Browse Items (94 total)
- Tags: Follow-up Studies
A follow up study of myocardial involvement in patients with mitochondrial encephalomyopathy, lactic acidosis, and stroke-like episodes (MELAS)
Tags: 1998, Adolescent, Adult, Aotsuka H, Backlog, Child, Echocardiography, Electrocardiography, Female, Follow-up Studies, Heart (british Cardiac Society), Humans, Hypertrophy, Journal Article, Left Ventricular/physiopathology/ultrasonography, Male, MELAS Syndrome/physiopathology/ultrasonography, Okajima Y, Q3 Scoping Review Results, Stroke Volume, Takayanagi M, Tanabe Y
Sleep and neuromuscular disease: bilevel positive airway pressure by nasal mask as a treatment for sleep disordered breathing in patients with neuromuscular disease
Tags: 1998, Adolescent, Adult, Backlog, Child, Female, Follow-up Studies, Guilleminault C, Humans, Intermittent Positive-Pressure Ventilation, Journal Article, Journal Of Neurology, Neurosurgery, And Psychiatry, Lung Volume Measurements, Male, Masks, Middle Aged, Muscular Dystrophies/physiopathology/therapy, Neuromuscular Diseases/physiopathology/therapy, Philip P, Polysomnography, Positive-Pressure Respiration, Pulmonary Ventilation/physiology, Q3 Scoping Review Results, Robinson A, Sleep Apnea Syndromes/physiopathology/therapy, Treatment Outcome
Neurologic presentations of mitochondrial disorders
Tags: 2000, Backlog, Barash V, Brain Diseases, Child, Deafness/diagnosis/genetics, Developmental Disabilities/diagnosis/genetics, Fattal-Valevski A, Female, Follow-up Studies, Gutman A, Harel S, Humans, Inborn/diagnosis/genetics, Journal Article, Journal of Child Neurology, Lerman-Sagie T, Lev D, Male, MELAS Syndrome/diagnosis/genetics, Mental Retardation/diagnosis/genetics, MERRF Syndrome/diagnosis/genetics, Metabolic, Mitochondrial Myopathies/diagnosis/genetics, Neurologic Examination, Nissenkorn A, Q3 Scoping Review Results, Watemberg N, Zeharia A
Seizures in children with congenital hydrocephalus: long-term outcome
Communication with parents of children with cancer
Tags: 1994, Adaptation, Adolescent, Adult, Backlog, Black I, Child, Communication, Defense Mechanisms, Eden OB, Emery AE, Female, Follow-up Studies, Grief, Human, Infant, Interview, Journal Article, Leukemia/psychology, MacKinlay GA, Male, Neoplasms/psychology, Palliative Medicine, Parent-child Relations, Parents/education/psychology, Patient Care Team, Preschool, Professional-family Relations, Psychological, Truth Disclosure
Prognosis for survival and improvement in function in children with severe developmental disabilities
Tags: 1997, Age Distribution, Ashwal S, Backlog, California/epidemiology, Child, Cohort Studies, Developmental Disabilities/mortality, Eyman RK, Follow-up Studies, Human, Infant, Journal Article, Journal of Pediatrics, Newborn, P.H.S., Preschool, Prognosis, Severity Of Illness Index, Shavelle R, Strauss D, Support, Survival Rate, U.S. Gov't
Pediatric palliative care patients: a prospective multicenter cohort study
Tags: 2011, Adolescent, Backlog, Child, Chronic Disease, Chronic Disease/epidemiology/therapy, Dussel V, Eligibility Determination, Eligibility Determination/methods, Female, Feudtner C, Follow-up Studies, Friebert SE, Friedrichsdorf SJ, Hays Ross M, Hexem KR, Hospitalization, Hospitalization/trends, Humans, Infant, Journal Article, Kang T, Male, Medical Audit, Medical Audit/organization & administration, Newborn, Osenga K, Palliative Care, Palliative Care/organization & Administration, PEDI Study, Pediatrics, Preschool, Prevalence, Prospective Studies, Siden H, United States, United States/epidemiology, Wolfe J, Young Adult
Factors important to patients' quality of life at the end of life
Tags: 2012, Adult, Aged, Archives Of Internal Medicine, Attitude To Death, Backlog, Caregivers, Drug Therapy, Female, Follow-up Studies, Humans, Journal Article, Male, Meditation, Middle Aged, Models, Neoplasms, Nilsson ME, Pastoral Care, Physician-patient Relations, Prigerson HG, Prospective Studies, Quality Of Life, statistical, Terminal Care, Terminally Ill, United States, Zhang B
Survival without disability to age 5 years after neonatal caffeine therapy for apnea of prematurity
Tags: 2012, Anderson PJ, Apnea/drug therapy, Asztalos EV, Backlog, Barrington KJ, Blindness/epidemiology/etiology/prevention & control, Caffeine/adverse effects/therapeutic use, Central Nervous System Stimulants/adverse effects/therapeutic use, Cerebral Palsy/epidemiology, Child, Child Development, Cognition Disorders/epidemiology/etiology/prevention & control, Davis PG, Deafness/epidemiology/etiology/prevention & control, Developmental Disabilities/epidemiology/etiology/prevention & control, Dewey D, Doyle LW, Female, Follow-up Studies, Grunau RE, Humans, Incidence, Infant, JAMA, Journal Article, Male, Moddemann D, N2N, Newborn, Odds Ratio, Ohlsson A, Premature, Preschool, Roberts RS, Schmidt B, Solimano A, Survival Analysis, Tin W, Treatment Outcome, Trial Investigators Caffeine for Apnea of Prematurity (CAP), Very Low Birth Weight
The forgotten griever: a nationwide follow-up study of mortality subsequent to the death of a sibling
Tags: 2012, Adolescent, Adult, Age Factors, Aged, American Journal Of Epidemiology, Backlog, Bereavement, Cause Of Death, Female, Follow-up Studies, Humans, Journal Article, Kawachi I, Male, Middle Aged, Mortality, Proportional Hazards Models, Registries, Rostila Mikael, Saarela J, Sex Factors, sibling bereavement, Siblings, Sweden, Young Adult
Cause of Death in Children With Mitochondrial Diseases
Tags: 2017, Age of Onset, Cause Of Death, Child, Children, Eom S, February 2018 List, Female, Follow-up Studies, Humans, Kang HC, Kim HD, Lee HN, Lee JS, Lee S, Lee YM, Male, mitochondrial disease, Mitochondrial Diseases, Mitochondrial Diseases/ mortality, Mortality, Only Child, Pediatric, Pediatric Neurology, Preschool, risk factor
Association of Mortality With the Death of a Sibling in Childhood.
Tags: 2017, Adolescent, Age Factors, Bereavement, Cause Of Death, Child, Child, Preschool, Cnattingius S, December 2017 List, Denmark/epidemiology, Family Health/ Statistics & Numerical Data, Female, Follow-up Studies, Fu B, Humans, JAMA Pediatrics, Li J, Liew Z, Life Change Events, Male, Mortality, Olsen J, Parner ET, Qin G, Registries, Risk Factors, Sex Factors, Siblings, Sweden/epidemiology, Time Factors, Vestergaard M, Yu Y, Zhao N
A Longitudinal, Randomized, Controlled Trial Of Advance Care Planning For Teens With Cancer: Anxiety, Depression, Quality Of Life, Advance Directives, Spirituality
METHODS:
Adolescent (age 14-20 years)/family dyads (N = 30) with a cancer…
Tags: 2014, Adolescent, Adult, Advance Care Planning, Advance Care Planning/statistics & Numerical Data, Advance Directive, Advance Directives/psychology, Advance Directives/statistics & Numerical Data, African-american, Anxiety/complications, Anxiety/psychology, Cancer, Communication, Decision-making, Depression/complications, Depression/psychology, End Of Life, Family, Family Intervention, Feasibility Studies, Female, Follow-up Studies, Humans, Journal of Adolescent Health, July 2016 List, Longitudinal Studies, M.E. Lyon, Male, Neoplasms/complications, Neoplasms/psychology, Patient Satisfaction/statistics & Numerical Data, Pediatric Palliative Care, Quality Of Life/psychology, Spirituality, Surveys And Questionnaires, United States, Wang J, Young Adult
Antenatal Palliative Care Consultation: Implications For Decision-making And Perinatal Outcomes In A Single-centre Experience
Tags: 2017, Adult, Archives of Disease in Childhood. Fetal and Neonatal Edition, Decision Making, Female, Follow-up Studies, Gollehon N, Humans, Infant Newborn, Kukora S, Laventhal N, Male, March 2017 List, Palliative Care/methods, Pregnancy, Pregnancy Outcome, Prenatal Care/methods, Referral And Consultation/organization & Administration, Retrospective Studies, Young Adult