Browse Items · Pediatric Palliative Care Library

Rayyan-a web and mobile app for systematic reviews

BACKGROUND: Synthesis of multiple randomized controlled trials (RCTs) in a systematic review can summarize the effects of individual outcomes and provide numerical answers about the effectiveness of interventions. Filtering of searches is time…

Tags: 2016, Automation, Backlog, Elmagarmid A, Evidence-based Medicine, Fedorowicz Z, Hammady H, Journal Article, Ouzzani M, Systematic reviews

Quality Indicators And Parental Satisfaction With Perinatal Palliative Care In The Intrapartum Setting After Diagnosis Of A Life-limiting Fetal Condition

Measurement of quality indicators (QIs) in perinatal palliative care has not been addressed. Parents who chose to continue pregnancy after a diagnosis of a life-limiting fetal condition described perceptions of quality care and their satisfaction…

Psychological distress, health, and socio-economic factors in caregivers of terminally ill patients: a nationwide population-based cohort study

PURPOSE: At some point in life, most people become caregivers to a terminally ill relative. Previous studies have shown that many caregivers experience psychological distress and declining physical health, but these studies have predominantly been…

Provision Of Services In Perinatal Palliative Care: A Multicenter Survey In The United States.

BACKGROUND:
Congenital anomalies account for 20% of neonatal and infant deaths in the United States. Perinatal palliative care is a recent addition to palliative care and is meant to meet the needs of families who choose to continue a pregnancy…

Protocol: Evaluating The Impact Of A Nation-wide Train-the-trainer Educational Initiative To Enhance The Quality Of Palliative Care For Children With Cancer

Background
There are identified gaps in the care provided to children with cancer based on the self-identified lack of education for health care professionals in pediatric palliative care and in the perceptions of bereaved parents who describe…

Primary Palliative Care In The Neonatal Intensive Care Setting: What Is Possible? What Is Necessary?

Objectives
Reflect on current neonatal intensive care practice
for the seriously ill and or dying neonate.
Explore the role of the primary palliative care
clinician.
Discuss palliative educational goals for intensive
care…

Tags: 2016, English N, Ferrell B, Journal of Pain and Symptom Management, Marc-Aurele K, March 2016 List

Predictors Of Intention To Refer To Pediatric Palliative Or Hospice Care

The purpose of this descriptive correlational study was to determine whether nurse characteristics, level of comfort with care of the dying, and spirituality predict intention to refer and timing of referral to pediatric palliative/hospice care. The…

Predictors Of Care Gaps In Adolescents With Complex Chronic Condition Transitioning To Adulthood

CONTEXT: Breaks in the delivery of health care (ie, [health]care gaps) occur in a large proportion of young people transitioning to adulthood. Developing interventions that prevent adolescents from dropping out of the medical system, as they leave…

Tags: 2016, American Journal of Obstetrics & Gynecology, Bovijn L, Budts W, Gewillig M, Goossens E, July 2017 List, Moons P

Practical Recommendations For Diagnosis And Management Of Respiratory Muscle Weakness In Late-onset Pompe Disease

Pompe disease is an autosomal-recessive lysosomal storage disorder characterized by progressive myopathy with proximal muscle weakness, respiratory muscle dysfunction, and cardiomyopathy (in infants only). In patients with juvenile or adult disease…

Pop Up: A New Model Of Paediatric Palliative Care

Children and young people who require palliative care have aheterogeneous range of life-limiting conditions such as a malig-nant disease, chromosomal, neurodegenerative and genetic meta-bolic disorders. The beneﬁts of paediatric palliative care…

Tags: 2016, Elizabeth Shepherd, John Collins, Journal of Paediatrics and Child Health, Jude Frost, Martha F Mherekumombe, Pediatrics, September 2016 List, Sue Hanson, Team

Pocket Reference Card Improves Pediatric Resident Comfort In Caring For Children At End Of Life

Background: Studies have shown that pediatricians in all stages of training are uncomfortable managing patients at end of life. Our goal was to create and test a portable reference card to improve pediatric resident education in comprehensive care…

Physician-hastened Death In Young Children: Getting To Underlying Assumptions.

Significant changes are occurring in Canada's health care system regarding physician-hastened death (PHD). In the Netherlands, where the Groningen Protocol is in place, euthanasia in now legal for infants and children. The present article considers…

Tags: 2016, Chan D, Ethics, Euthanasia, Infants, Journal of Paediatrics and Child Health, June 2016 List, Liao L, Physician-assisted Death, Suffering, Worldview

Physician stress in the context of medical aid in dying

2016-09

Tags: 2016, Backlog, Journal Article, Siden H, University of British Columbia Medical Journal

Physician stress in the context of medical aid in dying

We have now completed a vigorous public and private debate regarding the right-to-die in Canada as Parliament has passed legislation (Bill C-14) following the Supreme Court decision in the Carter case.1 Quebec has already passed and implemented a…

Tags: 2016, Siden H, University of British Columbia Medical Journal

Physician Communication In Pediatric End-of-life Care: A Simulation Study

Objective: The objective of this exploratory study is to describe communication between physicians and the actor parent of a standardized 8-year-old patient in respiratory distress who was nearing the end of life. Methods: Thirteen pediatric…

Tags: 2016, American Journal of Hospice and Palliative Medicine, Bateman LB, Clair Jeffrey Michael, Dure Leon S, End-of-life Communication, January 2017 List, Needham Belinda L, Palliative Care, Pediatric End-of-life Care, Pediatrics, Physician–parent Communication, Qualitative Methods, Simulation, Therapeutic Processes, Tofil Nancy M, White Marjorie Lee

Perinatal Decision Making For Preterm Infants With Congenital Heart Disease: Determinable Risk Factors For Mortality.

For premature infants with congenital heart disease (CHD), it may be unclear when the burdens of treatment outweigh potential benefits. Parents may thus have to choose between comfort care at birth and medical stabilization until surgical repair is…

Tags: 2016, Antenatal Counseling, April 2016 List, Birth-weight Infants, Cardiac & Cardiovascular Systems, Congenital Heart Disease, Defects, Fifer C, Laventhal N, Lynema S, Necrotizing Enterocolitis, Pediatric cardiology., Pediatrics, Premature, Trial Of Therapy, Vascular Surgery

Perceptions Of The Pediatric Hospice Experience Among English- And Spanish-speaking Families

OBJECTIVE:
Many children who die are eligible for hospice enrollment but little is known about parental perceptions of the hospice experience, the benefits, and disappointments. The objective of this study was to explore parental perspectives of the…

Perceptions Of Palliative Care In The Nicu.

BACKGROUND AND PURPOSE:
The American Academy of Pediatrics supports palliative care (PC) for all children with life-threatening illnesses. Thus, many neonatal intensive care unit (NICU) patients and their families could benefit from PC. Our study…

Pediatric Triage In A Severe Pandemic: Maximizing Survival By Establishing Triage Thresholds

Abstract
OBJECTIVES:
To develop and validate an algorithm to guide selection of patients for pediatric critical care admission during a severe pandemic when Crisis Standards of Care are implemented.
DESIGN:
Retrospective observational study using…

Tags: 2016, Allocation, Critical Care Medicine, Disaster, Gall C, Influenza, Kanter RK, Kolker A, Mass Critical-care, Pandemic, Pediatric Critical Care, Predictors, Recommendations, September 2016 List, Toltzis P, Triage, Wetzel R

Pediatric Psychopharmacology: To Use Or Not To Use At The End Of Life

Purpose

Psychological symptoms ranging from distress to more debilitating depression and anxiety with worsening somatic symptoms can hamper communication, particularly at the end-of-life. Treatment with psychotropic medications may be useful for…

Tags: 2016, June 2016 List, Maryland Pao, Psycho-Oncology

Pediatric Palliative Care: Comprehensive Support For Children

Palliative Care (PC), is the set of actions and tools that seek relief from symptoms and suffering of patients and their families to diseases that threaten their lives. This support includes different types of resources covering the clinical,…

Tags: 2016, Acta Medica International, August 2016 List, Local Dr Project, Pediatric Palliative Care, Symptom Management, W C Gomez Garcia

Pediatric Palliative Care Training In Fellowship: A National Survey Of Adult Palliative Medicine Fellowship Directors And Pediatric Rotation Directors.

Objectives
Outline the current state of education and clinical
training of adult hospice and palliative medicine
(HPM) fellows in pediatric palliative care
(PPC).
Compare responses between adult HPM fellowship
and pediatric rotation directors…

Tags: 2016, Arnold RM, Journal of Pain and Symptom Management, Malhotra S, March 2016 List

Pediatric Palliative Care Pilot Curriculum: Impact Of "pain Cards" On Resident Education

BACKGROUND:
Prior research has shown that less than 40% of pediatric program directors believe their graduating residents competent in palliative care. While many curricula have been developed to address this need, few have demonstrated improved…

Pediatric palliative care in Canada in 2012: a cross-sectional descriptive study.

BACKGROUND: Pediatric palliative care focuses on comprehensive symptom management and enhancing quality of life for children with life-threatening conditions and their families. Our aim was to describe Canadian programs that provided specialized…

Tags: 2016, Adam R, Amrita S, Claude C, Cmaj Open, Daoust L, Davies D, Gregoire Marie-Claude, Hodgson-Viden H, Laflamme J, Liben S, Robertson M, Siden H, Stenekes S, Vadeboncoeur C, Widger K

Pediatric Palliative Care And Hospice Program Development In 2016: Strategies For Success In An Ever-expanding World

Objectives
Propose pediatric program design or expansion
based on newly acquired skills of defining a
desirable and functional scope that aligns with
health system’s missions and values and identifies
areas of potential growth and…

Tags: 2016, Friebert S, Humphrey L, Journal of Pain and Symptom Management, March 2016 List, Miller E, Parikh S, Ragsdale L

Pediatric Palliative Care And Child Psychiatry: A Model For Enhancing Practice And Collaboration.

As the field of Pediatric Palliative Care continues to develop, it is important to consider the scope of practice and the utility of collaboration with other specialties, including child and adolescent psychiatry. The integration of psychiatry and…

Tags: 2016, Adolescent, Advanced Cancer, Associations, Block SD, Consultation, Depression, End, Health Care Sciences & Services, Journal of Palliative Medicine, Muriel AC, National-survey, October 2016 List, Of-life, Recognition, Services, Wolfe J

Pediatric out-of-hospital deaths following hospital discharge: a mixed-methods study

BACKGROUND: Out-of-hospital death among children living in resource poor settings occurs frequently. Little is known about the location and circumstances of child death following a hospital discharge. OBJECTIVES: This study aimed to understand the…

Pediatric Ethics And Communication Excellence (peace) Rounds: Decreasing Moral Distress And Patient Length Of Stay In The Picu

This paper describes a practice innovation: the addition of formal weekly discussions of patients with prolonged PICU stay to reduce healthcare providers’ moral distress and decrease length of stay for patients with life-threatening illnesses. We…

Patterns Of Palliative Care Service Consultation In A Sample Of Critically Ill Icu Patients At High Risk Of Dying

OBJECTIVE: Describe patterns of palliative care service consultation among a sample of ICU patients at high risk of dying. BACKGROUND: Patients receiving mechanical ventilation (MV) face threats to comfort, social connectedness and dignity due to…

Tags: 2016, Barnato AE, Critical Care, End-of-life Care, Erlen JA, Happ MB, July 2017 List, Palliative Care, Patient-centered Outcomes, PLOS Neglected Tropical Diseases, Quality Of Health Care, Seaman JB, Sereika SM

Patient End-of-life Experiences For Pediatric Trainees: Spanning The Educational Continuum

Background End-of-life care for a child is an emotionally charged experience for pediatric trainees. Objectives Describe the progression of medical trainee experiences with end-of-life care and determine personal/professional experiences that…

Tags: 2016, Analysis, Bereavement In Children, Clin Pediatr (Phila), Control, Education, Educational Continuum, End-of-life Care, Grieving, July 2016 List, K Senthil, Medical Students, Pediatric Resident Education, Pediatricians, Practice, Terminal Care

Partnership Working Between Hospice And Children's Community Nursing Teams.

This article describes the implementation and evaluation of a new partnership between a children's hospice service and an NHS children's community nursing team to support children's palliative care in the community. Aims and outcomes of the service…

Tags: 2016, Bennett H, Child Health, Children’s Community Nursing, McCarthy L, McKinnon S, November 2016 List, Nursing Children and Young People, Palliative Care, Service Evaluation

Parents’ Experiences And Wishes At End Of Life In Children With Spinal Muscular Atrophy Types I And Ii.

OBJECTIVE:
To explore experiences and wishes of bereaved parents concerning end-of-life care for their child with severe spinal muscular atrophy.

STUDY DESIGN:
A follow-up survey was conducted in 2013 on parents of deceased Swedish children who were…

Tags: 2016, Bereavement, Death, End-of-life Care, Health, Journal of Pediatrics, Kreicbergs U, Location Of Death, Lövgren M, May 2016 List, Nationwide, Neuromuscular Disorders, Palliative Care, Pediatrics, Sejersen T, Siblings, Spinal Muscular Atrophy

Parents of children diagnosed with cancer: work situation and sick leave, a five-year post end-of-treatment or a child's death follow-up study

BACKGROUND: Cancer in a child is associated with a significant impact on parental employment. We assessed the proportions of parents of survivors and bereaved parents working and reporting sick leave five years after end of successful treatment…

Parenting In The Face Of Childhood Life-threatening Conditions: The Ordinary In The Context Of The Extraordinary

OBJECTIVE:
Uncovering what it means to be a parent during the extraordinary time of a child's life-threatening condition (LTC) is important for understanding family goals, decision making, and the work of parenting within this…

Parental Physical Proximity In End-of- Life Care In The Picu.

OBJECTIVE:
Health professionals in PICUs support both child and parents when a child's death is imminent. Parents long to stay connected to their dying child but the high-tech environment and treatment implications make it difficult to stay…

Parental Perspectives of Communication at the End of Life at a Pediatric Oncology Institution

BACKGROUND: The interaction of health care providers and hospital staff with patients and families at the end of life affects the parental grief experience. Both verbal and nonverbal communication are key components of this interaction. OBJECTIVE:…

Tags: 2016, Backlog, Baker JN, Duffy B, Gibson DV, Journal Article, Journal of Palliative Medicine, Levine DR, Snaman JM, Torres C

Parental Involvement In Neonatal Critical Care Decision-making.

The article analyses the decision-making process between doctors and parents of babies in neonatal intensive care. In particular, it focuses on cases in which the decision concerns the redirection of care from full intensive care to palliative care…

Parental Hopes, Interventions, And Survival Of Neonates With Trisomy 13 And Trisomy 18

Trisomy 13 and 18 are life-limiting conditions for which a palliative approach is frequently recommended. The objective of this study was to examine parental goals/decisions, the length of life of their child and factors associated with survival.…

Tags: 2016, American Journal of Medical Genetics Part C: Seminars in Medical Genetics, August 2016 List, End-of-life Decision Making, Janvier A, Palliative Care, Perinatal Hospice, Perinatal Palliative Care, Prenatal Diagnosis, Trisomy 13, Trisomy 18

Parental Grief Following the Death of a Child from Cancer: The Ongoing Odyssey

BACKGROUND: The death of a child is a devastating event that results in profound grief and significant psychosocial and physical morbidities in parents. The parental grief journey is a complex phenomenon necessitating the utilization of newer models…

Tags: 2016, Backlog, Baker JN, Bereavement, Cancer, Continuity Of Patient Care, Counseling, Gibson D, Grief, Journal Article, Kaye EC, Pediatric Blood & Cancer, Qualitative Research, Self-Help Groups, Snaman JM, Torres C

Parental Decision-making On

Utilisation Of Out-of- Home Respite In Children’s Palliative Care: Findings Of

Qualitative Case Study Research - A Proposed New Model.

Background

Respite in children's palliative care aims to provide a break for family's from the routine of caring. Parental decision-making regarding the utilisation of out-of-home respite is dependent on many interlinking factors including the…

Browse Items (357 total)