Browse Items (395 total)
- Tags: 2005
Withholding or withdrawing intensive care treatment in paediatric bone marrow transplant: a moral maze
Tags: 2005, Backlog, Bone Marrow Transplantation/ethics/psychology Child Child Advocacy/ethics Child Psychology/ethics Decision Making/ethics Humans Intensive Care/ethics/psychology Medical Futility Morals Pediatrics/ethics Quality of Life Withholding Treatment/ethics, European Journal Of Oncology Nursing, Hopkins S, Journal Article, PedPal Lit
Widespread pain in fibromyalgia is related to a deficit of endogenous pain inhibition
Tags: 2005, Adult, Arsenault P, Backlog, Cold/diagnostic use, Comparative Study, Cross-Over Studies, Female, Fibromyalgia/diagnosis/physiopathology, Goffaux P, Humans, Journal Article, Julien N, Male, Marchand S, Middle Aged, Neural Inhibition/physiology, Non-U.S. Gov't, Pain, Pain Measurement/methods, Pain/diagnosis/physiopathology, Regression Analysis, Research Support
Whose information is it anyway? Informing a 12-year-old patient of her terminal prognosis
Tags: 2005, 3, Age Factors Attitude of Health Personnel Attitude to Health Child Cohort Studies Communication Barriers Curriculum, as they pass through a modern medical curriculum. DESIGN: A cohort study of students entering Glasgow University's new medical curriculum in October 1996. METHODS: Students' responses obtained before year 1 and at the end of years 1, Backlog, Disclosure Female Humans Leukemia/psychology Parents/psychology Paternalism Personal Autonomy Physician-Patient Relations/ethics Prognosis Research Support, few students chose the consensus answer before year 1 and there was no significant movement towards consensus at any point during the course. In defence of their decision to withhold information, Goldie J, Journal Article, Journal of Medical Ethics, Medical/psychologyTerminally Ill%X OBJECTIVE: To examine students' attitudes and potential behaviour towards informing a 12-year-old patient of her terminal prognosis in a situation in which her parents do not wish her to be told, Morrison J, Non-U.S. Gov't Students, PedPal Lit, Schwartz L
When a child dies the world should stop spinning: an autoethnography exploring the impact of family loss on occupation
When a child cannot be cured - reflections of health professionals
Tags: 2005, Adaptation, Aranda S, as an awareness and acceptance that slowly develops. New models of care that incorporate palliative care throughout the disease trajectory are recommended., Backlog, De Graves S, especially following relapse where there is reduced clarity surrounding the child's outcome. Prognostic uncertainty and continued hope for survival make the shift to palliation difficult, European Journal Of Cancer Care, Journal Article, PedPal Lit, PsychologicalAttitude of Health Personnel Attitude to Health Child Humans Medical Oncology Neoplasms/mortality/psychology/therapy Oncologic Nursing Palliative Care/psychology Prognosis Social Work Treatment Failure Uncertainty, raising questions about the applicability of traditional palliative care models for these children and their families. Decision making in this context is complicated by a lack of clarity, uncertainty and continued hope. Shifting the focus of care from cure to palliation is not experienced as a discrete event but rather
What makes dying children different?
Tags: 2005, Adaptation, Backlog, Drew D, Hinds PS, International Journal of Palliative Nursing, Journal Article, PedPal Lit, Psychological AdolescentAdolescent PsychologyAttitude to Death Body Image ChildChild Psychology Decision Making Family/psychology Humans Interpersonal Relations Play and Playthings/psychology Terminal Care/methods/psychology
What influences parents' decisions to limit or withdraw life support?
Tags: 2005, Adolescent, Adult, Attitude To Death, Backlog, Child, Decision Making, Emotions, Female, Humans, ICU Decision Making, Infant, Journal Article, Life Change Events, Life Support Care/psychology, Male, Meert KL, Middle Aged, Parents/psychology, Pediatric Critical Care Medicine, Pilot Projects, Preschool, Prospective Studies, Sarnaik AP, Sharman M, Withholding Treatment
Very preterm birth is associated with disabilities in multiple developmental domains
Tags: 17% had a single disability, 2005, a single, Achievement Child, and 44% had multiple disabilities. Multiple disabilities were associated with lower birth weight, and behavioral domain was studied in 157 children born < 30 weeks gestation. The children were divided into a normal, and difficulties according to neurodevelopmental assessments at 2 years. CONCLUSION: Assessments of different developmental domains show that most very preterm children had multiple disabilities., and neurodevelopmental outcome at 2 years were evaluated. RESULTS: Thirty-nine percent had a normal developmental outcome, Backlog, BPD, Briet JM, clinical characteristics, cognitive, Dekker FW, Journal Article, Journal of Pediatric Psychology, Kok JH, motor, Newborn Infant, or a multiple disability group. Group differences in background, outcome in the neurological, PedPal Lit, Premature Intelligence Tests Male Psychomotor Disorders/diagnosis/epidemiology/etiology Research Support, Preschool Cognition Disorders/diagnosis/epidemiology/etiology Developmental Disabilities/diagnosis/epidemiology/etiologyDisabled Children Female Gestational Age Humans Infant Infant, van Baar AL, van Wassenaer AG
Variations in adult congenital heart disease training in adult and pediatric cardiology fellowship programs
Tags: 2005, Adolescent Transitions, Adult, Allada V, Backlog, Cardiology/education, Chang RK, Child, Child JS, Congenital, Data Collection, Education, Educational, Fellowships And Scholarships, Graduate/economics/standards, Gurvitz MZ, Heart Defects, Humans, Journal Article, Journal of the American College of Cardiology, Klitzner TS, Medical, Models, Pediatrics/education, Program Evaluation, Ramos FJ, United States
Variations among Institutional Review Board reviews in a multisite health services research study
Tags: 2005, Adult, Anderson R, Backlog, Biomedical and Behavioral Research, Confidentiality/ethics, Dziak K, Empirical Approach, Ethics Committees, Female, Health Services Research, Health Services Research/ethics, Humans, Informed Consent/ethics, Journal Article, Levine DW, Multi-site Ethics, Patient Selection/ethics, Prospective Studies, Refusal To Participate, Research, Scholle SH, Sevick MA, United States, Weisman CS
Variation in Institutional Review processes for a multisite observational study
Tags: 2005, American Journal Of Surgery, Backlog, Ethics Committees, Finan KR, Hawn MT, Health Services Research/organization & administration, Hernia, Humans, Journal Article, Kiefe C, Multi-site Ethics, Neumayer L, Observation/methods, Outcome Assessment (health Care), Program Evaluation, Research/organization & administration, United States, United States Department of Veterans Affairs, Ventral/surgery, Vick CC
Validity of parent ratings as proxy measures of pain in children with cognitive impairment
Tags: 2005, Adolescent Attitude to Health Bias (Epidemiology) Child Child Behavior Child, Backlog, Extramural Severity of Illness Index Time Factors, Journal Article, Malviya S, N.I.H., Pain Management Nursing, PedPal Lit, Postoperative/complications/diagnosis/physiopathology/psychology Parents/psychology Proxy/psychology Questionnaires Research Support, Preschool Cognition Disorders/complications Comparative Study Crying Facial Expression Humans Kinesics Michigan Nursing Assessment/methods/standards Nursing Evaluation Research Pain Measurement/methods/nursing/standards Pain, Tait AR, Voepel-Lewis T
Utilizing an oral sucrose solution to minimize neonatal pain
Tags: 2005, Administration, administration & dosage, adverse effects Treatment Outcome, Backlog, Diagnosis, Diseases, Drug Therapy, etiology, Journal Article, Journal for Specialists in Pediatric Nursing, methods Pain, Newborn, Newborn Infant, Nursing, nursing Pain Measurement Randomized Controlled Trials Risk Assessment Severity of Illness Index Sucrose, Oral Comparative Study Evidence-Based Medicine Female Follow-Up Studies Humans Infant, PedPal Lit, therapy Intensive Care Units Male Neonatal Nursing, Thompson DG
Utilization and costs for children who have special health care needs and are enrolled in a hospital-based comprehensive primary care clinic
Tags: 2005, Adolescent, Backlog, Berman S, Child, Cohort Studies, Colorado, Costs And Cost Analysis, Disabled Children, Dryer LJ, Elias E, Exceptional, Female, Health Expenditures, Health Maintenance Organizations/economics/utilization, Health Resources/statistics & numerical data, Health Services Needs and Demand/economics, Hospital Costs, Hospital Departments/economics/utilization, Hospital/economics/utilization, Hospitalization/statistics & numerical data, Hospitals, Humans, Infant, Inpatients, Jones MD, Journal Article, Laboratories, Male, Medicaid/economics/utilization, Medical/economics, Moore L, Needs Assessment/economics, Newborn, Outpatient Clinics, Outpatients, Pediatric/economics/organization & administration, Pediatrics, Preschool, Primary Health Care/economics/utilization, Rannie M, Specialties
Using computer-assisted learning to gain knowledge about child death and bereavement
Tags: 2005, Attitude of Health PersonnelBereavement Child Clinical Competence/standards Computer-Assisted Instruction/methods/standards Curriculum Education, Baccalaureate, Backlog, education Problem-Based Learning Program Evaluation Psychology, Educational Students, International Journal of Palliative Nursing, Journal Article, Nursing, Nursing/psychologyTerminal Care/psychology, organization & administration Evidence-Based Medicine Family, PedPal Lit, Pfund R, psychology Forecasting Health Services Needs and Demand Holistic Health Humans Nursing Education Research Nursing Theory Pediatric Nursing
Use of paediatric versus adult oncology treatment centres by adolescents 15-19 years old: the Canadian Childhood Cancer Surveillance and Control Program
Tags: 2005, Adolescent Cancer Care Facilities/utilization Child Child Health Services/utilization Comparative Study Delivery of Health Care Humans Neoplasms/epidemiology/therapy Ontario/epidemiology Research Support, and can be improved., Backlog, Barr RD, Disease, European Journal Of Cancer, Greenberg ML, Journal Article, Klein-Geltink J, Morrison HI, PedPal Lit, Shaw AK, the demographic
Use of health care among adults with chronic and complex physical disabilities of childhood
Tags: 2005, Adolescent Transitions, Adult, Backlog, Brain Injury, Cerebral Palsy/rehabilitation, Chronic/rehabilitation, Disability And Rehabilitation, Disabled Persons/rehabilitation, Emergency Service, Fehlings D, Female, Health Services/utilization, Hospital/utilization, Humans, Journal Article, Jutai J, Male, Olmsted N, Ontario, Primary Health Care/utilization, Retrospective Studies, Spinal Dysraphism/rehabilitation, Steele C, Williams JI, Young NL
Unusual clinical presentations in four cases of Leigh disease, cytochrome C oxidase deficiency, and SURF1 gene mutations
Tags: 2005, Akman HO, Backlog, Bonilla E, Cytochrome-c Oxidase Deficiency/complications/genetics/pathology, De Vivo DC, DiMauro S, DNA Mutational Analysis, Female, Frameshift Mutation, Humans, Infant, Journal Article, Journal of Child Neurology, Kidney Diseases/etiology, Leigh Disease/complications/genetics/pathology, Male, Membrane Proteins, Mitochondrial Proteins, Morales A, Morales JF, Muscle, Newborn, Phenotype, Proteins/genetics, Q3 Scoping Review Results, Sacconi S, Shanske S, Skeletal/pathology, Tay SK
Understanding adolescents: a guide for researchers
Tags: & Hall, 2001)., 2001). Consent processes are standardized, 2005, Adolescent Adolescent Behavior/physiology/psychologyAdolescent Development/physiologyAdolescent Psychology Adult Child Child Advocacy Cognition/physiology Decision Making Health Knowledge, adolescents often are conceptualized as children. Adolescents represent a vulnerable study population. To effectively and ethically involve adolescents in research, and federal regulations have been established to protect both adults and children. As a research population, and psychosocial developmental factors, and they must bear in mind that the voluntary and informed consent principles may be easily and inadvertently violated (Nelson & Rushton, as well as an understanding of the research processes needed to protect adolescents. Adolescents need to be active participants in the decision-making process (e.g., assent/consent, Attitudes, Backlog, cognitive, etc.). Researchers must be aware of and accountable for the power they hold in influencing adolescents' decisions to participate in research, Extramural Research Support, however, Journal Article, Journal of Neuroscience Nursing, knowledge of the risks and benefits, N.I.H., P.H.S. Vulnerable Populations/psychology%X The research establishment often has a "one size fits all" mentality with regard to the research process (Broome, PedPal Lit, PracticeHuman Experimentation Humans Informed Consent/psychology Mental Competency/psychology Minors/education/psychology Nurse's Role Parental Consent Power (Psychology) Research Subjects/psychology Research Support, researchers must understand and integrate knowledge of the variability in physical, Richards, Turner-Henson A, U.S. Gov't
Treatment of mania in children and adolescents
Tags: 2005, Adolescent, Antimanic Agents/adverse effects/therapeutic use, Antipsychotic Agents/adverse effects/therapeutic use, Backlog, Bipolar Disorder/diagnosis/drug therapy/psychology, Carbamazepine/adverse effects/therapeutic use, Child, Current Psychiatry Reports, Humans, Journal Article, Kang J, Lithium Compounds/adverse effects/therapeutic use, Randomized Controlled Trials as Topic, Sheikh R, Valproic Acid/adverse effects/therapeutic use, Weller EB, Weller R
Translation and cultural adaptation of Health Utilities Index (HUI) Mark 2 (HUI2) and Mark 3 (HUI3) with application to survivors of childhood cancer in Brazil
Tags: 2005, Adult Brazil ChildCulture Female Humans Male Neoplasms/ethnology/physiopathology/therapy Psychometrics/instrumentationQuality of Life Quality-Adjusted Life YearsQuestionnaires Research Support, and review of the back-translat ions by original developers of the HUI. The final questionnaires were tested by surveying a sample of convenience of 50 patients recruited at the Centro de Tratamento e Pesquisa-Hospital do Cancer in Sao Paulo, back-translation by two independent translators of the forward translation, Backlog, Barr RD, Brazil. RESULTS: Fifty patients were enrolled in the study. No assessor, consensus between translators on a forward translation, De Camargo B, Furlong W, Horsman J, Journal Article, Lopes LF, patient or nurse or physician, PedPal Lit, preference-based systems for describing health status and HRQL. Developed in Canada, Quality of Life Research, Seber A, Shimoda S, Sickness Impact Profile Survivors/psychology Translating, understandabl(TRUNCATED)
Transitions in care during the end of life: changes experienced following enrolment in a comprehensive palliative care program
Transition to adult care: Experiences and expectations of adolescents with a chronic illness
Transition planning for youth with special health care needs: results from the National Survey of Children with Special Health Care Needs
Tags: 2005, Adolescent, Adolescent Transitions, African Americans/statistics & numerical data, Aging, Backlog, California, Case Management, Child, Continuity Of Patient Care/organization & Administration, European Continental Ancestry Group/statistics & numerical data, Exceptional, Family Characteristics, Female, Health Services Needs and Demand/trends, Health Surveys, Hispanic Americans/sn [Statistics & Numerical Data], Humans, Insurance Coverage/statistics & numerical data, Journal Article, Lotstein DS, Male, McPherson M, Needs Assessment/statistics & numerical data, Newacheck P, Pediatrics, Questionnaires, Sampling Studies, Socioeconomic Factors, Strickland B
Transdermal fentanyl in the management of children with chronic severe pain: results from an international study
Tags: 2005, Administration, Adolescent, Analgesics, Backlog, Cancer, Child, Chronic Disease, Cutaneous, Dose-Response Relationship, Drug, Female, Fentanyl/administration & dosage, Finkel JC, Finley A, Follow-up Studies, Greco C, Humans, International Cooperation, Intractable/diagnosis/drug therapy, Journal Article, Male, Opioid/administration & dosage, Pain, Pain Measurement, Preschool, Risk Assessment, Severity Of Illness Index, Single-Blind Method, Skin Absorption/drug effects, Weisman SJ, Zeltzer L
Tramadol: does it have a role in cancer pain management?
Thinking outside the box: prenatal care and the call for a prenatal advance directive
Tags: 2005, Advance Directives/ethics/legislation & jurisprudence/psychology, Backlog, Catlin A, Decision Making/ethics Female Feminism Fetal Viability Humans Infant, Education, Ethics, Infant, Journal Article, Journal of Perinatal & Neonatal Nursing, legislation & jurisprudence, legislation & jurisprudence Intensive Care, legislation & jurisprudence Nurse's Role, legislation & jurisprudence Parents, Neonatal, Newborn, PedPal Lit, Premature Informed Consent, Prenatal Care/ethics/legislation & jurisprudence United States, psychology Mass Media Neonatal Nursing, psychology Parental Consent, psychology Practice Guidelines Pregnancy
The validity of the family relationships index as a screening tool for psychological risk in families of cancer patients
Tags: 2005, Adult Anxiety/, and clinical levels of depression and anxiety in 48 families where the patient had been recently diagnosed. Over the three phases, Backlog, because of the FRI's poor specificity, Clarke V, Depression/psychology, diagnosis/etiology/psychology, diagnosis/etiology/psychology Breast Neoplasms/, Edwards B, Family Relations Female Humans Longitudinal Studies Male, further follow-up of those families that are identified as being at some risk of a poor psychological outcome should be undertaken before referral to a mental health professional is warranted., Journal Article, Mass Screening Prostatic Neoplasms/, PedPal Lit, Psycho-Oncology, psychology Child Colorectal Neoplasms/, psychology Psychometrics Research Support, suggested that the FRI identified too many false positive s, the FRI identified all families at risk of family dysfunction, the higher sensitivity of the FRI makes it preferable to the FAD-GF as a screening measure for families at risk of a poor psychological outcome in the oncology setting. However
The use of clonidine for severe and intractable sleep problems in children with neurodevelopmental disorders--a case series
Tags: 2005, Adolescent, Antipsychotic Agents/administration & dosage/therapeutic use, Attention Deficit Disorder with Hyperactivity/complications/physiopathology, Backlog, Brain/physiopathology, Child, Clonidine/administration & dosage/therapeutic use, Developmental Disabilities/complications/physiopathology, Drug Administration Schedule, European Child & Adolescent Psychiatry, Female, Humans, Ingrassia A, Journal Article, Male, Q3 Scoping Review Results, Severity Of Illness Index, Sleep Disorders/complications/diagnosis/drug therapy, Turk J
The spectrum of adult congenital heart disease in Europe: morbidity and mortality in a 5 year follow-up period. The Euro Heart Survey on adult congenital heart disease
Tags: 2005, Adolescent, Adolescent Transitions, Adult, Aged, Ambulatory Care/statistics & numerical data, Backlog, Boersma E, Cardiovascular Agents/therapeutic use, Cardiovascular/mortality, Congenital/mortality, Daliento L, Data Collection, Engelfriet P, Europe/epidemiology, European Heart Journal, Female, Follow-up Studies, Gatzoulis MA, Heart Defects, Hirsch R, Humans, Journal Article, Kaemmerer H, Laforest V, Male, Meijboom F, Middle Aged, Moons P, Mulder B, Oechslin E, Patient Acceptance Of Health Care/statistics & Numerical Data, Popelova J, Pregnancy, Pregnancy Complications, Survival Analysis, Thaulow E, Thilen U, Tijssen J
The serotonin syndrome
Tags: 2005, algorithms, Antidepressive Agents/adverse effects, Backlog, Boyer EW, Diagnostic Errors, Drug Interactions, Humans, Journal Article, Monoamine Oxidase Inhibitors/adverse effects, Overdose/complications, P.H.S., Research Support, Serotonin Syndrome/chemically induced/diagnosis/drug therapy/physiopathology, Serotonin Uptake Inhibitors/adverse effects, Shannon M, The New England Journal Of Medicine, U.S. Gov't
The search for social safety and comfort in families raising children with complex chronic conditions
Tags: 2005, Adaptation, Adult, Backlog, Bradley JF, Child, Chronic Disease/nursing/psychology, Developmental Disabilities/nursing/psychology, Family Nursing, Family/psychology, Female, Humans, Interpersonal Relations, Journal Article, Journal Of Family Nursing, Leisure Activities, Male, Parent caregivers, Preschool, Psychological, Rehm RS, Social Adjustment, United States
The role of the specialist nurse in paediatric oncology in the United Kingdom
Tags: 2005, Backlog, Child Clinical Competence/standards Education, European Journal Of Cancer, Hollis R, Journal Article, Nursing, nursing Nurse Clinicians, organization & administration Great Britain Health Policy Humans Neoplasms, organization & administration Pediatric Nursing, organization & administration State Medicine, organization & administrationNurse's Role Oncologic Nursing, PedPal Lit