Moving Family-centered Care Forward: Bereaved Fathers' Perspectives

Title

Moving Family-centered Care Forward: Bereaved Fathers' Perspectives

Creator

Davies B; Baird J; Gudmundsdottir M

Publisher

Journal Of Hospice And Palliative Nursing

Date

2013

Subject

Bereaved Fathers; Family-centered Care; Pediatric Health Care Providers Behaviors

Description

This paper describes the key behaviors of "excellent" pediatric healthcare providers - a term used by fathers of children with complex, life-threatening illness to describe providers who consistently and effectively engage in family-centered care for children and their families. Using interview data from a multi-site grounded theory study of 60 fathers with a deceased child, five behaviors were identified: getting to know the family as individuals, talking about non-healthcare related topics, connecting in a human-human relationship, including parents as team members, and applying specialized knowledge to help the family. These behaviors are consistent with the goals of family-centered care, but they are inconsistently practiced, resulting in less-than-optimal care for children and their families during periods of crisis and vulnerability. A renewed focus on relationship building and interactions with families is needed, as well as a re-evaluation of the training of pediatric healthcare providers.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Notes

Davies, Betty
Baird, Jennifer
Gudmundsdottir, Maria
F31 NR012093/NR/NINR NIH HHS/United States
R01 NR009430/NR/NINR NIH HHS/United States
Journal Article
United States
J Hosp Palliat Nurs. 2013 May 1;15(3). doi: 10.1097/NJH.0b013e3182765a2a.

Citation

Davies B; Baird J; Gudmundsdottir M, “Moving Family-centered Care Forward: Bereaved Fathers' Perspectives,” Pediatric Palliative Care Library, accessed October 18, 2021, https://pedpalascnetlibrary.omeka.net/items/show/11096.

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