Browse Items (367 total)
- Tags: PedPal Lit
Withholding or withdrawing intensive care treatment in paediatric bone marrow transplant: a moral maze
Tags: 2005, Backlog, Bone Marrow Transplantation/ethics/psychology Child Child Advocacy/ethics Child Psychology/ethics Decision Making/ethics Humans Intensive Care/ethics/psychology Medical Futility Morals Pediatrics/ethics Quality of Life Withholding Treatment/ethics, European Journal Of Oncology Nursing, Hopkins S, Journal Article, PedPal Lit
Whose information is it anyway? Informing a 12-year-old patient of her terminal prognosis
Tags: 2005, 3, Age Factors Attitude of Health Personnel Attitude to Health Child Cohort Studies Communication Barriers Curriculum, as they pass through a modern medical curriculum. DESIGN: A cohort study of students entering Glasgow University's new medical curriculum in October 1996. METHODS: Students' responses obtained before year 1 and at the end of years 1, Backlog, Disclosure Female Humans Leukemia/psychology Parents/psychology Paternalism Personal Autonomy Physician-Patient Relations/ethics Prognosis Research Support, few students chose the consensus answer before year 1 and there was no significant movement towards consensus at any point during the course. In defence of their decision to withhold information, Goldie J, Journal Article, Journal of Medical Ethics, Medical/psychologyTerminally Ill%X OBJECTIVE: To examine students' attitudes and potential behaviour towards informing a 12-year-old patient of her terminal prognosis in a situation in which her parents do not wish her to be told, Morrison J, Non-U.S. Gov't Students, PedPal Lit, Schwartz L
When a child dies the world should stop spinning: an autoethnography exploring the impact of family loss on occupation
When a child cannot be cured - reflections of health professionals
Tags: 2005, Adaptation, Aranda S, as an awareness and acceptance that slowly develops. New models of care that incorporate palliative care throughout the disease trajectory are recommended., Backlog, De Graves S, especially following relapse where there is reduced clarity surrounding the child's outcome. Prognostic uncertainty and continued hope for survival make the shift to palliation difficult, European Journal Of Cancer Care, Journal Article, PedPal Lit, PsychologicalAttitude of Health Personnel Attitude to Health Child Humans Medical Oncology Neoplasms/mortality/psychology/therapy Oncologic Nursing Palliative Care/psychology Prognosis Social Work Treatment Failure Uncertainty, raising questions about the applicability of traditional palliative care models for these children and their families. Decision making in this context is complicated by a lack of clarity, uncertainty and continued hope. Shifting the focus of care from cure to palliation is not experienced as a discrete event but rather
What makes dying children different?
Tags: 2005, Adaptation, Backlog, Drew D, Hinds PS, International Journal of Palliative Nursing, Journal Article, PedPal Lit, Psychological AdolescentAdolescent PsychologyAttitude to Death Body Image ChildChild Psychology Decision Making Family/psychology Humans Interpersonal Relations Play and Playthings/psychology Terminal Care/methods/psychology
Very preterm birth is associated with disabilities in multiple developmental domains
Tags: 17% had a single disability, 2005, a single, Achievement Child, and 44% had multiple disabilities. Multiple disabilities were associated with lower birth weight, and behavioral domain was studied in 157 children born < 30 weeks gestation. The children were divided into a normal, and difficulties according to neurodevelopmental assessments at 2 years. CONCLUSION: Assessments of different developmental domains show that most very preterm children had multiple disabilities., and neurodevelopmental outcome at 2 years were evaluated. RESULTS: Thirty-nine percent had a normal developmental outcome, Backlog, BPD, Briet JM, clinical characteristics, cognitive, Dekker FW, Journal Article, Journal of Pediatric Psychology, Kok JH, motor, Newborn Infant, or a multiple disability group. Group differences in background, outcome in the neurological, PedPal Lit, Premature Intelligence Tests Male Psychomotor Disorders/diagnosis/epidemiology/etiology Research Support, Preschool Cognition Disorders/diagnosis/epidemiology/etiology Developmental Disabilities/diagnosis/epidemiology/etiologyDisabled Children Female Gestational Age Humans Infant Infant, van Baar AL, van Wassenaer AG
Variability of antiepileptic medication taking behaviour in sudden unexplained death in epilepsy: hair analysis at autopsy
Tags: 2006, Adolescent Adult Aged Anticonvulsants/therapeutic use Autopsy Cause of Death Child Chromatography, Backlog, Dawson TP, Dunstan FD, High Pressure LiquidDeath, Journal Article, Journal Of Neurology, Neurosurgery, And Psychiatry, Kerr MP, Lawthom C, Non-U.S. Gov't, PedPal Lit, Smith PE, Sudden Epilepsy/drug therapy Female Hair/chemistry Humans Male Middle Aged Research Support, Williams J, Wilson JF
Validity of parent ratings as proxy measures of pain in children with cognitive impairment
Tags: 2005, Adolescent Attitude to Health Bias (Epidemiology) Child Child Behavior Child, Backlog, Extramural Severity of Illness Index Time Factors, Journal Article, Malviya S, N.I.H., Pain Management Nursing, PedPal Lit, Postoperative/complications/diagnosis/physiopathology/psychology Parents/psychology Proxy/psychology Questionnaires Research Support, Preschool Cognition Disorders/complications Comparative Study Crying Facial Expression Humans Kinesics Michigan Nursing Assessment/methods/standards Nursing Evaluation Research Pain Measurement/methods/nursing/standards Pain, Tait AR, Voepel-Lewis T
Validation of the German version of the Pediatric Quality of Life Inventory (PedsQL) in childhood cancer patients off treatment and children with epilepsy
Tags: 2004, Adolescent Child Child, and test the usefulness of the instrument in other clinical populations and healthy children., Backlog, epidemiology Humans Neoplasms, Felder-Puig R, Frey E, Gadner H, instrumentation Quality of Life, Journal Article, methods Psychometrics, PedPal Lit, physiopathology, Preschool Comparative Study Epilepsy, Proksch K, psychology Germany, psychology Parents Pediatrics, psychology Self Assessment (Psychology)Sickness Impact Profile Translating United States, Quality of Life Research, score distributions tended to be skewed toward higher HRQL, sensitivity and responsiveness, the German PedsQL seems to be equivalent to the original version. Future methodologic research should evaluate construct validity, Topf R, Varni JW
Utilizing an oral sucrose solution to minimize neonatal pain
Tags: 2005, Administration, administration & dosage, adverse effects Treatment Outcome, Backlog, Diagnosis, Diseases, Drug Therapy, etiology, Journal Article, Journal for Specialists in Pediatric Nursing, methods Pain, Newborn, Newborn Infant, Nursing, nursing Pain Measurement Randomized Controlled Trials Risk Assessment Severity of Illness Index Sucrose, Oral Comparative Study Evidence-Based Medicine Female Follow-Up Studies Humans Infant, PedPal Lit, therapy Intensive Care Units Male Neonatal Nursing, Thompson DG
Using computer-assisted learning to gain knowledge about child death and bereavement
Tags: 2005, Attitude of Health PersonnelBereavement Child Clinical Competence/standards Computer-Assisted Instruction/methods/standards Curriculum Education, Baccalaureate, Backlog, education Problem-Based Learning Program Evaluation Psychology, Educational Students, International Journal of Palliative Nursing, Journal Article, Nursing, Nursing/psychologyTerminal Care/psychology, organization & administration Evidence-Based Medicine Family, PedPal Lit, Pfund R, psychology Forecasting Health Services Needs and Demand Holistic Health Humans Nursing Education Research Nursing Theory Pediatric Nursing
Use of the parenting stress index in mothers of preterm infants
Tags: 2004, Adult Female Humans Infant, Advances in Neonatal Care, Backlog, Depaul D, future research should examine missing items more closely., however, Journal Article, Newborn Infant, Non-P.H.S. Stress, PedPal Lit, Premature, Psychological/diagnosis, psychology Male Mother-Child Relations Mothers/, psychology Parenting/, psychology Questionnaires/, Renaud MT, standards Reproducibility of Results Research Support, Thomas KA, U.S. Gov't
Use of paediatric versus adult oncology treatment centres by adolescents 15-19 years old: the Canadian Childhood Cancer Surveillance and Control Program
Tags: 2005, Adolescent Cancer Care Facilities/utilization Child Child Health Services/utilization Comparative Study Delivery of Health Care Humans Neoplasms/epidemiology/therapy Ontario/epidemiology Research Support, and can be improved., Backlog, Barr RD, Disease, European Journal Of Cancer, Greenberg ML, Journal Article, Klein-Geltink J, Morrison HI, PedPal Lit, Shaw AK, the demographic
Use of family management styles in family intervention research
Tags: 2006, Adaptation, Alderfer MA, Backlog, Intervention, Interventions, Journal Article, Journal Of Pediatric Oncology Nursing, PedPal Lit, Post-Traumatic/prevention & control, Psychological Child Chronic Disease/nursing/psychology Clinical Nursing Research/methods Family Nursing Humans Models, Psychological Neoplasms/nursing/psychology Nuclear Family/psychology Randomized Controlled Trials Stress Disorders
Understanding adolescents: a guide for researchers
Tags: & Hall, 2001)., 2001). Consent processes are standardized, 2005, Adolescent Adolescent Behavior/physiology/psychologyAdolescent Development/physiologyAdolescent Psychology Adult Child Child Advocacy Cognition/physiology Decision Making Health Knowledge, adolescents often are conceptualized as children. Adolescents represent a vulnerable study population. To effectively and ethically involve adolescents in research, and federal regulations have been established to protect both adults and children. As a research population, and psychosocial developmental factors, and they must bear in mind that the voluntary and informed consent principles may be easily and inadvertently violated (Nelson & Rushton, as well as an understanding of the research processes needed to protect adolescents. Adolescents need to be active participants in the decision-making process (e.g., assent/consent, Attitudes, Backlog, cognitive, etc.). Researchers must be aware of and accountable for the power they hold in influencing adolescents' decisions to participate in research, Extramural Research Support, however, Journal Article, Journal of Neuroscience Nursing, knowledge of the risks and benefits, N.I.H., P.H.S. Vulnerable Populations/psychology%X The research establishment often has a "one size fits all" mentality with regard to the research process (Broome, PedPal Lit, PracticeHuman Experimentation Humans Informed Consent/psychology Mental Competency/psychology Minors/education/psychology Nurse's Role Parental Consent Power (Psychology) Research Subjects/psychology Research Support, researchers must understand and integrate knowledge of the variability in physical, Richards, Turner-Henson A, U.S. Gov't
Translation and cultural adaptation of Health Utilities Index (HUI) Mark 2 (HUI2) and Mark 3 (HUI3) with application to survivors of childhood cancer in Brazil
Tags: 2005, Adult Brazil ChildCulture Female Humans Male Neoplasms/ethnology/physiopathology/therapy Psychometrics/instrumentationQuality of Life Quality-Adjusted Life YearsQuestionnaires Research Support, and review of the back-translat ions by original developers of the HUI. The final questionnaires were tested by surveying a sample of convenience of 50 patients recruited at the Centro de Tratamento e Pesquisa-Hospital do Cancer in Sao Paulo, back-translation by two independent translators of the forward translation, Backlog, Barr RD, Brazil. RESULTS: Fifty patients were enrolled in the study. No assessor, consensus between translators on a forward translation, De Camargo B, Furlong W, Horsman J, Journal Article, Lopes LF, patient or nurse or physician, PedPal Lit, preference-based systems for describing health status and HRQL. Developed in Canada, Quality of Life Research, Seber A, Shimoda S, Sickness Impact Profile Survivors/psychology Translating, understandabl(TRUNCATED)
Transition of adolescents with special health care needs: review and analysis of the literature
Tracheo-arterial fistula in tracheostomy patients with Duchenne muscular dystrophy
Tags: 2006, Adolescent Adult Brachiocephalic Trunk/injuries/pathology/physiopathology Fatal Outcome Female Humans Incidence Male Muscular Dystrophy, Backlog, Brain & Development, Duchenne/complications Patient Selection Postoperative Complications/etiology/physiopathology/prevention & control Postoperative Hemorrhage/etiology Preoperative Care/standards Research Support, Fujimura H, Journal Article, Matsumura T, Non-U.S. Gov't Respiratory Insufficiency/etiology/surgery Respiratory Tract Fistula/etiology/pathology/physiopathology Tomography, Nozaki S, PedPal Lit, Saito T, Sawabata N, Shinno S, X-Ray Computed/standards Trachea/injuries/radiography/surgery Tracheostomy/adverse effects/mortality
Thinking outside the box: prenatal care and the call for a prenatal advance directive
Tags: 2005, Advance Directives/ethics/legislation & jurisprudence/psychology, Backlog, Catlin A, Decision Making/ethics Female Feminism Fetal Viability Humans Infant, Education, Ethics, Infant, Journal Article, Journal of Perinatal & Neonatal Nursing, legislation & jurisprudence, legislation & jurisprudence Intensive Care, legislation & jurisprudence Nurse's Role, legislation & jurisprudence Parents, Neonatal, Newborn, PedPal Lit, Premature Informed Consent, Prenatal Care/ethics/legislation & jurisprudence United States, psychology Mass Media Neonatal Nursing, psychology Parental Consent, psychology Practice Guidelines Pregnancy
Therapeutics in duchenne muscular dystrophy
Tags: 2006, Adrenal Cortex Hormones/therapeutic use Aminoglycosides/therapeutic use Animals Antibodies/therapeutic useGene Therapy Humans Mice Muscular Dystrophy, Backlog, Duchenne/drug therapy/surgery/therapy Nutrition TherapyStem Cell Transplantation Transforming Growth Factor beta/antagonists & inhibitors/immunology, Journal Article, NeuroRX, PedPal Lit, Strober JB
The World Health Organization's WHOQOL-BREF quality of life assessment: psychometric properties and results of the international field trial. A report from the WHOQOL group
Tags: 2004, 80 and over Child Comparative Study Cross-Cultural Comparison Cross-Sectional Studies Female Humans Male Middle Aged Psychometrics/, 830). Sick and well respondents were sampled from the general population, Adolescent Adult Aged Aged, and to test its main psychometric properties. The WHOQOL-BREF is a 26-item version of the WHOQOL-100 assessment. Its psychometric properties were analysed using cross-sectional data obtained from a survey of adults carried out in 23 countries (n = 11, as reflected by its four domains: physical, as well as from hospital, Backlog, clinical settings and clinical trials. Using data from the WHOQOL-BREF field trials, cross-culturally valid assessment of QOL, discriminant validity and construct validity through confirmatory factor analysis, indicate that the WHOQOL-BREF has good to excellent psychometric properties of reliability and performs well in preliminary tests of validity. These results indicate that overall, instrumentation, item-total correlations, Journal Article, Lotfy M, O'Connell KA, PedPal Lit, Psychological, Quality Of Life, Quality of Life Research, rehabilitation and primary care settings, serving patients with physical and mental disorders and with respect to quotas of important socio-demographic variables. The WHOQOL-BREF self-assessment was completed, Sickness Impact Profile World Health Organization%X Quality of life (QOL) assessments that are easily administered and which do not impose a great burden on the respondent are needed for use in large epidemiological surveys, Skevington SM, social and environment., the objectives of this work are to examine the performance of the WHOQOL-BREF as an integrated instrument, the WHOQOL-BREF is a sound, together with socio-demographic and health status questions. Analyses of internal consistency
The validity of the family relationships index as a screening tool for psychological risk in families of cancer patients
Tags: 2005, Adult Anxiety/, and clinical levels of depression and anxiety in 48 families where the patient had been recently diagnosed. Over the three phases, Backlog, because of the FRI's poor specificity, Clarke V, Depression/psychology, diagnosis/etiology/psychology, diagnosis/etiology/psychology Breast Neoplasms/, Edwards B, Family Relations Female Humans Longitudinal Studies Male, further follow-up of those families that are identified as being at some risk of a poor psychological outcome should be undertaken before referral to a mental health professional is warranted., Journal Article, Mass Screening Prostatic Neoplasms/, PedPal Lit, Psycho-Oncology, psychology Child Colorectal Neoplasms/, psychology Psychometrics Research Support, suggested that the FRI identified too many false positive s, the FRI identified all families at risk of family dysfunction, the higher sensitivity of the FRI makes it preferable to the FAD-GF as a screening measure for families at risk of a poor psychological outcome in the oncology setting. However
The use of conscious sedation for pain control during forearm fracture reduction in children: does race matter?
Tags: 2006, Adolescent, African Americans/statistics & numerical data, Analgesia/methods, Attitude to Health/ethnology, Backlog, Bone/ethnology/radiography/surgery, Chi-Square Distribution, Child, Cohort Studies, Comparative Study, Conscious Sedation/methods, Crawford AH, Emergency Service, European Continental Ancestry Group/statistics & numerical data, Female, Foad SL, Follow-up Studies, Forearm Injuries/ethnology/radiography/surgery, Fracture Fixation/methods, Fractures, Hospital, Humans, Injury Severity Score, Journal Article, Journal of Pediatric Orthopaedics, Logistic Models, Male, Mehlman CT, Multivariate Analysis, Non-U.S. Gov't, Pain Measurement, PedPal Lit, Preschool, Probability, Research Support, Retrospective Studies, Risk Assessment, VanderBeek BL, Wall EJ
The role of the specialist nurse in paediatric oncology in the United Kingdom
Tags: 2005, Backlog, Child Clinical Competence/standards Education, European Journal Of Cancer, Hollis R, Journal Article, Nursing, nursing Nurse Clinicians, organization & administration Great Britain Health Policy Humans Neoplasms, organization & administration Pediatric Nursing, organization & administration State Medicine, organization & administrationNurse's Role Oncologic Nursing, PedPal Lit
The revised FLACC observational pain tool: improved reliability and validity for pain assessment in children with cognitive impairment
The potential role of ketamine in hospice analgesia: a literature review
The potential of UK clinical databases in enhancing paediatric medication research
Tags: 2005, Adolescent Adverse Drug Reaction Reporting Systems Biomedical Research/methods Child Child, Backlog, British Journal of Clinical Pharmacology, Computerized Pediatrics/methods Pharmaceutical Preparations/administration & dosage Pharmacoepidemiology/methods Prescriptions, Drug/statistics & numerical data Research Support, Factual Family Practice/statistics & numerical data Great Britain Humans Infant Infant, Journal Article, Murray ML, Newborn Medical Records Systems, Non-U.S. Gov't, PedPal Lit, PreschoolDatabases, Wong IC
The palliative care nurse's role in supporting the adolescent child of a dying patient
Tags: 2005, Adaptation, Adolescent Psychology/ethics Adult Attitude to Death Bereavement Female Helping Behavior Humans Information Services Internet Life Change Events Neoplasms/nursing/psychology Nurse's Role/, Backlog, International Journal of Palliative Nursing, Journal Article, Methods, PedPal Lit, Professional-Family Relations/ethics Prognosis Social Support Truth Disclosure/ethics, Psychological/ethics Adolescent, Psychology, psychology Palliative Care/ethics/, Sweetland C
The pain experience of children with leukemia during the first year after diagnosis
Tags: 0-4). For the children 8 to 17 years old, 2004, Acute, Adaptation, Adlard K, ages 4 to 17 years, Alvarez O, and back (14.(TRUNCATED), and from their English- and Spanish-speaking parents. Age-appropriate instruments were used to examine the variables of pain intensity, and functional status. RESULTS: All the children reported pain over the course of the year. Pain intensity scores incorporated the full range of possible responses. For the children 4 to 7 years old, and outcomes during the first year after the diagnosis of acute leukemia. METHODS: A longitudinal descriptive approach was used to collect data at seven data points from 95 English- and Spanish-speaking children, and quality, and the associated procedures. For children with leukemia, as well as strategies for managing pain, Backlog, Beecroft P, Bossert E, head/neck (16.6%), Journal Article, L1/complications Longitudinal Studies Male Models, location, Lymphocytic, management strategies, Nursing Research, P.H.S. Treatment Outcome%X BACKGROUND: Children with cancer experience pain related to the disease process, pattern over time, PedPal Lit, perceived effectiveness of management strategies, Preschool European Continental Ancestry Group/psychology Female Hispanic Americans/psychology Humans Leukemia, Psychological Adolescent African Americans/psychology Age Factors Analysis of Variance Asian Americans/psychologyAttitude to Health California ChildChild Psychology Child, Psychological Nursing Assessment Nursing Methodology Research Pain/etiology/prevention & control/psychology Pain Measurement Questionnaires Research Support, receiving care in one of three southern California hospitals, respectively, Savedra MC, the highest and lowest mean scores, the pain experienced after diagnosis has received scant attention. OBJECTIVE: To examine the pain experience, the treatment, U.S. Gov't, Van Cleve L, were 2 and 1.6 (scale, were 50.1 and 39.5 (scale
The next step to improving cancer pain management
Tags: 2005, Adult Analgesia/standards Child Evidence-Based Medicine Humans Neoplasms/, Backlog, complications Nursing Assessment/standards Oncologic Nursing/standards, Journal Article, Miaskowski C, organization & administration, Pain Management Nursing, Pain/etiology/prevention & control Pain Measurement/standards, PedPal Lit, Practice Guidelines Total Quality Management/
The meaning structures of Muslim bereavements in Israel: religious traditions, mourning practices, and human experience
The initiative for pediatric palliative care: an interdisciplinary educational approach for healthcare professionals
The importance of being there: perspectives of social support by adolescents with cancer
Tags: 2006, Adaptation, Adolescent Psychology, Attitude to Health Family/psychology Female Focus Groups Friends/psychology Helping Behavior Humans, Backlog, Interpersonal Relations Life Change Events Longitudinal Studies Male Manitoba Morale Neoplasms/, Journal Article, Journal Of Pediatric Oncology Nursing, Non-U.S. Gov't Social Support, PedPal Lit, Psychological Adolescent, psychology Nurse-Patient Relations Nursing Methodology Research Oncologic Nursing Qualitative Research Questionnaires Research Support, Woodgate RL