Browse Items · Pediatric Palliative Care Library

A theory of healing in the aftermath of youth suicide. Implications for holistic nursing practice

The purpose of this family-focused, grounded-theory study was to develop a substantive theory that explains how individual family members heal in the aftermath of youth suicide. Individual healing following youth suicide is conceptualized as a…

Evaluating treatment outcome in an interdisciplinary pediatric pain service

OBJECTIVE: To provide descriptive data evaluating outcome and treatment satisfaction among former pediatric patients and their parents seen in an interdisciplinary treatment program for complex pain syndromes. DESIGN: Retrospective telephone…

Tags: 2000, Backlog, Bellows D, Bennett S, Chambers C, Children, Court C, Huntsman E, Journal Article, Montgomery C, Oberlander T, Pain, Pain Research And Management, Sheriff M, Siden H, Therapeutics, Treatment Outcome

Facilitating day-to-day decision making in palliative care

As part of a larger grounded theory study investigating the process by which palliative care patients make everyday choices, a secondary analysis of data was conducted to investigate the ways nurses support or restrict patients' participation in…

Experiences of mothers in five countries whose child died of cancer

Although increasing attention is being focused on the emotional aspects of caring for dying children and their families, few research reports concentrate on the experiences of mothers, particularly in different countries. This article describes the…

A qualitative approach to community and provider needs assessment in a telehealth project

OBJECTIVE: Needs assessment is a critical part of the design and implementation of telehealth projects. This study assessed the need for a telehealth link between a local community and a tertiary-care medical center. METHODS: The assessment was…

Tags: 1998, Backlog, British Columbia, Focus Groups, Humans, Journal Article, Needs Assessment, Non-U.S. Gov't, Program Development, Remote Consultation, Research Support, Siden HB, Telemedicine, Telemedicine Journal : The Official Journal Of The American Telemedicine Association

Comparing parent loss with sibling loss

The death of a loved one is a traumatic loss for children, but little attention has been paid to how children's responses vary according to who died--a parent or a sibling. This article reports the findings of a comparison between children's…

Assessment of need for a children's hospice program

Canuck Place, North America's first free-standing pediatric hospice of its kind, opened in 1995 in British Columbia, Canada. The province-wide program encompasses a broad spectrum of services intended to support community-based care and provide…

Tags: 1996, Adolescent, Backlog, Canada, Child, Child Health Services, Davies B, Death, Death studies, Grief, Health Services Needs And Demand, Hospice Care, Humans, Journal Article, PPC Book Chapter 2011 (Kim Widger), Preschool, Program Development

Parental depression following the death of a child

1991

Tags: 1991, Backlog, Child, Davies B, Death, Death studies, Depression, Journal Article, Martinson I, McClowry S

Conducting feminist research in nursing: personal and political challenges

The challenges of doing feminist nursing research include both personal and political elements. Some of these arise from the threefold influences of being nurses, women, and academics within a larger social context that may be antithetical to…

Tags: 1998, Attitude Of Health Personnel, Backlog, Choice Behavior, Female, Feminism, Health Care For Women International, Humans, Journal Article, Maxwell-Young L, Nurses/psychology, Nursing Methodology Research/methods/standards, Olshansky E, Politics, Research Personnel/psychology, Steele R, Women/psychology

Perceptions of control and long-term recovery from rape

The relationship between perceptions of control and symptoms of both long-term depression and post-traumatic stress was examined. Enduring beliefs of personal competence and control were found to be associated with lower rates of depression and…

A report of four cases of acute, severe pulmonary hemorrhage in infancy and support with extracorporeal membrane oxygenation

Introduction
Pulmonary hemorrhage is an uncommon event in infants. It has been described most commonly in the sick premature neonate, older child, or adolescent with chronic cardiopulmonary disease. Acute idiopathic pulmonary hemorrhage in…

Tags: 1994, Acute Disease, Artificial, Backlog, Extracorporeal Membrane Oxygenation, Female, Hemorrhage/complications/therapy, Humans, Infant, Journal Article, Lung Diseases/complications/therapy, Male, Moler FW, Pediatric Pulmonology, Respiration, Respiratory Insufficiency/etiology/therapy, Sanders GM, Severity Of Illness Index, Siden HB

Shared life space and sibling bereavement responses.

1988-12

Tags: 1988, Backlog, Bereavement, Cancer Nursing, Davies B, IM, Journal Article, N, sibling bereavement

The empty space phenomenon: The process of grief in the bereaved family

1987

Tags: 1987, Backlog, Davies B, Death studies, Journal Article, Kulenkamp E, Martinson I, May A, McClowry S, SSHRC CURA

The family environment in bereaved families and its relationship to surviving sibling behavior

1988

Tags: 1988, Backlog, Child Health Care, Davies B, Family, Journal Article

Manifestations of levels of functioning in grieving families

1986

Tags: 1986, Backlog, Davies B, Family, Journal Article, Journal Of Family Issues, Kulenkamp E, Martinson I, McClowry S, Spinetta J

Addressing spirituality in pediatric hospice and palliative care

Hospice and palliative care principles mandate clinicIans to provide "total" care to patients and their families. Such care incorporates not only physical, emotional, and psychosocial care, but spiritual care as well. Even though considerable…

Building on Values: The Future of Health Care in Canada. Chapter 7

2002

Tags: 2002, Backlog, Journal Article, PPC Book Chapter 2011 (Kim Widger), Romanow R, Widger K

From death notification through the funeral: bereaved parents' experiences and their advice to professionals

Parents who experience the sudden death of a child will interact with many professionals in the period immediately following the death notification through to the funeral. The way these professionals respond to the parents during this critical period…

Tags: 2003, Attitude To Death, Backlog, Bereavement, Cadell S, Child, Death, Fatal Outcome, Funeral Rites, Grief, Janzen L, Journal Article, Omega, Parents, Sudden, Westhues A

Experiences of families in which a child has a prolonged terminal illness: modifying factors.

A significant proportion of children requiring palliative care have neurodegenerative life-threatening illnesses (NLTIs). While most of their care is provided at home by their families over many years, there is a paucity of research examining…

Tags: 2002, Backlog, Child, Communication, Family, Female, Humans, International Journal of Palliative Nursing, Journal Article, Longitudinal Studies, Male, Neurodegenerative Diseases/nursing, Non-U.S. Gov't, Parents/psychology, Research Support, Steele R, Terminal Care/psychology

The wisdom of children

2002

Tags: 2002, Attitude To Death, Backlog, Child, Child Psychology, Davies B, Humans, International Journal of Palliative Nursing, Journal Article

Mourning and meaning

Viewed in an expanded frame, the phenomena of grief and bereavement call for analysis in sociological, psychological, and psychiatric terms. In this article, the authors argue that a common theme in these accounts is that of the meaning of loss as…

Tags: 2002, American Behavioral Scientist, Backlog, Bereavement, Davies B, Grief, Journal Article, mourning, Neimeyer RA, Prigerson HG

Trauma and growth in Canadian carers

The phenomenon of post-traumatic growth has been explored within the context of HIV disease in only a limited fashion. One hundred and seventy-six bereaved HIV/AIDS carers located all over Canada responded to a questionnaire about their experiences;…

A typology of fatigue in children with cancer

Fatigue in adults with cancer has received considerable attention as a troublesome symptom that requires nursing intervention. Fatigue in children with cancer, however, has received considerably less focus. The first phase of the present study used…

Factors contributing to post-traumatic growth: a proposed structural equation model

With the current shift to include positive outcomes of trauma, this research was designed to explore factors that allow growth to occur. Structural equation modeling was used to test a model for understanding posttraumatic growth. A sample (N = 174)…

High dose opioids in pediatric palliative care.

Living in the dragon's shadow': Fathers' experiences of a child's life-limiting illness

Grounded theory methods were used to study the experiences of 8 bereaved fathers whose children received care in a home-based hospice program. In-depth, unstructured interviews were audiotaped, transcribed, and coded for themes and categories. Every…

Tags: 2004, Backlog, Brenner Paul, child's terminal illness, Davies B, Death, Death and Dying, Death studies, father experience, Fathers, Gudmundsdottir M, Hospice, Journal Article, Orloff S, SSHRC CURA, Sumner L, Worden B

Ensuring pain relief for children at the end of life

2006

Tags: 2006, Adolescent, Analgesia/methods, Backlog, Child, Female, Frager G, Grégoire MC, Humans, Infant, Journal Article, Male, Pain Measurement/methods, Pain Research & Management : The Journal Of The Canadian Pain Society = Journal De La Societe Canadienne Pour Le Traitement De La Douleur, Pain/etiology/psychology/therapy, Palliative Care/methods, Preschool, Terminal Care/methods

Psychological Correlates of Depression in Children with Recurrent Abdominal Pain

Objective To examine the associations between coping style, social support, self-efficacy, locus of control, maternal adjustment, and depressive symptoms in children with recurrent abdominal pain (RAP) of childhood. Methods Fifty children with RAP…

Tags: 2006, Backlog, Dewey D, Journal Article, Journal of Pediatric Psychology, Kaminsky L, PedPal Lit, Robertson M

Sibling bereavement and continuing bonds.

Historically, from a Freudian and medical model perspective, emotional disengagement from the deceased was seen as essential to the successful adaptation of bereavement. A major shift in the bereavement literature has occurred and it is now generally…

Do we have the power to create our own future as oncology nurses?

2005

Tags: 2005, Backlog, Canadian Oncology Nursing Journal, Female, Humans, Journal Article, Leadership, Male, Nurse's Role, Nursing, Nursing/psychology, Oncologic Nursing, Power (psychology), Sex Factors, Societies, Steele R, Students

Nutritional failure and cachexia in a pediatric palliative care population.

2006

Tags: 2006, Backlog, Cox K, Journal Article, Journal Of Investigative Medicine, Longitudinal Studies, NET CV, Siden H, Soon G, Straatman L

Parental perspectives on hospital staff members' acts of kindness and commemoration after a child's death

OBJECTIVES: Acts of kindness and commemoration by staff members often follow the death of a patient. Acts include attending funerals, sending sympathy cards, sending cards on birthdays/anniversaries, telephoning/visiting family homes, and attending…

Impact on parents when a child has a progressive, life-threatening illness.

Children with neurodegenerative, life-threatening illnesses (NLTIs) account for a significant proportion of children requiring palliative care, yet there is a lack of of research that examines families' experiences. This grounded theory study…

Tags: 2006, Backlog, Child, Davies B, Disease Progression, Humans, International Journal of Palliative Nursing, Journal Article, Longitudinal Studies, Palliative Care, Parent-child Relations, Pediatrics, Steele R

Posttraumatic growth and HIV bereavement: Where does it start and when does it end?

There is growing interest in researching posttraumatic growth and understanding how to enhance positive outcomes in trauma survivors. This study undertook a systematic exploration of the posttraumatic growth in bereaved caregivers of people with…

Tags: 2006, Backlog, Bereavement, Cadell S, Grief, HIV bereavement, iatrogenic effects of research interventions, Journal Article, Longitudinal Studies, Mixed methods, Post-traumatic, Posttraumatic Growth, Stress Disorders, Sullivan R, Trauma and recovery, Traumatology