Browse Items (395 total)
- Tags: 2005
Palliative care management of a child with juvenile onset Huntington's disease
Tags: 2005, Adolescent Adolescent Psychology Attitude to Death Attitude to Health Conscious Sedation, Backlog, complications, etiology, International Journal of Palliative Nursing, Journal Article, King N, Methods, methods England Family, methods Grief Helping Behavior Hospices, organization & administration, organization & administration Humans Huntington Disease, Organizational Nursing Assessment Pain, PedPal Lit, prevention & control Palliative Care, Psychology, psychology Female Gastrostomy, psychology Patient Care Planning Patient Care Team, the issues around terminal care management are very similar to those for any neuro-degenerative disorder, therapy Models
A perinatal hospice for an unborn child with a life-limiting condition
Tags: 2005, Abnormalities/diagnosis/nursing Abortion, Backlog, International Journal of Palliative Nursing, Journal Article, Newborn Medical Futility/psychology Minnesota Models, Nursing Models, Nursing Prenatal Diagnosis Referral and Consultation Social Work/organization & administration, Organizational Neonatal Nursing/organization & administration Parents/education/psychology Patient Care Planning Perinatal Care/organization & administration Philosophy, Pediatric Humans Infant, PedPal Lit, Psychological Attitude to Death Attitude to Health Female Grief Hospice Care/organization & administration Hospitals, Ramer-Chrastek J, Therapeutic Adaptation, Thygeson MV
Parental grieving after a child dies from cancer: is stress from stem cell transplant a factor?
Tags: 2005, Adaptation, Backlog, Drew D, Foreman T, Goodenough B, Grief Health Services Needs and Demand Humans Male Mass Screening Neoplasms/psychology/, International Journal of Palliative Nursing, Journal Article, Maurice L, Non-U.S. Gov't Risk Assessment Risk Factors Stem Cell Transplantation/, PedPal Lit, Psychological Adult Analysis of Variance Anxiety/psychology Attitude to Death Attitude to Health Case-Control Studies Child Cross-Sectional Studies Depression/psychology Female, Psychological/diagnosis/etiology/, Psychology, psychology Questionnaires Research Support, Stress (Psychology), therapy New South Wales Nursing Assessment Nursing Methodology Research Parents/, Willis L
What makes dying children different?
Tags: 2005, Adaptation, Backlog, Drew D, Hinds PS, International Journal of Palliative Nursing, Journal Article, PedPal Lit, Psychological AdolescentAdolescent PsychologyAttitude to Death Body Image ChildChild Psychology Decision Making Family/psychology Humans Interpersonal Relations Play and Playthings/psychology Terminal Care/methods/psychology
Paediatric palliative care in the UK: past, present and future
Tags: 2005, Backlog, Child Child Health Services/organization & administration/trends Family Nursing Great Britain Holistic Nursing Humans Palliative Care/organization & administration/trends Research, International Journal of Palliative Nursing, Journal Article, McFarlane M, McNeilly P, PedPal Lit, Price J
Seeking and using families' views to shape children's hospice services
Tags: 2005, Adolescent, Adult, Backlog, Child, Child Health Services/organization & administration, Consumer Satisfaction, Female, Focus Groups, Great Britain, Health Care, Hospice Care/organization & administration, Humans, Infant, International Journal of Palliative Nursing, Journal Article, Male, Maynard L, Needs Assessment, Newborn, Parents, Preschool, Professional-family Relations, Quality Assurance, Rennie T, Shirtliffe J, Vickers D
Using computer-assisted learning to gain knowledge about child death and bereavement
Tags: 2005, Attitude of Health PersonnelBereavement Child Clinical Competence/standards Computer-Assisted Instruction/methods/standards Curriculum Education, Baccalaureate, Backlog, education Problem-Based Learning Program Evaluation Psychology, Educational Students, International Journal of Palliative Nursing, Journal Article, Nursing, Nursing/psychologyTerminal Care/psychology, organization & administration Evidence-Based Medicine Family, PedPal Lit, Pfund R, psychology Forecasting Health Services Needs and Demand Holistic Health Humans Nursing Education Research Nursing Theory Pediatric Nursing
Bereavement care for families part 1: a review of a paediatric follow-up programme
Issues of patient consent: a study of paediatric high-dependency care
Tags: 2005, Access to Information/legislation & jurisprudence, Backlog, Biomedical and Behavioral Research, British Journal Of Nursing, Child, Child Advocacy/legislation & jurisprudence, Computer Security/legislation & jurisprudence, Confidentiality/legislation & jurisprudence, Data Collection/legislation & jurisprudence, Ethics Committees, Great Britain, Health Services Research/legislation & jurisprudence, Humans, ICU Decision Making, Informed Consent/legislation & jurisprudence, Intensive Care Units, Journal Article, McKinney PA, Nursing Research/legislation & jurisprudence, Patient Identification Systems/legislation & jurisprudence, Patient Rights/legislation & Jurisprudence, Pediatric/legislation & jurisprudence, Presumed Consent/legislation & jurisprudence, Professional Patient Relationship, Research/legislation & jurisprudence, Rushforth K
Removal, retention and storage of organs and tissue in the UK
Tags: 2005, Autopsy/legislation & jurisprudence Child Female Fetal Tissue Transplantation/legislation & jurisprudence Great Britain Hospitals, Backlog, British Journal Of Nursing, Dimond B, Hospital/legislation & jurisprudence Professional Misconduct/legislation & jurisprudence Tissue Donors/legislation & jurisprudence Tissue and Organ Procurement/legislation & jurisprudence, Journal Article, PedPal Lit, Public Humans Infant Parental Consent/legislation & jurisprudence Pathology Department
Late-onset neurologic disease in glutaryl-CoA dehydrogenase deficiency
Tags: 2005, Age of Onset, Aged, Atrophy/enzymology/genetics/physiopathology, Backlog, Bodamer OA, Brain Diseases, Carnitine/therapeutic use, Cerebral Cortex/enzymology/pathology/physiopathology, Cognition Disorders/enzymology/genetics/physiopathology, Disease Progression, DNA Mutational Analysis, Food, Formulated, Glutaryl-CoA Dehydrogenase/deficiency, Gruber S, Harting I, Hoffmann GF, Humans, Inborn/enzymology/genetics/physiopathology, Journal Article, Kolker S, Kulkens S, Lateral Ventricles/pathology, Magnetic Resonance Imaging, Male, Metabolic, Movement Disorders/enzymology/genetics/physiopathology, Mutation/genetics, Myelinated/pathology, Nerve Fibers, Neurology, Q3 Scoping Review Results, Sauer S, Treatment Outcome, Zschocke J
Disease severity in children and adults with Pompe disease related to age and disease duration
Tags: 2005, 80 And Over, Activities of Daily Living, Adolescent, Adult, Age Factors, Age of Onset, Aged, Artificial/statistics & numerical data, Backlog, Child, Cross-sectional Studies, Disease Progression, Female, Glycogen Storage Disease Type II/diagnosis/epidemiology/physiopathology, Hagemans ML, Hop WC, Humans, Infant, Journal Article, Male, Middle Aged, Muscle, Neurology, Newborn, Preschool, Q3 Scoping Review Results, Questionnaires, Respiration, Respiratory Insufficiency/epidemiology/etiology/therapy, Reuser AJ, Severity Of Illness Index, Skeletal/physiopathology, Van der Ploeg AT, Van Doorn PA, Wheelchairs/statistics & numerical data, Winkel LP
Silence is not golden: communicating with children dying from cancer
Tags: 2005, Aaron J, AdolescentAttitude to Death Child Child, Backlog, Baile WF, Beale EA, Journal Article, Journal Of Clinical Oncology, PedPal Lit, PreschoolCommunication Denial (Psychology) Female Humans Male Neoplasms/diagnosis/psychology/therapyParent-Child Relations Patient Care Team/standards Stress, Psychological Terminal Care Truth Disclosure
Inter-religious perspectives on hope and limits in cancer treatment
Tags: 2005, 80 and over Breast Neoplasms/drug therapy/pathology/psychology Decision Making Family Health Female Hospice Care HumansMother-Child RelationsPalliative Care Physician-Patient Relations PrognosisReligion Truth Disclosure, Aged, Astrow AB, Backlog, Journal Article, Journal Of Clinical Oncology, Mattson I, PedPal Lit, Ponet RJ, White M
Parent and physician perspectives on quality of care at the end of life in children with cancer
Tags: 2005, Adolescent, Adult, Backlog, Child, Communication, Extramural, Female, Grier HE, Health Care Surveys, Hilden JM, Humans, Infant, Journal Article, Journal Of Clinical Oncology, Mack JW, Male, Moore C, N.I.H., Newborn, Non-U.S. Gov't, Odds Ratio, Pain, Parent-child Relations, Physician-patient Relations, Physicians/standards, Preschool, Quality Of Health Care, Quality Of Life, Research Support, Terminal Care/standards, Turner B, Watterson J, Weeks JC, Wolfe J
Palliative care in children in Wales: a study of provision and need
Tags: (2) referrals to the specialist palliative medicine service based in Cardiff, 2005, Backlog, Child, Hain RD, Health Services Accessibility, Health Services Needs and Demand Hospice Care/, Journal Article, Palliative Medicine, PedPal Lit, Preschool Female, statistics & numerical data Humans Male Needs Assessment Palliative Care/, statistics & numerical data Questionnaires Referral and Consultation Wales
Challenging the framework for evidence in palliative care research
Leukocytes in the regulation of pain and analgesia
Tags: 2005, Analgesia, Animals, Backlog, Biomarkers of Pain, Biomarkers Reference List, Humans, Inflammation Mediators/immunology, Journal Article, Journal Of Leukocyte Biology, Leukocytes/immunology/secretion, Machelska H, Nervous System/immunology/physiopathology, Neuropeptides/immunology/pharmacology, Opioid Peptides/immunology/secretion, Opioid/immunology, Pain/immunology/physiopathology, Receptors, Rittner HL, Sensory/immunology/physiopathology, Signal Transduction/immunology, Stein C
Transitions in care during the end of life: changes experienced following enrolment in a comprehensive palliative care program
Children in reviews: methodological issues in child-relevant evidence syntheses
Hierarchical qualitative research teams: refining the methodology
Being ill as narrated by children aged 11-18 years
Caring for children with complex needs: staff education and training
Tags: 2005, Attitude of Health Personnel Caregivers/education Child Community Health Nursing/educationEducation, Backlog, Continuing Home Care Services/manpower HumansInservice TrainingLong-Term Care Nursing Staff/education Pediatric Nursing/education Professional-Family Relations, Hewitt-Taylor J, Journal Article, Journal Of Child Health Care, Nursing, PedPal Lit
The search for social safety and comfort in families raising children with complex chronic conditions
Tags: 2005, Adaptation, Adult, Backlog, Bradley JF, Child, Chronic Disease/nursing/psychology, Developmental Disabilities/nursing/psychology, Family Nursing, Family/psychology, Female, Humans, Interpersonal Relations, Journal Article, Journal Of Family Nursing, Leisure Activities, Male, Parent caregivers, Preschool, Psychological, Rehm RS, Social Adjustment, United States
Normalization in families raising a child who is medically fragile/technology dependent and developmentally delayed
Tags: 2005, Adaptation, Backlog, Bradley JF, but it has not been examined in families whose children have both complex physical and developmental disabilities. Developmental delays compounded the effects of the children's physical chronic conditions, Extramural Research Support, Journal Article, N.I.H., Non-U.S. Gov't Research Support, P.H.S. Schools, parents recognized normal and positive aspects of their lives while acknowledging the profound challenges that their families faced. Parents concluded that it was possible to have a good life that was not necessarily normal by usual standards ., PedPal Lit, Preschool Chronic Disease Comparative Study Cost of IllnessDevelopmental DisabilitiesDisabled Children Family/psychology Humans Qualitative Research Research Support, Psychological Caregivers/psychology ChildChild Rearing Child, Qualitative Health Research, Rehm RS, severely affecting how families organized and managed their daily lives, U.S. Gov't, with the result that families did not fit currently established attributes of normalization. Instead
Interviewing young children: explicating our practices and dilemmas
Having a Child Diagnosed With Cancer: An Assessment of Values From the Mother's Viewpoint
Striving to survive: families' lived experiences when a child is diagnosed with cancer
Tell me about it: drawing as a communication tool for children with cancer
Tags: (b) explore and compare the coping measures they use to manage these stressors, 2005, AdolescentArt Therapy Attitude to Health Child Child, and (c) examine the use of drawing to enhance communication. Participants included 22 children ages 7 to 18 years, Backlog, Communication, Comparative Study, Emotions, Female, Great Britain, Hospitalized/psychology, Humans, Interviews, Journal Article, Journal Of Pediatric Oncology Nursing, Male Neoplasms/nursing/psychology, Non-U.S. Gov't Stress, Nurse-patient Relations, Oncologic Nursing/methods, PedPal Lit, Psychological/nursing United States%X As health-related research on children shifts from seeking information about children to seeking information directly from them, Qualitative Research, regardless of their ethnicity and other cultural comp onents, Research Support, respond to the childhood cancer experience in a similar manner. The use of drawing enhanced communication through direct visual expression and/or through verbal expression via the "campfire effect.", Rollins JA
Sibling involvement at the end of life
Tags: 2005, Attitude To Death, Attitude to DeathBereavement Child Emotions HumansNeoplasms/nursing/psychology Oncologic NursingSibling Relations Siblings/psychology Terminal Care/psychology, Backlog, Bereavement, Child, Emotions, Giovanola J, Humans, Journal Article, Journal Of Pediatric Oncology Nursing, Neoplasms, Oncology Nursing, PedPal Lit, sibling bereavement, Sibling Relations, Siblings, Terminal Care
Surviving childhood cancer: parents' perceptions of their child's health
Tags: 2005, Adaptation, Backlog, Child welfare, Health Status Humans Long-Term Care Longitudinal Studies Male Middle Aged Neoplasms/diagnosis/psychology/, Journal Article, Journal Of Pediatric Oncology Nursing, Non-U.S. Gov't Risk Assessment Survivors Time Factors, Parent-Child Relations Probability Questionnaires Regression Analysis Research Support, PedPal Lit, Preschool Female Follow-Up Studies, Psychological Adolescent Adult Caregivers/psychology Child, Svavarsdottir EK, Therapy
Unusual clinical presentations in four cases of Leigh disease, cytochrome C oxidase deficiency, and SURF1 gene mutations
Tags: 2005, Akman HO, Backlog, Bonilla E, Cytochrome-c Oxidase Deficiency/complications/genetics/pathology, De Vivo DC, DiMauro S, DNA Mutational Analysis, Female, Frameshift Mutation, Humans, Infant, Journal Article, Journal of Child Neurology, Kidney Diseases/etiology, Leigh Disease/complications/genetics/pathology, Male, Membrane Proteins, Mitochondrial Proteins, Morales A, Morales JF, Muscle, Newborn, Phenotype, Proteins/genetics, Q3 Scoping Review Results, Sacconi S, Shanske S, Skeletal/pathology, Tay SK
A multidisciplinary review of nutrition considerations in the pediatric oncology population: a perspective from children's oncology group
Tags: 2005, Antineoplastic Combined Chemotherapy Protocols/adverse effects/therapeutic use, Backlog, Cachexia/etiology/therapy, Child, Child Nutrition Physiology, Dadd G, Enriquez L, Evidence-based Medicine, Hawkes R, Henry D, Humans, Journal Article, Ladas EJ, Lowry G, Meacham L, Neoplasms/metabolism/physiopathology/therapy, Nutrition In Clinical Practice : Official Publication Of The American Society For Parenteral And Enteral Nutrition, Nutritional Requirements, Nutritional Support/methods, Practice Guidelines, Rogers P, Sacks N, Survival Analysis