Browse Items · Pediatric Palliative Care Library

WeeFIM: Normative sample of an instrument for tracking functional independence in children.

A cross-sectional community sample of 417 children, ages 6 months to 8 years without developmental delays or in developmental programs, was seen. The Functional Independence Measure for Children (WeeFIM) was used to assess independence in self-care,…

Vulnerability and resilience to combat exposure: can stress have lifelong effects?

The purpose of this study was to examine whether appraisals of desirable and undesirable effects of military service mediated the effect of combat stress on posttraumatic stress disorder (PTSD) symptoms in later life in 1,287 male veterans, aged…

Tube feeding in palliative care: benefits and problems

Percutaneous endoscopic gastrostomy techniques are becoming more widely available and will be considered increasingly for patients with head and neck or upper gastrointestinal malignancies, and for neurological dysphagia, as occurs in motor neurone…

Tags: 1994, Aged, Backlog, Beeken L, Boyd KJ, Energy Intake/physiology, Enteral Nutrition/methods, Female, Gastrostomy, Humans, Journal Article, Laryngeal Neoplasms/physiopathology/radiotherapy, Nutrition Assessment, Nutritional Requirements, Palliative Care/methods, Palliative Medicine, Terminal Care/methods, Weight Loss/physiology

Treatment of Complicated Mourning (Book)

Reviews the book "Treatment of Complicated Mourning," by Therese A. Rando.; Reviews the book "Treatment of Complicated Mourning," by Therese A. Rando.

Tags: 1994, Backlog, Bereavement -- Psychological aspects, BOOKS -- Reviews, Family Journal, Journal Article, NONFICTION, RANDO, Rexroat RV, SSHRC CURA, Therese A, TREATMENT of Complicated Mourning (Book)

Things that help and hinder adolescent sibling bereavement

A taxonomy of the things that help and hinder adolescents' sibling bereavement was developed from the responses of 140 bereaved adolescents to the questions What helped you cope with your sibling's death? and What made it harder to cope with your…

The Memorial Symptom Assessment Scale: an instrument for the evaluation of symptom prevalence, characteristics and distress

The Memorial Symptom Assessment Scale (MSAS) is a new patient-rated instrument that was developed to provide multidimensional information about a diverse group of common symptoms. This study evaluated the reliability and validity of the MSAS in the…

The Functional Independence Measure for Children (WeeFIM). Conceptual basis and pilot use in children with developmental disabilities.

Few tools are available to pediatricians for tracking and monitoring disability status in children. We describe the conceptual basis and pilot use of the Functional Independence Measure for Children (WeeFIM). Our pilot use of this instrument in…

The Delphi technique: a worthwhile research approach for nursing?

Since its introduction as a research approach in the late 1940s the Delphi technique has had over 1000 published research utilizations. Most of these have been in the field of social policy. However, a review of contemporary nursing literature…

Tags: 1994, Backlog, Choice Behavior, Decision Making, Delphi Technique, Humans, Journal Article, Journal Of Advanced Nursing, Judgment, McKenna HP, Nursing Research/education/methods/standards, Reproducibility of Results, Research Personnel/psychology

The Delphi Method

1994

Tags: 1994, Backlog, Gordon TJ, Journal Article

The consultant and the patient-physician relationship. A trilateral deliberative model

Termination of nutrition and hydration in a child with vegetative state

A child in a vegetative state may present difficult decisions for physicians and families regarding the course of treatment. We report a case of a child who entered a prolonged vegetative state following status epilepticus. The child's parents…

Structural equation modeling with longitudinal data: strategies for examining group differences and reciprocal relationships

This article describes the use of structural equation modeling with latent variables to examine group differences and test competing models about cause-effect relationships in passive longitudinal designs. This approach is compared with several other…

Statistics for social data analysis

Tags: 1994, Bohrnstedt G, Book/Book Section, Knoke D, Social Sciences, Statistics

Sleep disturbances in depression and anxiety: issues in childhood and adolescence

1994

Tags: 1994, Adolescent, Anxiety Disorders/diagnosis/psychology, Backlog, Child, Depressive Disorder/diagnosis/psychology, Female, Hill P, Humans, Journal Article, Journal of Psychosomatic Research, Male, Reference Values, Sleep Disorders/diagnosis/psychology, Sleep Initiation and Maintenance Disorders/diagnosis/psychology, Sleep Stages

Sleep disorder and epilepsy in children with tuberous sclerosis: a questionnaire-based study

Sleep disorders were investigated in 40 children with tuberous sclerosis (TS) and compared with those found in non-disabled children and those reported in a mixed group with learning disabilities. Significantly higher levels of sleep disturbance were…

Sleep abnormalities in patients with severe cerebral palsy

The all-night polysomnographic findings of nine patients with spastic quadriparesis (mean age 36.7 months) were analysed retrospectively and compared with those of nine age-matched controls (mean age 37.4 months). The cerebral palsy group had…

Tags: 1994, Backlog, Cerebral Palsy/co [Complications], Child, Developmental Medicine & Child Neurology, Electroencephalography, Gibbons VP, Human, Infant, Journal Article, Kotagal S, Preschool, Seizures/co [Complications], Sleep Apnea Syndromes/di [Diagnosis], Sleep Apnea Syndromes/et [Etiology], Sleep Disorders/di [Diagnosis], Sleep Disorders/et [Etiology], Stith JA

Siblings of a child with cancer

A total of 21 healthy siblings were interviewed about their experiences when a brother or sister is diagnosed with cancer. Information about the illness, opinions about who should inform siblings, social support, specific worries and worst memories…

Self-injury in Lesch-Nyhan disease

UNLABELLED: Parents of 40 patients with Lesch-Nyhan disease completed a questionnaire detailing developmental history, life course, management, medication, factors influencing variability and topography of self-injury. Several conclusions were…

Tags: 1994, Adolescent, Adult, Aggression/px [Psychology], Anderson L T, Arousal, behavioral problems, characteristics, Child, Ernst M, Journal of Autism and Developmental Disorders, Lesch-Nyhan syndrome, self-injury, Trajectory

Rapid cycling in severely multidisabled children: a form of bipolar affective disorder?

A debilitating, regularly recurring, biphasic disorder is described in 6 severely multidisabled children. It was characterized by several days of lethargy, withdrawal, loss of abilities, irritability, and hypersomnolence followed or preceded by a…

Tags: 1994, Abroms IF, Adolescence, Amnestic, Anticonvulsants/tu [Therapeutic Use], Backlog, Bipolar Disorder/di [Diagnosis], Bipolar Disorder/dt [Drug Therapy], Bipolar Disorder/ge [Genetics], Bipolar Disorder/px [Psychology], Brown GM, Case Report, Child, Cognitive Disorders/di [Diagnosis], Cognitive Disorders/dt [Drug Therapy], Cognitive Disorders/ge [Genetics], Cognitive Disorders/px [Psychology], Connolly MB, Delirium, Dementia, Disabled Persons/px [Psychology], Espezel H, Female, Freeman RD, Human, Jan JE, Journal Article, Lithium/tu [Therapeutic Use], Male, Mental Retardation/di [Diagnosis], Mental Retardation/ge [Genetics], Mental Retardation/px [Psychology], Pediatric Neurology, Preschool, Psychomotor Agitation/di [Diagnosis], Psychomotor Agitation/px [Psychology], Psychotropic Drugs/tu [Therapeutic Use], Risk Factors, Sleep Stages

Physiological changes, plasma beta-endorphin and cortisol responses to tracheal intubation in neonates

Physiological, plasma beta-endorphin and cortisol responses to nasotracheal intubation were studied in 20 distressed infants of median age 0.3 days (range 0.1-23 days) randomized into groups given pethidine 1 mg/kg (n = 10) or alfentanil 20…

PARENTAL BEREAVEMENT OVER THE LIFE-COURSE - A THEORETICAL INTERSECTION AND EMPIRICAL REVIEW

This article reviews the literature on parental bereavement over the family life course drawing attention to the meaning of the loss. The conceptual framework for this article arises from the intersection of Klass and Marwit's {[}1] theory of…

Tags: 1994, Backlog, Bereavement, Bereavement Leave Policy Paper, de Vries B, FALCK VT, Journal Article, Omega, RD LANA

Need for rigorous assessment of palliative care

1994

Tags: 1994, Backlog, British Medical Journal, Human, Journal Article, McQuay H, Moore A, Palliative Care, Randomized Controlled Trials

Natural history of trisomy 13

The poor prognosis of patients with trisomy 13 has long been accepted and has been ascribed to brain and heart malformations. It has been suggested, however, that the long term survival is better than was previously thought and that cardiac surgery…

Nasogastric or gastrostomy feedings in children with neurologic disabilities

Although pediatricians are increasingly aware of the problem of undernutrition in children with neurologic disabilities, many of these children remain poorly nourished despite prolonged attempts at oral feedings. We studied the effects of tube…

Tags: 1994, Backlog, Child, Christoffel KK, Clinical Pediatrics, Enteral Nutrition, Female, Humans, Infant, Journal Article, Male, Naureckas SM, Nervous System Diseases/complications/therapy, Nutrition Disorders/etiology/prevention & control, Preschool

Morbidity and mortality in medium chain acyl coenzyme A dehydrogenase deficiency

Medium chain acyl coenzyme A dehydrogenase (MCAD) deficiency presents with episodic fasting, hypoketotic hypoglycaemia, and coma. It is known to be potentially lethal, but the outlook for survivors is thought to be good. We reassessed all patients…

Misconceptions about morphine use in cancer patients

1994

Tags: 1994, American Pharmacy, Backlog, Berry J, Humans, Journal Article, Morphine/administration & dosage/therapeutic use, Neoplasms/drug therapy/physiopathology, Pain/drug therapy/etiology, Palliative Care

Meaning reconstruction in the experience of parental bereavement

Grounded theory analysis was used to generate an explanation of the phenomenon of meaning reconstruction in the experience of 10 bereaved mothers. The theory that emerged included three phases in the process of meaning reconstruction: discontinuity,…

Tags: 1994, Attitude, Backlog, Bereavement, Berg DH, Braun Mildred J, Child, Child Death, Death, Death studies, Family, Grief, Journal Article, Knowledge, Meaning, Mothers, mourning, Parents, Role

Magnetic resonance spectroscopy in Niemann-Pick disease type C: Correlation with diagnosis and clinical response to cholestyramine and lovastatin.

Niemann-Pick type C is an autosomal-recessive, neurovisceral storage disorder that results from defective cholesterol esterification. Cholesterol-lowering agents have been demonstrated to decrease hepatic lipids in Niemann-Pick type C patients. The…

Limitations and withdrawals of medical intervention in pediatric critical care

OBJECTIVE--To investigate the use and implementation in pediatric intensive care units (PICUs) of three levels of restriction of medical intervention: do not resuscitate (DNR), additional limitations of medical interventions beyond DNR, and…

Intermittent but not continuous inescapable footshock stress affects immune responses and immunocyte beta-endorphin concentrations in the rat

It is well known that a variety of stressors influence immune responses. The opioid peptide-beta-endorphin (BE) is deeply involved in stress responses, is synthesized in cells of the immune system, and participates in the modulation of immune…

Interleukin 1 beta and corticotropin-releasing factor inhibit pain by releasing opioids from immune cells in inflamed tissue

Local analgesic effects of exogenous opioid agonists are particularly prominent in painful inflammatory conditions and are mediated by opioid receptors on peripheral sensory nerves. The endogenous ligands of these receptors, opioid peptides, have…

Tags: 1994, Analysis of Variance, Animals, Antibodies/pharmacology, Backlog, beta-Endorphin/immunology/physiology, Biomarkers of Pain, Carter L, Corticotropin-Releasing Hormone/administration & dosage/pharmacology/therapeutic use, Cyclosporine/pharmacology, Dose-Response Relationship, Drug, Dynorphins/immunology/physiology, Endorphins/immunology/physiology/secretion, Enkephalin, Humans, Inflammation/immunology/physiopathology, Injections, Interleukin-1/administration & dosage/pharmacology/therapeutic use, Journal Article, Leucine/analogs & derivatives/pharmacology, Male, Methionine/immunology/physiology, Naloxone/pharmacology, Pain/immunology/physiopathology/prevention & control, Proceedings Of The National Academy Of Sciences Of The United States Of America, Rats, Recombinant Proteins/pharmacology/therapeutic use, Regression Analysis, Schafer M, Somatostatin/analogs & derivatives/pharmacology, Stein C, Wistar

Browse Items (53 total)