A perinatal hospice for an unborn child with a life-limiting condition


A perinatal hospice for an unborn child with a life-limiting condition


Ramer-Chrastek J; Thygeson MV


International Journal Of Palliative Nursing




PedPal Lit; Nursing Models; Pediatric Humans Infant; Abnormalities/diagnosis/nursing Abortion; Newborn Medical Futility/psychology Minnesota Models; Nursing Prenatal Diagnosis Referral and Consultation Social Work/organization & administration; Organizational Neonatal Nursing/organization & administration Parents/education/psychology Patient Care Planning Perinatal Care/organization & administration Philosophy; Psychological Attitude to Death Attitude to Health Female Grief Hospice Care/organization & administration Hospitals; Therapeutic Adaptation


Perinatal hospice is a newly developing model of hospice care, offered to the family in the prenatal period, which provides support, guidance and comfort to families who make the difficult choice to continue a pregnancy after the diagnosis of a fatal fetal anomaly. The model is based on the hospice philosophy of living life fully and enjoying each moment. This article describes a perinatal hospice programme that is currently in place at a hospice home care programme of a children's hospital in the USA. It includes a case example of one family's experience of this programme.


Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).


Journal Article

Citation List Month



Ramer-Chrastek J; Thygeson MV, “A perinatal hospice for an unborn child with a life-limiting condition,” Pediatric Palliative Care Library, accessed June 25, 2024, https://pedpalascnetlibrary.omeka.net/items/show/13331.