Browse Items · Pediatric Palliative Care Library

Innovations in Research with Medically Fragile Populations: Using Bulletin Board Focus Groups

A new group of medically fragile young adults are graduating from pediatric palliative care programs with limited expectations to live beyond early adulthood, and no comparable adult services to support their complex needs. Accessing this population…

Tags: 2014, Browne G, Bulletin Board Focus Group, Case Studies, Complexity, Cook K, Disability/Disabled Persons, End-Of-Life Issues, Focus Groups, Illness and Disease, Jack S, Siden H, Thabane L, The Qualitative Report, Young Adults

Introducing a lexicon of terms for paediatric palliative care.

Tags: 2015, Davies D, Macdonald ME, Paediatrics & Child Health, Siden H, Spicer S, Vadeboncoeur C

Introducing a Lexicon of Terms for Pediatric Palliative Care

2015

Tags: 2015, Backlog, Davies D, Journal Article, Macdonald ME, Paediatrics & Child Health, PEDI Study, Siden H, Spicer S, Vadeboncoeur C

Investing In Uncertainty: Young Adults With Life-limiting Conditions Achieving Their Developmental Goals.

BACKGROUND:
With improvements in pediatric care and technology, more young adults (YAs) with life-limiting conditions (LLCs) are surviving into adulthood. However, they have limited expectations to live beyond the first decade of adulthood. This…

Tags: 2016, Adolescent, Browne G, Cook KA, Disabilities, Health Care Sciences & Services, Health-care, Jack SM, Journal of Palliative Medicine, May 2016 List, Palliative Care, Perspectives, Policy, Siden H, Thabane L, Transition, Youth

Lexicon of Terms in Pediatric Palliative Care

PedPalASCNET-Lexicon-31-July2014-Final.pdf

This Lexicon has been developed through a collaborative process by the PedPalASCNET network members as a tool for clinicians and researchers to standardize the usage of common terms in the field of pediatric palliative care. The Lexicon reflects the…

Tags: 2014, Davies D, Macdonald ME, Siden H, Spicer S, Vadeboncoeur C

Librarian involvement in systematic reviews was associated with higher quality of reported search methods: a cross-sectional survey of authors from Vancouver, BC

Objectives
Systematic reviews (SRs) are considered the gold standard of evidence, but many published SRs are of poor quality. This study identifies how librarian involvement in SRs is associated with quality-reported methods and examines the lack of…

Living in the dragon's shadow': Fathers' experiences of a child's life-limiting illness

Grounded theory methods were used to study the experiences of 8 bereaved fathers whose children received care in a home-based hospice program. In-depth, unstructured interviews were audiotaped, transcribed, and coded for themes and categories. Every…

Tags: 2004, Backlog, Brenner Paul, child's terminal illness, Davies B, Death, Death and Dying, Death studies, father experience, Fathers, Gudmundsdottir M, Hospice, Journal Article, Orloff S, SSHRC CURA, Sumner L, Worden B

Long-Term Outcomes of Adolescent Sibling Bereavement

The experience of sibling bereavement is relatively unexamined in the literature; the long-term effects of such an experience have received even less attention. In this study, grounded theory techniques for the analysis of qualitative data were used…

Tags: 1991, Backlog, Bereavement, Davies B, Journal Article, Journal Of Adolescent Research, sibling bereavement

Managing Stigma in Adolescent HIV: Silence, Secrets and Sanctioned Spaces

Tags: 2011, Backlog, Cadell S, Chapman G, Culture, Health And Sexuality, Fielden S, Journal Article

Manifestations of levels of functioning in grieving families

1986

Tags: 1986, Backlog, Davies B, Family, Journal Article, Journal Of Family Issues, Kulenkamp E, Martinson I, McClowry S, Spinetta J

Medicinal cannabis in children and adolescents with autism spectrum disorder: A scoping review

BACKGROUND: Autism spectrum disorder (ASD) is a neurodevelopmental condition estimated to affect 1 in 66 children in Canada and 1 in 270 individuals worldwide. As effective therapies for the management of ASD core and associated symptoms are limited,…

Mindfulness in hospice care: Practicing meditation in action

2005

Tags: 2005, Backlog, Bruce A, Davies B, Journal Article, Qualitative Health Research

Mortality trends for pediatric life-threatening conditions.

Internal data from the sole pediatric hospice in British Columbia were utilized to investigate mortality trends among children dying from life-threatening conditions. Characteristics of the sample (hospice) were compared to that of the population…

Mourning and meaning

Viewed in an expanded frame, the phenomena of grief and bereavement call for analysis in sociological, psychological, and psychiatric terms. In this article, the authors argue that a common theme in these accounts is that of the meaning of loss as…

Tags: 2002, American Behavioral Scientist, Backlog, Bereavement, Davies B, Grief, Journal Article, mourning, Neimeyer RA, Prigerson HG

Moving Family-centered Care Forward: Bereaved Fathers' Perspectives

This paper describes the key behaviors of "excellent" pediatric healthcare providers - a term used by fathers of children with complex, life-threatening illness to describe providers who consistently and effectively engage in family-centered care for…

Tags: 2013, Baird J, Bereaved Fathers, Davies B, Family-centered Care, Gudmundsdottir M, Journal of Hospice and Palliative Nursing, Moving Family-centered Care Forward: Bereaved Fathers' Perspectives, Pediatric Health Care Providers Behaviors

No Child Is An Island: Ethical Considerations In End-of-life Care For Children And Their Families

PURPOSE OF REVIEW:
Ethical challenges are commonly encountered when caring for children with life-threatening conditions.
RECENT FINDINGS:
Controversial end-of-life issues, such as physician-assisted death and medical futility, may also arise in…

Tags: 2016, Current Opinion in Supportive and Palliative Care, June 2016 List, Morrison W, Rapoport A

Not There Yet: Pediatric Palliative Care In Canada 2002 – 2012

Objectives: As a follow-up to a study conducted in 2002,
our objective was to obtain an accurate description of
programs that provided specialized pediatric palliative
care (PPC) in 2012 and the children who received it;
explore changes in the…

Tags: 2016, Claude Cyr, Davies D, December 2016 List, Gregoire Marie-Claude, Heather Hodgson-Viden, Helene Roy, Journal of Pain and Symptom Management, Liben S, Lysanne Dauost, Rapoport A, Robertson M, Sarpal A, Siden H, Simone Stenekes, Vadeboncoeur C, Widger K

Nutritional differences in neurologically impaired children

OBJECTIVES: To determine whether the recommended nutritional intake of moderately to severely neurologically impaired children is congruent with current growth parameter expectations. METHODS: Observational cross-sectional study at a children's…

Tags: 2012, Backlog, Journal Article, Paediatrics & Child Health, Riley A, Vadeboncoeur C

Nutritional failure and cachexia in a pediatric palliative care population.

2006

Tags: 2006, Backlog, Cox K, Journal Article, Journal Of Investigative Medicine, Longitudinal Studies, NET CV, Siden H, Soon G, Straatman L

Optimising the process for conducting scoping reviews

Knowledge synthesis constitutes a key part of evidence-based medicine and a scoping review is a type of knowledge synthesis that maps the breadth of literature on a topic. Conducting a scoping review is resource intensive and, as a result, it can be…

Tags: 2021, BMJ Evidence-Based Medicine, Brown HL, Dewan T, Evidence-based Medicine, Grégoire MC, Hermansen AM, Humans, information science, Pawliuk C, Publications, Q3 Scoping Review, Research Design, Siden H, Steele R, Widger K

P259 A Scoping Review to Examine Symptoms in Children with Rare, Progressive, Life-Threatening Disorders

2016-12

Tags: 2016, Backlog, Beck C, Brown H, Dewan T, Grégoire MC, Harvey B, Hermansen AM, Journal Article, Journal of Pain and Symptom Management, Pawliuk C, Q3 Scoping Review, Siden H, Steele R, Widger K

Paediatric palliative care research in Canada: Development and progress of a new emerging team

Paediatric palliative care is a field distinct from adult palliative care, although there are many overlaps in language, approach and philosophy. Several features, however, distinguish paediatric palliative care. The illnesses that affect children…

Tags: 2008, Cadell S, Davies B, Paediatrics & Child Health, Siden H, Steele R, Straatman L

Paediatric Palliative Care: A Survey Of Paediatricians And Family Practitioners

BACKGROUND: Paediatric palliative care focuses on the enhancement of the quality of life for a child and family through a combination of active and compassionate therapies intended to comfort and support the child and family who are living with a…

Paediatric palliative care: Challenges and emerging ideas.

Paediatric palliative care is an emerging subspecialty that focuses on achieving the best possible quality of life for children with life-threatening conditions and their families. To achieve this goal, the individuals working in this field need to:…

Tags: 2007, Backlog, Journal Article, Lancet, Liben S, Longitudinal Studies, Papadatou D, Wolfe J

Paediatric palliative care: Challenges and emerging ideas.

2007

Tags: 2007, Backlog, Journal Article, Liben S, Papadatou D, The Lancet, Wolfe J

Paediatric palliative care: There is always more we can do

Tags: 2015, Liben S, Paediatrics & Child Health, Rapoport A

PaedPalLit: The International Journal of Paediatric Palliative Care

Tags: 2007, Book/Book Section, Hunt A, Jassal S, McCulloch R, Siden H, Thompson A

Pain management for children with a developmental disability in a primary care setting

Tags: 2008, Book/Book Section, Oberlander T, Pain In Children: A Practical Guide For Primary Care, RDF Project, Siden H

Pain Reporting And Analgesia Management In 270 Children With A Progressive Neurologic, Metabolic Or Chromosomally Based Condition With Impairment Of The Central Nervous System: Cross-sectional, Baseline Results From An Observational, Longitudinal Study

Little is known about the prevalence, characterization and treatment of pain in children with progressive neurologic, metabolic or chromosomal conditions with impairment of the central nervous system. The primary aims of this study were to explore…

Tags: 2017, Andrews GS, Charting the territory, Friedrichsdorf SJ, Hamre K E, Hospice, Journal Of Pain Research, Life-limiting, Neuropathic Pain, October 2017 List, Pain and Irritability Project, Palliative, Pediatric Palliative Care, Postier A, Siden H, Steele R

Palliative Social Work in Canada

Tags: 2011, Book/Book Section, Bosma H, Cadell S, Oxford Textbook Of Palliative Social Work, PPC Book Chapter 2011 (Kim Widger)

Parental depression following the death of a child

1991

Tags: 1991, Backlog, Child, Davies B, Death, Death studies, Depression, Journal Article, Martinson I, McClowry S

Parental perspectives on hospital staff members' acts of kindness and commemoration after a child's death

OBJECTIVES: Acts of kindness and commemoration by staff members often follow the death of a patient. Acts include attending funerals, sending sympathy cards, sending cards on birthdays/anniversaries, telephoning/visiting family homes, and attending…

Patterns of grief in young children following the death of a sibling

Abstract Specific grief behaviors observed in children ages 4-16 years in the 2 years after the death of a sibling are reported. Using the Child Behavior Checklist (CBCL), the parents of 90 boys and girls rated the occurrence of behavior problems in…

Tags: 1995, Backlog, Davies B, Death, Death studies, Grief, Journal Article, McCown DE, sibling bereavement

Pediatric Enteral Feeding Intolerance: A New Prognosticator For Children With Life-limiting Illness?

Tags: 2009, Child, Child Preschool, Cox K, Derman S, Enteral Nutrition/ Adverse Effects, Female, Hartnett C, Humans, Infant, Journal Of Palliative Care, Male, Pediatric Enteral Feeding Intolerance: A New Prognosticator For Children With Life-limiting Illness?, Prognosis, Siden H, Soon GS, Straatman L, Terminal Care/ Methods, Tucker T

Pediatric palliative care

Tags: 2007, Book/Book Section, Liben S, Palliative Care: Core Skills And Clinical Competencies

Pediatric Palliative Care

Tags: 2009, Book/Book Section, Davies B, Encyclopedia Of Death And The Human Experience

Pediatric palliative care in Canada

In Knapp, Madden & Fowler-Kerry (Eds.) Pediatric Palliative Care: Global Perspectives. Springer Publishing, 301-321.

Tags: 2012, Cadell S, Davies B, Siden H, Steele R, Widger K

Pediatric palliative care in Canada in 2012: a cross-sectional descriptive study.

BACKGROUND: Pediatric palliative care focuses on comprehensive symptom management and enhancing quality of life for children with life-threatening conditions and their families. Our aim was to describe Canadian programs that provided specialized…

Tags: 2016, Adam R, Amrita S, Claude C, Cmaj Open, Daoust L, Davies D, Gregoire Marie-Claude, Hodgson-Viden H, Laflamme J, Liben S, Robertson M, Siden H, Stenekes S, Vadeboncoeur C, Widger K

Pediatric palliative care patients: a prospective multicenter cohort study

OBJECTIVE: To describe demographic and clinical characteristics and outcomes of patients who received hospital-based pediatric palliative care (PPC) consultations. DESIGN, SETTING, AND PATIENTS: Prospective observational cohort study of all patients…

Pediatric palliative care program versus usual care and healthcare resources utilization in British Columbia: a matched-pairs cohort study

BACKGROUND: Evidence on the impact of pediatric palliative care programs (PPCP) on resource utilization is scarce and requires broader measures to include utilization beyond the hospital setting. OBJECTIVE: This research aims to provide a Canadian…

Tags: 2015, Backlog, Chavoshi N, Conte T, Erdelyi S, Journal Article, Journal of Palliative Medicine, Mitton C, Siden H

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