Browse Items · Pediatric Palliative Care Library

The (re)construction of self after the death of a partner to HIV/AIDS

2007

Tags: 2007, Backlog, Cadell S, Death studies, Journal Article, Marshall S

Factors contributing to post-traumatic growth: a proposed structural equation model

With the current shift to include positive outcomes of trauma, this research was designed to explore factors that allow growth to occur. Structural equation modeling was used to test a model for understanding posttraumatic growth. A sample (N = 174)…

Discovering strengths and growth in palliative care

Tags: 2011, Book/Book Section, Cadell S, Johnston M, Oxford Textbook Of Palliative Social Work, Shermak S

Posttraumatic growth and HIV bereavement: Where does it start and when does it end?

There is growing interest in researching posttraumatic growth and understanding how to enhance positive outcomes in trauma survivors. This study undertook a systematic exploration of the posttraumatic growth in bereaved caregivers of people with…

Tags: 2006, Backlog, Bereavement, Cadell S, Grief, HIV bereavement, iatrogenic effects of research interventions, Journal Article, Longitudinal Studies, Mixed methods, Post-traumatic, Posttraumatic Growth, Stress Disorders, Sullivan R, Trauma and recovery, Traumatology

Using participant observation in pediatric health care settings: ethical challenges and solutions

2008

Tags: 2008, Backlog, Bluebond-Langner M, Carnevale FA, Journal Article, Journal Of Child Health Care, Macdonald ME, McKeever P

Mortality trends for pediatric life-threatening conditions.

Internal data from the sole pediatric hospice in British Columbia were utilized to investigate mortality trends among children dying from life-threatening conditions. Characteristics of the sample (hospice) were compared to that of the population…

Resource Utilization Among Individuals Dying Of Pediatric Life-threatening Diseases

BACKGROUND AND OBJECTIVES: Very little information exists on the number of resources utilized by individuals living with and dying of pediatric life-threatening diseases (LTDs). This study quantifies end of life (EOL) resource utilization among the…

Mortality Trends for Pediatric Life-Threatening Conditions

Internal data from the sole pediatric hospice in British Columbia were utilized to investigate mortality trends among children dying from life-threatening conditions. Characteristics of the sample (hospice) were compared to that of the population…

Tags: 2014, Backlog, Chavoshi N, Hospice, Illness, Journal Article, Life-threatening Conditions, Miller T, Mortality, Siden H, The American Journal of Hospice & Palliative Care

An integrative approach to music therapy in pediatric palliative care.

Tags: 2014, Adolescent, British Columbia, Child, Child Preschool, Clark BA, Female, Hospices, Humans, Infant, Journal Of Palliative Care, Male, Music Therapy, Palliative Care, Program Development, Program Evaluation, Siden H, Straatman L, Young Adult

Locus-Of-Care Disparities in End-Of-Life Care Intensity among Adolescents and Young Adults with Cancer: A Population-Based Study Using the Impact Cohort

BACKGROUND: Adolescents and young adults (AYAs) with cancer may experience elevated rates of high-intensity end-of-life (HI-EOL) care. Locus-of-care (LOC) disparities (pediatric vs adult) in AYA end-of-life (EOL) care are unstudied. METHODS: A…

Tags: 2021 Special Edition - Oncology, 2022, Baxter NN, Cancer, Coltin H, Gupta S, Momoli F, Nagamuthu C, Nathan PC, Oncology, Pole JD, Rapoport A

Pediatric palliative care program versus usual care and healthcare resources utilization in British Columbia: a matched-pairs cohort study

BACKGROUND: Evidence on the impact of pediatric palliative care programs (PPCP) on resource utilization is scarce and requires broader measures to include utilization beyond the hospital setting. OBJECTIVE: This research aims to provide a Canadian…

Tags: 2015, Backlog, Chavoshi N, Conte T, Erdelyi S, Journal Article, Journal of Palliative Medicine, Mitton C, Siden H

Effect of pediatric palliative care programs on health care resource utilization and costs among children with life-threatening conditions: a systematic review of comparative studies.

BACKGROUND: Pediatric palliative care is a relatively new and evolving field, and the cost of pediatric palliative care programs is unclear. We conducted a systematic review to compare inpatient health care utilization and costs among children with…

Tags: 2015, Chavoshi N, Cmaj Open, Conte T, Mitton C, Siden H, Trenaman LM

Away from home: Experiences of Mexican-American Families in Pediatric Palliative Care

2010

Tags: 2010, Backlog, Contro N, Davies B, Journal Article, Journal of Social Work in End-of-Life & Palliative Care, Larson JM, Sourkes B

Innovations in Research with Medically Fragile Populations: Using Bulletin Board Focus Groups

A new group of medically fragile young adults are graduating from pediatric palliative care programs with limited expectations to live beyond early adulthood, and no comparable adult services to support their complex needs. Accessing this population…

Tags: 2014, Browne G, Bulletin Board Focus Group, Case Studies, Complexity, Cook K, Disability/Disabled Persons, End-Of-Life Issues, Focus Groups, Illness and Disease, Jack S, Siden H, Thabane L, The Qualitative Report, Young Adults

Investing In Uncertainty: Young Adults With Life-limiting Conditions Achieving Their Developmental Goals.

BACKGROUND:
With improvements in pediatric care and technology, more young adults (YAs) with life-limiting conditions (LLCs) are surviving into adulthood. However, they have limited expectations to live beyond the first decade of adulthood. This…

Tags: 2016, Adolescent, Browne G, Cook KA, Disabilities, Health Care Sciences & Services, Health-care, Jack SM, Journal of Palliative Medicine, May 2016 List, Palliative Care, Perspectives, Policy, Siden H, Thabane L, Transition, Youth

Up against the System: A Case Study of Young Adult Perspectives Transitioning from Pediatric Palliative Care

Advances in pediatric care have not provided the interdisciplinary support services required by those young adults with pediatric life-threatening conditions (pedLTCs) who live beyond childhood but have limited expectations to live past early…

Tags: 2013, Backlog, Browne G, Cook KA, Jack S, Journal Article, Nursing Research And Practice, Siden H, Thabane L

Family functioning: Impact on siblings.

Tags: 1999, Attitude to death -- In infancy & childhood, Bereavement -- in infancy & childhood, Bereavement In Children, Book/Book Section, Brothers and sisters -- Death -- Psychological aspects, Children and death, Davies B, Grief in children, Longitudinal Studies, Shadows In The Sun: The Experiences Of Sibling Bereavement In Childhood., Sibling Relations -- in infancy & childhood

After a child dies: Helping the siblings.

Tags: 1993, Book/Book Section, Child, Davies B, Hospice Care For Children, Longitudinal Studies, Palliative Care, Siblings, Terminal Care

Supporting families in palliative care.

Tags: 2005, Book/Book Section, Davies B, Ofxord Textbook Of Palliative Care Nursing

The grief of siblings

Tags: 2002, Book/Book Section, Davies B, Grief, Helping Bereaved Children : A Handbook For Practitioners, Siblings

Pediatric Palliative Care

Tags: 2009, Book/Book Section, Davies B, Encyclopedia Of Death And The Human Experience

Sibling bereavement: research-based guidelines for nurses. [Review] [27 refs]

Despite the marked improvement in the treatment of childhood cancer in recent decades, there are children who die, leaving behind a legacy of grief for all who knew them, including their siblings. Nurses can play a significant role in facilitating…

Tags: 1993, Backlog, Davies B, IM, Journal Article, N, Seminars In Oncology Nursing, sibling bereavement

Long-Term Outcomes of Adolescent Sibling Bereavement

The experience of sibling bereavement is relatively unexamined in the literature; the long-term effects of such an experience have received even less attention. In this study, grounded theory techniques for the analysis of qualitative data were used…

Tags: 1991, Backlog, Bereavement, Davies B, Journal Article, Journal Of Adolescent Research, sibling bereavement

Weaving for the future: using rulers and roses

2001

Tags: 2001, Administration, Backlog, Biomedical, Canadian Oncology Nursing Journal, Davies B, Evidence-based Medicine, Forecasting, Humans, Journal Article, Leadership, Models, Nurse's Role, Nursing, Nursing Process, Nursing Research/organization &, Oncologic Nursing/education/organization &, Organizational Objectives, Technology Assessment

Assessment of need for a children's hospice program

Canuck Place, North America's first free-standing pediatric hospice of its kind, opened in 1995 in British Columbia, Canada. The province-wide program encompasses a broad spectrum of services intended to support community-based care and provide…

Tags: 1996, Adolescent, Backlog, Canada, Child, Child Health Services, Davies B, Death, Death studies, Grief, Health Services Needs And Demand, Hospice Care, Humans, Journal Article, PPC Book Chapter 2011 (Kim Widger), Preschool, Program Development

Shared life space and sibling bereavement responses.

1988-12

Tags: 1988, Backlog, Bereavement, Cancer Nursing, Davies B, IM, Journal Article, N, sibling bereavement

The family environment in bereaved families and its relationship to surviving sibling behavior

1988

Tags: 1988, Backlog, Child Health Care, Davies B, Family, Journal Article

The wisdom of children

2002

Tags: 2002, Attitude To Death, Backlog, Child, Child Psychology, Davies B, Humans, International Journal of Palliative Nursing, Journal Article

Moving Family-centered Care Forward: Bereaved Fathers' Perspectives

This paper describes the key behaviors of "excellent" pediatric healthcare providers - a term used by fathers of children with complex, life-threatening illness to describe providers who consistently and effectively engage in family-centered care for…

Tags: 2013, Baird J, Bereaved Fathers, Davies B, Family-centered Care, Gudmundsdottir M, Journal of Hospice and Palliative Nursing, Moving Family-centered Care Forward: Bereaved Fathers' Perspectives, Pediatric Health Care Providers Behaviors

Addressing spirituality in pediatric hospice and palliative care

Hospice and palliative care principles mandate clinicIans to provide "total" care to patients and their families. Such care incorporates not only physical, emotional, and psychosocial care, but spiritual care as well. Even though considerable…

Culturally-sensitive information-sharing in pediatric palliative care

OBJECTIVES: This study aimed to learn about experiences of Mexican American and Chinese American families who require pediatric palliative care. This article describes parents' perceptions of information-sharing by health care providers during their…

Tags: 2010, Backlog, Contro N, Davies B, Journal Article, Larson J, Pediatrics, Widger K

Experiences of mothers in five countries whose child died of cancer

Although increasing attention is being focused on the emotional aspects of caring for dying children and their families, few research reports concentrate on the experiences of mothers, particularly in different countries. This article describes the…

Challenges of developing a children's hospice

Tags: 1996, Bereavement, Beyond The Innocence Of Childhood: Helping Children And Adolescents Cope With Death And Bereavement, Book/Book Section, Davies B, Death, Eng B

Living in the dragon's shadow': Fathers' experiences of a child's life-limiting illness

Grounded theory methods were used to study the experiences of 8 bereaved fathers whose children received care in a home-based hospice program. In-depth, unstructured interviews were audiotaped, transcribed, and coded for themes and categories. Every…

Tags: 2004, Backlog, Brenner Paul, child's terminal illness, Davies B, Death, Death and Dying, Death studies, father experience, Fathers, Gudmundsdottir M, Hospice, Journal Article, Orloff S, SSHRC CURA, Sumner L, Worden B

Perceptions of discrimination among Mexican American families of seriously ill children

This paper describes Mexican American family members' descriptions of perceived discrimination by pediatric health care providers (HCPs) and the families' reactions to the HCPs' discriminatory conduct. A retrospective, grounded theory design guided…

Conducting a qualitative culture study of pediatric palliative care

While conducting a grounded theory study of Chinese American and Mexican American families' experiences in pediatric palliative care, we encountered a number of unanticipated challenges regarding project development, Institutional Review Boards,…

Tags: 2009, Ablin AR, Backlog, Chesla CA, Cohen H, Contro N, Davies B, Journal Article, Larson J, Qualitative Health Research, Reyes-Hailey C, Sourkes B

Grief and bereavement in pediatric palliative care

Tags: 2010, Book/Book Section, Davies B, Jin J, Limbo R, Oxford Textbook Of Palliative Nursing

Challenges of conducting research in palliative care

1995

Tags: 1995, Backlog, Brown P, Davies B, Journal Article, Martens N, Omega, Reimer CJ, Research

Fading away: The experience of transition for families with terminal illness

Tags: 1995, Book/Book Section, Brown P, Davies B, Family, Martens N, Reimer JC

Barriers to palliative care for children: Perceptions of pediatric health care providers

OBJECTIVE. The goal was to explore barriers to palliative care experienced by pediatric health care providers caring for seriously ill children. METHODS. This study explored pediatric provider perceptions of end-of-life care in an academic children's…

Tags: 2008, Amidi-Nouri A, Backlog, Cooper BA, Davies B, Hughes A, Journal Article, Kramer RF, Longitudinal Studies, Partridge JC, Pediatrics, Philp JC, Sehring SA

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