Browse Items · Pediatric Palliative Care Library

Bone scan as a screening tool in children and adolescents with back pain

Retrospective review of 142 patients from 2 teaching hospitals, investigated for persistent backache. The inclusion criteria were to be up to 18 years, to have no known associated diseases, and to have had a bone scan as a part of their work up.…

Breaking bad news to parents: the children's nurse's role

Breaking bad news is an extremely difficult and challenging process for the health care professional. The National Service Framework for Children in the UK highlights that the manner in which the health care professional delivers bad news impacts…

Tags: 2006, Backlog, ChildDisclosure Humans Nurse's RolePediatric NursingProfessional-Family Relations Social SupportTerminal Care, International Journal of Palliative Nursing, Journal Article, McNeilly P, PedPal Lit, Price J, Surgenor M

Brief report: psychosocial adjustment in adolescents with inflammatory bowel disease

BACKGROUND: Inflammatory bowel disease (IBD) is an ideal disease for investigating adolescent adjustment to chronic illness, given its embarrassing, socially limiting, appearance-changing symptoms and adolescent onset. OBJECTIVE: To compare…

Tags: 2006, Adaptation, Adolescent, Adolescent Transitions, Backlog, Case-Control Studies, Crandall WV, Family Relations, Female, Humans, Inflammatory Bowel Diseases/psychology, Journal Article, Journal of Pediatric Psychology, Mackner LM, Male, Psychological, Social Adjustment, United States

Building a new world: habits and practices of healing following the death of a child

The goal of this interpretive phenomenological study is to describe and understand significant habits and practices developed by families bereaved from the sudden and unexpected loss of their children. Data were primarily collected through the…

Business Processes

2006

Tags: 2006, Backlog, Journal Article, Process Driven Org

CAMHS liaison: supporting care in general paediatric settings

Increasing numbers of children and young people with mental health problems are being cared for in general paediatric settings, presenting a challenge to nurses who do not have mental health nursing qualification and experience. A survey of nurses in…

Can end of life care for the pediatric patient suffering with escalating and intractable symptoms be improved?

Over twelve thousand children are diagnosed each year with cancer, and approximately 2200 children die each year from the disease. A percentage of these patients experiences escalating and intractable distress with symptoms that include pain,…

Tags: 2006, Analgesics, Backlog, Branowicki PA, Dinning C, Houlahan KE, Journal Article, Journal Of Pediatric Oncology Nursing, Mack JW, McCabe M, Opioid/therapeutic use Boston ChildClinical Protocols Humans Neoplasms/nursing Pain/drug therapyPalliative Care/methods/organization & administration Pilot Projects Practice Guidelines, PedPal Lit

Cancer cachexia and fatigue

Cancer-associated cachexia and underlying biological mechanisms

Cancer metastases (spread to distant organs from the primary tumor site) signify systemic, progressive, and essentially incurable malignant disease. Anorexia and wasting develop continuously throughout the course of incurable cancer. Overall, in…

Tags: 2006, Annual Review Of Nutrition, Appetite, Backlog, Baracos VE, Cachexia/me [Metabolism], Cachexia/th [Therapy], Energy Intake/ph [Physiology], Energy Metabolism/ph [Physiology], Humans, IM, Journal Article, Neoplasms/co [complications], Neoplasms/me [Metabolism], Nutritional Support, Palliative Care, Weight Loss

Cardiac monitoring and treatment for children and adolescents with neuromuscular disorders

Dilated cardiomyopathy, hypertrophic cardiomyopathy, and cardiac rhythm disturbances are important features of certain neuromuscular disorders in children, adolescents, and young adults. This article summarizes the cardiac features seen in patients…

Tags: 2006, Adolescent Age of Onset Arrhythmia/diagnosis/etiology Cardiomyopathy, Backlog, Developmental Medicine & Child Neurology, Dilated/diagnosis/etiology Cardiomyopathy, Duchenne/complications Muscular Dystrophy, Emery-Dreifuss/complications Myotonic Dystrophy/complications, English KM, Gibbs JL, Hypertrophic/diagnosis/etiology Child Echocardiography Electrocardiography Friedreich Ataxia/complications Heart Diseases/diagnosis/etiology Humans Muscular Dystrophies/complications Muscular Dystrophy, Journal Article, PedPal Lit

Care of adolescents with chronic conditions

It is estimated that between 14.8% and 18% of all youths in North America have a chronic health condition or a special health care condition (eg, impairments, such as musculoskeletal impairments, speech defects, deafness and hearing loss, blindness…

Tags: 2006, Adolescent Health Committee, Adolescent Transitions, Adolescents, Backlog, Canadian Paediatric Society, Chronic Illness, Journal Article, Paediatrics & Child Health, Pediatrics

Carrier testing in minors: a systematic review of guidelines and position papers

The objective of this article is to review all published normative ethical and clinical guidelines concerning the genetic carrier testing of minors. The databases Medline, Philosopher's Index, Biological Abstracts, Web of Science, and Google Scholar…

Tags: 2006, Backlog, Borry P, Dierickx K, European Journal Of Human Genetics, Fryns JP, Journal Article, PedPal Lit, Schotsmans P

Challenging the philosophy of partnership with parents: A grounded theory study

BACKGROUND: Parent participation is viewed as a pivotal concept to the provision of high quality nursing care for children and their families. Since the 1990's, the term 'partnership with parents' has increasingly been reported in the literature and…

Tags: 2006, Backlog, Cowley S, Coyne I, International Journal Of Nursing Studies, Journal Article, PedPal Lit

Children with a long-term illness: parents' experiences of care

A diagnosis of a long-term illness in a child will bring on a major upheaval in the lives of the whole family involved and leads to a long-standing relationship with health care personnel. The purpose of this study was to describe parents'…

Tags: 2006, Adaptation, Backlog, Journal Article, Journal of Pediatric Nursing, Nuutila L, PedPal Lit, Preschool Chronic Disease/nursing Female Humans Infant Male Parents/psychology Pediatric NursingProfessional-Family RelationsSocial Support, Psychological Child Child, Salantera S

Children with disabilities and chronic conditions and longer-term parental health

This paper uses panel data from the Statistics Canada National Longitudinal Survey of Children and Youth (1994 through 2000) to study the implications of parenting a child with a disability or chronic condition for subjective assessments of parental…

Tags: 2006, Backlog, Burton P, Child Disability, Chronic Condition, Chronic Disease, Disabilities, Disability, Gender Roles, Identity, Journal Article, Lethbridge L, NET Grey Lit, Parental Health, Parents, Phipps S

Children's reactions to parental and sibling death

A significant population of children will experience bereavement because of the death of a parent or a sibling. This grief is different from the bereavement seen in adults and needs to be understood in a developmental context. Cognitive and emotional…

Tags: 2006, Attitude To Death, Backlog, Bereavement, Child, Cognition, Culture, Current Psychiatry Reports, Humans, Journal Article, Parents, Psychotherapy, Razdan A, Risk Factors, sibling bereavement, Siblings, Sood AB, Weller EB, Weller R

Chronic abdominal pain in children: an update

Despite the fact that chronic abdominal pain is a common complaint in children and adolescents, the complexity of this condition only recently has begun to be understood. This article summarizes new advances in the diagnosis, conceptualization, and…

Clinical and biochemical spectrum of D-bifunctional protein deficiency

OBJECTIVE: D-bifunctional protein deficiency is an autosomal recessive inborn error of peroxisomal fatty acid oxidation. Although case reports and small series of patients have been published, these do not give a complete and balanced picture of the…

Clinical and MRI correlates of cerebral palsy: the European Cerebral Palsy Study

CONTEXT: Magnetic resonance imaging (MRI) findings have been reported for specific clinical cerebral palsy (CP) subgroups or lesion types but not in a large population of children with all CP subtypes. Further information about the causes of CP could…

Clinical application of family management styles to families of children with cancer

The potential clinical application of family management styles for working with families who have children with cancer is discussed. Case studies are used to illustrate the usefulness and clinical application of the model.

Tags: 2006, Acute, Adaptation, Backlog, Journal Article, Journal Of Pediatric Oncology Nursing, L1/nursing/psychology Male Models, Lymphocytic, Ogle SK, PedPal Lit, Psychological Adolescent Adult Child Female Hodgkin Disease/nursing/psychology Humans Leukemia, Psychological Neoplasms/nursing/psychology Nuclear Family/psychology Nursing Assessment/methods

Clinical characteristics and survival of trisomy 18 in a medical center in Taipei, 1988-2004.

Trisomy 18 is the second most common autosomal trisomy in newborns. The birth prevalence of this disorder is approximately 1 in 3,000 to 1 in 8,000, and the life span of the majority of patients is less than 1 year. As information regarding outcome…

Clinical manifestations of Fabry disease in children: data from the Fabry Outcome Survey

BACKGROUND: Fabry disease is a rare X-linked disorder caused by deficient activity of the enzyme alpha-galactosidase A. This produces progressive lysosomal accumulation of globotriaosylceramide throughout the body, leading to organ failure and…

CNPCC

Tags: 2006, Backlog, Bereavement Leave Policy Paper, CHPCA, Journal Article, Pediatric Hospice Palliative Care: Guiding Principles And Norms Of Practice

Cognitive-behavioral interventions for physical symptom management in pediatric palliative medicine

The alleviation of symptoms, with the ultimate intention of improvement of quality of life, is a fundamental component of pediatric palliative medi-cine. Psychological factors can exacerbate physical symptoms or influence the perception of symptoms…

Tags: 2006, Backlog, Benore E, Child, Child And Adolescent Psychiatric Clinics Of North America, Cognitive Therapy/methods, Critical Illness, Fatigue/therapy, Humans, Intervention, Interventions, Journal Article, Pain/therapy, Palliative Care/methods, Poltorak DY, Sleep Initiation and Maintenance Disorders/therapy

Collaborate to catalyse good and sustained research: reflections from Venice 2006

2006

Tags: 2006, Backlog, Journal Article, Palliative Medicine, Strasser F

Communicating with families about post-mortems: practice guidance

In January 2001 the Chief Medical Officer announced the Public Inquiry (Redfern Report) into post-mortem practice at Alder Hey Hospital in Liverpool. It was expected that this inquiry report would influence post-mortem practice in general and…

Tags: 2006, Access to Information Attitude of Health Personnel Attitude to Health Autopsy/, Backlog, Communication Great Britain Humans Nurse's Role/psychology Parental Consent/, Henderson N, Hospital/standards Pediatric Nursing/organization & administration Practice GuidelinesProfessional-Family Relations Social Support Tissue and Organ Procurement, Journal Article, Paediatric Nursing, PedPal Lit, psychology Parents/education/, psychology Pathology Department, psychology/standards Bereavement Child Clinical Competence

Communication

Tags: 2006, Book/Book Section, Down G, Oxford Textbook Of Palliative Care For Children, Simons J

Companionship, control, and compassion: a social work perspective on the needs of children with cancer and their families at the end of life

2006

Tags: 2006, Backlog, Jones BL, Journal Article, Journal of Palliative Medicine, PedPal Lit

Complexity of the cerebral palsy syndromes: toward a developmental neuroscience approach

2006

Tags: 2006, Backlog, Brain/pathology, Cerebral Palsy/physiopathology, Child, Humans, JAMA, Journal Article, Magnetic Resonance Imaging, Msall ME, Preschool

Complicated grief and the reconstruction of meaning: Conceptual and empirical contributions to a cognitive-constructivist model

2006

Tags: 2006, Backlog, Clinical Psychology: Science And Practice, Grief, Journal Article, Meaning, Neimeyer RA

Consensus statements: the Family Management Style Framework and its use with families of children with cancer

2006

Tags: 2006, Adaptation, Alderfer MA, Backlog, Deatrick JA, Journal Article, Journal Of Pediatric Oncology Nursing, Knafl KA, Nelson AE, Ogle SK, PedPal Lit, Psychological ChildDisease Management HumansModels, Psychological Neoplasms/nursing/psychology Nuclear Family/psychology Nursing Assessment/methods

Consensus Workshop on Pediatric Rehabilitation Research

2006

Tags: 2006, Adolescent Transitions, Backlog, Bloorview Research Institute, Journal Article

Constipation in paediatric oncology

Constipation is a common problem encountered by many children during treatment for childhood cancer. It can be distressing and impact on the quality of life for the child. However, the advice and information they and their families receive can vary…

Constructing a prospective model of psychosocial adaptation in young adolescents with spina bifida: an application of optimal data analysis

OBJECTIVE: To examine how individual- and family-level predictors in late childhood and preadolescence relate to psychosocial adaptation (i.e., scholastic success, social acceptance, and positive self-worth) in early adolescence. METHOD: This…

Constructions of Mexican American family grief after the death of a child: an exploratory study

Using a collective case study ethnographic approach, nine individuals comprising three Mexican American families were interviewed about their family bereavement experiences after the death of a child. All families were Catholic, had surviving…

Tags: 2006, Attitude To Death/ethnology, Backlog, Bereavement, Case-Control Studies, Child, Cultural Diversity & Ethnic Minority Psychology, Doran G, Downing HN, Dreams, Family Relations, Family/psychology, Humans, Journal Article, Mexican Americans/psychology, Religion, SSHRC CURA

Consultation of Parents in Actual End-Of-Life Decision-Making in Neonates and Infants

The objective of this study was to assess how frequently end-of-life decisions (ELDs) with a possible or certain life-shortening effect in neonates and infants were discussed with parents, and to determine if consultation of parents was associated…

Consultation with children in hospital: children, parents' and nurses' perspectives

AIMS AND OBJECTIVES: To explore children's, parents' and nurses' views on participation in care in the healthcare setting. BACKGROUND: Children have a right to be consulted and involved in their care. DESIGN: The grounded theory method was used and…

Consulting the oracle: ten lessons from using the Delphi technique in nursing research

AIM: The aim of this paper was to provide insight into the Delphi technique by outlining our personal experiences during its use over a 10-year period in a variety of applications. BACKGROUND: As a means of achieving consensus on an issue, the Delphi…

Tags: 2006, Adolescent Transitions, Backlog, Consensus, Delphi Technique, Hasson F, Humans, Journal Article, Journal Of Advanced Nursing, Keeney S, McKenna H, Nursing Research/methods, Reproducibility of Results, Research Design

Content analysis of free-response narratives to personal meanings of death among Chinese children and adolescents

The study explores development of the concept of death among 204 Chinese children and adolescents and analyzes the relationships between death concept development and background variables. A coding manual for content analysis of death constructs…

Tags: 2006, Adolescent Age Factors Attitude to Death/ethnologyChildConcept FormationDeath Female Humans Male Religion Sex Factors Taiwan, Backlog, Chen SF, Death studies, Journal Article, PedPal Lit, Yang SC

Continuing Conversation about Continuing Bonds

The article is a response to the contributions the special issue of Death Studies on continuing bonds. The contributions indicate that the conversation among scholars has clarified our thinking on how bonds function in individual grief. The author…

Tags: 2006, ADJUSTMENT (Psychology), Backlog, Bereavement, Death studies, Grief, Journal Article, Klass D, Psychotherapy, SPIRITUAL life, SSHRC CURA, THANATOLOGY

Browse Items (332 total)