Browse Items · Pediatric Palliative Care Library

Gender differences in infirmary use at a residential summer camp

Studies of health behavior in adults show that women report more morbidity and greater health service utilization than do men, despite lower mortality rates. Explanations involve social and biological gender differences in adult life. Infirmary…

Gender differences in parental coping following their child's death

The impact of the deaths of 19 children from malignancy on subsequent patterns of maternal and paternal coping styles was evaluated in a retrospective study of Dutch parents. The parents had been bereaved on average for 19 months. Parental coping was…

Tags: 1991, Backlog, British Journal Of Guidance And Counselling, Cramer D, Hoekstra J, Humphrey GB, Journal Article, Littlewood JL, Parent caregivers

Gene expression and localization of opioid peptides in immune cells of inflamed tissue: functional role in antinociception

Our previous studies indicate that endogenous opioids (primarily beta-endorphin) released during stressful stimuli can interact with peripheral opioid receptors to inhibit nociception in inflamed tissue of rats. This study sought to localize opioid…

Grounded theory research: Procedures, cannons, and evaluative criteria

1990

Tags: 1990, Backlog, Corbin J, Journal Article, Qualitative Sociology, Research, Strauss A

Habitual somatic discomfort in a representative sample of adolescents

The study is concerned with relations between habitual somatic discomfort, assessed by means of a questionnaire, and indicators of psychosocial adjustment, in a representative sample of 15-16 yr-old Finnish girls (N = 179) and boys (N = 205). Symptom…

Tags: 1992, Adaptation, Adolescent, Backlog, Female, Humans, Journal Article, Journal of Psychosomatic Research, Male, Personality Development, Personality Inventory, Psychological, Rauste-von WM, Set (Psychology), Social Adjustment, Social Support, Somatoform Disorders/psychology, von Wright J

High agreement but low kappa: II. Resolving the paradoxes

An omnibus index offers a single summary expression for a fourfold table of binary concordance among two observers. Among the available other omnibus indexes, none offers a satisfactory solution for the paradoxes that occur with p0 and kappa. The…

Tags: 1990, Backlog, Cicchetti DV, Feinstein AR, Journal Article, Journal Of Clinical Epidemiology, Observer Variation, Q3 Scoping Review Results, Sensitivity and Specificity, Statistics as Topic

Historical overview of the development of family-centered, community-based, coordinated care in Michigan.

1992

Tags: 1992, Adolescent Transitions, Backlog, Community Health Services, Family Centered Care, Haas DL, Home Health Care, Issues In Comprehensive Pediatric Nursing, Journal Article, Michigan, Pediatric Care -- History, Program Implementation, Program Planning

Hospice care for children

Tags: 1993, Armstrong-Dailey A, Book/Book Section, Goltzer S

Hospice care for children: past, present, and future

Of the 100,000 children who die each year in the United States, close to 15,000 children could benefit from hospice/home care services. This article describes the concept of pediatric hospice care, reviews the Martinson study that was conducted in…

Tags: 1993, administration/statistics &, Adolescent, Backlog, Child, Child Health Services/organization &, Forecasting, Health Services Research, Home Care Services/organization &, Hospices/organization &, Humans, Infant, Journal Article, Journal Of Pediatric Oncology Nursing, Martinson IM, Mortality, numerical data/trends, Preschool

Hospice social work: a search for identity

This article describes social work's contribution to hospice philosophy and practice, calls attention to the lack of a distinct social work function on hospice teams, and examines various ways to resolve the problem of social work identity in hospice…

Tags: 1991, Aged, Backlog, Health & Social Work, Hospice Care/psychology, Hospices/trends, Humans, Journal Article, MacDonald D, Philosophy, Role, Social Work, United States

Increased concentration of beta-endorphin in sera of patients with psoriasis and other inflammatory dermatoses

Serum beta-endorphin was quantified by radioimmunoassay in 71 patients with psoriasis vulgaris, other chronic inflammatory skin diseases with T-cell infiltrates [atopic dermatitis (n = 25), and systemic sclerosis (n = 34)], and 100 healthy subjects.…

Individual correlates of health service utilization and the cost of poor adjustment to chronic illness

1990

Tags: 1990, Arpin K, Backlog, Browne G, Cohen 2006 BMC HSR Refs, Corey P, Fitch MI, Gafni A, Journal Article

Infantile systemic hyalinosis in a black infant

A black girl was born with flexion contractures and experienced pain on movement by 1 week of age. She subsequently developed perioral papules, gingival hyperplasia, perianal nodules, torticollis, diarrhea, rectal prolapse, and inability to open her…

Infantile systemic hyalinosis: newly recognized disorder of collagen?

Four infants with stiff skin and painful joint contractures in the first few months of life are described. Other features included small papules, particularly on the face and trunk, perianal nodules, hyperpigmentation over the metacarpophalangeal…

Interleukin 1 beta and corticotropin-releasing factor inhibit pain by releasing opioids from immune cells in inflamed tissue

Local analgesic effects of exogenous opioid agonists are particularly prominent in painful inflammatory conditions and are mediated by opioid receptors on peripheral sensory nerves. The endogenous ligands of these receptors, opioid peptides, have…

Tags: 1994, Analysis of Variance, Animals, Antibodies/pharmacology, Backlog, beta-Endorphin/immunology/physiology, Biomarkers of Pain, Carter L, Corticotropin-Releasing Hormone/administration & dosage/pharmacology/therapeutic use, Cyclosporine/pharmacology, Dose-Response Relationship, Drug, Dynorphins/immunology/physiology, Endorphins/immunology/physiology/secretion, Enkephalin, Humans, Inflammation/immunology/physiopathology, Injections, Interleukin-1/administration & dosage/pharmacology/therapeutic use, Journal Article, Leucine/analogs & derivatives/pharmacology, Male, Methionine/immunology/physiology, Naloxone/pharmacology, Pain/immunology/physiopathology/prevention & control, Proceedings Of The National Academy Of Sciences Of The United States Of America, Rats, Recombinant Proteins/pharmacology/therapeutic use, Regression Analysis, Schafer M, Somatostatin/analogs & derivatives/pharmacology, Stein C, Wistar

Intermittent but not continuous inescapable footshock stress affects immune responses and immunocyte beta-endorphin concentrations in the rat

It is well known that a variety of stressors influence immune responses. The opioid peptide-beta-endorphin (BE) is deeply involved in stress responses, is synthesized in cells of the immune system, and participates in the modulation of immune…

Limitations and withdrawals of medical intervention in pediatric critical care

OBJECTIVE--To investigate the use and implementation in pediatric intensive care units (PICUs) of three levels of restriction of medical intervention: do not resuscitate (DNR), additional limitations of medical interventions beyond DNR, and…

Liver involvement in Alpers disease

Alpers disease consists of diffuse cerebral degeneration manifested as developmental delay, seizures, vomiting, and progressive neuromuscular deterioration, with liver disease and death. We report the clinical course of the liver disease, histologic…

Local analgesic effect of endogenous opioid peptides

Opioids produce analgesia by interacting with local opioid receptors in peripheral inflamed tissue. This study investigated whether endogenous ligands of these receptors are present in synovia and whether such opioid peptides can inhibit pain by…

Long-Term Effects of Sibling Death during Adolescence

The authors explored the long-term consequences for adolescents of surviving a sibling afflicted with cystic fibrosis. Seventy-five adults were interviewed whose siblings had died from cystic fibrosis in the 1960s and 1970s. Subjects were drawn from…

Tags: 1991, Backlog, Fanos JH, Journal Article, Journal Of Adolescent Research, Nickerson BG, sibling bereavement

Long-Term Outcomes of Adolescent Sibling Bereavement

The experience of sibling bereavement is relatively unexamined in the literature; the long-term effects of such an experience have received even less attention. In this study, grounded theory techniques for the analysis of qualitative data were used…

Tags: 1991, Backlog, Bereavement, Davies B, Journal Article, Journal Of Adolescent Research, sibling bereavement

Magnetic resonance spectroscopy in Niemann-Pick disease type C: Correlation with diagnosis and clinical response to cholestyramine and lovastatin.

Niemann-Pick type C is an autosomal-recessive, neurovisceral storage disorder that results from defective cholesterol esterification. Cholesterol-lowering agents have been demonstrated to decrease hepatic lipids in Niemann-Pick type C patients. The…

Malnutrition at diagnosis of malignancy in childhood: common but mostly missed

A prospective, controlled study of nutritional status in 100 newly diagnosed paediatric oncology patients is reported. Results showed that although patients' height-for-age and weight-for-height were normal, mid-upper arm circumference (MUAC) and…

Management of smooth-blunt gastric foreign bodies in asymptomatic patients

Guidelines for management in the asymptomatic patient with a smooth-blunt gastric foreign body are not well established in the pediatric literature. Questionnaires were sent to pediatricians, family practitioners, pediatric gastroenterologists and…

Tags: 1990, Backlog, Bendig DW, Clinical Pediatrics, Foreign Bodies/th [Therapy], Human, Journal Article, Mackie GG, Questionnaires, Stomach

Meaning reconstruction in the experience of parental bereavement

Grounded theory analysis was used to generate an explanation of the phenomenon of meaning reconstruction in the experience of 10 bereaved mothers. The theory that emerged included three phases in the process of meaning reconstruction: discontinuity,…

Tags: 1994, Attitude, Backlog, Bereavement, Berg DH, Braun Mildred J, Child, Child Death, Death, Death studies, Family, Grief, Journal Article, Knowledge, Meaning, Mothers, mourning, Parents, Role

Measured enthusiasm: does the method of reporting trial results alter perceptions of therapeutic effectiveness?

OBJECTIVE: To compare clinicians' ratings of therapeutic effectiveness when different trial end points were presented as percent reductions in relative compared with absolute risk and as numbers of patients treated to avoid one adverse outcome.…

Measuring patient satisfaction for audit in general practice.

1992-09

Tags: 1992, Backlog, Baker R, Journal Article, Quality In Health Care, Whitfield M

Melatonin, cortisol and body temperature rhythms in Lennox-Gastaut patients with or without circadian rhythm sleep disorders

The daily rhythms of melatonin, cortisol and body temperature were studied in 16 institutionalized subjects with the Lennox-Gastaut syndrome. The results of 9 subjects with normal daily rhythms of sleep and wakefulness (group 1) were compared with…

Tags: 1993, Alila A, characteristics, congenital hydrocephalus, Hätönen T, Heiskala H, Journal Of Neurology, Laakso M L, Leinonen L, Lennox-Gastaut syndrome, LGS, sleep disturbance/disorders, Trajectory, West syndrome

Mental and physical health of spouse caregivers: the role of personality

Although personal resources of caregivers, such as coping skills and social support, have been shown to be important in understanding caregiver stress and health outcomes, personality traits have not previously been considered. The purpose of this…

Methadone as treatment for iatrogenic narcotic dependency in pediatric intensive care unit patients

Methionine enkephalin-like, substance P-like, and beta-endorphin-like immunoreactivity in human parotid saliva

These three neuropeptides were measured at daily baseline values by radioimmunoassay. Stimulated parotid saliva was collected from 31 subjects using a modified Carlson-Crittenden device affixed over Stenson's duct. Methionine enkephalin-like…

Misconceptions about morphine use in cancer patients

1994

Tags: 1994, American Pharmacy, Backlog, Berry J, Humans, Journal Article, Morphine/administration & dosage/therapeutic use, Neoplasms/drug therapy/physiopathology, Pain/drug therapy/etiology, Palliative Care

Mitochondrial encephalomyopathy, lactic acidosis, stroke-like episodes (MELAS): clinical, radiological, pathological, and genetic observations

We reviewed 10 patients (5 males, 5 females) with mitochondrial encephalomyopathy, lactic acidosis, and stroke-like episodes. The age of symptom onset ranged from 3 months to 12 years. All had lactic acidosis, multiple stroke-like events with…

Mitochondrial encephalomyopathy: variable clinical expression within a single kindred

The clinical manifestations of mitochondrial encephalomyopathy are described in four generations of a single kindred. The age of onset of major neurological disturbance varied from 3-70 years. In some patients, deafness was the only manifestation; in…

Morbidity and mortality in medium chain acyl coenzyme A dehydrogenase deficiency

Medium chain acyl coenzyme A dehydrogenase (MCAD) deficiency presents with episodic fasting, hypoketotic hypoglycaemia, and coma. It is known to be potentially lethal, but the outlook for survivors is thought to be good. We reassessed all patients…

Naltrexone therapy of apnea in children with elevated cerebrospinal fluid beta-endorphin

Previous studies have indicated increased immunoreactivity of the endogenous opioid peptide beta-endorphin in the cerebrospinal fluid (CSF) of infants under 2 years of age with apnea. To assess the role of endogenous opioids in the pathogenesis of…

Naltrexone therapy of apnea in children with elevated cerebrospinal fluid beta-endorphin

Previous studies have indicated increased immunoreactivity of the endogenous opioid peptide beta-endorphin in the cerebrospinal fluid (CSF) of infants under 2 years of age with apnea. To assess the role of endogenous opioids in the pathogenesis of…

Nasogastric or gastrostomy feedings in children with neurologic disabilities

Although pediatricians are increasingly aware of the problem of undernutrition in children with neurologic disabilities, many of these children remain poorly nourished despite prolonged attempts at oral feedings. We studied the effects of tube…

Tags: 1994, Backlog, Child, Christoffel KK, Clinical Pediatrics, Enteral Nutrition, Female, Humans, Infant, Journal Article, Male, Naureckas SM, Nervous System Diseases/complications/therapy, Nutrition Disorders/etiology/prevention & control, Preschool

Natural history of trisomy 13

The poor prognosis of patients with trisomy 13 has long been accepted and has been ascribed to brain and heart malformations. It has been suggested, however, that the long term survival is better than was previously thought and that cardiac surgery…

Need for rigorous assessment of palliative care

1994

Tags: 1994, Backlog, British Medical Journal, Human, Journal Article, McQuay H, Moore A, Palliative Care, Randomized Controlled Trials

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