Browse Items · Pediatric Palliative Care Library

Quality and cost in the palliative care of cancer

1992

Tags: 1992, Backlog, British Journal Of Cancer, Hancock BW, Health Care, Journal Article, Neoplasms, Palliative Care, Quality Assurance, Quality Of Health Care, Terminal Care

Measuring parental grief after childhood cancer: potential use of the SCL-90R

To contribute to a better understanding of the utility of the Symptom Checklist-90-Revised (SCL-90R; L. Derogatis, 1983) with bereaved samples, an exploratory factor analysis was conducted on SCL-90R responses of 97 parents 2 years after the death of…

Predictors of distress in parents of children with cancer: a prospective study.

OBJECTIVE: To investigate levels of psychological distress in parents of children with cancer and relationships between distress and measures of illness variables, appraisal, psychosocial resources and coping strategies. METHODS: Questionnaires were…

Siblings of a child with cancer

A total of 21 healthy siblings were interviewed about their experiences when a brother or sister is diagnosed with cancer. Information about the illness, opinions about who should inform siblings, social support, specific worries and worst memories…

Measuring patient outcomes in palliative care: a reliability and validity study of the Support Team Assessment Schedule

This study reports the process and results of a psychometric evaluation of a clinical audit tool, the Support Team Assessment Schedule (STAS), used to measure outcomes of palliative care. The STAS was developed in London, UK to audit community…

Tags: 2000, Backlog, Carson MG, Fitch MI, Health Care, Journal Article, Neoplasms, Outcome Assessment (health Care), Palliative Care, Palliative Medicine, Quality Assurance, Vachon ML

Shades of truth: Cultural and psychological factors affecting communication in pediatric palliative care

Communication with children who have life-threatening illnesses is a major challenge. Communication practices are greatly influenced by factors such as the childâ€™s age, the parentsâ€™ wishes, and the cultural norms. This article presents the case…

Tags: 2011, Backlog, Best Practices (Davies), Clinical Ethics, Communication, cultural factors, Fukui K, Hatano Y, hepatoblastoma, Journal Article, Journal of Pain and Symptom Management, Neoplasms, Palliative Care, Pediatrics, Professional Ethics, Sociocultural Factors, Truth, truth telling, Yamada M

Factors important to patients' quality of life at the end of life

BACKGROUND: When curative treatments are no longer options for patients dying of cancer, the focus of care often turns from prolonging life to promoting quality of life (QOL). Few data exist on what predicts better QOL at the end of life (EOL) for…

Research participation experiences of parents of children with cancer who were asked about their child's prognosis

BACKGROUND: In questionnaire-based research, human subject protection committees must assess the emotional impact of the study on participants. Without clear data about the risks and benefits of participating in such studies, however, review board…

The effectiveness of a self-reporting bedside pain assessment tool for oncology inpatients

BACKGROUND: Pain is common during cancer treatment, and patient self-reporting of pain is an essential first step for ideal cancer pain management. However, many studies on cancer pain management report that, because pain may be underestimated, it is…

Peer relationships of bereaved siblings and comparison classmates after a child's death from cancer

OBJECTIVES: To compare peer relationships among bereaved siblings and matched classmates, and to examine gender, grade level, and time since death as moderators. METHODS: Families were recruited from cancer registries at four hospitals 3-12 months…

Changes in siblings after the death of a child from cancer.

IMPLICATIONS FOR PRACTICE: Our findings offer guidance to improve aftercare for bereaved siblings and their families. Additional research is needed to further delineate the needs of bereaved siblings and to develop strategies to promote adaptation to…

End-Of-Life Research as a Priority for Pediatric Oncology

Approximately 2,200 children and adolescents die a cancer-related death each year in the United States; of these, almost 90% will die while experiencing 2 to 8 troubling symptoms. With improved symptom control and end-of-life care, these patients…

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