Browse Items (367 total)
- Tags: PedPal Lit
Parental treatment decision making in pediatric oncology
Tags: 2005, Attitude to Health Child Conflict (Psychology)Decision Making Educational Status Health Priorities Helping Behavior Humans Internal-External Control Models, Backlog, Journal Article, Kelly KP, Non-U.S. Gov't Social Support, Nursing Models, PedPal Lit, Psychological Neoplasms/therapyNurse's Role Nursing Methodology Research Oncologic Nursing Parents/education/psychology Patient Selection Pediatric Nursing Practice Guidelines Professional-Family Relations Prognosis Research Design Research Support, Pyke-Grimm KA, Seminars In Oncology Nursing, Stewart JL
Complementary and alternative medicine in pediatric oncology
Tags: 2005, Backlog, Child Complementary Therapies/, Hawks RG, Journal Article, Non-U.S. Gov't Safety Treatment Outcome, organization & administration Evidence-Based Medicine/, organization & administration Forecasting Goals Health Priorities Health Services Needs and Demand Humans Neoplasms/, organization & administration Oncologic Nursing, organization & administration Organizational Objectives Pediatric Nursing, organization & administration Practice Guidelines Psychoneuroimmunology, organization & administration Research Design Research Support, PedPal Lit, Post-White J, Seminars In Oncology Nursing, therapy Nurse's Role Nursing Evaluation Research/
Collaborative clinical research on end-of-life care in pediatric oncology
Tags: 2005, Adolescent Adolescent Psychology Attitude of Health Personnel Attitude to Death Attitude to Health Child Child Psychology Clinical Nursing Research/, Attitudes, Backlog, Extramural Research Support, Hinds PS, Journal Article, Lafond DA, Multi-site Ethics, N.I.H., Non-U.S. Gov't Research Support, Nursing Models, Nuss SL, organization & administration Communication Cooperative Behavior Decision Making Forecasting Health Knowledge, P.H.S. Terminal Care/organization & administration, PedPal Lit, Practice Health Priorities Humans Models, Psychological Neoplasms/nursing/psychology Oncologic Nursing/organization & administration Parents/psychology Pediatric Nursing/organization & administration Practice Guidelines Research Design Research Support, Seminars In Oncology Nursing, U.S. Gov't
Medical end-of-life decisions in neonates and infants in Flanders
Tags: 2005, 48.9-64.0). Lethal drugs were administered in 15 cases among 117 early neonatal deaths and in two cases among 77 later deaths (13%vs 3%, 70.1-85.5) of the 121 physicians thought that their professional duty sometimes includes the prevention of unnecessary suffering by hastening death and 69 (58%, 95% CI 70.4-82.4) of the 253 deaths studied, Active/psychology/statistics & numerical data Female Humans Infant Infant, and such a decision was made in 14 3 cases (57%, Attitude of Health Personnel Belgium, Backlog, Bilsen J, Cools F, Decision Making, Deliens L, Euthanasia, Journal Article, Lancet, Mortier F, Newborn Male Pain/therapy Palliative Care/statistics & numerical data Physicians/, Non-U.S. Gov't, p=0.018). The attitude study showed that 95 (79%, PedPal Lit, Provoost V, psychology Questionnaires Research Support, Ramet J, Vandenplas Y, Withholding Treatment/statistics & Numerical Data
Long-term survival for a cohort of adults with cerebral palsy
Tags: 2006, Adolescent AdultCause of Death Cerebral Palsy/mortality/pathology Child Child, Backlog, Developmental Medicine & Child Neurology, Hemming K, Hutton JL, Journal Article, Newborn Life Expectancy Male Prognosis Research Support, Non-U.S. Gov't Sex Factors Survival Analysis, PedPal Lit, Pharoah PO, Preschool Cohort StudiesDisabled Persons Female Humans Infant Infant
Cardiac monitoring and treatment for children and adolescents with neuromuscular disorders
Tags: 2006, Adolescent Age of Onset Arrhythmia/diagnosis/etiology Cardiomyopathy, Backlog, Developmental Medicine & Child Neurology, Dilated/diagnosis/etiology Cardiomyopathy, Duchenne/complications Muscular Dystrophy, Emery-Dreifuss/complications Myotonic Dystrophy/complications, English KM, Gibbs JL, Hypertrophic/diagnosis/etiology Child Echocardiography Electrocardiography Friedreich Ataxia/complications Heart Diseases/diagnosis/etiology Humans Muscular Dystrophies/complications Muscular Dystrophy, Journal Article, PedPal Lit
Management of scoliosis in Duchenne muscular dystrophy: a large 10-year retrospective study
Tags: 2006, Adolescent Comparative Study Decision Making Disability Evaluation Female Humans Male Muscular Dystrophy, Backlog, Developmental Medicine & Child Neurology, Duchenne/complications Postoperative Period Research Support, Edge G, Journal Article, Kinali M, Lehovsky J, Manzur AY, Mercuri E, Messina S, Muntoni F, Non-U.S. Gov't Retrospective Studies Scoliosis/etiology/surgery/therapy Time Factors Treatment Outcome, PedPal Lit
Measurement in Duchenne muscular dystrophy: considerations in the development of a neuromuscular assessment tool
Beacon in the storm: an exploration of the spirituality and faith of parents whose children have cancer
Tags: 2006, Adaptation, Attitude to Health Child Female Health Services Needs and Demand Humans Life Change Events Male Middle Aged, Backlog, Issues Compr Pediatr Nurs, Journal Article, Mannell RC, Neoplasms/psychology Nurse's Role Nursing Methodology Research Oncologic Nursing Ontario Parents/, PedPal Lit, Psychological Adult, psychology Pediatric Nursing Problem Solving Professional-Family Relations Qualitative Research Questionnaires Religion and Psychology Research Design Social Support, Schneider M, Spirituality
Childhood suicide: a major issue in pediatric health care
Fathers parenting chronically ill children: concerns and coping strategies
Tags: 2005, Adaptation, Attitude to Health Child Child Welfare Choice Behavior Chronic Disease/, Backlog, Hovey JK, Issues Compr Pediatr Nurs, Journal Article, Non-U.S. Gov't Social Support Spouses/psychology Time Management, PedPal Lit, Psychological Adult, Psychological Nursing Methodology Research Parenting/psychology Problem Solving Questionnaires Research Support, psychology Family Health Father-Child Relations Fathers/, psychology Health Services Needs and Demand Helping Behavior Humans Male Middle Aged Midwestern United States Models
Beginning treatment for pediatric acute myeloid leukemia: the family connection
Tags: 2005, Acute DiseaseAdaptation, and work, audio-recorded and transcribed verbatim, Backlog, Hospitalized/psychology Child, Huff N, Issues Compr Pediatr Nurs, Journal Article, McGrath P, Myeloid/psychology/therapy Longitudinal Studies Models, often hidden, Paton MA, Pediatric Humans Infant Leukemia, PedPal Lit, Preschool Family/psychology Family Health Health Services Needs and Demand Holistic Health Hospitals, Psychological AdolescentAttitude to Health Child Child, Psychological Nursing Methodology Research Parent-Child Relations Qualitative Research Queensland Questionnaires Research Support, School, siblings and parents. Open-ended interviews, were thematically analyzed with the assistance of the Non-numerical Unstructured Data by processes of Indexing Searching and Theory-building (NUDIST) computer program. The findings emphasize the disruption to normalcy in relation to home life, which is exacerbated for families who relocate for specialist treatment. The findings emphasise the need for suppo rt for families coping with childhood AML.
A review of instruments measuring resilience
Psychological and religious coping strategies of mothers bereaved by the sudden death of a child
And then the dog died
Content analysis of free-response narratives to personal meanings of death among Chinese children and adolescents
Childhood mourning: prospective case analysis of multiple losses
The meaning structures of Muslim bereavements in Israel: religious traditions, mourning practices, and human experience
Home-based care for orphaned children infected with HIV/AIDS in Uganda
Tags: 2005, AIDS care, Backlog, Child Health Services/organization & administration, Journal Article, Kibirige M, Nakakeeto M, Nalubeg JF, Non-U.S. Gov't Uganda, O'Hare BA, PedPal Lit, Preschool Female Foster Home Care/organization & administrationHIV Infections/mortality Home Care Services/organization & administration Humans Infant Male Program Evaluation Research Support, Southall DP, Venables J
Clinical scales for the assessment of spasticity, associated phenomena, and function: a systematic review of the literature
Tags: 2005, Adult Child Humans Muscle Spasticity/diagnosis/physiopathology Neurophysiology/instrumentation/methods Posture/physiology Range of Motion, Articular/physiology Reflex, as well as of functional scales with an association with spasticity. Reviewed psychometric properties included internal consistency, Backlog, construct validity, Disability And Rehabilitation, ecological validity, Eickhof C, however, however not in all circumstances. For many scales, interrater, intrarater as well as retest reliability, Journal Article, Non-U.S. Gov't, Nuyens G, PedPal Lit, Platz T, reliability data is, Stretch/physiology Research Support, Vuadens P
Physical complaints in ageing persons with spinal muscular atrophy
Tags: 2005, Adult Aging/, Backlog, de Groot IJ, de Witte LP, Journal Article, Journal of Rehabilitation Medicine, Non-U.S. Gov't Spinal Muscular Atrophies of Childhood/complications/, PedPal Lit, physiology Child Cohort Studies Comorbidity Comparative Study Cross-Sectional Studies Disease Progression Female Humans Interviews Life Expectancy Male Muscular Atrophy, physiopathology, physiopathology Questionnaires Research Support, Spinal/complications/
Symptoms, clinical and physiological findings motivating home mechanical ventilation in patients with neuromuscular diseases
Pediatric advance care planning.
Tags: 2005, 7 died at home and 2 died at a hospital. Eight of the children's advance directives were followed during the dying process, 9 are deceased, Advance Care Planning/og [Organization & Administration], Advance Care Planning/organization & Administration, Backlog, Child, DNAR, DNAR Outcomes, Female, Hammes BJ, Humans, including preserving their child's quality of life and avoiding unnecessary suffering., individuals in the community raised concerns about the child's advance directive. CONCLUSIONS: Even though the topic of their child's death is difficult, Infant, Interviews As Topic, Journal Article, Journal of Palliative Medicine, Kempf M, Klevan J, Male, Newborn, Parents/psychology, Parents/px [psychology], Pediatrics, PedPal Lit, Preschool, the majority of the interviewed parents found the advance care planning process for the child helpful because it assured the best care for the child, while 1 was not. Th irteen parents were interviewed. Twelve stated that the process of advance care planning benefited their children and their family. Rarely, Williams MS, Wisconsin
End-of-life decisions and palliative care in a children's hospital
Cancer pain management guidelines issued for children
Tags: 2005, Adult Analgesics, Adult Guidelines Updated, Backlog, Journal Article, Opioid/administration & dosage/therapeutic use Child Emergencies Humans Neoplasms/complications Pain/drug therapy/etiology/prevention & control/therapyPain Measurement Palliative Care/methodsPractice Guidelines United States, PedPal Lit, Susman E
Family functioning in school-age children with cystic fibrosis: an observational assessment of family interactions in the mealtime environment
Tags: 2005, affect management, age-matched peers. Families were rated on overall family functioning and on six dimensions of the MICS: task accomplishment, and behavioral control. Moreover, and role allocation. RESULTS: Ratings for families of a child with CF were significantly lower than they were for comparison families on overall family functioning and on four of the six MICS dimensions: communication, as well as child-centered, Backlog, behavior control, Child Cystic Fibrosis/psychology Family/psychologyFeeding Behavior Female HumansInterpersonal Relations Male Observation Research Support, Communication, interpersonal involvement, interventions to help families manage challenges presented during the family meal., Janicke DM, Journal Article, Journal of Pediatric Psychology, Mitchell MJ, Non-U.S. Gov't Research Support, P.H.S.Social Environment Time Factors%X OBJECTIVE: To examine, PedPal Lit, Stark LJ, the family system is negatively affected during mealtime. Dietary interventions need to address family-centered, U.S. Gov't, using direct observation methodology
Psychosocial functioning in pediatric cancer
Tags: 2005, Adaptation, and multi-institutional cooperation will aid future pediatric psycho-oncology investigators., and special risk populations. Methodological challenges, appropriate methodology, Backlog, coping and adjustment, improving methodology, Journal Article, Journal of Pediatric Psychology, Kupst MJ, late effects, Patenaude AF, PedPal Lit, procedural pain, psyc hosocial researchers will be better able to conduct longitudinal studies not only of adjustment and its predictors but also of the impact of the emerging medical treatments and interventions to ameliorate late effects of treatment. Additional funding, Psychological Child Communication Cost of Illness Family/psychology Humans Neoplasms/, Psychological Distress, Social Behavior%X OBJECTIVE: To describe the emergence of pediatric psycho-oncology and to summarize research on psychosocial aspects of childhood cancer and survivorship. METHODS: To review research into illness communication and informed consent, subsets of more vulnerable patients and family members exist. Factors predicting positive and negative coping have been identified. CONCLUSIONS: As the numbers of pediatric cancer survivors increase, therapy Pain/psychology Psychology Sick Role Social Adjustment
Psychological research in childhood cancer: the Children's Oncology Group perspective
Tags: 2005, access to adequate numbers of participants, and access to longitudinal cohorts. Barriers include cost, and ultimately prevent these effects by better diagnostic classification and targeted treatment. This focus should ultimately lead to translation of intervention research findings to standard of care in the larger childhood cancer community., Armstrong FD, Backlog, Child Humans Medical Oncology/methods Neoplasms/therapyPatient Care Team Psychology/methodsResearch Research Support, competition for limited resources, Journal Article, Journal of Pediatric Psychology, lessen the impact of late effects of treatment, multicenter clinical-trial cooperative groups offer opportunities for psychological research that may be impossible at local institutions. Benefits include collaboration with other disciplines, Non-U.S. Gov't Research Support, P.H.S.%X OBJECTIVE: To review benefits and barriers to psychological research on childhood cancer in multidisciplinary, PedPal Lit, Reaman GH, shared research infrastructure, standardization and quality control, U.S. Gov't
Clinician-parent communication during informed consent for pediatric leukemia trials
Tags: 2005, Adolescent Adult Anxiety/prevention & control/psychology Child Child, Backlog, Burant C, Drotar D, Extramural Research Support, Journal Article, Journal of Pediatric Psychology, Kodish E, Miller VA, N.I.H., P.H.S.%X OBJECTIVE: To address the need to describe informed consent in pediatric settings and to identify barriers to parent understanding, parent anxiety and control as a result of the ICC, PedPal Lit, Preschool Clinical TrialsCommunication Decision Making Female Humans InfantInformed Consent Leukemia/therapy Male Parents/psychologyProfessional-Family Relations Research Support, U.S. Gov't
Very preterm birth is associated with disabilities in multiple developmental domains
Tags: 17% had a single disability, 2005, a single, Achievement Child, and 44% had multiple disabilities. Multiple disabilities were associated with lower birth weight, and behavioral domain was studied in 157 children born < 30 weeks gestation. The children were divided into a normal, and difficulties according to neurodevelopmental assessments at 2 years. CONCLUSION: Assessments of different developmental domains show that most very preterm children had multiple disabilities., and neurodevelopmental outcome at 2 years were evaluated. RESULTS: Thirty-nine percent had a normal developmental outcome, Backlog, BPD, Briet JM, clinical characteristics, cognitive, Dekker FW, Journal Article, Journal of Pediatric Psychology, Kok JH, motor, Newborn Infant, or a multiple disability group. Group differences in background, outcome in the neurological, PedPal Lit, Premature Intelligence Tests Male Psychomotor Disorders/diagnosis/epidemiology/etiology Research Support, Preschool Cognition Disorders/diagnosis/epidemiology/etiology Developmental Disabilities/diagnosis/epidemiology/etiologyDisabled Children Female Gestational Age Humans Infant Infant, van Baar AL, van Wassenaer AG
Brief report: family-based group intervention for young siblings of children with chronic illness and developmental disability
Tags: 2005, Adaptation, Adolescent, Adult, Analysis of Variance, Attitudes, Backlog, Child, Chronic Disease, Developmental Disabilities, Family Therapy, Female, Follow-up Studies, Health Knowledge, Humans, Infant, Intervention, Interventions, Journal Article, Journal of Pediatric Psychology, Kao BT, Lobato DJ, Male, PedPal Lit, Practice, Preschool, Psychological, sibling bereavement, Siblings, Social Adjustment
Adaptive style and symptoms of posttraumatic stress in children with cancer and their parents
Tags: 2006, Adaptation, Backlog, Extramural Research Support, Journal Article, Journal of Pediatric Psychology, Larson S, Long A, N.I.H., Non-U.S. Gov't Stress Disorders, PedPal Lit, Phipps S, Post-Traumatic/epidemiology/psychology Survivors/psychology United States/epidemiology, Psychological Adolescent Adult Analysis of Variance Child Cross-Sectional Studies Defense Mechanisms Female Humans Male Neoplasms/psychology Parents/psychologyPersonality Research Support, Rai SN