Browse Items · Pediatric Palliative Care Library

Current concepts of cerebral malformation syndromes

In the past, children with many brain malformations were classified as having static encephalopathies (cerebral palsy), often attributed to perinatal or prenatal distress. Understanding of the frequency and clinical manifestations of brain…

Tags: 1999, Backlog, Barkovich AJ, Brain Diseases/diagnosis/pathology/physiopathology, Cerebral Palsy/diagnosis/pathology/physiopathology, Child, Current Opinion In Pediatrics, Human, Journal Article, Lequin MH, Magnetic Resonance Imaging, Muscular Dystrophies/diagnosis/pathology/physiopathology, Nervous System Malformations/diagnosis/pathology/physiopathology, Syndrome

Prospective study of symptom control in 133 cases of palliative care inpatients in Shatin Hospital

We report a prospective study assessing the prevalence and severity of physical and nonphysical symptoms, and the benefits from treatment and intervention, in advanced cancer patients presenting to a local palliative care unit in Hong Kong. Patients…

The proopiomelanocortin system in cutaneous neuroimmunomodulation. An introductory overview

1999

Tags: 1999, Animals, Annals Of The New York Academy Of Sciences, Backlog, Biomarkers of Pain, Humans, Journal Article, Lipton J, Luger TA, Neuroimmunomodulation/physiology, Paus R, Pro-Opiomelanocortin/physiology, Skin Physiology, Skin/immunology, Slominski A

The Cardiovascular Health Education Program: assessing the impact on rural and urban adolescents' health knowledge

In this research study, a quasi-experimental, nonequivalent control group pretest-posttest design was used to assess the impact of the Cardiovascular Health Education Program (CHEP) on the cardiovascular health knowledge of grade eight adolescents. A…

Juvenile hyaline fibromatosis: clinical heterogeneity in three patients

BACKGROUND: Systemic hyalinoses are genetic generalized fibromatoses characterized by an accumulation of hyalin in the dermis. Two distinctive syndromes are recognized in the literature: infantile systemic hyalinosis (ISH) and juvenile hyaline…

Dying, mourning, and spirituality: A psychological perspective

1999

Tags: 1999, Backlog, Death studies, Journal Article, Marrone R, mourning

Designing qualitative research

Tags: 1999, Book/Book Section, Marshall C, Qualitative Research, Research, Rossman GB

Guidelines for assistance to terminally ill children with cancer: a report of the SIOP Working Committee on psychosocial issues in pediatric oncology

This, the sixth official document of the SIOP Working Committee on psychosocial issues in pediatric oncology, develops another important and especially difficult topic: assistance for terminally ill children with cancer. This is provided for the…

Better for it: how people benefit from adversity

Recently, researchers in several different fields have discovered that people who have experienced seriously adverse events frequently report that they were positively changed by the experience. Respondents in these studies typically have reported a…

Tags: 1999, Adaptation, Backlog, Humans, Internal-External Control, Journal Article, Life Change Events, McMillen JC, P.H.S., Psychiatric, Psychological, Research Support, Social Work, Survivors/psychology, U.S. Gov't

Methadone response in advanced cancer patients with pain followed at home

Concerns about the safety of therapy with methadone, which may arise because of its pharmacokinetic characteristics and inappropriate dosing, may deter clinicians from using this drug, especially in elderly patients. Experience is accumulating that…

Serum melatonin kinetics and long-term melatonin treatment for sleep disorders in Rett syndrome

We studied the circadian rhythm of serum melatonin levels in two patients with classical Rett syndrome having severe sleep disorders; serum melatonin levels were measured before and during melatonin treatment using radioimmunoassay. Patient 1 had a…

Tags: 1999, Brain and Development, melatonin, Miyamoto A, Oki J, Okuno A, pharmacologic intervention, Rett syndrome, sleep disturbance/disorders, Takahashi S

Systematic review and meta-analysis of randomized controlled trials of cognitive behaviour therapy and behaviour therapy for chronic pain in adults, excluding headache

A computer and a hand search of the literature recovered 33 papers from which 25 trials suitable for meta-analysis were identified. We compared the effectiveness of cognitive-behavioural treatments with the waiting list control and alternative…

Oropharyngeal dysfunction and gastroesophageal dysmotility are present in girls and women with Rett syndrome

BACKGROUND: Feeding impairment frequently complicates the course of children with neurologic disorders and places them at risk for malnutrition and growth failure. Although feeding abnormalities have been reported in female patients with Rett…

Insider or outsider, both or neither: some dilemmas of interviewing in a cross-cultural setting

This paper contributes to the growing literature on methods and techniques for conducting qualitative research in economic geography, as well as to recent feminist debates on the impact that relationships of power between researchers and their…

Tags: 1999, Backlog, Geoforum, Journal Article, Mullings B

Trisomy 18 in Kuwait.

1999

Tags: 1999, Abulhassan SA, Al-Awadi SA, Backlog, Bastaki L, Gouda S, International Journal Of Epidemiology, Journal Article, Longitudinal Studies, Moussa MA, Murthy DS, Mustafa F, Naguib KK, Redha MA, Tayel SM

Narrative strategies in grief therapy

The field of grief therapy is currently in a state of conceptual revolution, opening the prospect of reconfiguring our understanding of the human experience of loss along constructivist lines. In this article I outline some of the tenets of such an…

Tags: 1999, Backlog, Grief, Human, Journal Article, Journal Of Constructivist Psychology, Meaning, Narrative, Neimeyer RA

Use of melatonin to treat sleep disorders in tuberous sclerosis

The results of a therapeutic trial of the use of melatonin in patients with tuberous sclerosis complex who also have severe sleep problems are reported. We used a randomized double-blind placebo-controlled crossover design. Seven patients with…

Tags: 1999, Clarke A, Developmental Medicine and Child Neurology, Hancock E, Hunt A B A, melatonin, O'Callaghan F J K, Osborne J P, pharmacologic intervention, sleep disturbance/disorders, Tuberous Sclerosis

Levomepromazine (methotrimeprazine) and the last 48 hours

Levomepromazine (previously known as methotrimeprazine) has a broad range of beneficial effects in the terminal phase of many illnesses, resulting from its combined antipsychotic, anxiolytic and sedative actions. Levomepromazine can safely be…

Tags: 1999, Antipsychotic Agents/pharmacology/therapeutic use, Backlog, Fountain A, Hospital Medicine, Humans, Journal Article, Methotrimeprazine/pharmacology/therapeutic use, Non-U.S. Gov't, O'Neill J, Psychomotor Agitation/therapy, Psychotic Disorders/drug therapy, Research Support, Terminal Care, Terminally Ill/psychology

Pain in Children with Significant Neurological Impairment

1999

Tags: 1999, Analgesics/therapeutic use, Backlog, Cerebral Palsy/complications, Child, Communication, Developmental And Behavioral Pediatrics, Humans, Journal Article, Montgomery C, Nervous System Diseases/complications, O'Donnell M, Oberlander T, Pain Measurement, Pain/complications/diagnosis/drug therapy/etiology, RDF Project

Psychosocial impact of pediatric BMT on siblings

1999

Tags: 1999, Backlog, Bone Marrow Transplantation, Journal Article, Packman WL

Computer-assisted health counselor visits: a low-cost model for comprehensive adolescent preventive services

OBJECTIVE: To evaluate a low-cost strategy for providing preventive health services to adolescents using computerized health assessments with individualized educational videos, trained health counselors, and nurses. DESIGN: Feasibility study, cost…

The role of palliative care in advanced muscular dystrophy and spinal muscular atrophy.

OBJECTIVE: This study examines the potential role for palliative care services in the care of individuals with muscular dystrophy and spinal muscular atrophy, and the support of their families., METHODOLOGY: Semistructured interviews were conducted…

Neostigmine for the treatment of acute colonic pseudo-obstruction

BACKGROUND: Acute colonic pseudo-obstruction -- that is, massive dilation of the colon without mechanical obstruction -- may develop after surgery or severe illness. Although it may resolve with conservative therapy, colonoscopic decompression is…

Treasure Weekend: supporting bereaved siblings

The importance of allowing bereaved siblings the opportunity to be involved and mourn the loss of a sibling family member has gained increasing recognition. Child family members may need support in the same way that parents might need support to cope…

Consulting with the bereaved mother

1999

Tags: 1999, Backlog, Journal Article, Journal Of Human Lactation, Pugmire L

Variability in physician opinion on limiting pediatric life support

OBJECTIVE: We conducted this study to investigate how physicians in a pediatric intensive care unit (ICU) currently make decisions to withdraw and withhold life support. Consultation with the patient's primary caregiver often precedes decisions about…

Perceptions of control and long-term recovery from rape

The relationship between perceptions of control and symptoms of both long-term depression and post-traumatic stress was examined. Enduring beliefs of personal competence and control were found to be associated with lower rates of depression and…

Spiritual aspects of loss among partners of men with AIDS: postbereavement follow-up

This article is a follow-up study of bereaved caregiving male partners of men with AIDS (T.A. Richards & S. Folkman, 1997). The earlier study examined spiritual beliefs, experiences, and practices reported in interviews with 125 caregivers conducted…

Proopiomelanocortin (POMC) disregulation and response to opiate blockers

Autism is a collection of disorders or subtypes with distinctive or prominent phenotypes and genotypes. The study of adults with autism offers a unique opportunity to examine its phenotypic diversity. Recent evidence has identified disturbances in…

Tags: 1999, Adult, Autistic disorder, Backlog, Journal Article, Mental Retardation And Developmental Disabilities Research Reviews, Naltrexone, Pro-Opiomelanocortin, Sandman CA, Self-Injurious behavior, Smith M, Spence MA

Trends in transition from pediatric to adult health care services for young adults with chronic conditions

PURPOSE: The rationale underlying this study was the need to move the transition health services model from a theoretical framework to an empirically-based investigation. Thus, it was necessary to identify programs for youth with chronic or disabling…

Methadone titration in opioid-resistant cancer pain

AIM: To assess the use of methadone in patients with cancer pain who fail to respond to increasing doses of other opioids or experience intolerable side-effects from them. METHOD: Inpatients of a specialist palliative care unit were titrated onto…

Expanding role of bisphosphonate therapy in children

1999

Tags: 1999, Backlog, Bone Diseases/drug therapy, Calcinosis/drug therapy, Child, Clodronate, Diphosphonates/pharmacokinetics/pharmacology/therapeutic use, Humans, Hypercalcemia/drug therapy, Journal Article, Shoemaker LR, The Journal Of Pediatrics

Efficacy of pharmacological treatments of neuropathic pain: An update and effect related to mechanism of drug action

Tricyclic antidepressants and carbamazepine have become the mainstay in the treatment of neuropathic pain. Within the last decade, controlled trials have shown that numerous other drugs relieve such pain. We identified all placebo-controlled trials…

Levomepromazine for nausea and vomiting in advanced cancer

Levomepromazine (previously known as methotrimeprazine), despite virtually no high quality scientific data to support its use, has become a very popular antiemetic for use in patients with advanced cancer. This article considers the reasons for this.

Tags: 1999, Backlog, Dopamine Antagonists/adverse effects/therapeutic use, Hospital Medicine, Humans, Journal Article, Methotrimeprazine/adverse effects/therapeutic use, Nausea/drug therapy/etiology, Neoplasms/complications, Non-U.S. Gov't, Palliative Care, Research Support, Skinner A, Skinner J, Vomiting/drug therapy/etiology

Browse Items (87 total)