Browse Items · Pediatric Palliative Care Library

2001

Tags: 2001, Administration, Backlog, Biomedical, Canadian Oncology Nursing Journal, Davies B, Evidence-based Medicine, Forecasting, Humans, Journal Article, Leadership, Models, Nurse's Role, Nursing, Nursing Process, Nursing Research/organization &, Oncologic Nursing/education/organization &, Organizational Objectives, Technology Assessment

Using participant observation in pediatric health care settings: ethical challenges and solutions

2008

Tags: 2008, Backlog, Bluebond-Langner M, Carnevale FA, Journal Article, Journal Of Child Health Care, Macdonald ME, McKeever P

Using network analysis to map the formal clinical reporting process in pediatric palliative care: a pilot study

ABSTRACT: BACKGROUND: Continuity of care is a key component of care in complex and chronic conditions. Despite its importance, it is often absent in chronic-disease management. One challenge has been identifying tools to measure care continuity. In…

Tags: 2011, Backlog, BMC Health Services Research, Journal Article, NET CV, Siden H, Urbanoski K

Using Network Analysis To Map The Formal Clinical Reporting Process In Pediatric Palliative Care: A Pilot Study

BACKGROUND: Continuity of care is a key component of care in complex and chronic conditions. Despite its importance, it is often absent in chronic-disease management. One challenge has been identifying tools to measure care continuity. In one context…

Tags: 2011, BMC Health Services Research, British Columbia, Community-institutional Relations, Continuity Of Patient Care, Hospice Care, Humans, Models Theoretical, Palliative Care, Pediatrics, Pilot Projects, Risk Management/ Organization & Administration, Siden H, Urbanoski K, Using Network Analysis To Map The Formal Clinical Reporting Process In Pediatric Palliative Care: A Pilot Study

Using colors to assess pain in toddlers: validation of "the rainbow pain scale"-a proof-of-principle study.

Self-report, when available, is considered the ideal way to assess the intensity and other aspects of pain in children. However, self-report scales are often too complex cognitively for preschool-aged children (2-4 years). The Rainbow Pain Scale…

Understanding How Bereaved Parents Cope With Their Grief To Inform The Services Provided To Them

Our objective was to develop a rich description of how parents experience their grief in the first year after the death of their child, and how various bereavement follow-up and support services helped them during this time, with the aim of informing…

Tags: 2017, Achille M, Cohen SR, Humbert N, June 2017 List, Liben S, Macdonald ME, Petti A, Proulx MC, Qualitative Health Research, Stevenson M

Understanding Canadian Punjabi-speaking South Asian women's experience of breast cancer: A qualitative study

2008

Tags: 2008, Backlog, Barroetavena MC, Cadell S, Doll R, Gurm BK, International Journal Of Nursing Studies, Journal Article, Mackenzie G, Stephen J

Trends in Pediatric Palliative Care 2017; Issue #11

This commentary brings together perspectives from an interdisciplinary group of researchers –five trainees, a research manager, and a senior scientist –who share an interest in the emergent field of childhood ethics and pediatric palliative…

Tags: Macdonald ME, November 2017 List

Trauma and growth in Canadian carers

The phenomenon of post-traumatic growth has been explored within the context of HIV disease in only a limited fashion. One hundred and seventy-six bereaved HIV/AIDS carers located all over Canada responded to a questionnaire about their experiences;…

Timing is everything: The experience of parental cancer for young adult daughters-a pilot study

2008

Tags: 2008, Backlog, Cadell S, Journal Article, Journal Of Psychological Oncology, Puterman J

The wisdom of children

2002

Tags: 2002, Attitude To Death, Backlog, Child, Child Psychology, Davies B, Humans, International Journal of Palliative Nursing, Journal Article

The Validity of Using Health Administrative Data To Identify the Involvement of Specialized Pediatric Palliative Care Teams in Children with Cancer in Ontario, Canada.

BACKGROUND: Population-based research to identify underserviced populations and the impact of palliative care (PC) is limited as the validity of such data to identify PC services is largely unknown. OBJECTIVE: To determine the validity of using such…

Tags: 2017, December 2017 List, Earle C, Gupta S, Journal of Palliative Medicine, Kassam A, Liu Y, Nelson K, Pole JD, Rapoport A, Sutradhar R, Vadeboncoeur C, Widger K, Wolfe J, Zelcer S

The sun always comes out after it rains: understanding posttraumatic growth in HIV carers

2007

Tags: 2007, Backlog, Cadell S, Health & Social Work, Journal Article

The relationship between grief adjustment and continuing bonds for parents who have lost a child

This article presents findings from a study on the impact of a child's death on parents. We explored the prominence and adaptiveness of parents' continuing bonds expressions, psychological adjustment, and grief reactions. A qualitative case study…

The Madison Clinic: Evaluation Of A Collaborative Outpatient Paediatric Palliative Care Clinic

BACKGROUND: A multidisciplinary outpatient clinic at a tertiary care children's hospital supported and staffed by a children's hospice was created to enhance and expand the inpatient palliative care services available to families of children with…

Tags: 2009, Ambulatory Care Facilities, Continuity Of Patient Care, Ham J, Miller T, Paediatrics, Paediatrics & Child Health, Palliative Care, Siden H, Straatman L, The Madison Clinic: Evaluation Of A Collaborative Outpatient Paediatric Palliative Care Clinic

The integration of religious traditions in Japanese children's view of death and afterlife

2007

Tags: 2007, Backlog, Davies B, Death studies, Journal Article, Sagara-Rosemeyer M

The grief of siblings

Tags: 2002, Book/Book Section, Davies B, Grief, Helping Bereaved Children : A Handbook For Practitioners, Siblings

The family environment in bereaved families and its relationship to surviving sibling behavior

1988

Tags: 1988, Backlog, Child Health Care, Davies B, Family, Journal Article

The empty space phenomenon: The process of grief in the bereaved family

1987

Tags: 1987, Backlog, Davies B, Death studies, Journal Article, Kulenkamp E, Martinson I, May A, McClowry S, SSHRC CURA

The emerging issue of euthanasia

2005

Tags: 2005, Adolescent, Archives Of Pediatrics & Adolescent Medicine, Backlog, Child, Decision Making, Euthanasia, Humans, Infant, Journal Article, Longitudinal Studies, Netherlands, Newborn, Pediatrics/statistics & numerical data, Preschool, Siden HB, Terminal Care

The boy who refused an IV: a case report of subcutaneous clodronate for bone pain in a child with Ewing Sarcoma

ABSTRACT: BACKGROUND: Bone pain in malignancy can be challenging to treat. Bisphosphonates have been found to be useful in adults with bone pain, but there are no reports of their use in children for this indication. In pediatric palliative medicine…

Tags: 2007, Backlog, Journal Article, Journal Of Medical Case Reports, Longitudinal Studies, Siden H

The (re)construction of self after the death of a partner to HIV/AIDS

2007

Tags: 2007, Backlog, Cadell S, Death studies, Journal Article, Marshall S

Telehealth: connecting with families to promote health and healing

Telehealth is defined as the provision of health care via telecommunications wherever individuals are geographically separated. In this literature review, we explore the role of telehealth in family care. Telehealth has not been fully examined for…

Tags: 2001, Backlog, Family, home care services, Journal Article, Journal Of Family Nursing, Siden H, Starr E, Telemedicine, Tredwell S, Young L

Symptoms, adverse events, and outcomes in the use of medicinal cannabis in children and adolescents with autism spectrum disorder: a scoping review protocol

OBJECTIVE: The objective of this scoping review is to map and identify the symptoms, adverse events, and outcomes in the use of medicinal cannabis in children and adolescents with autism spectrum disorder. INTRODUCTION: Autism spectrum disorder is a…

Tags: 2021, Adolescent, Autism spectrum disorder, Child, Delivery of Health Care, Fletcher S, Humans, Ip A, JBI Evidence Synthesis, Medical Marijuana, Medicinal Cannabis, Oberlander T, Parents, Pawliuk C, Review Literature as Topic, Siden H

Supportive care needs of women with lung cancer

The main purpose of this exploratory study was to identify the supportive care needs of women with lung cancer who attend an ambulatory regional cancer centre. Lung cancer has more than a physical impact on those who are diagnosed with the disease,…

Tags: 2008, Backlog, Canadian Oncology Nursing Journal, Caregivers, Fitch MI, Journal Article, Lung Cancer, Lung Neoplasms, Questionnaires, Steele R, Support, Women

Supporting families in palliative care.

Tags: 2010, Book/Book Section, Davies B, Oxford Textbook Of Palliative Nursing, Steele R

Supporting families in palliative care.

Tags: 2005, Book/Book Section, Davies B, Ofxord Textbook Of Palliative Care Nursing

Sublingual atropine drops for the treatment of pediatric sialorrhea

Excess oral secretions or sialorrhea is a common problem affecting children and adults with neurological disorders, as well as those approaching the end of life because of a variety of underlying illnesses. Systemic anticholinergic medications are…

Tags: 2010, Backlog, Journal Article, Journal of Pain and Symptom Management, Rapoport A

Siblings' Voices: A Prospective Investigation Of Experiences With A Dying Child

Sibling relationships reflect a unique childhood bond, thus the impact on a sibling when a child is seriously ill or dying is profound. We conducted a prospective, longitudinal qualitative study over two years using interpretive descriptive…

Tags: 2017, Barrera M, Beaune L, Cadell S, Children, Death studies, end-of-life, July 2017 List, Neville A, Palliative Care, Pediatrics, Rapoport A, Rugg M, Russell CE, Sibling, Steele R, Widger K

Siblings Of Children With A Complex Chronic Health Condition: Maternal Posttraumatic Growth As A Predictor Of Changes In Child Behavior Problems.

OBJECTIVE:
The present study examined the role of maternal posttraumatic growth in changes in behavioral problems among the siblings of children with complex chronic health conditions. METHODS: Data were collected from a sample of 70 siblings…

Tags: 2016, Andrews GS, Cadell S, Charting the territory, Child Behavior Problems, Complex Chronic Conditions, DeLongis A, Families, Journal of Pediatric Psychology, June 2016 List, Pediatric Palliative Care, Posttraumatic Growth, Siblings., Siden H, Steele R, Stephenson E

Siblings of Children With a Complex Chronic Health Condition: Maternal Posttraumatic Growth as a Predictor of Changes in Child Behavior Problems

OBJECTIVE: The present study examined the role of maternal posttraumatic growth in changes in behavioral problems among the siblings of children with complex chronic health conditions. METHODS: Data were collected from a sample of 70 siblings from 58…

Tags: 2016, Andrews GS, Backlog, Cadell S, DeLongis A, Journal Article, Journal of Pediatric Psychology, Siden H, Steele R, Stephenson E

Sibling bereavement: research-based guidelines for nurses. [Review] [27 refs]

Despite the marked improvement in the treatment of childhood cancer in recent decades, there are children who die, leaving behind a legacy of grief for all who knew them, including their siblings. Nurses can play a significant role in facilitating…

Tags: 1993, Backlog, Davies B, IM, Journal Article, N, Seminars In Oncology Nursing, sibling bereavement

Sibling bereavement and continuing bonds.

Historically, from a Freudian and medical model perspective, emotional disengagement from the deceased was seen as essential to the successful adaptation of bereavement. A major shift in the bereavement literature has occurred and it is now generally…

Shifting Focus In Pediatric Advance Care Planning: From Advance Directives To Family Engagement

The foundational principle of palliative care is to provide comfort, ameliorate symptoms, and offer emotional support when death is inevitable. Advance care planning (ACP) elicits patients' goals for the future. One important result of an ACP…

Tags: 2016, Chavoshi N, Journal of Pain and Symptom Management, July 2016 List, Siden H

Shared life space and sibling bereavement responses.

1988-12

Tags: 1988, Backlog, Bereavement, Cancer Nursing, Davies B, IM, Journal Article, N, sibling bereavement

Resource Utilization Among Individuals Dying Of Pediatric Life-threatening Diseases

BACKGROUND AND OBJECTIVES: Very little information exists on the number of resources utilized by individuals living with and dying of pediatric life-threatening diseases (LTDs). This study quantifies end of life (EOL) resource utilization among the…

Research priorities in pediatric palliative care: a delphi study

Pediatric palliative care is increasingly recognized to be a specialized type of care requiring specific skills and knowledge, yet, as found in several countries, there is little available research evidence on which to base care. Objectives: The goal…

Research considerations in pediatric palliative care

Tags: 2011, Cadell S, Davies B, Siden H, Steele R, Straatman L, Widger K

Psychological Correlates of Depression in Children with Recurrent Abdominal Pain

Objective To examine the associations between coping style, social support, self-efficacy, locus of control, maternal adjustment, and depressive symptoms in children with recurrent abdominal pain (RAP) of childhood. Methods Fifty children with RAP…

Tags: 2006, Backlog, Dewey D, Journal Article, Journal of Pediatric Psychology, Kaminsky L, PedPal Lit, Robertson M

Browse Items (171 total)