Measurement in Duchenne muscular dystrophy: considerations in the development of a neuromuscular assessment tool

Title

Measurement in Duchenne muscular dystrophy: considerations in the development of a neuromuscular assessment tool

Creator

Scott E; Mawson SJ

Publisher

Developmental Medicine & Child Neurology

Date

2006

Subject

PedPal Lit; Child HumansMuscle; Duchenne/diagnosis/pathology/physiopathology Questionnaires Severity of Illness Index; Skeletal/innervation/pathology/physiopathology Muscular Dystrophy

Description

A review of the measures relating to the monitoring of disease progression in Duchenne muscular dystrophy was undertaken as part of the work of the North Star Clinical Network for Paediatric Neuromuscular Disease Management developing a standardized assessment protocol for ambulant children in the UK. This article outlines the process of identifying possible measures. Detailed consideration has been given to key measures of muscle strength and function. As well as the usual assessment of the validity and reliability of the measures, three key characteristics were identified as necessary to the assessment of scales used in health care: (1) the type of scale used; (2) the clinical significance of the attribute being measured; and (3) the mathematical properties of the data provided. Consideration of such aspects in the early stage of a study facilitates the choice of measures, and the analysis and interpretation of data in the longer term.
2006

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Type

Journal Article

Citation List Month

Backlog

Pages

540-4

Issue

6

Volume

48

Citation

Scott E; Mawson SJ, “Measurement in Duchenne muscular dystrophy: considerations in the development of a neuromuscular assessment tool,” Pediatric Palliative Care Library, accessed July 23, 2021, https://pedpalascnetlibrary.omeka.net/items/show/13644.

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