Browse Items · Pediatric Palliative Care Library

Designing and implementing a longitudinal study of children with neurological, genetic or metabolic conditions: charting the territory

BACKGROUND: Children with progressive metabolic, neurological, or chromosomal conditions and their families anticipate an unknown lifespan, endure unstable and often painful symptoms, and cope with erratic emotional and spiritual crises as the…

Using participant observation in pediatric health care settings: ethical challenges and solutions

2008

Tags: 2008, Backlog, Bluebond-Langner M, Carnevale FA, Journal Article, Journal Of Child Health Care, Macdonald ME, McKeever P

Conducting a qualitative culture study of pediatric palliative care

While conducting a grounded theory study of Chinese American and Mexican American families' experiences in pediatric palliative care, we encountered a number of unanticipated challenges regarding project development, Institutional Review Boards,…

Tags: 2009, Ablin AR, Backlog, Chesla CA, Cohen H, Contro N, Davies B, Journal Article, Larson J, Qualitative Health Research, Reyes-Hailey C, Sourkes B

Chemotherapy-related fatigue in childhood cancer: correlates, consequences, and coping strategies

The aim of this research is to examine the experience and impact of chemotherapy-related fatigue in recently diagnosed pediatric oncology patients. A repeated-measures, within-subjects, mixed (quantitative plus qualitative) design was used to…

Tags: 2008, Adaptation, Antineoplastic Agents/adverse effects, Backlog, Child, Davies B, Fatigue/chemically induced, Friedman D, Gudmundsdottir M, Humans, Journal Article, Journal Of Pediatric Oncology Nursing, McCarthy P, Neoplasms/drug therapy/psychology, Parents, Psychological, Questionnaires, Whitsett SF

Gender imbalance in pediatric palliative care research samples

We assessed the sampling performance of research on parental perspectives in pediatric palliative care and examined if and how gender imbalance was treated. We undertook a systematic review of parental perspectives research in pediatric palliative…

Tags: 2010, Affleck W, Backlog, Cadell S, Chilibeck G, Journal Article, Macdonald ME, NET CV, Palliative Medicine

Creating social work competencies for practice in hospice palliative care

Social workers play an important role in the delivery of Hospice Palliative Care in many diverse settings. The profession brings a unique perspective to end-of-life care that reflects and supports the holistic philosophy of Hospice Palliative Care.…

Considerations for ethics in multisite research in paediatric palliative care

2009

Tags: 2009, Backlog, Cadell S, Davies B, Ho G, Jacques L, Journal Article, Multi-site Ethics, NET CV, Palliative Medicine, PPC Book Chapter 2011 (Kim Widger), Steele R, Wilson K

A Report On Location of Death in Paediatric Palliative Care Between Home, Hospice and Hospital

This retrospective study analysed data for 703 children who died from 2000 to 2006 to examine where children with a broad range of progressive, life-limiting illnesses actually die when families are able to access hospital, paediatric hospice…

A paediatric palliative care programme in development: trends in referral and location of death

Purpose To describe the formation of a paediatric palliative care programme providing care in hospital, at home or in hospice, ensuring continuity of care where the child and family desire. Study design Descriptive analysis was performed on referral…

Tags: 2010, Archives of Disease in Childhood, Backlog, Coulombe L, Johnston DL, Journal Article, Location Of Death, Rattray M, Splinter WM, Vadeboncoeur C

Exploring the Supportive Care Model as a framework for pediatric palliative care

2009

Tags: 2009, Backlog, Davies B, Journal Article, Journal Of Hospice & Palliative Nursing, Oberle K, Steele R, Widger K

A place to die: The case for paediatric inpatient hospices

2008

Tags: 2008, Backlog, Journal Article, Paediatrics & Child Health, PPC Book Chapter 2011 (Kim Widger), Rapoport A

The sun always comes out after it rains: understanding posttraumatic growth in HIV carers

2007

Tags: 2007, Backlog, Cadell S, Health & Social Work, Journal Article

Away from home: Experiences of Mexican-American Families in Pediatric Palliative Care

2010

Tags: 2010, Backlog, Contro N, Davies B, Journal Article, Journal of Social Work in End-of-Life & Palliative Care, Larson JM, Sourkes B

The (re)construction of self after the death of a partner to HIV/AIDS

2007

Tags: 2007, Backlog, Cadell S, Death studies, Journal Article, Marshall S

The integration of religious traditions in Japanese children's view of death and afterlife

2007

Tags: 2007, Backlog, Davies B, Death studies, Journal Article, Sagara-Rosemeyer M

Paediatric palliative care: Challenges and emerging ideas.

Paediatric palliative care is an emerging subspecialty that focuses on achieving the best possible quality of life for children with life-threatening conditions and their families. To achieve this goal, the individuals working in this field need to:…

Tags: 2007, Backlog, Journal Article, Lancet, Liben S, Longitudinal Studies, Papadatou D, Wolfe J

Paediatric palliative care: Challenges and emerging ideas.

2007

Tags: 2007, Backlog, Journal Article, Liben S, Papadatou D, The Lancet, Wolfe J

Sublingual atropine drops for the treatment of pediatric sialorrhea

Excess oral secretions or sialorrhea is a common problem affecting children and adults with neurological disorders, as well as those approaching the end of life because of a variety of underlying illnesses. Systemic anticholinergic medications are…

Tags: 2010, Backlog, Journal Article, Journal of Pain and Symptom Management, Rapoport A

Haloperidol as a palliative anti-emetic in a toddler: an evidence base challenge

2008

Tags: 2008, Antiemetics, Backlog, Evidence-based Medicine, Fatal Outcome, Haloperidol, Humans, Infant, Journal Article, Journal of Pain and Symptom Management, Male, Nausea, Palliative Care, Precursor Cell Lymphoblastic Leukemia-Lymphoma, Siden H

Can you give me respect? Experiences of the urban poor on a dedicated AIDS nursing home unit

2008

Tags: 2008, Backlog, Davies B, Gudmundsdottir M, Hughes A, Journal Article, Journal Of The Association Of Nurses In Aids Care

Understanding Canadian Punjabi-speaking South Asian women's experience of breast cancer: A qualitative study

2008

Tags: 2008, Backlog, Barroetavena MC, Cadell S, Doll R, Gurm BK, International Journal Of Nursing Studies, Journal Article, Mackenzie G, Stephen J

Addressing ethical concerns regarding pediatric palliative care research

2009

Tags: 2009, Archives Of Pediatrics & Adolescent Medicine, Backlog, Decision Making, Ethics, Humans, Journal Article, Palliative Care/ethics, Pediatrics/ethics, Rapoport A, Research, United States

Pediatric patients receiving palliative care in Canada: results of a multicenter review

OBJECTIVES: To describe the patients who received care from the 8 dedicated pediatric palliative care programs in Canada in 2002 and to estimate the number of children who may have benefited but did not receive services from these programs. DESIGN:…

Symptoms, adverse events, and outcomes in the use of medicinal cannabis in children and adolescents with autism spectrum disorder: a scoping review protocol

OBJECTIVE: The objective of this scoping review is to map and identify the symptoms, adverse events, and outcomes in the use of medicinal cannabis in children and adolescents with autism spectrum disorder. INTRODUCTION: Autism spectrum disorder is a…

Tags: 2021, Adolescent, Autism spectrum disorder, Child, Delivery of Health Care, Fletcher S, Humans, Ip A, JBI Evidence Synthesis, Medical Marijuana, Medicinal Cannabis, Oberlander T, Parents, Pawliuk C, Review Literature as Topic, Siden H

Medicinal cannabis in children and adolescents with autism spectrum disorder: A scoping review

BACKGROUND: Autism spectrum disorder (ASD) is a neurodevelopmental condition estimated to affect 1 in 66 children in Canada and 1 in 270 individuals worldwide. As effective therapies for the management of ASD core and associated symptoms are limited,…

Efficacy and safety of paediatric medicinal cannabis use: A scoping review

INTRODUCTION: The use of medicinal cannabis in the paediatric age group is increasing despite the lack of evidence for its efficacy or safety. OBJECTIVE: To map the available evidence on the efficacy and safety of medicinal cannabis in children and…

Tags: 2021, Cannabidiol, Cannabis, Chau B, Drug-resistant epilepsy, McKellar T, Medicinal Cannabis, Medicinal marijuana, Paediatrics And Child Health, Pawliuk C, Rassekh SR, Scoping review, Siden H, Tetrahydrocannabinoid

Evaluation of children with severe neurological impairment admitted to hospital with pain and irritability

BACKGROUND: Pain is the most common symptom reported by caregivers of children with severe neurological impairment (SNI), a descriptive term for children with disorders affecting the neurological system across multiple domains. In SNI, cognition,…

Optimising the process for conducting scoping reviews

Knowledge synthesis constitutes a key part of evidence-based medicine and a scoping review is a type of knowledge synthesis that maps the breadth of literature on a topic. Conducting a scoping review is resource intensive and, as a result, it can be…

Tags: 2021, BMJ Evidence-Based Medicine, Brown HL, Dewan T, Evidence-based Medicine, Grégoire MC, Hermansen AM, Humans, information science, Pawliuk C, Publications, Q3 Scoping Review, Research Design, Siden H, Steele R, Widger K

Librarian involvement in systematic reviews was associated with higher quality of reported search methods: a cross-sectional survey of authors from Vancouver, BC

Objectives
Systematic reviews (SRs) are considered the gold standard of evidence, but many published SRs are of poor quality. This study identifies how librarian involvement in SRs is associated with quality-reported methods and examines the lack of…

Browse Items (109 total)