Browse Items · Pediatric Palliative Care Library

A multicentre international study of sedation for uncontrolled symptoms in terminally ill patients

The issue of symptom management at the end of life and the need to use sedation has become a controversial topic. This debate has been intensified by the suggestion that sedation may correlate with 'slow euthanasia'. The need to have more facts and…

Adaptational process of parents of pediatric oncology patients

This study, based on grounded theory, explores the adaptational process of parents of pediatric oncology patients. Thirty-two Taiwanese parents (26 mothers and 6 fathers) were interviewed. Data were collected through individual in-depth and focus…

Adult education program in palliative care for nursing facility physicians: design and pilot test

Nursing facilities (NF) are important sites for the care of dying patients. Curricula likely to improve end-of-life care are needed for NF physicians. To this end, a model medical school palliative care curriculum was modified for experienced NF…

Air swallowing in Rett syndrome

The possible causes of excessive swallowing of air leading to bloating, which is common in Rett syndrome (RS), were investigated during feeding and at rest. Seven individuals with RS aged between 4 and 33 years (three with air bloat) underwent…

An assessment of gender differences in the perception of benefit resulting from the loss of a child.

The current study focused on a sample of adults (N = 67) experiencing bereavement following the loss of a child. The Post Traumatic Growth Inventory (PTGI) was used to assess whether bereaved parents were able to perceive benefit from their trauma,…

An evaluation of the Faces Pain Scale with young children

The psychometric characteristics of the Faces Pain Scale (FPS) were evaluated in three groups of preschool and school-aged children (3. 5-4.5; 4.5-5.5 and 5.5-6.5 years, respectively). The FPS was adequately comprehended by even young children. It…

Tags: 2000, Backlog, Cassey J, Child, Facial Expression, Female, Hennessy R, Humans, Hunter M, Journal Article, Journal of Pain and Symptom Management, Male, McDowell L, Non-U.S. Gov't, Pain Measurement/methods/psychology, Preschool, Reproducibility of Results, Research Support

Are special ethical guidelines needed for palliative care research?

Recent studies have made it clear that there are substantial opportunities to improve end-of-life care. Doing so will require solid evidence on which to base clinical and policy decisions and this, in turn, will require a focused research effort.…

Tags: 2000, Backlog, Biomedical and Behavioral Research, Casarett DJ, Death and Euthanasia, Ethics, Guidelines As Topic, Humans, Journal Article, Journal of Pain and Symptom Management, Karlawish J, Medical, Multi-site Ethics, Palliative Care/standards, Research

Assessing structure, process and outcome in palliative day care: a pilot study for a multicentre trial

Palliative day care is an expanding service which remains under-researched. Study designs need to be developed to evaluate the costs and outcomes of the service in ways which are meaningful to patients, clinicians and policy-makers. At the same time,…

Tags: 2000, Backlog, Douglas HR, Health And Social Care In The Community, Higginson IJ, Journal Article, Myers K, Normand C

Assumptive World Views and the Grief Reactions of Parents of Murdered Children

The World Assumptions Scale and the Revised Grief Experience Inventory was administered to parents of murdered children and parents bereaved by sudden accidental death. Compared to parents bereaved by accidents, parents bereaved by homicide showed…

Tags: 2000, Backlog, Journal Article, Marwit SJ, Omega, Spirituality, Wickie SK

Attitudes and beliefs of palliative care physicians regarding communication with terminally ill cancer patients.

The subject of communication between palliative care physicians and their patients regarding their diagnosis and prognosis has not been extensively researched. The purpose of this survey was to compare the attitudes and beliefs of palliative care…

Attitudes toward limitation of support in a pediatric intensive care unit

OBJECTIVE: To prospectively determine opinions of members of a pediatric intensive care unit (PICU) team regarding the appropriateness of aggressive care. The types of support that caregivers sought to limit and their reasons for wanting these limits…

Cachexia

Cachexia represents the clinical consequence of a chronic, systemic inflammatory response, and its manifestations differ considerably from those of starvation. Although cachexia is classically associated with chronic infections and malignant…

Tags: 2000, Acute-Phase Reaction/metabolism, Annals Of Internal Medicine, Backlog, Body Composition, Cachexia/etiology/metabolism/physiopathology/therapy, Cytokines/physiology, Energy Metabolism, Humans, Journal Article, Kotler DP, Nutrition Disorders/diagnosis, Starvation/physiopathology

Care of terminally ill children with cancer

Causal links between stressful events, coping style, and adolescent symptomatology

In a longitudinal study, the causal links between different types of stressors, coping styles and adolescent symptomatology were investigated. A total of 94 adolescents and their mothers participated in three annual assessments of critical life…

Tags: 2000, Adaptation, Adolescent, Adolescent Behavior/psychology, Backlog, Female, Follow-up Studies, Humans, Journal Article, Journal Of Adolescence, Life Change Events, Male, Prospective Studies, Psychological, Psychological/psychology, Seiffge-Krenke I, Stress

Challenge of pain in the cognitively impaired

2000

Tags: 2000, Abu-Saad HH, Backlog, Cognition Disorders/physiopathology, Cold/adverse effects, Down Syndrome/physiopathology, Human, Journal Article, Lancet, Pain Measurement, Pain/etiology/physiopathology, Reaction Time

Choices and control: parental experiences in pediatric terminal home care

During the past decade, palliative care at home has become an alternative option to hospital care for terminally ill children. This study describes the experience of caring for a dying child at home from a parent's perspective. A qualitative research…

Clinical problems with the performance of euthanasia and physician-assisted suicide in The Netherlands

BACKGROUND AND METHODS: The characteristics and frequency of clinical problems with the performance of euthanasia and physician-assisted suicide are uncertain. We analyzed data from two studies of euthanasia and physician-assisted suicide in The…

Communication breakdown in the outpatient referral process

Objective: To evaluate primary care and specialist physicians' satisfaction with interphysician communication and to identify the major problems in the current referral process. Design: Surveys were mailed to providers to determine satisfaction with…

Tags: 2000, Ambulatory Care, Backlog, Bates D, Communication, Consultation, Fairchild D, Franklin M, Gandhi T, Journal Article, Journal Of General Internal Medicine, Referral, Sittig D, Sussman A

Contextual influences on school provision of health services

PURPOSE: To examine contextual factors that may facilitate or impede the provision of school health services. METHODS: Using a composite database derived primarily from the National Longitudinal Study of Adolescent Health, we used logistic regression…

Coordination of speciality referrals and physician satisfaction with referral care

2000

Tags: 2000, Archives Of Pediatrics & Adolescent Medicine, Backlog, Baker A, Bocian A, Forrest C, Glade G, Journal Article, Starfield B, von Schrader S

Crisis intervention strategies when caring for families of children with cancer

A diagnosis of childhood cancer is an unexpected life event that often precipitates a situational crisis for all family members. Required cancer treatments and other ongoing stressors for both child and family will significantly disrupt the family's…

Tags: 2000, Adult, Backlog, Child, Crisis Intervention/methods, Family/psychology, Hendricks-Ferguson VL, Humans, Intervention, Interventions, Journal Article, Journal Of Pediatric Oncology Nursing, Neoplasms/nursing/psychology, Nursing Assessment/methods, Parent caregivers, Patient Care Planning, Professional-family Relations

Cudahy high school survey and focus groups: assessment of the needs of a teen population. A community-campus collaboration

Collaboration between local public health agencies and university schools of nursing can be advantageous to both parties. Students need opportunities to learn aggregate-based care; health officers need community partnerships that expand their…

Current concepts of respiratory complications of neuromuscular disease in children

Chronic neuromuscular diseases affect the respiratory muscles in varying patterns and degrees. As a result, patients with these disorders develop restrictive pulmonary disease, ineffective cough, atelectasis and pneumonia, and chronic respiratory…

Tags: 2000, Backlog, Child, Current Opinion In Pediatrics, Humans, Journal Article, Lung Diseases/diagnosis/etiology/therapy, Neuromuscular Diseases/complications/diagnosis/therapy, Prognosis, Respiratory Insufficiency/diagnosis/etiology/therapy, Schramm CM

Dimensions of the role of the social worker in palliative care

There has been very little research focusing on the role of the social worker in a specialist palliative care service. A qualitative research methodology was used which sought to capture the essence of that role, as perceived by those carrying it…

Tags: 2000, Anxiety/rehabilitation, Attitudes, Backlog, Great Britain, Health Knowledge, Humans, Journal Article, Judgment, Palliative Care/organization & Administration, Palliative Medicine, Practice, Professional Practice, Professional-family Relations, Questionnaires, Sheldon FM, Social Work/organization & administration

Doctors, nurses, and storytelling

2000

Tags: 2000, Backlog, Journal Article, Journal of Palliative Medicine, Weissman DE

Effect of severity of disability on survival in north east England cerebral palsy cohort

AIMS: To investigate the effect of motor and cognitive disabilities on the survival of people on the North of England Collaborative Cerebral Palsy Survey, and compare this with other published results. METHODS: The cerebral palsy cohort consists of…

End-of-life care in the pediatric intensive care unit after the forgoing of life-sustaining treatment

OBJECTIVE: To describe the attitudes and practice of clinicians in providing sedation and analgesia to dying patients as life-sustaining treatment is withdrawn. STUDY DESIGN: Prospective case series of 53 consecutive patients who died after the…

End-of-life decision-making and satisfaction with care: parental perspectives.

OBJECTIVES: To evaluate parents' perceptions of the process by which decisions are made to limit or withdraw life support from critically ill children, and to evaluate parents' perceptions of their child's death in the pediatric intensive care unit…

Tags: 2000, Backlog, ICU Decision Making, Journal Article, Longitudinal Studies, Meert KL, Pediatric Critical Care Medicine, Sarnaik AP, Thurston CS

End-of-life in the pediatric intensive care unit: seeking the family's decision of when and how, not if

2000

Tags: 2000, Backlog, Child, Critical Care Medicine, Death and Euthanasia, Decision Making, Family, Goldstein B, Humans, ICU Decision Making, Intensive Care Units, Journal Article, Merkens M, Pediatric, Terminal Care

Essential fatty acids in the nutrition of severely neurologically disabled children

Essential fatty acids (EFA) are important for the normal development and functioning of the brain, retina and immune competent cells. Severely neurologically handicapped children often have feeding difficulties, and the composition of the diet may be…

Evaluating treatment outcome in an interdisciplinary pediatric pain service

OBJECTIVE: To provide descriptive data evaluating outcome and treatment satisfaction among former pediatric patients and their parents seen in an interdisciplinary treatment program for complex pain syndromes. DESIGN: Retrospective telephone…

Tags: 2000, Backlog, Bellows D, Bennett S, Chambers C, Children, Court C, Huntsman E, Journal Article, Montgomery C, Oberlander T, Pain, Pain Research And Management, Sheriff M, Siden H, Therapeutics, Treatment Outcome

Evaluative research on palliative support teams: a literature review

Sixteen studies on the effectiveness of palliative support teams were analyzed. It was established that in most cases uncontrolled designs with repeated measurements were used. The assessment methods varied strongly. However, the Support Team…

Tags: 2000, Backlog, Evaluation Studies, Francke AL, Human, Journal Article, Palliative Care/st [standards], Patient Care Team/st [Standards], Patient Education and Counseling, Process Assessment (Health Care), Process Assessment (Health Care)/mt [Methods], Process Assessment (Health Care)/st [Standards]

Everyday pain responses in children with and without developmental delays

OBJECTIVE: To examine whether children with developmental delays respond to painful events differently than nondelayed children. METHODS: Sixty families participated. Children between the ages of 2 and 6 years were observed at daycare centers while…

Tags: 2000, Backlog, Craig K, Gilbert-Macleod C, Journal Article, Journal of Pediatric Psychology, Mathias M, Rocha E

Experiencing transitions: an emerging middle-range theory

Changes in health and illness of individuals create a process of transition, and clients in transition tend to be more vulnerable to risks that may in turn affect their health. Uncovering these risks may be enhanced by understanding the transition…

Extent and determinants of error in doctors' prognoses in terminally ill patients: prospective cohort study

OBJECTIVE: To describe doctors' prognostic accuracy in terminally ill patients and to evaluate the determinants of that accuracy. DESIGN: Prospective cohort study. SETTING: Five outpatient hospice programmes in Chicago. PARTICIPANTS: 343 doctors…

Tags: 2000, Backlog, Bmj, Christakis NA, Clinical Competence/standards, Cohort Studies, Human, Journal Article, Lamont EB, Male, Medical Errors/statistics & numerical data, Non-U.S. Gov't, Prognosis, Prospective Studies, Support, Survival Rate, Terminal Care/standards, Terminally Ill

Tags: 2000, Anand KJ, Backlog, Critical Care Medicine, Diseases/mortality/therapy, Health Policy, Humans, ICU Decision Making, Infant, Intensive Care Units/utilization, Journal Article, Newborn, Patient Readmission/statistics & numerical data, Premature, Survival Rate, Tilford JM

Browse Items (122 total)