Browse Items · Pediatric Palliative Care Library

Sibling bereavement and continuing bonds.

Historically, from a Freudian and medical model perspective, emotional disengagement from the deceased was seen as essential to the successful adaptation of bereavement. A major shift in the bereavement literature has occurred and it is now generally…

Mourning and meaning

Viewed in an expanded frame, the phenomena of grief and bereavement call for analysis in sociological, psychological, and psychiatric terms. In this article, the authors argue that a common theme in these accounts is that of the meaning of loss as…

Tags: 2002, American Behavioral Scientist, Backlog, Bereavement, Davies B, Grief, Journal Article, mourning, Neimeyer RA, Prigerson HG

Patterns of grief in young children following the death of a sibling

Abstract Specific grief behaviors observed in children ages 4-16 years in the 2 years after the death of a sibling are reported. Using the Child Behavior Checklist (CBCL), the parents of 90 boys and girls rated the occurrence of behavior problems in…

Tags: 1995, Backlog, Davies B, Death, Death studies, Grief, Journal Article, McCown DE, sibling bereavement

The empty space phenomenon: The process of grief in the bereaved family

1987

Tags: 1987, Backlog, Davies B, Death studies, Journal Article, Kulenkamp E, Martinson I, May A, McClowry S, SSHRC CURA

Conducting feminist research in nursing: personal and political challenges

The challenges of doing feminist nursing research include both personal and political elements. Some of these arise from the threefold influences of being nurses, women, and academics within a larger social context that may be antithetical to…

Tags: 1998, Attitude Of Health Personnel, Backlog, Choice Behavior, Female, Feminism, Health Care For Women International, Humans, Journal Article, Maxwell-Young L, Nurses/psychology, Nursing Methodology Research/methods/standards, Olshansky E, Politics, Research Personnel/psychology, Steele R, Women/psychology

Parental depression following the death of a child

1991

Tags: 1991, Backlog, Child, Davies B, Death, Death studies, Depression, Journal Article, Martinson I, McClowry S

Parental perspectives on hospital staff members' acts of kindness and commemoration after a child's death

OBJECTIVES: Acts of kindness and commemoration by staff members often follow the death of a patient. Acts include attending funerals, sending sympathy cards, sending cards on birthdays/anniversaries, telephoning/visiting family homes, and attending…

Gender imbalance in pediatric palliative care research samples

We assessed the sampling performance of research on parental perspectives in pediatric palliative care and examined if and how gender imbalance was treated. We undertook a systematic review of parental perspectives research in pediatric palliative…

Tags: 2010, Affleck W, Backlog, Cadell S, Chilibeck G, Journal Article, Macdonald ME, NET CV, Palliative Medicine

Paediatric palliative care: Challenges and emerging ideas.

2007

Tags: 2007, Backlog, Journal Article, Liben S, Papadatou D, The Lancet, Wolfe J

Paediatric palliative care: Challenges and emerging ideas.

Paediatric palliative care is an emerging subspecialty that focuses on achieving the best possible quality of life for children with life-threatening conditions and their families. To achieve this goal, the individuals working in this field need to:…

Tags: 2007, Backlog, Journal Article, Lancet, Liben S, Longitudinal Studies, Papadatou D, Wolfe J

Pediatric palliative care

Tags: 2007, Book/Book Section, Liben S, Palliative Care: Core Skills And Clinical Competencies

Psychological Correlates of Depression in Children with Recurrent Abdominal Pain

Objective To examine the associations between coping style, social support, self-efficacy, locus of control, maternal adjustment, and depressive symptoms in children with recurrent abdominal pain (RAP) of childhood. Methods Fifty children with RAP…

Tags: 2006, Backlog, Dewey D, Journal Article, Journal of Pediatric Psychology, Kaminsky L, PedPal Lit, Robertson M

A theory of healing in the aftermath of youth suicide. Implications for holistic nursing practice

The purpose of this family-focused, grounded-theory study was to develop a substantive theory that explains how individual family members heal in the aftermath of youth suicide. Individual healing following youth suicide is conceptualized as a…

From death notification through the funeral: bereaved parents' experiences and their advice to professionals

Parents who experience the sudden death of a child will interact with many professionals in the period immediately following the death notification through to the funeral. The way these professionals respond to the parents during this critical period…

Tags: 2003, Attitude To Death, Backlog, Bereavement, Cadell S, Child, Death, Fatal Outcome, Funeral Rites, Grief, Janzen L, Journal Article, Omega, Parents, Sudden, Westhues A

PaedPalLit: The International Journal of Paediatric Palliative Care

Tags: 2007, Book/Book Section, Hunt A, Jassal S, McCulloch R, Siden H, Thompson A

Everyday struggling to survive: Experiences of the urban poor living with advanced cancer.

2007

Tags: 2007, Backlog, Davies B, Gudmundsdottir M, Hughes A, Journal Article, Oncology Nursing Forum, ONS Excellence in Cancer Nursing Research Award

Can you give me respect? Experiences of the urban poor on a dedicated AIDS nursing home unit

2008

Tags: 2008, Backlog, Davies B, Gudmundsdottir M, Hughes A, Journal Article, Journal Of The Association Of Nurses In Aids Care

Understanding Canadian Punjabi-speaking South Asian women's experience of breast cancer: A qualitative study

2008

Tags: 2008, Backlog, Barroetavena MC, Cadell S, Doll R, Gurm BK, International Journal Of Nursing Studies, Journal Article, Mackenzie G, Stephen J

Ensuring pain relief for children at the end of life

2006

Tags: 2006, Adolescent, Analgesia/methods, Backlog, Child, Female, Frager G, Grégoire MC, Humans, Infant, Journal Article, Male, Pain Measurement/methods, Pain Research & Management : The Journal Of The Canadian Pain Society = Journal De La Societe Canadienne Pour Le Traitement De La Douleur, Pain/etiology/psychology/therapy, Palliative Care/methods, Preschool, Terminal Care/methods

"Doctor, I think my baby is in pain": the assessment of infants' pain by health professionals

2008

Tags: 2008, Backlog, Finley GA, Grégoire MC, Jornal De Pediatria, Journal Article

Power, pathalogical worldviews and the strengths perspective in social work

2009

Tags: 2009, Backlog, Cadell S, Families In Society, Grant J, Journal Article

Bereaved Parents’ and Siblings’ Reports of Legacies Created by Children With Cancer

This qualitative study explored bereaved parents’ and siblings’ reports of legacies created by children with advanced cancer. Participants included 40 families of children who died from cancer, with 36 mothers, 27 fathers, and 40 siblings (ages 8-18…

Symptoms, adverse events, and outcomes in the use of medicinal cannabis in children and adolescents with autism spectrum disorder: a scoping review protocol

OBJECTIVE: The objective of this scoping review is to map and identify the symptoms, adverse events, and outcomes in the use of medicinal cannabis in children and adolescents with autism spectrum disorder. INTRODUCTION: Autism spectrum disorder is a…

Tags: 2021, Adolescent, Autism spectrum disorder, Child, Delivery of Health Care, Fletcher S, Humans, Ip A, JBI Evidence Synthesis, Medical Marijuana, Medicinal Cannabis, Oberlander T, Parents, Pawliuk C, Review Literature as Topic, Siden H

Medicinal cannabis in children and adolescents with autism spectrum disorder: A scoping review

BACKGROUND: Autism spectrum disorder (ASD) is a neurodevelopmental condition estimated to affect 1 in 66 children in Canada and 1 in 270 individuals worldwide. As effective therapies for the management of ASD core and associated symptoms are limited,…

Supportive care needs of women with lung cancer

The main purpose of this exploratory study was to identify the supportive care needs of women with lung cancer who attend an ambulatory regional cancer centre. Lung cancer has more than a physical impact on those who are diagnosed with the disease,…

Tags: 2008, Backlog, Canadian Oncology Nursing Journal, Caregivers, Fitch MI, Journal Article, Lung Cancer, Lung Neoplasms, Questionnaires, Steele R, Support, Women

Evaluation of children with severe neurological impairment admitted to hospital with pain and irritability

BACKGROUND: Pain is the most common symptom reported by caregivers of children with severe neurological impairment (SNI), a descriptive term for children with disorders affecting the neurological system across multiple domains. In SNI, cognition,…

Growing up: Perspectives of children, families, and service providers regarding the needs of older children with perinatally-acquired HIV

2006

Tags: 2006, AIDS care, Alimenti A, Backlog, Cadell S, Chapman GE, Fielden SJ, Forbes JC, Frankish JC, Journal Article, Scheckter L, Sheps S

Bereavement

Tags: 2004, Book/Book Section, Children, Chronic Disease, Davies B, Gudsmundsdottir M, Longitudinal Studies, Orloff S, Palliative Care, Palliative Care For Infants, Children And Adolescents: A Practical Handbook, Sumner L, Terminal Care, Terminally Ill, Toce S, Worder W

A typology of fatigue in children with cancer

Fatigue in adults with cancer has received considerable attention as a troublesome symptom that requires nursing intervention. Fatigue in children with cancer, however, has received considerably less focus. The first phase of the present study used…

Challenges in identifying children for palliative care

1996

Tags: 1996, Attitude Of Health Personnel, Attitude To Death, Backlog, Caregivers/psychology, Child, Davies B, Human, Journal Article, Journal Of Palliative Care, Palliative Care, Patient Care Team, Patient Selection, Pilot Projects, Quality Of Life, Steele R

Supporting families in palliative care.

Tags: 2010, Book/Book Section, Davies B, Oxford Textbook Of Palliative Nursing, Steele R

Manifestations of levels of functioning in grieving families

1986

Tags: 1986, Backlog, Davies B, Family, Journal Article, Journal Of Family Issues, Kulenkamp E, Martinson I, McClowry S, Spinetta J

Barriers to palliative care for children: Perceptions of pediatric health care providers

OBJECTIVE. The goal was to explore barriers to palliative care experienced by pediatric health care providers caring for seriously ill children. METHODS. This study explored pediatric provider perceptions of end-of-life care in an academic children's…

Tags: 2008, Amidi-Nouri A, Backlog, Cooper BA, Davies B, Hughes A, Journal Article, Kramer RF, Longitudinal Studies, Partridge JC, Pediatrics, Philp JC, Sehring SA

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