags: 2006, Abnormalities, Backlog, Bober K, Central Nervous System/abnormalities, Chromosomes, Congenital/diagnosis/genetics/therapy, Female, Goc B, Heart Defects, Human, Humans, Infant, Journal Article, Journal Of Applied Genetics, Krzystolik-Ladzinska J, Longitudinal Studies, Multiple/diagnosis/genetics/mortality/therapy, Newborn, Pair 18, Poland/epidemiology, Pregnancy, Prenatal Diagnosis, Prognosis, Retrospective Studies, Swietlinski J, Trisomy, Walencka Z, Wiecek-Wlodarska D, Wloch A, Wojciechowska E
Toward family-centered inpatient medical care: The role of parents as participants in medical decisions.
Tags: 2007, Adolescent, Adult, Backlog, Child, Christakis DA, Consumer Participation, Data Collection, Decision Making, Family Nursing, Female, Hospitalization, Humans, Journal Article, Logistic Models, Longitudinal Studies, Lozano P, Male, Middle Aged, Multivariate Analysis, Parents/psychology, Self Efficacy, Tarini BA, The Journal Of Pediatrics
Therapeutic modification of membrane lipid abnormalities in juvenile neuronal ceroid-lipofuscinosis (Batten disease).
Tags: 1988, Adolescent, American Journal Of Medical Genetics, Backlog, Bennett MJ, Cartwright IJ, Corn Oil/therapeutic use, Dietary Fats, Fish Oils/therapeutic use, Follow-up Studies, Galloway JH, Gayton R, Hosking GP, Humans, Journal Article, Lipid Metabolism, Lipoproteins/blood, Longitudinal Studies, Neuronal Ceroid-Lipofuscinoses/diet therapy/drug therapy/therapy, Thompson G
The symptoms of dying children.
Tags: 2003, Adolescent, Affective Symptoms/epidemiology/psychology, Backlog, Child, Collins JJ, Drake R, Female, Frost J, Hospitalized/psychology/statistics & numerical data, Humans, Infant, Intensive Care/psychology/statistics & numerical data, Journal Article, Journal of Pain and Symptom Management, Longitudinal Studies, Male, Neoplasms/epidemiology/psychology, Pain/epidemiology/psychology, Palliative Care/psychology/statistics & numerical data, Preschool, Prevalence, Respiratory Insufficiency/epidemiology/psychology, Retrospective Studies
The psychosocial well-being of children with chronic disease, their parents and siblings: an overview of the research evidence base.
Tags: 2006, Adaptation, Backlog, Barlow JH, Child, Child: Care, Health and Development, Children W/SNI, Chronic Disease/psychology/rehabilitation, Ellard DR, Evidence-based Medicine, Family Health, Humans, Journal Article, Literature review, Longitudinal Studies, Mental Disorders/etiology, Meta-Analysis, Parents/psychology, Psychological, Siblings/psychology
The posttraumatic growth inventory: measuring the positive legacy of trauma.
Tags: 1996, Adaptation, Adolescent, Adult, Backlog, Calhoun LG, Female, Gender Identity, Humans, Interpersonal Relations, Journal Article, Journal Of Traumatic Stress, Life Change Events, Longitudinal Studies, Male, Personality Development, Personality Inventory/statistics & numerical data, Philosophy, Post-Traumatic/diagnosis/psychology/rehabilitation, Psychological, Self Concept, Social Perception, Stress Disorders, Tedeschi RG
The positive impact of children with an intellectual disability on the family.
The natural history of type B Niemann-Pick disease: Results from a 10-year longitudinal study.
Tags: 2004, Adolescent, Adult, Backlog, Blood Cell Count, Child, Desnick RJ, Disease Progression, Female, Genotype, Hossain S, Humans, Hypersplenism/etiology, Journal Article, Lamm C, Leukopenia/etiology, Lipids/blood, Liver/physiopathology, Longitudinal Studies, Male, McGovern MM, Middle Aged, Niemann-Pick Diseases/blood/complications/genetics/physiopathology, Pediatrics, Phenotype, Preschool, Q3 Scoping Review Results, Respiratory Physiology, Schuchman EH, Splenomegaly/etiology, Thrombocytopenia/etiology, Wallenstein S, Wasserstein MP
The natural history of medium-chain acyl CoA dehydrogenase deficiency in the Netherlands: clinical presentation and outcome
Tags: 2006, Acyl-CoA Dehydrogenase/deficiency/genetics, Adolescent, Adult, Backlog, Child, Cohort Studies, Derks TG, Disease Progression, Gerver WJ, Humans, Inborn Errors/complications/diagnosis/genetics, Infant, Journal Article, Longitudinal Studies, Metabolism, Middle Aged, Mutation/genetics, Netherlands, Newborn, Preschool, Prognosis, Reijngoud DJ, Retrospective Studies, Sauer PJ, Severity Of Illness Index, Smit GP, The Journal Of Pediatrics, van den Berg MP, Waterham HR
The natural history of juvenile or subacute GM2 gangliosidosis: 21 new cases and literature review of 134 previously reported.
Tags: 2006, Acute Disease, Adolescent, Adult, Backlog, Banwell B, Blaser S, Child, Clarke JT, Female, Gangliosidoses, Giugliani R, GM2/diagnosis, Humans, Infant, Journal Article, Kok F, Longitudinal Studies, Maegawa GH, Mahuran D, Male, Pediatrics, Preschool, Prospective Studies, Q3 Scoping Review Results, Retrospective Studies, Stockley T, Tropak M
The Measurement of Symptoms in Children with Cancer
Tags: 2000, Adolescent, Backlog, Byrnes ME, Cancer, Child, Children, Collins J J, Cough/etiology, Dunkel IJ, Eating Disorders/etiology, Fatigue/etiology, Female, Humans, Journal Article, Journal of Pain and Symptom Management, Lapin J, Longitudinal Studies, Male, malignancy, Nadel Traci, Nausea/etiology, Neoplasms/complications/physiopathology/psychology, Oncology at EOL, Pain/etiology, Pediatrics, Polyak Tanya, Portenoy RK, Rapkin B, Sleep Stages, symptom distress, Symptoms, Thaler H
The journey through care: study protocol for a longitudinal qualitative interview study to investigate the healthcare experiences and preferences of children and young people with life-limiting and life-threatening conditions and their families in the West Midlands, UK
Tags: 2018, Adolescent, Bmj Open, Child, Coad J, Dale J, Family/px [psychology], Female, Humans, Longitudinal Studies, Male, Mitchell S, October 2018 List, Palliative Care/es [Ethics], Palliative Care/mt [methods], Patient Preference/px [Psychology], Preschool, Qualitative Research, Quality of Health Care/og [Organization & Administration], Research Design, September 2018 List, Slowther AM, United Kingdom
The impact of parental status on the risk of completed suicide.
Tags: 2003, Adolescent, Adult, Aged, Archives Of General Psychiatry, Backlog, Bereavement, Cause Of Death, Child, Denmark/epidemiology, Family Characteristics, Female, Grief, Humans, Infant, Journal Article, Longitudinal Studies, Male, Middle Aged, Mortensen PB, Parents/psychology, Preschool, Qin P, Registries, Risk Factors, Socioeconomic Factors, Suicide/prevention & control/psychology/statistics & numerical data
The health and well-being of caregivers of children with cerebral palsy.
Tags: 2005, Adaptation, Adult, Backlog, Brehaut J, Caregivers/psychology, Cerebral Palsy/psychology, Child, Child Behavior Disorders/etiology, Cohort Studies, Disabled Children, Family Health, Female, Foster Home Care, Humans, Journal Article, Longitudinal Studies, Male, Middle Aged, Models, O'Donnell M, Ontario, Parent-child Relations, Parents, Pediatrics, Professional-patient Relations, Psychological, Psychological/epidemiology/etiology, Questionnaires, Raina P, Rosenbaum P, Russell D, Self Concept, Severity Of Illness Index, Social Support, Stress, Swinton M, Theoretical, Walter SD, Wood E, Zhu Bin
The Functional Independence Measure for Children (WeeFIM). Conceptual basis and pilot use in children with developmental disabilities.
Tags: 1994, Adaptation, Adolescent, Backlog, Campbell J, Catanzaro NL, Child, Clinical Pediatrics, Developmental Disabilities/diagnosis, DiGaudio K, Disability Evaluation, Duffy LC, Female, Humans, Infant, Journal Article, LaForest S, Longitudinal Studies, Male, Msall ME, Neuropsychological Tests, Pilot Projects, Preschool, Psychological, Rogers BT, Wilczenski F
The clinical and demographic characteristics of nonneuronopathic Gaucher disease in 887 children at diagnosis
Tags: 2006, Adolescent, AIM, Andersson HC, Anemia/et [Etiology], Archives Of Pediatrics & Adolescent Medicine, Backlog, Bone Diseases/et [Etiology], Child, Female, Gaucher Disease/co [Complications], Gaucher Disease/di [Diagnosis], Growth Disorders/et [Etiology], Hepatomegaly/et [Etiology], Humans, IM, Infant, Journal Article, Kacena KA, Kaplan P, Longitudinal Studies, Male, Newborn, Preschool, Q3 Scoping Review Results, Splenomegaly/et [Etiology], Thrombocytopenia/et [Etiology], Yee JD
The boy who refused an IV: a case report of subcutaneous clodronate for bone pain in a child with Ewing Sarcoma
The boy in the moon.
Tay-Sachs disease: Progression of changes on neuroimaging in four cases.
Tags: 1992, Atrophy, Backlog, Brain Diseases, Brain/pathology, Child, Demyelinating Diseases/diagnosis/pathology, Emission-Computed, Follow-up Studies, Fukumizu M, Humans, Infant, Journal Article, Kurokawa T, Longitudinal Studies, Magnetic Resonance Imaging, Male, Metabolic/diagnosis/pathology, Neuroradiology, Preschool, Sakuragawa N, Takashima S, Tay-Sachs Disease/diagnosis/pathology, Tomography, X-Ray Computed, Yoshikawa H
Symptoms in children/young people with progressive malignant disease: United Kingdom Children's Cancer Study Group/Paediatric Oncology Nurses Forum survey.
Tags: 2006, Adolescent, Adult, Backlog, Child, Childs M, Collins GS, Disease Progression, Female, Goldman A, Hain R, Hewitt M, Humans, Infant, Journal Article, Longitudinal Studies, Male, Neoplasms/complications/diagnosis, Pediatrics, Preschool, Prospective Studies, Questionnaires, United Kingdom Children's Cancer Study Group/Paediatric Oncology Nurses' Forum Palliative Care Working Group
Symptoms and Suffering at the End of Life in Children with Cancer
Tags: 2000, Anorexia/etiology/therapy, Backlog, Boston, Child, Children's Hospital (Boston), Clodronate, Constipation/etiology/therapy, Dana-Farber Cancer Institute (Boston), Death and Euthanasia, Diarrhea/etiology/therapy, Dyspnea/etiology/therapy, Ellenbogen JM, Emanuel EJ, Empirical Approach, Fatigue/etiology/therapy, Grier Holcombe E, Health Care Surveys, home care services, Humans, Journal Article, Klar Neil, Levin SB, Logistic Models, Longitudinal Studies, Neoplasms/complications/therapy, New England Journal Of Medicine, Non-U.S. Gov't, Oncology at EOL, P.H.S., Pain/etiology/therapy, Palliative Care/standards/statistics & Numerical Data, Parents, Physicians, Professional Patient Relationship, Psychological, Quality Of Health Care, Quality Of Life, Questionnaires, Research Support, Salem-Schatz S, Stress, Terminal Care, U.S. Gov't, Weeks Jane C, Withholding Treatment, Wolfe J
Survival in trisomy 13 and trisomy 18 cases ascertained from population based registers.
Tags: 2002, Backlog, Brewer CM, Carothers AD, Chromosomes, FitzPatrick DR, Holloway SH, Human, Humans, Infant, Journal Article, Journal Of Medical Genetics, Longitudinal Studies, Newborn, Pair 13/genetics, Pair 18/genetics, Registries/statistics & numerical data, Scotland, Stone DH, Survival Analysis, Trisomy
Suicide ideation among parents bereaved by the violent deaths of their children.
Tags: 2003, Accidents/psychology, Adaptation, Adolescent, Adult, Backlog, Bereavement, Child, Depression/diagnosis/psychology, Family Health, Female, Homicide/psychology, Humans, Issues In Mental Health Nursing, Johnson LC, Journal Article, Lohan JA, Longitudinal Studies, Male, Middle Aged, Murphy SA, Parents/psychology, Post-Traumatic/diagnosis/psychology, Predictive Value of Tests, Psychiatric Status Rating Scales, Psychological, Psychological/diagnosis/psychology, Questionnaires, Self Efficacy, Social Support, Stress, Stress Disorders, Suicide/psychology, Tapper VJ, Violence/psychology
Structural equation modeling with longitudinal data: strategies for examining group differences and reciprocal relationships
Tags: 1994, Adolescent, Alcohol Drinking/epidemiology/psychology, Alcoholism/epidemiology/psychology, Anger, Backlog, Cohort Studies, Farrell AD, Female, Follow-up Studies, Gender Identity, Humans, Journal Article, Journal Of Consulting And Clinical Psychology, Longitudinal Studies, Male, Models, Peer Group, Personality Inventory/statistics & numerical data, statistical
Spiritual aspects of loss at the time of a partner's death from AIDS
Sleep problems in children with Sanfilippo syndrome.
Tags: 1996, Bax M, Child, Child Preschool, Colville G A, Developmental Medicine and Child Neurology, Female, Humans, Longitudinal Studies, Male, MPS III, Mucopolysaccharidosis III/classification, Mucopolysaccharidosis III/complications, psychological intervention, Questionnaires, Sleep Disorders/etiology, Sleep Disorders/therapy, sleep disturbance/disorders, Time Factors, Watters J P, Yule W
Sleep problems in children with Sanfilippo syndrome.
Tags: 1996, Backlog, Bax M, Child, Colville GA, Developmental Medicine and Child Neurology, Female, Humans, Journal Article, Longitudinal Studies, Male, Mucopolysaccharidosis III/classification, Mucopolysaccharidosis III/complications, Preschool, Questionnaires, Sleep Disorders/etiology, Sleep Disorders/therapy, Time Factors, Watters JP, Yule W
Sleep disturbances in aspartylglucosaminuria (AGU): a questionnaire study.
Tags: 2006, Acetylglucosamine, Acetylglucosamine/analogs & derivatives/urine, Adolescent, Adult, Aspartylglucosaminuria, characteristics, Child, Child Preschool, Children W/SNI, Female, Heiskala H, Humans, Journal Of Inherited Metabolic Disease, Kaski M, Kivinen S, Laakso M L, Lindblom N, Longitudinal Studies, Male, Metabolism Inborn Errors, Metabolism Inborn Errors/complications/pathology, Middle Aged, Prevalence, Questionnaires, Sleep Disorders/complications/diagnosis, sleep disturbance/disorders, Sleep Wake Disorders, Surveys And Questionnaires, Trajectory
Sleep disturbances in aspartylglucosaminuria (AGU): a questionnaire study.
Tags: 2006, Acetylglucosamine/analogs & derivatives/urine, Adolescent, Adult, Backlog, Child, Children W/SNI, Female, Heiskala H, Humans, Inborn Errors/complications/pathology, Journal Article, Journal Of Inherited Metabolic Disease, Kaski M, Kivinen S, Laakso ML, Lindblom N, Longitudinal Studies, Male, Metabolism, Middle Aged, Preschool, Prevalence, Questionnaires, Sleep Disorders/complications/diagnosis
Shared Spiritual Beliefs between Adolescents with Cancer and Their Families
Tags: 2020, 2021 Special Edition - Oncology, Adolescent, Adolescent Behavior, Adolescents, Adult, Advance Care Planning/statistics & Numerical Data, Baker JN, Cancer, Cheng YI, congruence, Cross-sectional Studies, Decision Making, Family, Family/psychology, Female, Follow-up Studies, Friebert S, funding from the American Cancer Society to adapt/translate this protocol into, Humans, Livingston J, Longitudinal Studies, Lyon ME, Male, Neoplasms/psychology/therapy, Pediatric Blood & Cancer, Prognosis, Quality Of Life, Religion and Medicine, Single-Blind Method, Spanish. There are no other conflicts of interest to disclose., Spirituality, study from the National Institutes of Health. Maureen E. Lyon is also receiving, Thompkins J, Tweddle M, Wang J, Young Adult